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1138889

	registered interest
	date	15/07/2019
	answering body	Department of Health and Social Care
	answering dept id	17
	answering dept short name	Health and Social Care
	answering dept sort name	Health and Social Care
	hansard heading	Sickle Cell Diseases: Health Services
	house id	1
	legislature	25259 pref label House of Commons
	question text	To ask the Secretary of State for Health and Social Care, pursuant to the Answer of 23 May 2019 to Question 256313, which services (a) NHS England, (b) clinical commissioning groups and (c) other public bodies commission for sickle cell disease patients with (i) stroke, (ii) chronic kidney disease, (iii) end-stage renal disease and (iv) pulmonary hypertension; and what the annual per capita cost is of providing each of those services.
	tabling member constituency	Kingston upon Hull North
	tabling member printed	Diana Johnson
	uin	277138
	answer	answer is ministerial correction date of answer 19/07/2019 answer text <p>NHS England does not commission separate services for sickle cell patients with stroke, chronic kidney disease, end-stage renal disease or pulmonary hypertension and so cannot provide annual per capita costs. These services are commissioned on behalf of all patients that require them, which would include people living with sickle cell disease.</p><p>NHS England has recently undertaken a review of haemoglobinopathy services to ensure that patients living with conditions such as sickle cell disease are able to access the high-quality services they need for their condition across the country. NHS England is now commissioning a networked-based model of care for specialised haemoglobinopathy services which will included specialist haemoglobinopathy teams across the country, regional haemoglobinopathy coordination centres and a National Haemoglobinopathy Panel. The new model will enable advice to be provided to local clinicians on the management of patients with sickle cell disease 24 hours a day, seven days a week. Haemoglobinopathy coordination centres will organise and run networks for sickle cell disease, providing leadership and education for local services.</p><p><strong> </strong></p><p><strong> </strong></p><p><strong> </strong></p> answering member constituency South Ribble answering member printed Seema Kennedy question first answered 19/07/2019 09:45:39 answering member 4455 label Biography information for Seema Kennedy
	tabling member	1533 label Biography information for Dame Diana Johnson

1137750

	registered interest
	date	09/07/2019
	answering body	Department of Health and Social Care
	answering dept id	17
	answering dept short name	Health and Social Care
	answering dept sort name	Health and Social Care
	hansard heading	Cancer: Health Services
	house id	1
	legislature	25259 pref label House of Commons
	question text	To ask the Secretary of State for Health and Social Care, what discussions (a) Sustainability and Transformation Partnerships and (b) Integrated Care Systems have had with Cancer Alliances to refine planning and prioritisation for the delivery of the cancer commitments within the NHS Long-Term Plan.
	tabling member constituency	Kingston upon Hull North
	tabling member printed	Diana Johnson
	uin	275164
	answer	answer is ministerial correction date of answer 15/07/2019 answer text <p>As set out in the NHS Long Term Plan Implementation Framework, local systems, including sustainability and transformation partnerships and integrated care systems, should engage with their Cancer Alliances to set out practically how they will deliver the Long Term Plan commitments for cancer over the next five years including on early diagnosis and survival, while improving operational performance.</p> answering member constituency South Ribble answering member printed Seema Kennedy question first answered 15/07/2019 16:35:54 answering member 4455 label Biography information for Seema Kennedy
	tabling member	1533 label Biography information for Dame Diana Johnson

