Show Search Form

Search Results

registered interest	true false
date	exactly: or between: and
answering body
answering dept id
answering dept short name
answering dept sort name
hansard heading
house id
legislature	pref label
question text
tabling member constituency
tabling member printed
uin
answer	is ministerial correction true false date of answer exactly: or between: and answer text answering member constituency answering member printed grouped question UIN question first answered answering member label previous answer version answering member constituency answering member printed answering member label
tabling member	label

Search

1126897

	registered interest
	date	15/05/2019
	answering body	Department for Work and Pensions
	answering dept id	29
	answering dept short name	Work and Pensions
	answering dept sort name	Work and Pensions
	hansard heading	Social Security Benefits
	house id	1
	legislature	25259 pref label House of Commons
	question text	To ask the Secretary of State for Work and Pensions, what estimate her Department has made of the average real terms losses of families affected by the four year freeze to social security payments in the total period of the operation of that freeze.
	tabling member constituency	Bootle
	tabling member printed	Peter Dowd
	uin	254833
	answer	answer is ministerial correction date of answer 20/05/2019 answer text <p>An estimate of the notional loss to household income as a result of the benefit freeze can be found at: <a href="https://www.parliament.uk/documents/impact-assessments/IA15-006C.pdf" target="_blank">https://www.parliament.uk/documents/impact-assessments/IA15-006C.pdf</a>.</p><p> </p><p> </p> answering member constituency Colchester answering member printed Will Quince question first answered 20/05/2019 11:43:35 answering member 4423 label Biography information for Will Quince
	tabling member	4397 label Biography information for Peter Dowd

1520493

	registered interest
	date	11/10/2022
	answering body	Department of Health and Social Care
	answering dept id	17
	answering dept short name	Health and Social Care
	answering dept sort name	Health and Social Care
	hansard heading	Rare Diseases: Health Services
	house id	1
	legislature	25259 pref label House of Commons
	question text	To ask the Secretary of State for Health and Social Care, how many applications have been made to form Rare Disease Collaborative Networks in the last 12 months.
	tabling member constituency	Bootle
	tabling member printed	Peter Dowd
	uin	61165
	answer	answer is ministerial correction date of answer 18/10/2022 answer text <p>Five applications for Rare Disease Collaborative Networks were received and approved in the last 12 months.</p> answering member constituency Colchester answering member printed Will Quince question first answered 18/10/2022 15:50:09 answering member 4423 label Biography information for Will Quince previous answer version 23304 answering member constituency Colchester answering member printed Will Quince answering member 4423 label Biography information for Will Quince
	tabling member	4397 label Biography information for Peter Dowd

1520495

	registered interest
	date	11/10/2022
	answering body	Department of Health and Social Care
	answering dept id	17
	answering dept short name	Health and Social Care
	answering dept sort name	Health and Social Care
	hansard heading	Rare Diseases: Health Services
	house id	1
	legislature	25259 pref label House of Commons
	question text	To ask the Secretary of State for Health and Social Care, whether her Department will allocate funding to support the establishment and operation of Rare Disease Collaborative Networks in the 2023 Rare Disease Action Plan.
	tabling member constituency	Bootle
	tabling member printed	Peter Dowd
	uin	61166
	answer	answer is ministerial correction date of answer 18/10/2022 answer text <p>We have no plans to do so. Trusts may receive tariff rates for activity based on NHS England’s contractual and funding framework in place for the duration of the Rare Disease Collaborative Networks.</p> answering member constituency Colchester answering member printed Will Quince question first answered 18/10/2022 15:48:12 answering member 4423 label Biography information for Will Quince previous answer version 23268 answering member constituency Colchester answering member printed Will Quince answering member 4423 label Biography information for Will Quince
	tabling member	4397 label Biography information for Peter Dowd

1520496

	registered interest
	date	11/10/2022
	answering body	Department of Health and Social Care
	answering dept id	17
	answering dept short name	Health and Social Care
	answering dept sort name	Health and Social Care
	hansard heading	Rare Diseases: Drugs
	house id	1
	legislature	25259 pref label House of Commons
	question text	To ask the Secretary of State for Health and Social Care, with reference to the England Rare Diseases Action Plan 2022, what estimate she has made of when NHS England and NHS Digital will publish the annual report on uptake of drugs for patients with rare diseases.
	tabling member constituency	Bootle
	tabling member printed	Peter Dowd
	uin	61167
	answer	answer is ministerial correction date of answer 18/10/2022 answer text <p>The annual report will be published by the end of the 2022/23 financial year.</p> answering member constituency Colchester answering member printed Will Quince question first answered 18/10/2022 15:46:19 answering member 4423 label Biography information for Will Quince previous answer version 23273 answering member constituency Colchester answering member printed Will Quince answering member 4423 label Biography information for Will Quince
	tabling member	4397 label Biography information for Peter Dowd

1520498

	registered interest
	date	11/10/2022
	answering body	Department of Health and Social Care
	answering dept id	17
	answering dept short name	Health and Social Care
	answering dept sort name	Health and Social Care
	hansard heading	Rare Diseases: Health Services
	house id	1
	legislature	25259 pref label House of Commons
	question text	To ask the Secretary of State for Health and Social Care, whether her Department will consult with stakeholders to inform the development of the 2023 Rare Disease Action Plan.
	tabling member constituency	Bootle
	tabling member printed	Peter Dowd
	uin	61168
	answer	answer is ministerial correction date of answer 17/10/2022 answer text <p>There will be engagement with the rare diseases community on drafts of the 2023 Action Plan during the autumn. The Department also continues to engage regularly with stakeholders on rare diseases policy through the UK Rare Diseases Forum.</p> answering member constituency Colchester answering member printed Will Quince question first answered 17/10/2022 10:32:09 answering member 4423 label Biography information for Will Quince
	tabling member	4397 label Biography information for Peter Dowd

1523002

	registered interest
	date	17/10/2022
	answering body	Department of Health and Social Care
	answering dept id	17
	answering dept short name	Health and Social Care
	answering dept sort name	Health and Social Care
	hansard heading	Podiatry: Bootle
	house id	1
	legislature	25259 pref label House of Commons
	question text	To ask the Secretary of State for Health and Social Care, what assessment she has made (a) podiatry vacancy rates in the NHS in Bootle constituency and (b) the impact these vacancies will have on patient treatment for diabetic foot complications.
	tabling member constituency	Bootle
	tabling member printed	Peter Dowd
	uin	64134
	answer	answer is ministerial correction date of answer 01/11/2022 answer text <p>No specific assessment has been made as this information is not collected centrally.</p> answering member constituency Colchester answering member printed Will Quince question first answered 01/11/2022 11:49:50 answering member 4423 label Biography information for Will Quince previous answer version 25586 answering member constituency Colchester answering member printed Will Quince answering member 4423 label Biography information for Will Quince
	tabling member	4397 label Biography information for Peter Dowd

1523015

	registered interest
	date	17/10/2022
	answering body	Department of Health and Social Care
	answering dept id	17
	answering dept short name	Health and Social Care
	answering dept sort name	Health and Social Care
	hansard heading	Dental Services: Bootle
	house id	1
	legislature	25259 pref label House of Commons
	question text	To ask the Secretary of State for Health and Social Care, what steps her Department is taking to help improve access to NHS dental services in Bootle constituency.
	tabling member constituency	Bootle
	tabling member printed	Peter Dowd
	uin	64136
	answer	answer is ministerial correction date of answer 20/10/2022 answer text <p>No specific assessment has been made. In September, we announced ‘Our plan for patients’, which outlines how we will meet oral health needs and increase access to dental care, including in Bootle.</p><p>The plan includes improvements to ensure dentists are renumerated fairly for more complex work, allowing greater flexibility to reallocate resources and to utilise dentists with greater capacity to deliver National Health Service treatment, whilst enabling full use of the dental team. The plan also includes streamlining processes for overseas dentists and holding the local NHS to account for dentistry provision. In addition, Health Education England is also reforming dental education to improve the recruitment and retention of dental professionals.</p> answering member constituency Colchester answering member printed Will Quince grouped question UIN 64137 question first answered 20/10/2022 16:44:11 answering member 4423 label Biography information for Will Quince
	tabling member	4397 label Biography information for Peter Dowd

1523017

	registered interest
	date	17/10/2022
	answering body	Department of Health and Social Care
	answering dept id	17
	answering dept short name	Health and Social Care
	answering dept sort name	Health and Social Care
	hansard heading	Dental Services: Bootle
	house id	1
	legislature	25259 pref label House of Commons
	question text	To ask the Secretary of State for Health and Social Care, what recent assessment she has made of the adequacy of the NHS dentist provision in Bootle constituency.
	tabling member constituency	Bootle
	tabling member printed	Peter Dowd
	uin	64137
	answer	answer is ministerial correction date of answer 20/10/2022 answer text <p>No specific assessment has been made. In September, we announced ‘Our plan for patients’, which outlines how we will meet oral health needs and increase access to dental care, including in Bootle.</p><p>The plan includes improvements to ensure dentists are renumerated fairly for more complex work, allowing greater flexibility to reallocate resources and to utilise dentists with greater capacity to deliver National Health Service treatment, whilst enabling full use of the dental team. The plan also includes streamlining processes for overseas dentists and holding the local NHS to account for dentistry provision. In addition, Health Education England is also reforming dental education to improve the recruitment and retention of dental professionals.</p> answering member constituency Colchester answering member printed Will Quince grouped question UIN 64136 question first answered 20/10/2022 16:44:11 answering member 4423 label Biography information for Will Quince
	tabling member	4397 label Biography information for Peter Dowd

