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1109797

	registered interest
	date	04/04/2019
	answering body	Department of Health and Social Care
	answering dept id	17
	answering dept short name	Health and Social Care
	answering dept sort name	Health and Social Care
	hansard heading	Haemophilia
	house id	1
	legislature	25259 pref label House of Commons
	question text	To ask the Secretary of State for Health and Social Care, pursuant to the Answer of 13 March 2019 to Question 230073 on Haemophilia, if he will place copies in the library of National Haemophilia Database data on the average number of bleeds people with (a) mild, (b) moderate and (c) severe (i) Haemophilia A and (ii) Haemophilia B had in the latest year for which data is available.
	tabling member constituency	Kingston upon Hull North
	tabling member printed	Diana Johnson
	uin	240995
	answer	answer is ministerial correction date of answer 09/04/2019 answer text <p>Data on the average number of bleeds for people with severe haemophilia A and haemophilia B is shown in the following table.</p><table><tbody><tr><td rowspan="2"><p>Diagnosis</p></td><td rowspan="2"><p>Patients treated 2018<br> (number)</p></td><td colspan="3"><p>Bleed count 2018</p></td></tr><tr><td><p>Mean</p></td><td><p>Standard deviation</p></td><td><p>Median (interquartile range)</p></td></tr><tr><td><p>Severe Haemophilia A</p></td><td><p>1,553</p></td><td><p>4.1</p></td><td><p>8.2</p></td><td><p>1 (0 - 5)</p></td></tr><tr><td><p>Severe Haemophilia B</p></td><td><p>263</p></td><td><p>3.7</p></td><td><p>7.6</p></td><td><p>1 (0 - 4)</p></td></tr></tbody></table><p> </p><p>The National Haemophilia Database have very limited bleed-level data for patients with mild or moderate haemophilia, as these patients do not bleed frequently and therefore do not generally require home therapy. The non-severe patients using Haemtrack are skewed towards the severe end of moderate and anyone with zero bleeds is very unlikely to be reporting. For this reason, they have excluded non-severe patients from these results, as they would make the data unlikely to be robust.</p><p> </p><p>It should be noted that the following limitations apply to this data:</p><p> </p><p>1. The data is derived from patient-reported Haemtrack home therapy diary data.</p><p>2. The data is limited to patients who require home-therapy.</p><p>3. These results are prone to reporting bias since uncompliant patients and patients treated on-demand, treated only when they bleed, are under-represented in this sample. The data may therefore paint a slightly optimistic picture.</p><p>4. About 85-90% of clinically severely affected (less than 2% VIII/IX) patients are managed with regular prophylaxis to prevent bleeding. Prior to prophylaxis, patients treated on-demand bled between twice a week and once a fortnight and, as the figures show, the mean annualised bleed rate has been dramatically reduced to about four per year. However, our aim is for the patients to be bleed free, without which the joints will not be fully protected from bleeding.</p> answering member constituency South Ribble answering member printed Seema Kennedy question first answered 09/04/2019 14:43:25 answering member 4455 label Biography information for Seema Kennedy
	tabling member	1533 label Biography information for Dame Diana Johnson

1109799

	registered interest
	date	04/04/2019
	answering body	Department of Health and Social Care
	answering dept id	17
	answering dept short name	Health and Social Care
	answering dept sort name	Health and Social Care
	hansard heading	Haemophilia
	house id	1
	legislature	25259 pref label House of Commons
	question text	To ask the Secretary of State for Health and Social Care, pursuant to the Answer of 13 March 2019 to Question 230073 on Haemophilia, if he will place copies in the library of National Haemophilia Database data on the number and patients with (a) mild, (b) moderate and (c) severe (i) haemophilia A and (ii) haemophilia B by the number of bleeds they had in the most recent year for which data is available.
	tabling member constituency	Kingston upon Hull North
	tabling member printed	Diana Johnson
	uin	240996
	answer	answer is ministerial correction date of answer 09/04/2019 answer text <p>The data on the number of patients with severe haemophilia A and haemophilia B by the number of bleeds is attached.</p><p> </p><p>The National Haemophilia Database (NHD) have very limited bleed-level data for patients with mild or moderate haemophilia since these patients do not bleed frequently and do not generally require home therapy. The non-severe patients using Haemtrack are skewed towards the severe end of moderate and anyone with zero bleeds is very unlikely to be reporting. For this reason, the NHD have excluded non-severe patients from this data, as it makes the data unlikely to be robust.</p><p> </p><p>It should be noted that the following limitations apply to this data:</p><ol><li>The data are derived from patient-reported Haemtrack home therapy diary data.</li><li>The data is limited to patients who require home-therapy.</li><li>These results are prone to reporting bias since uncompliant patients and patients treated on-demand, treated only when they bleed, are under-represented in this sample. The data may therefore paint a slightly optimistic picture.</li><li>About 85-90% of clinically severely affected (less than 2% VIII/IX) patients are managed with regular prophylaxis to prevent bleeding. Prior to prophylaxis, patients treated on-demand bled between twice a week and once a fortnight and, as the figures show, the mean annualised bleed rate has been dramatically reduced to about four per year. However, our aim is for the patients to be bleed free, without which the joints will not be fully protected from bleeding.</li></ol> answering member constituency South Ribble answering member printed Seema Kennedy question first answered 09/04/2019 14:50:49 answering member 4455 label Biography information for Seema Kennedy attachment 1 file name Pq240996 - bleeds for severe haemophilia.xlsx title PQ240996 attached information
	tabling member	1533 label Biography information for Dame Diana Johnson