1128812

	registered interest
	date	03/06/2019
	answering body	Department of Health and Social Care
	answering dept id	17
	answering dept short name	Health and Social Care
	answering dept sort name	Health and Social Care
	hansard heading	Sickle Cell Diseases: Health Services
	house id	1
	legislature	25259 pref label House of Commons
	question text	To ask the Secretary of State for Health and Social Care, what recent assessment his Department has made of potential levels of inequality in (a) the life expectancy and (b) NHS service provision for patients with sickle cell disease compared to other NHS patients.
	tabling member constituency	Kingston upon Hull North
	tabling member printed	Diana Johnson
	uin	259466
	answer	answer is ministerial correction date of answer 06/06/2019 answer text <p>Evidence suggests that life expectancy for people with sickle cell disease is improving. This is due to a number of factors including:</p><p>- Improved newborn screening coverage to enable earlier diagnosis;</p><p>- Use of the National Haemoglobinopathy Registry to monitor individuals’ health, treatment and their annual reviews;</p><p>- Access to specific diagnostics and medication, such as hydroxyurea; and</p><p>- A Commissioning for Quality and Innovation (CQUIN) incentive has been in place for the last two years to improve access to apheresis for individuals with sickle cell disease.</p><p>All these factors are reflected in the service specification quality indicators which providers are required to report against so that implementation can be monitored.</p><p>It is anticipated that NHS England’s new model for specialised haemoglobinopathy services will be in place by early 2020. The new model is designed to improve access to specialist advice and care for patients, irrespective of where they live. The equality impact assessment on the new service model indicates that it will advance the promotion of equality and support the further reduction of health inequalities. This will be through ensuring that patients with thalassemia and sickle cell conditions have equitable access to high quality specialist care and support within specialised commissioned centres irrespective of where in the country they live. These centres will promote best practice in service delivery.</p> answering member constituency South Ribble answering member printed Seema Kennedy question first answered 06/06/2019 13:13:01 answering member 4455 label Biography information for Seema Kennedy
	tabling member	1533 label Biography information for Dame Diana Johnson

1129387

	registered interest
	date	03/06/2019
	answering body	Department of Health and Social Care
	answering dept id	17
	answering dept short name	Health and Social Care
	answering dept sort name	Health and Social Care
	hansard heading	Gonorrhoea: Antimicrobials
	house id	1
	legislature	25259 pref label House of Commons
	question text	To ask the Secretary of State for Health and Social Care, what steps his Department is taking to address antimicrobial resistance in gonorrhoea.
	tabling member constituency	Kingston upon Hull North
	tabling member printed	Diana Johnson
	uin	259111
	answer	answer is ministerial correction date of answer 11/06/2019 answer text <p>Public Health England (PHE) undertakes comprehensive surveillance through the gonococcal resistance to antimicrobials surveillance programme (GRASP) to enable early detection and management of antibiotic resistance in gonorrhoea and uses this intelligence to advise on national gonorrhoea treatment guidelines and ensure they remain effective. PHE also investigates outbreaks and individual cases of extensively drug resistant gonorrhoea and potential treatment failures to ensure effective management and control spread. Further information can be found at the following link:</p><p><a href="https://www.gov.uk/government/publications/gonococcal-resistance-to-antimicrobials-surveillance-programme-grasp-report" target="_blank">https://www.gov.uk/government/publications/gonococcal-resistance-to-antimicrobials-surveillance-programme-grasp-report</a></p> answering member constituency South Ribble answering member printed Seema Kennedy question first answered 11/06/2019 15:31:52 answering member 4455 label Biography information for Seema Kennedy
	tabling member	1533 label Biography information for Dame Diana Johnson

1129388

	registered interest
	date	03/06/2019
	answering body	Department of Health and Social Care
	answering dept id	17
	answering dept short name	Health and Social Care
	answering dept sort name	Health and Social Care
	hansard heading	Contraceptives
	house id	1
	legislature	25259 pref label House of Commons
	question text	To ask the Secretary of State for Health and Social Care, what plans his Department has to promote the uptake of long-acting reversible contraception methods.
	tabling member constituency	Kingston upon Hull North
	tabling member printed	Diana Johnson
	uin	259467
	answer	answer is ministerial correction date of answer 06/06/2019 answer text <p>A wide range of contraceptive choices, including long-acting reversible contraception (LARC), are available free of charge in a range of primary and community venues and local authorities are mandated to provide reasonable access to all methods of contraception. The proportion of women attending sexual and reproductive health services who use LARC methods has been steadily rising over the last ten years. The Department will work with Public Health England to consider what more we can do to ensure that all women have access to the full range of contraception.</p><p><strong> </strong></p><p><strong> </strong></p><p> </p><p> </p><p> </p> answering member constituency South Ribble answering member printed Seema Kennedy question first answered 06/06/2019 13:19:12 answering member 4455 label Biography information for Seema Kennedy
	tabling member	1533 label Biography information for Dame Diana Johnson