1523018

	registered interest
	date	17/10/2022
	answering body	Department of Health and Social Care
	answering dept id	17
	answering dept short name	Health and Social Care
	answering dept sort name	Health and Social Care
	hansard heading	Breast Cancer: Bootle
	house id	1
	legislature	25259 pref label House of Commons
	question text	To ask the Secretary of State for Health and Social Care, what steps her Department is taking to help increase the uptake of breast cancer screening in Bootle constituency.
	tabling member constituency	Bootle
	tabling member printed	Peter Dowd
	uin	64138
	answer	answer is ministerial correction date of answer 20/10/2022 answer text <p>The Department is working with NHS England to finalise the delivery of £10 million for breast screening units, including determining which areas will benefit from this investment.</p><p>National Health Service breast screening providers are also encouraged to work with Cancer Alliances, Primary Care Networks, NHS regional teams and the voluntary sector to promote the uptake of breast screening and ensure access to services.</p> answering member constituency Colchester answering member printed Will Quince question first answered 20/10/2022 16:40:06 answering member 4423 label Biography information for Will Quince
	tabling member	4397 label Biography information for Peter Dowd

1540637

	registered interest
	date	08/11/2022
	answering body	Department of Health and Social Care
	answering dept id	17
	answering dept short name	Health and Social Care
	answering dept sort name	Health and Social Care
	hansard heading	Dialysis Machines
	house id	1
	legislature	25259 pref label House of Commons
	question text	To ask the Secretary of State for Health and Social Care, what the average nurse-to-patient ratio was for (a) in-centre dialysis and (b) home therapy patients in the latest period for which data is available.
	tabling member constituency	Bootle
	tabling member printed	Peter Dowd
	uin	82339
	answer	answer is ministerial correction date of answer 14/11/2022 answer text <p>The information requested is not held centrally.</p> answering member constituency Colchester answering member printed Will Quince question first answered 14/11/2022 11:28:20 answering member 4423 label Biography information for Will Quince
	tabling member	4397 label Biography information for Peter Dowd

1544859

	registered interest
	date	23/11/2022
	answering body	Department of Health and Social Care
	answering dept id	17
	answering dept short name	Health and Social Care
	answering dept sort name	Health and Social Care
	hansard heading	Working Hours: Health
	house id	1
	legislature	25259 pref label House of Commons
	question text	To ask the Secretary of State for Health and Social Care, if he will take steps to provide funding for research into the health effects of night shift working.
	tabling member constituency	Bootle
	tabling member printed	Peter Dowd
	uin	94782
	answer	answer is ministerial correction date of answer 30/11/2022 answer text <p>The Department funds research through the National Institute for Health and Care Research (NIHR). The NIHR welcomes funding applications for research into any aspect of human health, including the health effects of night shift working. However, it is not usual practice to ring-fence funds for particular topics or conditions. Applications are subject to peer review and judged in open competition, with awards made on the basis of value for money, scientific quality, and the importance of the topic to patients and health and care services.</p> answering member constituency Colchester answering member printed Will Quince question first answered 30/11/2022 17:57:36 answering member 4423 label Biography information for Will Quince previous answer version 37822 answering member constituency Colchester answering member printed Will Quince answering member 4423 label Biography information for Will Quince
	tabling member	4397 label Biography information for Peter Dowd

1600809

	registered interest
	date	02/03/2023
	answering body	Department of Health and Social Care
	answering dept id	17
	answering dept short name	Health and Social Care
	answering dept sort name	Health and Social Care
	hansard heading	Bowel Cancer: Health Services
	house id	1
	legislature	25259 pref label House of Commons
	question text	To ask the Secretary of State for Health and Social Care, what recent progress his Department has made on reducing waiting times for bowel cancer referrals.
	tabling member constituency	Bootle
	tabling member printed	Peter Dowd
	uin	156976
	answer	answer is ministerial correction date of answer 08/03/2023 answer text <p>To reduce waiting times, including in bowel cancer referrals, the Government has taken steps by working with NHS England to publish the delivery plan for tackling the COVID-19 backlogs in elective care in February 2022. To deliver this plan, the Government plans to spend more than £8 billion from 2022/23 to 2024/25 to help drive up and protect elective activity, including cancer diagnosis and treatment activity.</p><p> </p><p>Diagnostics are crucial part of all cancer pathways. The Government awarded £2.3 billion at the 2021 Spending Review to transform diagnostic services over the next three years. As part of this investment, up to 160 new Community Diagnostic Centres (CDCs) will deliver additional, digitally connected, diagnostic capacity in England, providing patients with a coordinated set of diagnostic checks, including for cancer. To date, there are 92 CDCs currently operational that have delivered over 3 million additional tests since July 2021, including vital cancer checks.</p><p>The National Health Service is also continuing to roll-out faecal immunochemical tests (FIT) to support the clinical triage of patients on the lower gastrointestinal cancer pathway, with a clear expectation set out in NHS England’s 2023/24 Operational Planning that at least 80% of Faster Diagnosis Standard for lower gastrointestinal referrals should be accompanied by a FIT result.</p> answering member constituency Colchester answering member printed Will Quince question first answered 08/03/2023 15:58:10 answering member 4423 label Biography information for Will Quince
	tabling member	4397 label Biography information for Peter Dowd

1602956

	registered interest
	date	09/03/2023
	answering body	Department of Health and Social Care
	answering dept id	17
	answering dept short name	Health and Social Care
	answering dept sort name	Health and Social Care
	hansard heading	Health Services: Waiting Lists
	house id	1
	legislature	25259 pref label House of Commons
	question text	To ask the Secretary of State for Health and Social Care, whether the Government is on track to deliver the 18 month target within the elective recovery plan.
	tabling member constituency	Bootle
	tabling member printed	Peter Dowd
	uin	162205
	answer	answer is ministerial correction date of answer 16/03/2023 answer text <p>Cutting waiting lists is one of the Government’s top priorities. All efforts are being made to deliver the next long wait ambition by April 2023, eliminating waits of 18 months or more for treatment. Thanks to incredible National Health Service staff, the total number of patients waiting more than 18 months went down more than two thirds from its peak of 123,969 in September 2021 by February 2023. Over 70 NHS trusts in England now have fewer than 100 patients waiting more than a year and a half, ahead of the target to virtually eliminate these by April.</p> answering member constituency Colchester answering member printed Will Quince question first answered 16/03/2023 13:28:34 answering member 4423 label Biography information for Will Quince
	tabling member	4397 label Biography information for Peter Dowd

1602960

	registered interest
	date	09/03/2023
	answering body	Department of Health and Social Care
	answering dept id	17
	answering dept short name	Health and Social Care
	answering dept sort name	Health and Social Care
	hansard heading	Surgical Hubs
	house id	1
	legislature	25259 pref label House of Commons
	question text	To ask the Secretary of State for Health and Social Care, how many surgical hubs are currently in operation; and are due to be operating by the end of 2023.
	tabling member constituency	Bootle
	tabling member printed	Peter Dowd
	uin	162208
	answer	answer is ministerial correction date of answer 14/03/2023 answer text <p>There are currently 89 elective surgical hubs in operation in England. 16 further new elective hubs are due to open by December 2023, subject to construction being able to progress as planned, as recent availability of materials and other external factors are impacting some project delivery timelines. The Department and NHS England are working with providers in each locality on revised hub timings where appropriate.</p> answering member constituency Colchester answering member printed Will Quince question first answered 14/03/2023 17:42:22 answering member 4423 label Biography information for Will Quince
	tabling member	4397 label Biography information for Peter Dowd

1611479

	registered interest
	date	17/04/2023
	answering body	Department of Health and Social Care
	answering dept id	17
	answering dept short name	Health and Social Care
	answering dept sort name	Health and Social Care
	hansard heading	Dermatology: Consultants
	house id	1
	legislature	25259 pref label House of Commons
	question text	To ask the Secretary of State for Health and Social Care, how many consultant dermatologists there are in (a) Liverpool University Hospitals NHS Foundation Trust, (b) the NHS Cheshire and Merseyside Integrated Care Board area and (c) England.
	tabling member constituency	Bootle
	tabling member printed	Peter Dowd
	uin	181107
	answer	answer is ministerial correction date of answer 20/04/2023 answer text <p>The table below provides the number of full-time equivalent (FTE) National Health Service consultant doctors working in the specialty of dermatology as of December 2022.</p><table><tbody><tr><td><p>Organisation</p></td><td><p>FTE Doctors</p></td></tr><tr><td><p>Liverpool University Hospitals NHS Foundation Trust</p></td><td><p>12</p></td></tr><tr><td><p>Cheshire and Merseyside ICB area</p></td><td><p>34</p></td></tr><tr><td><p>England</p></td><td><p>667</p></td></tr></tbody></table><p>Source: NHS England Workforce Statistics</p> answering member constituency Colchester answering member printed Will Quince question first answered 20/04/2023 09:08:50 answering member 4423 label Biography information for Will Quince
	tabling member	4397 label Biography information for Peter Dowd

1611480

	registered interest
	date	17/04/2023
	answering body	Department of Health and Social Care
	answering dept id	17
	answering dept short name	Health and Social Care
	answering dept sort name	Health and Social Care
	hansard heading	Dermatology: Nurses
	house id	1
	legislature	25259 pref label House of Commons
	question text	To ask the Secretary of State for Health and Social Care, how many dermatology specialist nurses there are in (a) Liverpool University Hospitals NHS Foundation Trust, (b) the NHS Cheshire and Merseyside Integrated Care Board area and (c) England.
	tabling member constituency	Bootle
	tabling member printed	Peter Dowd
	uin	181108
	answer	answer is ministerial correction date of answer 25/04/2023 answer text <p>The Department does not hold the data requested.</p> answering member constituency Colchester answering member printed Will Quince question first answered 25/04/2023 09:50:13 answering member 4423 label Biography information for Will Quince
	tabling member	4397 label Biography information for Peter Dowd

