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1629136

	registered interest
	date	19/05/2023
	answering body	Department of Health and Social Care
	answering dept id	17
	answering dept short name	Health and Social Care
	answering dept sort name	Health and Social Care
	hansard heading	Rheumatology: Health Professions
	house id	1
	legislature	25259 pref label House of Commons
	question text	To ask the Secretary of State for Health and Social Care, whether he plans to take steps to increase the number of (a) rheumatology consultants and (b) rheumatology clinical nurse specialists in the NHS Long Term Workforce Plan.
	tabling member constituency	Bootle
	tabling member printed	Peter Dowd
	uin	185974
	answer	answer is ministerial correction date of answer 08/06/2023 answer text <p>As of January 2023, there were 694 full-time equivalent consultants working in the rheumatology specialism in National Health Service trusts and commissioning bodies in England. This is an increase of 19 since last year. We do not hold data for paediatric rheumatology and clinical nurse specialists.</p><p>To support the workforce as a whole we have commissioned NHS England to develop a long-term plan for the next 15 years. This plan will help ensure that we have the right numbers of staff, with the right skills, to transform and deliver high quality services fit for the future.</p> answering member constituency Colchester answering member printed Will Quince grouped question UIN 185977 question first answered 08/06/2023 10:26:09 answering member 4423 label Biography information for Will Quince
	tabling member	4397 label Biography information for Peter Dowd

1629139

	registered interest
	date	19/05/2023
	answering body	Department of Health and Social Care
	answering dept id	17
	answering dept short name	Health and Social Care
	answering dept sort name	Health and Social Care
	hansard heading	Rheumatology: Paediatrics
	house id	1
	legislature	25259 pref label House of Commons
	question text	To ask the Secretary of State for Health and Social Care, whether he plans to take steps to increase the number of paediatric rheumatology (a) consultants and (b) clinical nurse specialists in the NHS Long Term Workforce Plan.
	tabling member constituency	Bootle
	tabling member printed	Peter Dowd
	uin	185977
	answer	answer is ministerial correction date of answer 08/06/2023 answer text <p>As of January 2023, there were 694 full-time equivalent consultants working in the rheumatology specialism in National Health Service trusts and commissioning bodies in England. This is an increase of 19 since last year. We do not hold data for paediatric rheumatology and clinical nurse specialists.</p><p>To support the workforce as a whole we have commissioned NHS England to develop a long-term plan for the next 15 years. This plan will help ensure that we have the right numbers of staff, with the right skills, to transform and deliver high quality services fit for the future.</p> answering member constituency Colchester answering member printed Will Quince grouped question UIN 185974 question first answered 08/06/2023 10:26:09 answering member 4423 label Biography information for Will Quince
	tabling member	4397 label Biography information for Peter Dowd

1654048

	registered interest
	date	18/07/2023
	answering body	Department of Health and Social Care
	answering dept id	17
	answering dept short name	Health and Social Care
	answering dept sort name	Health and Social Care
	hansard heading	Spinal Muscular Atrophy: Babies
	house id	1
	legislature	25259 pref label House of Commons
	question text	To ask the Secretary of State for Health and Social Care, whether the UK National Screening Committee has had recent discussions with (a) patient organisations, (b) patients and (c) families affected by spinal muscular atrophy (SMA) as part of its review of incorporating SMA within the NHS newborn screening programme.
	tabling member constituency	Bootle
	tabling member printed	Peter Dowd
	uin	194877
	answer	answer is ministerial correction date of answer 21/07/2023 answer text <p>As part of the UK National Screening Committee’s (UK NSC) work to review newborn screening for Spinal Muscular Atrophy (SMA), the UK NSC secretariat has held multiple stakeholder engagement activities where stakeholders have helped formulate evidence work.</p><p>The UK NSC last met with the SMA Alliance earlier in July and responded recently to correspondence about screening for SMA. The UK NSC will continue to actively engage with patient organisations and provide updates as far as is possible within the bounds of the published process of the UK NSC as an independent scientific advisory committee.</p> answering member constituency Colchester answering member printed Will Quince question first answered 21/07/2023 12:47:11 answering member 4423 label Biography information for Will Quince
	tabling member	4397 label Biography information for Peter Dowd

1629144

	registered interest
	date	19/05/2023
	answering body	Department of Health and Social Care
	answering dept id	17
	answering dept short name	Health and Social Care
	answering dept sort name	Health and Social Care
	hansard heading	Rheumatology: Staff
	house id	1
	legislature	25259 pref label House of Commons
	question text	To ask the Secretary of State for Health and Social Care, whether he is taking steps to increase the number of NHS staff providing rheumatology care in (a) Merseyside and Cheshire Integrated Care System area and (b) England.
	tabling member constituency	Bootle
	tabling member printed	Peter Dowd
	uin	185982
	answer	answer is ministerial correction date of answer 08/06/2023 answer text <p>Cheshire and Merseyside’s elective recovery programme is reviewing workforce gaps, priorities and the actions required to ensure safe and appropriately skilled workforce across several pathways, including rheumatology.</p> answering member constituency Colchester answering member printed Will Quince question first answered 08/06/2023 10:33:15 answering member 4423 label Biography information for Will Quince
	tabling member	4397 label Biography information for Peter Dowd

