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1663486

	registered interest
	date	13/10/2023
	answering body	Department of Health and Social Care
	answering dept id	17
	answering dept short name	Health and Social Care
	answering dept sort name	Health and Social Care
	hansard heading	Haemochromatosis
	house id	1
	legislature	25259 pref label House of Commons
	question text	To ask the Secretary of State for Health and Social Care, what assessment his Department has made of the adequacy of the scope of draft NICE guidelines on haemochromatosis with regards to (a) known forms of haemochromatosis and (b) pathogenic variants attributable to other genetic mutations associated with iron overload.
	tabling member constituency	Bath
	tabling member printed	Wera Hobhouse
	uin	201340
	answer	answer is ministerial correction date of answer 18/10/2023 answer text <p>The Department has made no such assessment. The National Institute for Health and Care Excellence (NICE) reviewed its guidelines portfolio in May 2023 to identify topics that it thinks will add the most value to the health and care system, considering key factors such as clinical benefit, cost effectiveness, the potential to increase productivity and support workforce issues and the potential to address health inequalities. As a result, NICE identified several topics, including the guidance on haemochromatosis, where work will stop for the time being to allow focus on key priorities. NICE consulted on the scope for the guideline on haemochromatosis in January 2023 but has not published the final scope.</p><p>These topics will be reconsidered by NICE’s new Prioritisation Board that is being established by its Chief Medical Officer, and as work to establish the prioritisation board progresses, more information on timescales will become available. NICE will make further information available on its website once topics have been reprioritised.</p> answering member constituency Colchester answering member printed Will Quince grouped question UIN 201341 question first answered 18/10/2023 15:43:47 answering member 4423 label Biography information for Will Quince
	tabling member	4602 label Biography information for Wera Hobhouse

1663487

	registered interest
	date	13/10/2023
	answering body	Department of Health and Social Care
	answering dept id	17
	answering dept short name	Health and Social Care
	answering dept sort name	Health and Social Care
	hansard heading	Haemochromatosis
	house id	1
	legislature	25259 pref label House of Commons
	question text	To ask the Secretary of State for Health and Social Care, what information his Department holds on the reasons for which the drafting process for NICE guidelines on haemochromatosis was paused in April 2023.
	tabling member constituency	Bath
	tabling member printed	Wera Hobhouse
	uin	201341
	answer	answer is ministerial correction date of answer 18/10/2023 answer text <p>The Department has made no such assessment. The National Institute for Health and Care Excellence (NICE) reviewed its guidelines portfolio in May 2023 to identify topics that it thinks will add the most value to the health and care system, considering key factors such as clinical benefit, cost effectiveness, the potential to increase productivity and support workforce issues and the potential to address health inequalities. As a result, NICE identified several topics, including the guidance on haemochromatosis, where work will stop for the time being to allow focus on key priorities. NICE consulted on the scope for the guideline on haemochromatosis in January 2023 but has not published the final scope.</p><p>These topics will be reconsidered by NICE’s new Prioritisation Board that is being established by its Chief Medical Officer, and as work to establish the prioritisation board progresses, more information on timescales will become available. NICE will make further information available on its website once topics have been reprioritised.</p> answering member constituency Colchester answering member printed Will Quince grouped question UIN 201340 question first answered 18/10/2023 15:43:47 answering member 4423 label Biography information for Will Quince
	tabling member	4602 label Biography information for Wera Hobhouse