1629136

	registered interest
	date	19/05/2023
	answering body	Department of Health and Social Care
	answering dept id	17
	answering dept short name	Health and Social Care
	answering dept sort name	Health and Social Care
	hansard heading	Rheumatology: Health Professions
	house id	1
	legislature	25259 pref label House of Commons
	question text	To ask the Secretary of State for Health and Social Care, whether he plans to take steps to increase the number of (a) rheumatology consultants and (b) rheumatology clinical nurse specialists in the NHS Long Term Workforce Plan.
	tabling member constituency	Bootle
	tabling member printed	Peter Dowd
	uin	185974
	answer	answer is ministerial correction date of answer 08/06/2023 answer text <p>As of January 2023, there were 694 full-time equivalent consultants working in the rheumatology specialism in National Health Service trusts and commissioning bodies in England. This is an increase of 19 since last year. We do not hold data for paediatric rheumatology and clinical nurse specialists.</p><p>To support the workforce as a whole we have commissioned NHS England to develop a long-term plan for the next 15 years. This plan will help ensure that we have the right numbers of staff, with the right skills, to transform and deliver high quality services fit for the future.</p> answering member constituency Colchester answering member printed Will Quince grouped question UIN 185977 question first answered 08/06/2023 10:26:09 answering member 4423 label Biography information for Will Quince
	tabling member	4397 label Biography information for Peter Dowd

1629137

	registered interest
	date	19/05/2023
	answering body	Department of Health and Social Care
	answering dept id	17
	answering dept short name	Health and Social Care
	answering dept sort name	Health and Social Care
	hansard heading	Rheumatology: Education
	house id	1
	legislature	25259 pref label House of Commons
	question text	To ask the Secretary of State for Health and Social Care, whether he plans to take steps to increase the number of rheumatology medical school places as part of the NHS Long Term Workforce Plan.
	tabling member constituency	Bootle
	tabling member printed	Peter Dowd
	uin	185975
	answer	answer is ministerial correction date of answer 25/05/2023 answer text <p>The Government has funded an additional 1,500 undergraduate medical school places per year for domestic students in England, a 25% increase, taking the total number of medical school places in England to 7,500 each year. This expansion was completed in September 2020 and delivered five new medical schools in England. This will help ensure a larger potential pipeline for rheumatology trainees in coming years.</p><p>In January 2023, Health Education England announced that nearly 900 additional medical specialty training posts have been created for this year, including five rheumatology posts.</p><p>As of January 2023, there were 694 full-time equivalent (FTE) consultants working in the rheumatology specialism in National Health Service trusts and commissioning bodies in England. This is an increase of 19 since last year.</p><p>To support the workforce as a whole, we have commissioned NHS England to develop a long term workforce plan for the next 15 years. This plan will help ensure that we have the right numbers of staff with the right skills to transform and deliver high quality services fit for the future.</p> answering member constituency Colchester answering member printed Will Quince question first answered 25/05/2023 13:51:57 answering member 4423 label Biography information for Will Quince
	tabling member	4397 label Biography information for Peter Dowd

1629139

	registered interest
	date	19/05/2023
	answering body	Department of Health and Social Care
	answering dept id	17
	answering dept short name	Health and Social Care
	answering dept sort name	Health and Social Care
	hansard heading	Rheumatology: Paediatrics
	house id	1
	legislature	25259 pref label House of Commons
	question text	To ask the Secretary of State for Health and Social Care, whether he plans to take steps to increase the number of paediatric rheumatology (a) consultants and (b) clinical nurse specialists in the NHS Long Term Workforce Plan.
	tabling member constituency	Bootle
	tabling member printed	Peter Dowd
	uin	185977
	answer	answer is ministerial correction date of answer 08/06/2023 answer text <p>As of January 2023, there were 694 full-time equivalent consultants working in the rheumatology specialism in National Health Service trusts and commissioning bodies in England. This is an increase of 19 since last year. We do not hold data for paediatric rheumatology and clinical nurse specialists.</p><p>To support the workforce as a whole we have commissioned NHS England to develop a long-term plan for the next 15 years. This plan will help ensure that we have the right numbers of staff, with the right skills, to transform and deliver high quality services fit for the future.</p> answering member constituency Colchester answering member printed Will Quince grouped question UIN 185974 question first answered 08/06/2023 10:26:09 answering member 4423 label Biography information for Will Quince
	tabling member	4397 label Biography information for Peter Dowd

1629140

	registered interest
	date	19/05/2023
	answering body	Department of Health and Social Care
	answering dept id	17
	answering dept short name	Health and Social Care
	answering dept sort name	Health and Social Care
	hansard heading	Rheumatology: Health Professions
	house id	1
	legislature	25259 pref label House of Commons
	question text	To ask the Secretary of State for Health and Social Care, what recent estimate he has made of the number of (a) rheumatology consultants, (b) rheumatology clinical nurse specialists, (c) specialist rheumatology physiotherapists, (d) psychologists, (e) podiatrists, (f) occupational health therapists and (g) specialist rheumatology pharmacists in England; and what steps he is taking to fill vacancies in these professions.
	tabling member constituency	Bootle
	tabling member printed	Peter Dowd
	uin	185978
	answer	answer is ministerial correction date of answer 25/05/2023 answer text <p>The following table shows the number of full-time equivalent (FTE) staff, by staff group, working in National Health Service trusts and integrated care boards in England, as of January 2023.</p><table><tbody><tr><td><p>Staff Group</p></td><td><p>Number of FTE staff</p></td></tr><tr><td><p>Rheumatology Consultants</p></td><td><p>694</p></td></tr><tr><td><p>Rheumatology Clinical Nurse Specialists</p></td><td><p>No data held</p></td></tr><tr><td><p>Specialist Rheumatology Physiotherapists</p></td><td><p>No data held</p></td></tr><tr><td><p>Psychologists (Applied Psychology)</p></td><td><p>8,349</p></td></tr><tr><td><p>Podiatrists</p></td><td><p>2,548</p></td></tr><tr><td><p>Occupational Health Therapists</p></td><td><p>16,351</p></td></tr><tr><td><p>Specialist Rheumatology Pharmacists</p></td><td><p>No data held</p></td></tr></tbody></table><p>Source: NHS Workforce Statistics</p><p>To support the workforce, we have commissioned NHS England to develop a long-term workforce plan for the NHS workforce for the next 15 years. It will look at the mix and number of staff required and will set out the actions and reforms across the NHS that will be needed to reduce supply gaps and improve retention. This plan will help ensure that we have the right numbers of staff with the right skills to transform and deliver high quality services fit for the future.</p><p>On 10 of January 2023, Health Education England announced that nearly 900 additional medical specialty training posts will be created for this year, including an additional five rheumatology specialty training posts. Rheumatology is a popular specialty with a fill rate of over 95%.</p> answering member constituency Colchester answering member printed Will Quince question first answered 25/05/2023 16:21:33 answering member 4423 label Biography information for Will Quince
	tabling member	4397 label Biography information for Peter Dowd

1629141

	registered interest
	date	19/05/2023
	answering body	Department of Health and Social Care
	answering dept id	17
	answering dept short name	Health and Social Care
	answering dept sort name	Health and Social Care
	hansard heading	Rheumatology: Health Professions
	house id	1
	legislature	25259 pref label House of Commons
	question text	To ask the Secretary of State for Health and Social Care, what steps he is taking to improve levels of staff retention of healthcare professionals working in rheumatology services.
	tabling member constituency	Bootle
	tabling member printed	Peter Dowd
	uin	185979
	answer	answer is ministerial correction date of answer 25/05/2023 answer text <p>The NHS People Plan and People Promise set out a comprehensive range of actions to improve staff retention. They provide a strong focus on creating a more modern, compassionate and inclusive National Health Service culture by strengthening health and wellbeing, equality and diversity, culture and leadership and flexible working.</p><p> </p><p>NHS priorities and operational planning guidance 2023/24 has asked systems to refresh their 2022/23 whole system workforce plans to improve staff retention through a systematic focus on all elements of the NHS People Promise.  Staff wellbeing should be strategically aligned with elective recovery plans, including workforce demand and capacity planning.</p><p /><p>In addition, the NHS Retention Programme is continuously seeking to understand why staff leave, resulting in targeted interventions to support staff to stay whilst keeping them well. A staff retention guide has been updated and includes information on supporting staff in their late and early career with specific focus on induction, reward and recognition and menopause support.</p><p /><p>These initiatives apply across all NHS staff groups, including healthcare professionals working in rheumatology services.</p> answering member constituency Colchester answering member printed Will Quince question first answered 25/05/2023 12:56:32 answering member 4423 label Biography information for Will Quince
	tabling member	4397 label Biography information for Peter Dowd

1629142

	registered interest
	date	19/05/2023
	answering body	Department of Health and Social Care
	answering dept id	17
	answering dept short name	Health and Social Care
	answering dept sort name	Health and Social Care
	hansard heading	Rheumatology: Health Professions
	house id	1
	legislature	25259 pref label House of Commons
	question text	To ask the Secretary of State for Health and Social Care, what steps his Department is taking to help increase the number of (a) doctors, (b) nurses and (c) Allied Health Professionals entering specialist rheumatology training.
	tabling member constituency	Bootle
	tabling member printed	Peter Dowd
	uin	185980
	answer	answer is ministerial correction date of answer 30/05/2023 answer text <p>The Government has funded an additional 1,500 undergraduate medical school places per year for domestic students in England, which is a 25% increase, taking the total number of medical school places in England to 7,500 each year. This expansion was completed in September 2020 and delivered five new medical schools in England. It will help ensure a larger potential pipeline for rheumatology trainees in coming years. In January 2023 Health Education England announced that nearly 900 additional medical specialty training posts have been created for this year, including five rheumatology posts.</p><p>Specialising in Rheumatology is a post-registration option for nurses and allied health professionals. The Government is on track to ensure there are at least an additional 50,000 nurses in place by 31 March 2024 compared to September 2019, which will increase the pool of nurses who may wish to specialise in rheumatology.</p> answering member constituency Colchester answering member printed Will Quince question first answered 30/05/2023 15:38:42 answering member 4423 label Biography information for Will Quince
	tabling member	4397 label Biography information for Peter Dowd