1602956

	registered interest
	date	09/03/2023
	answering body	Department of Health and Social Care
	answering dept id	17
	answering dept short name	Health and Social Care
	answering dept sort name	Health and Social Care
	hansard heading	Health Services: Waiting Lists
	house id	1
	legislature	25259 pref label House of Commons
	question text	To ask the Secretary of State for Health and Social Care, whether the Government is on track to deliver the 18 month target within the elective recovery plan.
	tabling member constituency	Bootle
	tabling member printed	Peter Dowd
	uin	162205
	answer	answer is ministerial correction date of answer 16/03/2023 answer text <p>Cutting waiting lists is one of the Government’s top priorities. All efforts are being made to deliver the next long wait ambition by April 2023, eliminating waits of 18 months or more for treatment. Thanks to incredible National Health Service staff, the total number of patients waiting more than 18 months went down more than two thirds from its peak of 123,969 in September 2021 by February 2023. Over 70 NHS trusts in England now have fewer than 100 patients waiting more than a year and a half, ahead of the target to virtually eliminate these by April.</p> answering member constituency Colchester answering member printed Will Quince question first answered 16/03/2023 13:28:34 answering member 4423 label Biography information for Will Quince
	tabling member	4397 label Biography information for Peter Dowd

1520493

	registered interest
	date	11/10/2022
	answering body	Department of Health and Social Care
	answering dept id	17
	answering dept short name	Health and Social Care
	answering dept sort name	Health and Social Care
	hansard heading	Rare Diseases: Health Services
	house id	1
	legislature	25259 pref label House of Commons
	question text	To ask the Secretary of State for Health and Social Care, how many applications have been made to form Rare Disease Collaborative Networks in the last 12 months.
	tabling member constituency	Bootle
	tabling member printed	Peter Dowd
	uin	61165
	answer	answer is ministerial correction date of answer 18/10/2022 answer text <p>Five applications for Rare Disease Collaborative Networks were received and approved in the last 12 months.</p> answering member constituency Colchester answering member printed Will Quince question first answered 18/10/2022 15:50:09 answering member 4423 label Biography information for Will Quince previous answer version 23304 answering member constituency Colchester answering member printed Will Quince answering member 4423 label Biography information for Will Quince
	tabling member	4397 label Biography information for Peter Dowd

1654056

	registered interest
	date	18/07/2023
	answering body	Department of Health and Social Care
	answering dept id	17
	answering dept short name	Health and Social Care
	answering dept sort name	Health and Social Care
	hansard heading	Rare Diseases: Diagnosis
	house id	1
	legislature	25259 pref label House of Commons
	question text	To ask the Secretary of State for Health and Social Care, with reference to his Department's policy paper entitled England Rare Diseases Action Plan 2023: main report, updated on 10 July 2023, what steps his Department is taking to end the diagnostic odyssey experienced by people with rare diseases.
	tabling member constituency	Bootle
	tabling member printed	Peter Dowd
	uin	194885
	answer	answer is ministerial correction date of answer 21/07/2023 answer text <p>Helping patients get a final diagnosis faster is one of the four priorities of the 2021 UK Rare Diseases Framework, and we have committed to several actions to address this priority. For example, in the 2023 England Rare Diseases Action Plan we committed to commissioning policy research through a National Institute for Health and Care Research open call, inviting researchers to develop an effective method for measuring the time to diagnosis for both genetic and non-genetic rare conditions, with input from the rare diseases community. This will allow us to establish a baseline time to diagnosis, understand the effects of policy interventions on length of the diagnostic odyssey and provide a basis for working with the National Health Service to identify and address challenges in delivering diagnoses faster.</p> answering member constituency Colchester answering member printed Will Quince question first answered 21/07/2023 12:58:33 answering member 4423 label Biography information for Will Quince
	tabling member	4397 label Biography information for Peter Dowd