1129389

	registered interest
	date	03/06/2019
	answering body	Department of Health and Social Care
	answering dept id	17
	answering dept short name	Health and Social Care
	answering dept sort name	Health and Social Care
	hansard heading	Genito-urinary Medicine: Expenditure
	house id	1
	legislature	25259 pref label House of Commons
	question text	To ask the Secretary of State for Health and Social Care, what steps his Department is taking to ensure that spending on sexual health services reflects local levels of need.
	tabling member constituency	Kingston upon Hull North
	tabling member printed	Diana Johnson
	uin	259112
	answer	answer is ministerial correction date of answer 06/06/2019 answer text <p>The Government has mandated local authorities to commission comprehensive open access sexual health services, including free sexually transmitted infection testing and treatment, and notification of sexual partners of infected persons.</p><p>The precise level of spending on sexual health services is a matter for individual local authorities, reflecting local need.</p><p> </p> answering member constituency South Ribble answering member printed Seema Kennedy question first answered 06/06/2019 13:15:28 answering member 4455 label Biography information for Seema Kennedy
	tabling member	1533 label Biography information for Dame Diana Johnson

1129390

	registered interest
	date	03/06/2019
	answering body	Department of Health and Social Care
	answering dept id	17
	answering dept short name	Health and Social Care
	answering dept sort name	Health and Social Care
	hansard heading	Sexually Transmitted Infections
	house id	1
	legislature	25259 pref label House of Commons
	question text	To ask the Secretary of State for Health and Social Care, what steps his Department is taking to tackle the rising incidence of (a) syphilis and (b) gonorrhoea.
	tabling member constituency	Kingston upon Hull North
	tabling member printed	Diana Johnson
	uin	259113
	answer	answer is ministerial correction date of answer 06/06/2019 answer text <p>In June 2019, Public Health England (PHE) published a Syphilis Action Plan, to improve detection, surveillance and clinical management at the following link:</p><p><a href="https://www.gov.uk/government/publications/syphilis-public-health-england-action-plan" target="_blank">https://www.gov.uk/government/publications/syphilis-public-health-england-action-plan</a></p><p>To reduce the transmission of sexually transmitted infections (STIs), including gonorrhoea and syphilis, PHE launched the ‘Protect Against STIs’ health promotion campaign in 2017/18 to promote condom use and positive sexual relationships among 16 to 24-year olds. This campaign can be viewed at the following link:</p><p><a href="https://www.nhs.uk/protect-against-stis-use-a-condom/home" target="_blank">https://www.nhs.uk/protect-against-stis-use-a-condom/home</a></p><p>Additionally, HIV Prevention England has been contracted to deliver a HIV prevention programme aimed at men who have sex with men, black Africans and other groups in whom there is a higher or emerging burden of infection. This programme promotes, among other behaviours, condom use and awareness of STIs including gonorrhoea and syphilis. More information on this programme can be found at the following link:</p><p><a href="http://www.hivpreventionengland.org.uk/" target="_blank">http://www.hivpreventionengland.org.uk/</a></p> answering member constituency South Ribble answering member printed Seema Kennedy question first answered 06/06/2019 13:16:41 answering member 4455 label Biography information for Seema Kennedy
	tabling member	1533 label Biography information for Dame Diana Johnson

1128423

	registered interest
	date	22/05/2019
	answering body	Department of Health and Social Care
	answering dept id	17
	answering dept short name	Health and Social Care
	answering dept sort name	Health and Social Care
	hansard heading	Sickle Cell Diseases: Life Expectancy
	house id	1
	legislature	25259 pref label House of Commons
	question text	To ask the Secretary of State for Health and Social Care, what assessment he has made of trends in the life expectancy of patients with sickle cell disease since 2000; and what steps he is taking to increase life expectancy for people suffering from that disease.
	tabling member constituency	Kingston upon Hull North
	tabling member printed	Diana Johnson
	uin	257501
	answer	answer is ministerial correction date of answer 05/06/2019 answer text <p>Evidence suggests that life expectancy for people with sickle cell disease is improving. This is due to a number of factors including;</p><p>- Improved new born screening coverage to enable earlier diagnosis;</p><p>- Use of the National Haemoglobinopathy Registry to monitor individuals’ health, treatment and their annual reviews;</p><p>- Access to specific diagnostics and medication, such as hydroxyurea; and</p><p>- A Commissioning for Quality and Innovation incentive has been in place for the last two years to improve access to apheresis for individuals with sickle cell disease.</p><p>These factors are reflected in NHS England’s service specification quality indicators which providers are required to report against so that implementation can be monitored.</p> answering member constituency South Ribble answering member printed Seema Kennedy question first answered 05/06/2019 14:30:29 answering member 4455 label Biography information for Seema Kennedy
	tabling member	1533 label Biography information for Dame Diana Johnson