1629144

	registered interest
	date	19/05/2023
	answering body	Department of Health and Social Care
	answering dept id	17
	answering dept short name	Health and Social Care
	answering dept sort name	Health and Social Care
	hansard heading	Rheumatology: Staff
	house id	1
	legislature	25259 pref label House of Commons
	question text	To ask the Secretary of State for Health and Social Care, whether he is taking steps to increase the number of NHS staff providing rheumatology care in (a) Merseyside and Cheshire Integrated Care System area and (b) England.
	tabling member constituency	Bootle
	tabling member printed	Peter Dowd
	uin	185982
	answer	answer is ministerial correction date of answer 08/06/2023 answer text <p>Cheshire and Merseyside’s elective recovery programme is reviewing workforce gaps, priorities and the actions required to ensure safe and appropriately skilled workforce across several pathways, including rheumatology.</p> answering member constituency Colchester answering member printed Will Quince question first answered 08/06/2023 10:33:15 answering member 4423 label Biography information for Will Quince
	tabling member	4397 label Biography information for Peter Dowd

1654038

	registered interest
	date	18/07/2023
	answering body	Department of Health and Social Care
	answering dept id	17
	answering dept short name	Health and Social Care
	answering dept sort name	Health and Social Care
	hansard heading	Spinal Muscular Atrophy: Babies
	house id	1
	legislature	25259 pref label House of Commons
	question text	To ask the Secretary of State for Health and Social Care, what steps he is taking to monitor the National Screening Committee’s progress on reviewing the case for including Spinal Muscular Atrophy in the NHS newborn screening programme; and what his timetable is for making a decision on that matter.
	tabling member constituency	Bootle
	tabling member printed	Peter Dowd
	uin	194867
	answer	answer is ministerial correction date of answer 21/07/2023 answer text <p>The review of whether to screen for spinal muscular atrophy (SMA) is under active consideration. At the June UK National Screening Committee (UK NSC) meeting this was tabled for discussion. Minutes of this meeting are available at the following link:</p><p><a href="https://www.gov.uk/government/publications/uk-nsc-meeting-june-2023/uk-nsc-minutes-june-2023" target="_blank">https://www.gov.uk/government/publications/uk-nsc-meeting-june-2023/uk-nsc-minutes-june-2023</a></p><p>The UK NSC supported the proposal to commission a cost effectiveness modelling study and to start planning a high-quality in-service evaluation to support a UK NSC recommendation. Due to these new decisions made at the June meeting, no timetable has yet been developed.</p><p>As per the UK NSC’s published process, the committee will hold a three-month public consultation on SMA inviting stakeholders and members of the public to comment and submit further evidence for consideration. It will keep the public abreast of developments via its blogs and ongoing stakeholder engagement activities.</p> answering member constituency Colchester answering member printed Will Quince grouped question UIN 194868 194869 194870 194871 194883 question first answered 21/07/2023 12:18:40 answering member 4423 label Biography information for Will Quince
	tabling member	4397 label Biography information for Peter Dowd

1654039

	registered interest
	date	18/07/2023
	answering body	Department of Health and Social Care
	answering dept id	17
	answering dept short name	Health and Social Care
	answering dept sort name	Health and Social Care
	hansard heading	Spinal Muscular Atrophy: Babies
	house id	1
	legislature	25259 pref label House of Commons
	question text	To ask the Secretary of State for Health and Social Care, what progress the UK National Screening Committee has made on reviewing the case for including Spinal Muscular Atrophy in the NHS newborn screening programme, and what that Committee's timeline is for making a final recommendation.
	tabling member constituency	Bootle
	tabling member printed	Peter Dowd
	uin	194868
	answer	answer is ministerial correction date of answer 21/07/2023 answer text <p>The review of whether to screen for spinal muscular atrophy (SMA) is under active consideration. At the June UK National Screening Committee (UK NSC) meeting this was tabled for discussion. Minutes of this meeting are available at the following link:</p><p><a href="https://www.gov.uk/government/publications/uk-nsc-meeting-june-2023/uk-nsc-minutes-june-2023" target="_blank">https://www.gov.uk/government/publications/uk-nsc-meeting-june-2023/uk-nsc-minutes-june-2023</a></p><p>The UK NSC supported the proposal to commission a cost effectiveness modelling study and to start planning a high-quality in-service evaluation to support a UK NSC recommendation. Due to these new decisions made at the June meeting, no timetable has yet been developed.</p><p>As per the UK NSC’s published process, the committee will hold a three-month public consultation on SMA inviting stakeholders and members of the public to comment and submit further evidence for consideration. It will keep the public abreast of developments via its blogs and ongoing stakeholder engagement activities.</p> answering member constituency Colchester answering member printed Will Quince grouped question UIN 194867 194869 194870 194871 194883 question first answered 21/07/2023 12:18:40 answering member 4423 label Biography information for Will Quince
	tabling member	4397 label Biography information for Peter Dowd

1654040

	registered interest
	date	18/07/2023
	answering body	Department of Health and Social Care
	answering dept id	17
	answering dept short name	Health and Social Care
	answering dept sort name	Health and Social Care
	hansard heading	Spinal Muscular Atrophy: Screening
	house id	1
	legislature	25259 pref label House of Commons
	question text	To ask the Secretary of State for Health and Social Care, if he will ask the UK National Screening Committee to publish indicative timelines for its review of Spinal Muscular Atrophy.
	tabling member constituency	Bootle
	tabling member printed	Peter Dowd
	uin	194869
	answer	answer is ministerial correction date of answer 21/07/2023 answer text <p>The review of whether to screen for spinal muscular atrophy (SMA) is under active consideration. At the June UK National Screening Committee (UK NSC) meeting this was tabled for discussion. Minutes of this meeting are available at the following link:</p><p><a href="https://www.gov.uk/government/publications/uk-nsc-meeting-june-2023/uk-nsc-minutes-june-2023" target="_blank">https://www.gov.uk/government/publications/uk-nsc-meeting-june-2023/uk-nsc-minutes-june-2023</a></p><p>The UK NSC supported the proposal to commission a cost effectiveness modelling study and to start planning a high-quality in-service evaluation to support a UK NSC recommendation. Due to these new decisions made at the June meeting, no timetable has yet been developed.</p><p>As per the UK NSC’s published process, the committee will hold a three-month public consultation on SMA inviting stakeholders and members of the public to comment and submit further evidence for consideration. It will keep the public abreast of developments via its blogs and ongoing stakeholder engagement activities.</p> answering member constituency Colchester answering member printed Will Quince grouped question UIN 194867 194868 194870 194871 194883 question first answered 21/07/2023 12:18:40 answering member 4423 label Biography information for Will Quince
	tabling member	4397 label Biography information for Peter Dowd

1654041

	registered interest
	date	18/07/2023
	answering body	Department of Health and Social Care
	answering dept id	17
	answering dept short name	Health and Social Care
	answering dept sort name	Health and Social Care
	hansard heading	Spinal Muscular Atrophy: Babies
	house id	1
	legislature	25259 pref label House of Commons
	question text	To ask the Secretary of State for Health and Social Care, what assessment his Department has made of the potential impact of the UK National Screening Committee’s timelines for reviewing the case for including Spinal Muscular Atrophy (SMA) in the NHS newborn screening programme on patients and families with SMA where symptoms are yet to present.
	tabling member constituency	Bootle
	tabling member printed	Peter Dowd
	uin	194870
	answer	answer is ministerial correction date of answer 21/07/2023 answer text <p>The review of whether to screen for spinal muscular atrophy (SMA) is under active consideration. At the June UK National Screening Committee (UK NSC) meeting this was tabled for discussion. Minutes of this meeting are available at the following link:</p><p><a href="https://www.gov.uk/government/publications/uk-nsc-meeting-june-2023/uk-nsc-minutes-june-2023" target="_blank">https://www.gov.uk/government/publications/uk-nsc-meeting-june-2023/uk-nsc-minutes-june-2023</a></p><p>The UK NSC supported the proposal to commission a cost effectiveness modelling study and to start planning a high-quality in-service evaluation to support a UK NSC recommendation. Due to these new decisions made at the June meeting, no timetable has yet been developed.</p><p>As per the UK NSC’s published process, the committee will hold a three-month public consultation on SMA inviting stakeholders and members of the public to comment and submit further evidence for consideration. It will keep the public abreast of developments via its blogs and ongoing stakeholder engagement activities.</p> answering member constituency Colchester answering member printed Will Quince grouped question UIN 194867 194868 194869 194871 194883 question first answered 21/07/2023 12:18:40 answering member 4423 label Biography information for Will Quince
	tabling member	4397 label Biography information for Peter Dowd