1656168

	registered interest
	date	01/09/2023
	answering body	Department of Health and Social Care
	answering dept id	17
	answering dept short name	Health and Social Care
	answering dept sort name	Health and Social Care
	hansard heading	Spinal Muscular Atrophy: Screening
	house id	1
	legislature	25259 pref label House of Commons
	question text	To ask the Secretary of State for Health and Social Care, whether he plans to meet with the UK National Screening Committee to discuss the timescale for implementing an in-service evaluation for spinal muscular atrophy screening in the NHS.
	tabling member constituency	Bootle
	tabling member printed	Peter Dowd
	uin	196161
	answer	answer is ministerial correction date of answer 06/09/2023 answer text <p>In June 2023, the UK National Screening Committee (UK NSC) recommended that a modelling study be carried out alongside an in-service evaluation of spinal muscular atrophy (SMA) screening in the National Health Service. Around 70 babies a year are born with SMA in the United Kingdom (around 1 in every 10,000 live births), with approximately 60% of those having type 1 SMA (SMA1).</p><p> </p><p>The new model will help define important issues for the in-service evaluation, while the evaluation will be used to collect data to feed into the model and test its assumptions. This important work will give the UK NSC the evidence it needs to assess how newborn screening for SMA might work safely in the UK.</p><p> </p><p>Work is still in the planning stages therefore timescales are not established yet. The UK NSC will keep ministers informed, and the public up to date on progress via its blog and ongoing stakeholder engagement.</p> answering member constituency Colchester answering member printed Will Quince grouped question UIN 196162 196166 196168 196170 question first answered 06/09/2023 13:58:18 answering member 4423 label Biography information for Will Quince
	tabling member	4397 label Biography information for Peter Dowd

1656169

	registered interest
	date	01/09/2023
	answering body	Department of Health and Social Care
	answering dept id	17
	answering dept short name	Health and Social Care
	answering dept sort name	Health and Social Care
	hansard heading	Spinal Muscular Atrophy: Screening
	house id	1
	legislature	25259 pref label House of Commons
	question text	To ask the Secretary of State for Health and Social Care, what information the UK National Screening Committee has provided on the (a) format, (b) scale and (c) duration of the upcoming in-service evaluation for spinal muscular atrophy screening in the NHS.
	tabling member constituency	Bootle
	tabling member printed	Peter Dowd
	uin	196162
	answer	answer is ministerial correction date of answer 06/09/2023 answer text <p>In June 2023, the UK National Screening Committee (UK NSC) recommended that a modelling study be carried out alongside an in-service evaluation of spinal muscular atrophy (SMA) screening in the National Health Service. Around 70 babies a year are born with SMA in the United Kingdom (around 1 in every 10,000 live births), with approximately 60% of those having type 1 SMA (SMA1).</p><p> </p><p>The new model will help define important issues for the in-service evaluation, while the evaluation will be used to collect data to feed into the model and test its assumptions. This important work will give the UK NSC the evidence it needs to assess how newborn screening for SMA might work safely in the UK.</p><p> </p><p>Work is still in the planning stages therefore timescales are not established yet. The UK NSC will keep ministers informed, and the public up to date on progress via its blog and ongoing stakeholder engagement.</p> answering member constituency Colchester answering member printed Will Quince grouped question UIN 196161 196166 196168 196170 question first answered 06/09/2023 13:58:18 answering member 4423 label Biography information for Will Quince
	tabling member	4397 label Biography information for Peter Dowd

1656173

	registered interest
	date	01/09/2023
	answering body	Department of Health and Social Care
	answering dept id	17
	answering dept short name	Health and Social Care
	answering dept sort name	Health and Social Care
	hansard heading	Spinal Muscular Atrophy: Screening
	house id	1
	legislature	25259 pref label House of Commons
	question text	To ask the Secretary of State for Health and Social Care, what assessment he has made of the adequacy of the timelines for the UK National Screening Committee’s in-service evaluation for severe combined immunodeficiency screening in the NHS; and whether his Department has plans to reduce the timeline for the upcoming in-service evaluation for spinal muscular atrophy screening.
	tabling member constituency	Bootle
	tabling member printed	Peter Dowd
	uin	196166
	answer	answer is ministerial correction date of answer 06/09/2023 answer text <p>In June 2023, the UK National Screening Committee (UK NSC) recommended that a modelling study be carried out alongside an in-service evaluation of spinal muscular atrophy (SMA) screening in the National Health Service. Around 70 babies a year are born with SMA in the United Kingdom (around 1 in every 10,000 live births), with approximately 60% of those having type 1 SMA (SMA1).</p><p> </p><p>The new model will help define important issues for the in-service evaluation, while the evaluation will be used to collect data to feed into the model and test its assumptions. This important work will give the UK NSC the evidence it needs to assess how newborn screening for SMA might work safely in the UK.</p><p> </p><p>Work is still in the planning stages therefore timescales are not established yet. The UK NSC will keep ministers informed, and the public up to date on progress via its blog and ongoing stakeholder engagement.</p> answering member constituency Colchester answering member printed Will Quince grouped question UIN 196161 196162 196168 196170 question first answered 06/09/2023 13:58:18 answering member 4423 label Biography information for Will Quince
	tabling member	4397 label Biography information for Peter Dowd