1109800

	registered interest
	date	04/04/2019
	answering body	Department of Health and Social Care
	answering dept id	17
	answering dept short name	Health and Social Care
	answering dept sort name	Health and Social Care
	hansard heading	Haemophilia
	house id	1
	legislature	25259 pref label House of Commons
	question text	To ask the Secretary of State for Health and Social Care, pursuant to the Answer of 13 March 2019 to Question 230073 on Haemophilia, if he will publish the number of patients with (a) mild, (b) moderate and (c) severe (i) haemophilia A and (ii) haemophilia B by (A) the number of bleeds they had in the most recent year for which data is available and (B) age groups (1) 0 to 18 and (2) over 18.
	tabling member constituency	Kingston upon Hull North
	tabling member printed	Diana Johnson
	uin	240997
	answer	answer is ministerial correction date of answer 09/04/2019 answer text <p>The number of patients with severe haemophilia A and haemophilia B for 2018 by the number of bleeds they had and age groups 0 to 18 and over 18, is attached.</p><p> </p><p>The National Haemophilia Database (NHD) have very limited bleed-level data for patients with mild or moderate haemophilia who do not bleed frequently and do not generally require home therapy. The non-severe patients using Haemtrack are skewed towards the severe end of moderate and anyone with zero bleeds is very unlikely to be reporting. For this reason, the NHD have excluded non-severe patients from these results, as it makes the data unlikely to be robust.</p><p> </p><p>It should be noted that the following limitations apply to this data:</p><p>1. The data is derived from patient-reported Haemtrack home therapy diary data.</p><p>2. The data is limited to patients who require home-therapy.</p><p>3. These results are prone to reporting bias since uncompliant patients and patients treated on-demand, treated only when they bleed, are under-represented in this sample. The data may therefore paint a slightly optimistic picture.</p><p>4. About 85-90% of clinically severely affected (less than 2% VIII/IX) patients are managed with regular prophylaxis to prevent bleeding. Prior to prophylaxis, patients treated on-demand bled between twice a week and once a fortnight and, as the figures show, the mean annualised bleed rate has been dramatically reduced to about four per year. However, our aim is for the patients to be bleed free, without which the joints will not be fully protected from bleeding.</p> answering member constituency South Ribble answering member printed Seema Kennedy question first answered 09/04/2019 14:59:08 answering member 4455 label Biography information for Seema Kennedy attachment 1 file name PQ240997 - data by age.xlsx title PQ240997 attached data
	tabling member	1533 label Biography information for Dame Diana Johnson

1109801

	registered interest
	date	04/04/2019
	answering body	Department for Business, Energy and Industrial Strategy
	answering dept id	201
	answering dept short name	Business, Energy and Industrial Strategy
	answering dept sort name	Business, Energy and Industrial Strategy
	hansard heading	Paternity Leave
	house id	1
	legislature	25259 pref label House of Commons
	question text	To ask the Secretary of State for Business, Energy and Industrial Strategy, whether his Department plans to increase statutory paid paternity leave from two weeks.
	tabling member constituency	Kingston upon Hull North
	tabling member printed	Diana Johnson
	uin	240998
	answer	answer is ministerial correction date of answer 09/04/2019 answer text <p>The Department for Business, Energy and Industrial Strategy is currently carrying out an evaluation of the Shared Parental Leave and Pay scheme, collecting and analysing information from a variety of sources, including a large scale survey of around 4,500 parents.</p><p> </p><p>This will provide information on various entitlements to family-related time off work, including Paternity Leave and Pay. We expect to report on the findings of the evaluation later this year.</p> answering member constituency Rochester and Strood answering member printed Kelly Tolhurst question first answered 09/04/2019 16:01:16 answering member 4487 label Biography information for Kelly Tolhurst
	tabling member	1533 label Biography information for Dame Diana Johnson

1109802

	registered interest
	date	04/04/2019
	answering body	Department of Health and Social Care
	answering dept id	17
	answering dept short name	Health and Social Care
	answering dept sort name	Health and Social Care
	hansard heading	Postnatal Depression: Fathers
	house id	1
	legislature	25259 pref label House of Commons
	question text	To ask the Secretary of State for Health and Social Care, what steps his Department is taking to support fathers with paternal depression.
	tabling member constituency	Kingston upon Hull North
	tabling member printed	Diana Johnson
	uin	240999
	answer	answer is ministerial correction date of answer 09/04/2019 answer text <p>The Department recognises that becoming a parent can have significant impact on an individual’s mental health. NHS England has invested in better perinatal mental health care for new and expectant mothers, with at least 9,000 additional women receiving treatment last year. This is significant progress against the target set out in the Five Year Forward View for Mental Health for at least 30,000 additional women each year to access evidence-based specialist perinatal mental health treatment.</p><p> </p><p>The NHS Long Term Plan commits to extend this support, including by offering fathers and partners of women accessing specialist perinatal mental health services and maternity outreach clinics evidence-based assessment for their mental health and signposting to support as required. This will contribute to helping to care for the 5-10% of fathers who experience mental health difficulties during the perinatal period.</p><p> </p><p>Parents are also able to access care and support, including talking therapies or specific community mental health support, the same as any other patient group.</p> answering member constituency Thurrock answering member printed Jackie Doyle-Price question first answered 09/04/2019 15:19:48 answering member 4065 label Biography information for Dame Jackie Doyle-Price
	tabling member	1533 label Biography information for Dame Diana Johnson