1654042

	registered interest
	date	18/07/2023
	answering body	Department of Health and Social Care
	answering dept id	17
	answering dept short name	Health and Social Care
	answering dept sort name	Health and Social Care
	hansard heading	Spinal Muscular Atrophy: Screening
	house id	1
	legislature	25259 pref label House of Commons
	question text	To ask the Secretary of State for Health and Social Care, whether the UK National Screening Committee plans to review the evidence generated by Oxford University from its Thames Valley pilot within the Committee’s own population-based study on Spinal Muscular Atrophy.
	tabling member constituency	Bootle
	tabling member printed	Peter Dowd
	uin	194871
	answer	answer is ministerial correction date of answer 21/07/2023 answer text <p>The review of whether to screen for spinal muscular atrophy (SMA) is under active consideration. At the June UK National Screening Committee (UK NSC) meeting this was tabled for discussion. Minutes of this meeting are available at the following link:</p><p><a href="https://www.gov.uk/government/publications/uk-nsc-meeting-june-2023/uk-nsc-minutes-june-2023" target="_blank">https://www.gov.uk/government/publications/uk-nsc-meeting-june-2023/uk-nsc-minutes-june-2023</a></p><p>The UK NSC supported the proposal to commission a cost effectiveness modelling study and to start planning a high-quality in-service evaluation to support a UK NSC recommendation. Due to these new decisions made at the June meeting, no timetable has yet been developed.</p><p>As per the UK NSC’s published process, the committee will hold a three-month public consultation on SMA inviting stakeholders and members of the public to comment and submit further evidence for consideration. It will keep the public abreast of developments via its blogs and ongoing stakeholder engagement activities.</p> answering member constituency Colchester answering member printed Will Quince grouped question UIN 194867 194868 194869 194870 194883 question first answered 21/07/2023 12:18:40 answering member 4423 label Biography information for Will Quince
	tabling member	4397 label Biography information for Peter Dowd

1654043

	registered interest
	date	18/07/2023
	answering body	Department of Health and Social Care
	answering dept id	17
	answering dept short name	Health and Social Care
	answering dept sort name	Health and Social Care
	hansard heading	Babies: Screening
	house id	1
	legislature	25259 pref label House of Commons
	question text	To ask the Secretary of State for Health and Social Care, with reference to the APPG for Muscular Dystrophy report entitled Newborn Screening for Rare Conditions, published May 2023, what assessment he has made for the implications for his policies of the recommendation that when conditions previously rejected for newborn screening are reassessed, there should be a clear expedited process that demonstrates how gaps will be filled rather than restarting a review process each time.
	tabling member constituency	Bootle
	tabling member printed	Peter Dowd
	uin	194872
	answer	answer is ministerial correction date of answer 24/07/2023 answer text <p>The UK National Screening Committee (UK NSC) has published its evidence review process, which is available at the following link:</p><p><a href="https://www.gov.uk/government/publications/uk-nsc-evidence-review-process/uk-nsc-evidence-review-process" target="_blank">https://www.gov.uk/government/publications/uk-nsc-evidence-review-process/uk-nsc-evidence-review-process</a></p><p>As outlined in the process, an evidence map is commissioned first. This process deliberately builds on previous evidence and does not start again. This evidence map draws on uncertainties identified from the previous review to identify whether there has been any advancement in the evidence base for that topic before a more significant review is commissioned. The final evidence product (a map or a review) draws attention to the gaps in the evidence that mean the UK NSC cannot confidently recommend screening.</p><p>The UK NSC’s process using an evidence map is similar to a process used by the National Institute for Health and Care Excellence.</p> answering member constituency Colchester answering member printed Will Quince question first answered 24/07/2023 16:54:21 answering member 4423 label Biography information for Will Quince
	tabling member	4397 label Biography information for Peter Dowd

1654044

	registered interest
	date	18/07/2023
	answering body	Department of Health and Social Care
	answering dept id	17
	answering dept short name	Health and Social Care
	answering dept sort name	Health and Social Care
	hansard heading	Babies: Screening
	house id	1
	legislature	25259 pref label House of Commons
	question text	To ask the Secretary of State for Health and Social Care, with reference to the report by the All-Party Parliamentary Group for Muscular Dystrophy entitled Newborn Screening for Rare Conditions, published in May 2023, what assessment he has made of the implications for his policies of the recommendations of that report that the UK National Screening Committee should (a) give greater consideration to existing real-world evidence and (b) consider international evidence from countries with similar health systems during its review of new conditions to be included within the NHS newborn screening programme.
	tabling member constituency	Bootle
	tabling member printed	Peter Dowd
	uin	194873
	answer	answer is ministerial correction date of answer 24/07/2023 answer text <p>The UK National Screening Committee (UK NSC) has published its evidence review process, which outlines the type of evidence taken into consideration when making a screening recommendation, and is available at the following link:</p><p><a href="https://www.gov.uk/government/publications/uk-nsc-evidence-review-process/uk-nsc-evidence-review-process" target="_blank">https://www.gov.uk/government/publications/uk-nsc-evidence-review-process/uk-nsc-evidence-review-process</a></p><p>The UK NSC is clear that screening is introduced where the benefit to screen clearly outweighs the harm, this is underpinned by robust peer-reviewed evidence.</p><p>The UK NSC considers a wide array of evidence when making recommendations, including published peer-reviewed evidence, public, clinical and academic commentary and real-world evidence undertaken internationally. However, the UK NSC needs to be confident when making screening recommendations that the offer to screen is supported by robust evidence that clearly illustrates that the benefit outweighs the harms.</p> answering member constituency Colchester answering member printed Will Quince question first answered 24/07/2023 16:55:41 answering member 4423 label Biography information for Will Quince
	tabling member	4397 label Biography information for Peter Dowd

1654045

	registered interest
	date	18/07/2023
	answering body	Department of Health and Social Care
	answering dept id	17
	answering dept short name	Health and Social Care
	answering dept sort name	Health and Social Care
	hansard heading	Babies: Screening
	house id	1
	legislature	25259 pref label House of Commons
	question text	To ask the Secretary of State for Health and Social Care, what steps he is taking to (a) improve the horizon scanning capabilities of the UK National Screening Committee and (b) increase alignment between National Institute for Health and Care Excellence recommendations and newborn screening decisions.
	tabling member constituency	Bootle
	tabling member printed	Peter Dowd
	uin	194874
	answer	answer is ministerial correction date of answer 21/07/2023 answer text <p>Information about the UK National Screening Committee’s (UK NSC) methods, processes and criteria for reviewing conditions are all publicly available on its website.</p><p>The UK NSC Secretariat already has significant horizon scanning capabilities: it has connections and talks to key clinicians, users, and stakeholder groups; it liaises with colleagues at the National Institute for Health and Care Excellence when a screening proposal is mooted; it holds and attends regular meetings with international colleagues; and it maintains an article alert service. It also receives many approaches from researchers active in the screening and mass testing areas.</p><p>The four United Kingdom Chief Medical Officers recently recommended expanding the UK NSC’s remit to increase its capabilities and scope, and the independent body has been working over the past year to implement these changes. Among the additional processes to ensure the UK NSC is appraised of what is on the horizon is the blood spot task group to help it identify practical and innovative approaches to the development and evaluation of evidence, and its new research and methodology group, which is made up of academics with multiple connections to research in screening and testing.</p><p>The UK NSC Secretariat is currently recruiting additional staff, including a new horizon scanning lead, which will further increase its ability to sift and assess evidence and make high quality recommendations even within the constraints of limited evidence bases, such as exists with rare diseases.</p> answering member constituency Colchester answering member printed Will Quince grouped question UIN 194875 194876 question first answered 21/07/2023 12:43:11 answering member 4423 label Biography information for Will Quince
	tabling member	4397 label Biography information for Peter Dowd

1654046

	registered interest
	date	18/07/2023
	answering body	Department of Health and Social Care
	answering dept id	17
	answering dept short name	Health and Social Care
	answering dept sort name	Health and Social Care
	hansard heading	Babies: Screening
	house id	1
	legislature	25259 pref label House of Commons
	question text	To ask the Secretary of State for Health and Social Care, if he will ask the UK National Screening Committee to publish its methods, processes and criteria for reviewing conditions to be included in the NHS newborn screening programme.
	tabling member constituency	Bootle
	tabling member printed	Peter Dowd
	uin	194875
	answer	answer is ministerial correction date of answer 21/07/2023 answer text <p>Information about the UK National Screening Committee’s (UK NSC) methods, processes and criteria for reviewing conditions are all publicly available on its website.</p><p>The UK NSC Secretariat already has significant horizon scanning capabilities: it has connections and talks to key clinicians, users, and stakeholder groups; it liaises with colleagues at the National Institute for Health and Care Excellence when a screening proposal is mooted; it holds and attends regular meetings with international colleagues; and it maintains an article alert service. It also receives many approaches from researchers active in the screening and mass testing areas.</p><p>The four United Kingdom Chief Medical Officers recently recommended expanding the UK NSC’s remit to increase its capabilities and scope, and the independent body has been working over the past year to implement these changes. Among the additional processes to ensure the UK NSC is appraised of what is on the horizon is the blood spot task group to help it identify practical and innovative approaches to the development and evaluation of evidence, and its new research and methodology group, which is made up of academics with multiple connections to research in screening and testing.</p><p>The UK NSC Secretariat is currently recruiting additional staff, including a new horizon scanning lead, which will further increase its ability to sift and assess evidence and make high quality recommendations even within the constraints of limited evidence bases, such as exists with rare diseases.</p> answering member constituency Colchester answering member printed Will Quince grouped question UIN 194874 194876 question first answered 21/07/2023 12:43:11 answering member 4423 label Biography information for Will Quince
	tabling member	4397 label Biography information for Peter Dowd

