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1141914

	registered interest
	date	24/07/2019
	answering body	Department of Health and Social Care
	answering dept id	17
	answering dept short name	Health and Social Care
	answering dept sort name	Health and Social Care
	hansard heading	Medical Records: Data Protection
	house id	2
	legislature	25277 pref label House of Lords
	question text	To ask Her Majesty's Government, in respect of its guidance Creating the right framework to realise the benefits for patients and the NHS where data underpins innovation, published on 15 July, what is meant by "fair terms" for (1) NHS organisations, and (2) the NHS as a whole.
	tabling member printed	Lord Freyberg
	uin	HL17458
	answer	answer is ministerial correction date of answer 07/08/2019 answer text <p>As set out in the recently published guidance <em>Creating the right framework to realise the benefits for patients and the NHS where data underpins innovation,</em> the Centre of Expertise will offer support to those National Health Service organisations seeking to understand whether proposed data arrangements meet the requirements set out in the five guiding principles. The Centre of Expertise will sit in NHSX. The requirement that terms are agreed which are fair to both an NHS organisation and the wider NHS, is included to ensure, for example, that local NHS trusts consider arrangements which can provide benefits to the whole NHS, not just to an individual trust. This may include a NHS trust providing access to anonymised healthcare data for development of a healthcare product in return for access at a reduced cost to that product for the whole NHS, not just that particular trust. Fair terms should ensure that benefits returned to NHS organisations and the NHS as a whole are commensurate with the outputs that are generated by the data partner. The principles are intended to apply to all NHS organisations at the primary, secondary and tertiary care levels, including national NHS organisations. However, we will consider the inclusion of arm’s length bodies as part of the next phase of work in developing a full policy framework.</p> answering member printed Baroness Blackwood of North Oxford grouped question UIN HL17459 HL17460 question first answered 07/08/2019 11:38:14 answering member 4019 label Biography information for Baroness Blackwood of North Oxford
	tabling member	2593 label Biography information for Lord Freyberg

1141915

	registered interest
	date	24/07/2019
	answering body	Department of Health and Social Care
	answering dept id	17
	answering dept short name	Health and Social Care
	answering dept sort name	Health and Social Care
	hansard heading	Medical Records: Data Protection
	house id	2
	legislature	25277 pref label House of Lords
	question text	To ask Her Majesty's Government, in respect of its guidance Creating the right framework to realise the benefits for patients and the NHS where data underpins innovation, which organisation or body will hold to account the boards of NHS organisations in ensuring that "any arrangements entered into by their organisation are fair, including recognising and safeguarding the value of the data that is shared and the resources which are generated as a result of the arrangement”.
	tabling member printed	Lord Freyberg
	uin	HL17459
	answer	answer is ministerial correction date of answer 07/08/2019 answer text <p>As set out in the recently published guidance <em>Creating the right framework to realise the benefits for patients and the NHS where data underpins innovation,</em> the Centre of Expertise will offer support to those National Health Service organisations seeking to understand whether proposed data arrangements meet the requirements set out in the five guiding principles. The Centre of Expertise will sit in NHSX. The requirement that terms are agreed which are fair to both an NHS organisation and the wider NHS, is included to ensure, for example, that local NHS trusts consider arrangements which can provide benefits to the whole NHS, not just to an individual trust. This may include a NHS trust providing access to anonymised healthcare data for development of a healthcare product in return for access at a reduced cost to that product for the whole NHS, not just that particular trust. Fair terms should ensure that benefits returned to NHS organisations and the NHS as a whole are commensurate with the outputs that are generated by the data partner. The principles are intended to apply to all NHS organisations at the primary, secondary and tertiary care levels, including national NHS organisations. However, we will consider the inclusion of arm’s length bodies as part of the next phase of work in developing a full policy framework.</p> answering member printed Baroness Blackwood of North Oxford grouped question UIN HL17458 HL17460 question first answered 07/08/2019 11:38:14 answering member 4019 label Biography information for Baroness Blackwood of North Oxford
	tabling member	2593 label Biography information for Lord Freyberg