1128425

	registered interest
	date	22/05/2019
	answering body	Department of Health and Social Care
	answering dept id	17
	answering dept short name	Health and Social Care
	answering dept sort name	Health and Social Care
	hansard heading	Pancreatitis
	house id	1
	legislature	25259 pref label House of Commons
	question text	To ask the Secretary of State for Health and Social Care, what recent estimate he has made of the number of people living with a diagnosis of chronic pancreatitis.
	tabling member constituency	Kingston upon Hull North
	tabling member printed	Diana Johnson
	uin	257503
	answer	answer is ministerial correction date of answer 05/06/2019 answer text <p>No estimate has been made. However, the National Institute for Health and Care Excellence (NICE), in its guidance ‘Pancreatitis’, published September 2018, states that the annual incidence of chronic pancreatitis in western Europe is about five cases per 100,000 people. The male to female ratio is 7:1 and the average age of onset is between 36 and 55. The NICE guideline can be found at the following link:</p><p><a href="http://www.nice.org.uk/guidance/ng104" target="_blank">www.nice.org.uk/guidance/ng104</a></p> answering member constituency South Ribble answering member printed Seema Kennedy question first answered 05/06/2019 14:16:47 answering member 4455 label Biography information for Seema Kennedy
	tabling member	1533 label Biography information for Dame Diana Johnson

1127754

	registered interest
	date	21/05/2019
	answering body	Department of Health and Social Care
	answering dept id	17
	answering dept short name	Health and Social Care
	answering dept sort name	Health and Social Care
	hansard heading	Blood Diseases: Health Services
	house id	1
	legislature	25259 pref label House of Commons
	question text	To ask the Secretary of State for Health and Social Care, what his timescale is for (a) implementing and (b) completing NHS England’s planned restructuring of haemoglobinopathy services; and if he will make a statement.
	tabling member constituency	Kingston upon Hull North
	tabling member printed	Diana Johnson
	uin	256972
	answer	answer is ministerial correction date of answer 04/06/2019 answer text <p>It is anticipated that NHS England’s new model for specialised haemoglobinopathy services will be in place by early 2020. The new model is designed to improve access to specialist advice and care for patients, irrespective of where they live.</p><p>As part of the new service, NHS England is establishing a National Haemoglobinopathy Panel to provide national multidisciplinary oversight. Patients with complex needs, wherever they live, will be able to be referred to the Panel for expert advice on new treatments and approaches to care. The national service specification will also include guidance for the 13 new born bloodspot screening programme laboratories to refer infants found to be positive for sickle cell disease to the 10 new specialised haemoglobinopathy teams. Whilst NHS England commissions the specialised aspect of haemoglobinopathy care, haemoglobinopathy coordinating centres will be encouraged to link with and support community-based services provided through primary care or community teams based within haemoglobinopathy teams.</p><p>The service specifications for the new specialised haemoglobinopathy teams and the haemoglobinopathy coordinating centres are due to be established in the next month and the associated impact assessment will be published as part of the suite of documents. The equality impact assessment indicates that it will advance the promotion of equality and support the reduction of health inequalities. For example, patients with thalassemia and sickle cell conditions will have equitable access to high quality specialist care and support within specialised commissioned centres irrespective of where in the country they live.</p><p>Hospital Episode Statistics data is attached, showing finished admission episodes with a primary and a primary or secondary diagnosis of sickle cell disorders by NHS England region of residence and Index of Multiple Deprivation decile in the year 2017-18.</p> answering member constituency South Ribble answering member printed Seema Kennedy grouped question UIN 256973 256974 257011 question first answered 04/06/2019 16:13:21 answering member 4455 label Biography information for Seema Kennedy attachment 1 file name Data Table for Combined Diana Johnson PQs (257011) formatted.xlsx title FAE sickle cell NHS England table
	tabling member	1533 label Biography information for Dame Diana Johnson