1654047

	registered interest
	date	18/07/2023
	answering body	Department of Health and Social Care
	answering dept id	17
	answering dept short name	Health and Social Care
	answering dept sort name	Health and Social Care
	hansard heading	Rare Diseases: Screening
	house id	1
	legislature	25259 pref label House of Commons
	question text	To ask the Secretary of State for Health and Social Care, what steps the UK National Screening Committee is taking to review its methods, processes and criteria to ensure they are appropriate for assessing rare conditions.
	tabling member constituency	Bootle
	tabling member printed	Peter Dowd
	uin	194876
	answer	answer is ministerial correction date of answer 21/07/2023 answer text <p>Information about the UK National Screening Committee’s (UK NSC) methods, processes and criteria for reviewing conditions are all publicly available on its website.</p><p>The UK NSC Secretariat already has significant horizon scanning capabilities: it has connections and talks to key clinicians, users, and stakeholder groups; it liaises with colleagues at the National Institute for Health and Care Excellence when a screening proposal is mooted; it holds and attends regular meetings with international colleagues; and it maintains an article alert service. It also receives many approaches from researchers active in the screening and mass testing areas.</p><p>The four United Kingdom Chief Medical Officers recently recommended expanding the UK NSC’s remit to increase its capabilities and scope, and the independent body has been working over the past year to implement these changes. Among the additional processes to ensure the UK NSC is appraised of what is on the horizon is the blood spot task group to help it identify practical and innovative approaches to the development and evaluation of evidence, and its new research and methodology group, which is made up of academics with multiple connections to research in screening and testing.</p><p>The UK NSC Secretariat is currently recruiting additional staff, including a new horizon scanning lead, which will further increase its ability to sift and assess evidence and make high quality recommendations even within the constraints of limited evidence bases, such as exists with rare diseases.</p> answering member constituency Colchester answering member printed Will Quince grouped question UIN 194874 194875 question first answered 21/07/2023 12:43:11 answering member 4423 label Biography information for Will Quince
	tabling member	4397 label Biography information for Peter Dowd

1654048

	registered interest
	date	18/07/2023
	answering body	Department of Health and Social Care
	answering dept id	17
	answering dept short name	Health and Social Care
	answering dept sort name	Health and Social Care
	hansard heading	Spinal Muscular Atrophy: Babies
	house id	1
	legislature	25259 pref label House of Commons
	question text	To ask the Secretary of State for Health and Social Care, whether the UK National Screening Committee has had recent discussions with (a) patient organisations, (b) patients and (c) families affected by spinal muscular atrophy (SMA) as part of its review of incorporating SMA within the NHS newborn screening programme.
	tabling member constituency	Bootle
	tabling member printed	Peter Dowd
	uin	194877
	answer	answer is ministerial correction date of answer 21/07/2023 answer text <p>As part of the UK National Screening Committee’s (UK NSC) work to review newborn screening for Spinal Muscular Atrophy (SMA), the UK NSC secretariat has held multiple stakeholder engagement activities where stakeholders have helped formulate evidence work.</p><p>The UK NSC last met with the SMA Alliance earlier in July and responded recently to correspondence about screening for SMA. The UK NSC will continue to actively engage with patient organisations and provide updates as far as is possible within the bounds of the published process of the UK NSC as an independent scientific advisory committee.</p> answering member constituency Colchester answering member printed Will Quince question first answered 21/07/2023 12:47:11 answering member 4423 label Biography information for Will Quince
	tabling member	4397 label Biography information for Peter Dowd

1654049

	registered interest
	date	18/07/2023
	answering body	Department of Health and Social Care
	answering dept id	17
	answering dept short name	Health and Social Care
	answering dept sort name	Health and Social Care
	hansard heading	Spinal Muscular Atrophy: Diagnosis and Medical Treatments
	house id	1
	legislature	25259 pref label House of Commons
	question text	To ask the Secretary of State for Health and Social Care, what assessment his Department has made of the impact of average (a) diagnosis and (b) treatment waiting times on people affected by spinal muscular atrophy.
	tabling member constituency	Bootle
	tabling member printed	Peter Dowd
	uin	194878
	answer	answer is ministerial correction date of answer 24/07/2023 answer text <p>NHS England has made no specific assessment of the impact of average diagnosis and treatment waiting times on people affected by spinal muscular atrophy (SMA). However, since the 2018 recommendation not to introduce newborn screening for SMA, there have been significant developments in the treatment of SMA, including the approval by the National Institute for Health and Care Excellence and the Scottish Intercollegiate Guidelines Network of several drugs to treat SMA in newborns. Evidence presented to the UK National Screening Committee (UK NSC) in June provided reasonable grounds for more formal exploration of a United Kingdom newborn screening programme for SMA. The health impacts of time to diagnosis will be considered as part of the UK NSCs modelling work on SMA. The UK NSC are currently in discussions on how best to take this forward.</p> answering member constituency Colchester answering member printed Will Quince question first answered 24/07/2023 16:56:47 answering member 4423 label Biography information for Will Quince
	tabling member	4397 label Biography information for Peter Dowd

1654050

	registered interest
	date	18/07/2023
	answering body	Department of Health and Social Care
	answering dept id	17
	answering dept short name	Health and Social Care
	answering dept sort name	Health and Social Care
	hansard heading	Rare Diseases: Diagnosis and Medical Treatments
	house id	1
	legislature	25259 pref label House of Commons
	question text	To ask the Secretary of State for Health and Social Care, what steps his Department is taking to reduce (a) diagnosis and (b) treatment waiting times for people with rare diseases which present in childhood.
	tabling member constituency	Bootle
	tabling member printed	Peter Dowd
	uin	194879
	answer	answer is ministerial correction date of answer 24/07/2023 answer text <p>The 2021 UK Rare Diseases Framework includes priorities on ‘helping patients get a final diagnosis faster’ and ‘improving access to specialist care, treatment and drugs’. NHS England commissions a national network of specialist services offering an integrated clinical and investigative diagnostic and advisory service for patients with specified forms of rare inherited neuromuscular diseases. The network enables all patients with these disorders to access specialised diagnosis and advice on management and treatment. Genomic testing for spinal muscular atrophy (SMA) is currently offered in NHS England under the clinical indications R70, R71 and R311. Genomic testing is also available for a number of other rare, genetic neuromuscular conditions, the full list of which can be found in the National Genomic Test Directory. As with many National Health Service services, the COVID-19 pandemic has had an ongoing impact on the genomic testing pathway. NHS England is working to support recovery to reduce reporting times.</p><p>Evidence presented to the UK National Screening Committee (UK NSC) in June provided reasonable grounds for more formal exploration of a United Kingdom newborn screening programme for SMA. The health impacts of time to diagnosis will be considered as part of the UK NSC’s work on SMA.</p><p>NHS England is also developing a proposal for a pilot ‘syndromes without a name’ clinic, the aim of which will be to provide better opportunities for diagnosis and to shorten the time to diagnosis through multidisciplinary review and enhanced access to tests. Additionally, the Genomics England Newborn Genomes Programme has been allocated £105 million of Departmental funding to explore whether whole genome sequencing can diagnose rare diseases earlier and improve outcomes for newborns.</p> answering member constituency Colchester answering member printed Will Quince grouped question UIN 194884 question first answered 24/07/2023 12:52:48 answering member 4423 label Biography information for Will Quince
	tabling member	4397 label Biography information for Peter Dowd

1654051

	registered interest
	date	18/07/2023
	answering body	Department of Health and Social Care
	answering dept id	17
	answering dept short name	Health and Social Care
	answering dept sort name	Health and Social Care
	hansard heading	Rare Diseases: Medical Treatments
	house id	1
	legislature	25259 pref label House of Commons
	question text	To ask the Secretary of State for Health and Social Care, what steps he plans to take to ensure an equitable uptake of new treatments for (a) spinal muscular atrophy and (b) other rare diseases once recommended by NICE.
	tabling member constituency	Bootle
	tabling member printed	Peter Dowd
	uin	194880
	answer	answer is ministerial correction date of answer 24/07/2023 answer text <p>NHS England has undertaken an assessment of uptake of drugs for patients with spinal muscular atrophy and some other rare diseases. The assessment concluded that uptake equalled or exceeded the estimated number of patients in the original National Institute for Health and Care Excellence assessment and that access was equitable regardless of where patients live.</p> answering member constituency Colchester answering member printed Will Quince question first answered 24/07/2023 16:57:45 answering member 4423 label Biography information for Will Quince
	tabling member	4397 label Biography information for Peter Dowd

1654052

	registered interest
	date	18/07/2023
	answering body	Department of Health and Social Care
	answering dept id	17
	answering dept short name	Health and Social Care
	answering dept sort name	Health and Social Care
	hansard heading	UK National Screening Committee: Finance
	house id	1
	legislature	25259 pref label House of Commons
	question text	To ask the Secretary of State for Health and Social Care, what recent assessment he has made of the adequacy of the (a) capacity of and (b) funding available to the UK National Screening Committee.
	tabling member constituency	Bootle
	tabling member printed	Peter Dowd
	uin	194881
	answer	answer is ministerial correction date of answer 21/07/2023 answer text <p>The range and expertise of the UK National Screening Committee (UK NSC) members has been reviewed and adapted since the remit of the UK NSC expanded last year following the Chief Medical Officer’s recommendations. The capacity of the UK NSC Secretariat has been re-evaluated in that context. Recruitment is currently underway for additional staff to support the work of the UK NSC.</p> answering member constituency Colchester answering member printed Will Quince question first answered 21/07/2023 13:42:05 answering member 4423 label Biography information for Will Quince
	tabling member	4397 label Biography information for Peter Dowd

1654053

	registered interest
	date	18/07/2023
	answering body	Department of Health and Social Care
	answering dept id	17
	answering dept short name	Health and Social Care
	answering dept sort name	Health and Social Care
	hansard heading	UK National Screening Committee: Rare Diseases
	house id	1
	legislature	25259 pref label House of Commons
	question text	To ask the Secretary of State for Health and Social Care, what assessment he has made of the adequacy of the resources available to the UK National Screening Committee to (a) adequately engage with the rare disease stakeholder community and (b) ensure it takes account of the specific considerations relating to rare diseases.
	tabling member constituency	Bootle
	tabling member printed	Peter Dowd
	uin	194882
	answer	answer is ministerial correction date of answer 24/07/2023 answer text <p>The UK National Screening Committee (UK NSC) has dedicated experienced members of the Secretariat to increased and sustained stakeholder engagement, who have been especially focused on rare diseases. They meet regularly with interested organisations to keep them informed of the ongoing work of the UK NSC. The Departmental screening team also attends the Rare Diseases Framework Delivery group meetings where discussions with stakeholders can address specific issues.</p> answering member constituency Colchester answering member printed Will Quince question first answered 24/07/2023 15:45:10 answering member 4423 label Biography information for Will Quince
	tabling member	4397 label Biography information for Peter Dowd

1654054

	registered interest
	date	18/07/2023
	answering body	Department of Health and Social Care
	answering dept id	17
	answering dept short name	Health and Social Care
	answering dept sort name	Health and Social Care
	hansard heading	UK National Screening Committee
	house id	1
	legislature	25259 pref label House of Commons
	question text	To ask the Secretary of State for Health and Social Care, if he will take steps to expedite the process for publishing minutes from UK National Screening Committee meetings.
	tabling member constituency	Bootle
	tabling member printed	Peter Dowd
	uin	194883
	answer	answer is ministerial correction date of answer 21/07/2023 answer text <p>The review of whether to screen for spinal muscular atrophy (SMA) is under active consideration. At the June UK National Screening Committee (UK NSC) meeting this was tabled for discussion. Minutes of this meeting are available at the following link:</p><p><a href="https://www.gov.uk/government/publications/uk-nsc-meeting-june-2023/uk-nsc-minutes-june-2023" target="_blank">https://www.gov.uk/government/publications/uk-nsc-meeting-june-2023/uk-nsc-minutes-june-2023</a></p><p>The UK NSC supported the proposal to commission a cost effectiveness modelling study and to start planning a high-quality in-service evaluation to support a UK NSC recommendation. Due to these new decisions made at the June meeting, no timetable has yet been developed.</p><p>As per the UK NSC’s published process, the committee will hold a three-month public consultation on SMA inviting stakeholders and members of the public to comment and submit further evidence for consideration. It will keep the public abreast of developments via its blogs and ongoing stakeholder engagement activities.</p> answering member constituency Colchester answering member printed Will Quince grouped question UIN 194867 194868 194869 194870 194871 question first answered 21/07/2023 12:18:40 answering member 4423 label Biography information for Will Quince
	tabling member	4397 label Biography information for Peter Dowd

1654055

	registered interest
	date	18/07/2023
	answering body	Department of Health and Social Care
	answering dept id	17
	answering dept short name	Health and Social Care
	answering dept sort name	Health and Social Care
	hansard heading	Neuromuscular Disorders: Diagnosis and Medical Treatments
	house id	1
	legislature	25259 pref label House of Commons
	question text	To ask the Secretary of State for Health and Social Care, what steps his Department is taking to support early (a) diagnosis and (b) treatment for people with (i) spinal muscular atrophy and (ii) other rare, genetic and neuromuscular conditions.
	tabling member constituency	Bootle
	tabling member printed	Peter Dowd
	uin	194884
	answer	answer is ministerial correction date of answer 24/07/2023 answer text <p>The 2021 UK Rare Diseases Framework includes priorities on ‘helping patients get a final diagnosis faster’ and ‘improving access to specialist care, treatment and drugs’. NHS England commissions a national network of specialist services offering an integrated clinical and investigative diagnostic and advisory service for patients with specified forms of rare inherited neuromuscular diseases. The network enables all patients with these disorders to access specialised diagnosis and advice on management and treatment. Genomic testing for spinal muscular atrophy (SMA) is currently offered in NHS England under the clinical indications R70, R71 and R311. Genomic testing is also available for a number of other rare, genetic neuromuscular conditions, the full list of which can be found in the National Genomic Test Directory. As with many National Health Service services, the COVID-19 pandemic has had an ongoing impact on the genomic testing pathway. NHS England is working to support recovery to reduce reporting times.</p><p>Evidence presented to the UK National Screening Committee (UK NSC) in June provided reasonable grounds for more formal exploration of a United Kingdom newborn screening programme for SMA. The health impacts of time to diagnosis will be considered as part of the UK NSC’s work on SMA.</p><p>NHS England is also developing a proposal for a pilot ‘syndromes without a name’ clinic, the aim of which will be to provide better opportunities for diagnosis and to shorten the time to diagnosis through multidisciplinary review and enhanced access to tests. Additionally, the Genomics England Newborn Genomes Programme has been allocated £105 million of Departmental funding to explore whether whole genome sequencing can diagnose rare diseases earlier and improve outcomes for newborns.</p> answering member constituency Colchester answering member printed Will Quince grouped question UIN 194879 question first answered 24/07/2023 12:52:48 answering member 4423 label Biography information for Will Quince
	tabling member	4397 label Biography information for Peter Dowd

1654056

	registered interest
	date	18/07/2023
	answering body	Department of Health and Social Care
	answering dept id	17
	answering dept short name	Health and Social Care
	answering dept sort name	Health and Social Care
	hansard heading	Rare Diseases: Diagnosis
	house id	1
	legislature	25259 pref label House of Commons
	question text	To ask the Secretary of State for Health and Social Care, with reference to his Department's policy paper entitled England Rare Diseases Action Plan 2023: main report, updated on 10 July 2023, what steps his Department is taking to end the diagnostic odyssey experienced by people with rare diseases.
	tabling member constituency	Bootle
	tabling member printed	Peter Dowd
	uin	194885
	answer	answer is ministerial correction date of answer 21/07/2023 answer text <p>Helping patients get a final diagnosis faster is one of the four priorities of the 2021 UK Rare Diseases Framework, and we have committed to several actions to address this priority. For example, in the 2023 England Rare Diseases Action Plan we committed to commissioning policy research through a National Institute for Health and Care Research open call, inviting researchers to develop an effective method for measuring the time to diagnosis for both genetic and non-genetic rare conditions, with input from the rare diseases community. This will allow us to establish a baseline time to diagnosis, understand the effects of policy interventions on length of the diagnostic odyssey and provide a basis for working with the National Health Service to identify and address challenges in delivering diagnoses faster.</p> answering member constituency Colchester answering member printed Will Quince question first answered 21/07/2023 12:58:33 answering member 4423 label Biography information for Will Quince
	tabling member	4397 label Biography information for Peter Dowd

1654057

	registered interest
	date	18/07/2023
	answering body	Department of Health and Social Care
	answering dept id	17
	answering dept short name	Health and Social Care
	answering dept sort name	Health and Social Care
	hansard heading	Neurology: Health Services
	house id	1
	legislature	25259 pref label House of Commons
	question text	To ask the Secretary of State for Health and Social Care, what steps his Department plans to take to support the needs of people with (a) spinal muscular atrophy and (b) other rare neurological conditions as part of its implementation of the Rare Diseases Action Plan.
	tabling member constituency	Bootle
	tabling member printed	Peter Dowd
	uin	194886
	answer	answer is ministerial correction date of answer 24/07/2023 answer text <p>The UK Rare Diseases Framework and England’s Rare Disease Action Plans are high-level documents containing overarching priorities and underpinning themes for rare disease policy. The documents are focused on improving the lives of all people living with rare conditions, so there are no specific plans to support the needs of people with spinal muscular atrophy (SMA) and other rare neurological conditions in isolation. There are around 7,000 rare conditions, and whilst each is different, people living with rare conditions often face common challenges with the healthcare system and wider services, which the Department seeks to address through the implementation of the England Rare Disease Action Plans.</p> answering member constituency Colchester answering member printed Will Quince question first answered 24/07/2023 16:49:54 answering member 4423 label Biography information for Will Quince
	tabling member	4397 label Biography information for Peter Dowd

1656168

	registered interest
	date	01/09/2023
	answering body	Department of Health and Social Care
	answering dept id	17
	answering dept short name	Health and Social Care
	answering dept sort name	Health and Social Care
	hansard heading	Spinal Muscular Atrophy: Screening
	house id	1
	legislature	25259 pref label House of Commons
	question text	To ask the Secretary of State for Health and Social Care, whether he plans to meet with the UK National Screening Committee to discuss the timescale for implementing an in-service evaluation for spinal muscular atrophy screening in the NHS.
	tabling member constituency	Bootle
	tabling member printed	Peter Dowd
	uin	196161
	answer	answer is ministerial correction date of answer 06/09/2023 answer text <p>In June 2023, the UK National Screening Committee (UK NSC) recommended that a modelling study be carried out alongside an in-service evaluation of spinal muscular atrophy (SMA) screening in the National Health Service. Around 70 babies a year are born with SMA in the United Kingdom (around 1 in every 10,000 live births), with approximately 60% of those having type 1 SMA (SMA1).</p><p> </p><p>The new model will help define important issues for the in-service evaluation, while the evaluation will be used to collect data to feed into the model and test its assumptions. This important work will give the UK NSC the evidence it needs to assess how newborn screening for SMA might work safely in the UK.</p><p> </p><p>Work is still in the planning stages therefore timescales are not established yet. The UK NSC will keep ministers informed, and the public up to date on progress via its blog and ongoing stakeholder engagement.</p> answering member constituency Colchester answering member printed Will Quince grouped question UIN 196162 196166 196168 196170 question first answered 06/09/2023 13:58:18 answering member 4423 label Biography information for Will Quince
	tabling member	4397 label Biography information for Peter Dowd

1656169

	registered interest
	date	01/09/2023
	answering body	Department of Health and Social Care
	answering dept id	17
	answering dept short name	Health and Social Care
	answering dept sort name	Health and Social Care
	hansard heading	Spinal Muscular Atrophy: Screening
	house id	1
	legislature	25259 pref label House of Commons
	question text	To ask the Secretary of State for Health and Social Care, what information the UK National Screening Committee has provided on the (a) format, (b) scale and (c) duration of the upcoming in-service evaluation for spinal muscular atrophy screening in the NHS.
	tabling member constituency	Bootle
	tabling member printed	Peter Dowd
	uin	196162
	answer	answer is ministerial correction date of answer 06/09/2023 answer text <p>In June 2023, the UK National Screening Committee (UK NSC) recommended that a modelling study be carried out alongside an in-service evaluation of spinal muscular atrophy (SMA) screening in the National Health Service. Around 70 babies a year are born with SMA in the United Kingdom (around 1 in every 10,000 live births), with approximately 60% of those having type 1 SMA (SMA1).</p><p> </p><p>The new model will help define important issues for the in-service evaluation, while the evaluation will be used to collect data to feed into the model and test its assumptions. This important work will give the UK NSC the evidence it needs to assess how newborn screening for SMA might work safely in the UK.</p><p> </p><p>Work is still in the planning stages therefore timescales are not established yet. The UK NSC will keep ministers informed, and the public up to date on progress via its blog and ongoing stakeholder engagement.</p> answering member constituency Colchester answering member printed Will Quince grouped question UIN 196161 196166 196168 196170 question first answered 06/09/2023 13:58:18 answering member 4423 label Biography information for Will Quince
	tabling member	4397 label Biography information for Peter Dowd

1656170

	registered interest
	date	01/09/2023
	answering body	Department of Health and Social Care
	answering dept id	17
	answering dept short name	Health and Social Care
	answering dept sort name	Health and Social Care
	hansard heading	Spinal Muscular Atrophy: Screening
	house id	1
	legislature	25259 pref label House of Commons
	question text	To ask the Secretary of State for Health and Social Care, what assessment he has made of the potential impact of an in-service evaluation for spinal muscular atophy in the NHS on (a) patients and (b) patient families outside of the pilot area.
	tabling member constituency	Bootle
	tabling member printed	Peter Dowd
	uin	196163
	answer	answer is ministerial correction date of answer 11/09/2023 answer text <p>The UK National Screening Committee reviewed screening for spinal muscular atrophy in June 2023. While acknowledging recent developments, it found that more evidence was needed to assess how screening might work safely in the United Kingdom.</p><p>Its recommendation was to develop a new cost effectiveness modelling study for the UK screening context, as well as start scoping in-service evaluation work in live services in the National Health Service in the UK.</p><p>Planning is now underway for the modelling and in-service evaluation, which will help to address these uncertainties and unanswered questions. The UK National Screening Committee will continue to engage with spinal muscular atrophy stakeholders to help shape and input into the work and will keep the public updated via blog articles and ongoing stakeholder engagement.</p> answering member constituency Colchester answering member printed Will Quince grouped question UIN 196164 196165 196167 196169 196171 196172 question first answered 11/09/2023 13:22:23 answering member 4423 label Biography information for Will Quince
	tabling member	4397 label Biography information for Peter Dowd

1656171

	registered interest
	date	01/09/2023
	answering body	Department of Health and Social Care
	answering dept id	17
	answering dept short name	Health and Social Care
	answering dept sort name	Health and Social Care
	hansard heading	Spinal Muscular Atrophy: Screening
	house id	1
	legislature	25259 pref label House of Commons
	question text	To ask the Secretary of State for Health and Social Care, what assessment he has made of the adequacy of opportunities available to the patient community to input into the (a) design and (b) delivery of the UK National Screening Committee’s upcoming in-service evaluation of spinal muscular astrophy screening in the NHS.
	tabling member constituency	Bootle
	tabling member printed	Peter Dowd
	uin	196164
	answer	answer is ministerial correction date of answer 11/09/2023 answer text <p>The UK National Screening Committee reviewed screening for spinal muscular atrophy in June 2023. While acknowledging recent developments, it found that more evidence was needed to assess how screening might work safely in the United Kingdom.</p><p>Its recommendation was to develop a new cost effectiveness modelling study for the UK screening context, as well as start scoping in-service evaluation work in live services in the National Health Service in the UK.</p><p>Planning is now underway for the modelling and in-service evaluation, which will help to address these uncertainties and unanswered questions. The UK National Screening Committee will continue to engage with spinal muscular atrophy stakeholders to help shape and input into the work and will keep the public updated via blog articles and ongoing stakeholder engagement.</p> answering member constituency Colchester answering member printed Will Quince grouped question UIN 196163 196165 196167 196169 196171 196172 question first answered 11/09/2023 13:22:23 answering member 4423 label Biography information for Will Quince
	tabling member	4397 label Biography information for Peter Dowd

1656172

	registered interest
	date	01/09/2023
	answering body	Department of Health and Social Care
	answering dept id	17
	answering dept short name	Health and Social Care
	answering dept sort name	Health and Social Care
	hansard heading	Spinal Muscular Atrophy: Screening
	house id	1
	legislature	25259 pref label House of Commons
	question text	To ask the Secretary of State for Health and Social Care, what steps his Department is taking to (a) ensure and (b) monitor the (i) introduction, (ii) delivery and (iii) completion of the in-service evaluation for spinal muscular atrophy screening in the NHS.
	tabling member constituency	Bootle
	tabling member printed	Peter Dowd
	uin	196165
	answer	answer is ministerial correction date of answer 11/09/2023 answer text <p>The UK National Screening Committee reviewed screening for spinal muscular atrophy in June 2023. While acknowledging recent developments, it found that more evidence was needed to assess how screening might work safely in the United Kingdom.</p><p>Its recommendation was to develop a new cost effectiveness modelling study for the UK screening context, as well as start scoping in-service evaluation work in live services in the National Health Service in the UK.</p><p>Planning is now underway for the modelling and in-service evaluation, which will help to address these uncertainties and unanswered questions. The UK National Screening Committee will continue to engage with spinal muscular atrophy stakeholders to help shape and input into the work and will keep the public updated via blog articles and ongoing stakeholder engagement.</p> answering member constituency Colchester answering member printed Will Quince grouped question UIN 196163 196164 196167 196169 196171 196172 question first answered 11/09/2023 13:22:23 answering member 4423 label Biography information for Will Quince
	tabling member	4397 label Biography information for Peter Dowd

1656173

	registered interest
	date	01/09/2023
	answering body	Department of Health and Social Care
	answering dept id	17
	answering dept short name	Health and Social Care
	answering dept sort name	Health and Social Care
	hansard heading	Spinal Muscular Atrophy: Screening
	house id	1
	legislature	25259 pref label House of Commons
	question text	To ask the Secretary of State for Health and Social Care, what assessment he has made of the adequacy of the timelines for the UK National Screening Committee’s in-service evaluation for severe combined immunodeficiency screening in the NHS; and whether his Department has plans to reduce the timeline for the upcoming in-service evaluation for spinal muscular atrophy screening.
	tabling member constituency	Bootle
	tabling member printed	Peter Dowd
	uin	196166
	answer	answer is ministerial correction date of answer 06/09/2023 answer text <p>In June 2023, the UK National Screening Committee (UK NSC) recommended that a modelling study be carried out alongside an in-service evaluation of spinal muscular atrophy (SMA) screening in the National Health Service. Around 70 babies a year are born with SMA in the United Kingdom (around 1 in every 10,000 live births), with approximately 60% of those having type 1 SMA (SMA1).</p><p> </p><p>The new model will help define important issues for the in-service evaluation, while the evaluation will be used to collect data to feed into the model and test its assumptions. This important work will give the UK NSC the evidence it needs to assess how newborn screening for SMA might work safely in the UK.</p><p> </p><p>Work is still in the planning stages therefore timescales are not established yet. The UK NSC will keep ministers informed, and the public up to date on progress via its blog and ongoing stakeholder engagement.</p> answering member constituency Colchester answering member printed Will Quince grouped question UIN 196161 196162 196168 196170 question first answered 06/09/2023 13:58:18 answering member 4423 label Biography information for Will Quince
	tabling member	4397 label Biography information for Peter Dowd

1656174

	registered interest
	date	01/09/2023
	answering body	Department of Health and Social Care
	answering dept id	17
	answering dept short name	Health and Social Care
	answering dept sort name	Health and Social Care
	hansard heading	Spinal Muscular Atrophy: Screening
	house id	1
	legislature	25259 pref label House of Commons
	question text	To ask the Secretary of State for Health and Social Care, what assessment he has made of the potential impact of the UK National Screening Committee commissioning a cost-effectiveness modeling study for spinal muscular atrophy on the timeline for implementing newborn screenings across the UK.
	tabling member constituency	Bootle
	tabling member printed	Peter Dowd
	uin	196167
	answer	answer is ministerial correction date of answer 11/09/2023 answer text <p>The UK National Screening Committee reviewed screening for spinal muscular atrophy in June 2023. While acknowledging recent developments, it found that more evidence was needed to assess how screening might work safely in the United Kingdom.</p><p>Its recommendation was to develop a new cost effectiveness modelling study for the UK screening context, as well as start scoping in-service evaluation work in live services in the National Health Service in the UK.</p><p>Planning is now underway for the modelling and in-service evaluation, which will help to address these uncertainties and unanswered questions. The UK National Screening Committee will continue to engage with spinal muscular atrophy stakeholders to help shape and input into the work and will keep the public updated via blog articles and ongoing stakeholder engagement.</p> answering member constituency Colchester answering member printed Will Quince grouped question UIN 196163 196164 196165 196169 196171 196172 question first answered 11/09/2023 13:22:23 answering member 4423 label Biography information for Will Quince
	tabling member	4397 label Biography information for Peter Dowd