1141916

	registered interest
	date	24/07/2019
	answering body	Department of Health and Social Care
	answering dept id	17
	answering dept short name	Health and Social Care
	answering dept sort name	Health and Social Care
	hansard heading	Medical Records: Data Protection
	house id	2
	legislature	25277 pref label House of Lords
	question text	To ask Her Majesty's Government, in respect of its guidance Creating the right framework to realise the benefits for patients and the NHS where data underpins innovation, whether, in referring to NHS organisations, national NHS organisations, pertinent departments and arms-length bodies are required not to enter into “exclusive arrangements for raw data held by them”.
	tabling member printed	Lord Freyberg
	uin	HL17460
	answer	answer is ministerial correction date of answer 07/08/2019 answer text <p>As set out in the recently published guidance <em>Creating the right framework to realise the benefits for patients and the NHS where data underpins innovation,</em> the Centre of Expertise will offer support to those National Health Service organisations seeking to understand whether proposed data arrangements meet the requirements set out in the five guiding principles. The Centre of Expertise will sit in NHSX. The requirement that terms are agreed which are fair to both an NHS organisation and the wider NHS, is included to ensure, for example, that local NHS trusts consider arrangements which can provide benefits to the whole NHS, not just to an individual trust. This may include a NHS trust providing access to anonymised healthcare data for development of a healthcare product in return for access at a reduced cost to that product for the whole NHS, not just that particular trust. Fair terms should ensure that benefits returned to NHS organisations and the NHS as a whole are commensurate with the outputs that are generated by the data partner. The principles are intended to apply to all NHS organisations at the primary, secondary and tertiary care levels, including national NHS organisations. However, we will consider the inclusion of arm’s length bodies as part of the next phase of work in developing a full policy framework.</p> answering member printed Baroness Blackwood of North Oxford grouped question UIN HL17458 HL17459 question first answered 07/08/2019 11:38:14 answering member 4019 label Biography information for Baroness Blackwood of North Oxford
	tabling member	2593 label Biography information for Lord Freyberg

1139561

	registered interest
	date	16/07/2019
	answering body	Department of Health and Social Care
	answering dept id	17
	answering dept short name	Health and Social Care
	answering dept sort name	Health and Social Care
	hansard heading	Medicine: Research
	house id	2
	legislature	25277 pref label House of Lords
	question text	To ask Her Majesty's Government what assessment they have made of the amount of research and development funding required by organisations involved in (1) health research, and (2) data-driven health research, in the UK.
	tabling member printed	Lord Freyberg
	uin	HL17208
	answer	answer is ministerial correction date of answer 25/07/2019 answer text <p>The Department’s National Institute for Health Research (NIHR) budget for 2019/20 is just over £1 billion and welcomes funding applications for research into any aspect of human health. The NIHR funds research projects, training and research infrastructure. Applications are subject to peer review and judged in open competition, with awards being made on the basis of the importance of the topic to patients and health and care services, value for money and scientific quality.</p><p>The NIHR also is a co-funder of Health Data Research UK who are committed to uniting the United Kingdom’s health data to enable discoveries and ensure that every health and care interaction and research endeavour will be enhanced by access to large scale data and advanced analytics. The NIHR also supports a number of initiatives to help researchers to access health data, samples and to identify participants for research.</p><p>The future of budgets outside of the NHS England resource settlement, including capital budgets for research and development, will be confirmed later this year at the Spending Review 2019.</p><p> </p> answering member printed Baroness Blackwood of North Oxford question first answered 25/07/2019 11:15:13 answering member 4019 label Biography information for Baroness Blackwood of North Oxford
	tabling member	2593 label Biography information for Lord Freyberg

1137944

	registered interest
	date	09/07/2019
	answering body	Department of Health and Social Care
	answering dept id	17
	answering dept short name	Health and Social Care
	answering dept sort name	Health and Social Care
	hansard heading	Data Protection: USA
	house id	2
	legislature	25277 pref label House of Lords
	question text	To ask Her Majesty's Government what plans they have to design a new, improved data privacy shield that takes on board concerns about the current EU–United States Privacy Shield before negotiating a trade deal with the government of the United States after Brexit, so that it safeguards individuals as well as providing for the promotion of the UK’s life science and technology sectors.
	tabling member printed	Lord Freyberg
	uin	HL17043
	answer	answer is ministerial correction date of answer 23/07/2019 answer text <p>The Government has committed to maintaining a high level of data protection standards, which are set out in the Data Protection Act 2018.</p><p>These safeguards allow the public to have trust in how and why their data is used and it is important that we maintain them. Access and use of data should always be done lawfully, safely and securely. We reiterate that National Health Service data must always be held securely, with appropriate and strong privacy and cyber-security protections.</p><p>As the United Kingdom leaves the European Union we have made arrangements with the United States that will ensure that in both ‘deal’ and ‘no deal’ scenarios, transfers of personal data from the UK to US Privacy Shield participant organisations can continue to be made under the Privacy Shield Framework.</p> answering member printed Baroness Blackwood of North Oxford grouped question UIN HL17044 question first answered 23/07/2019 15:33:07 answering member 4019 label Biography information for Baroness Blackwood of North Oxford
	tabling member	2593 label Biography information for Lord Freyberg

1137945

	registered interest
	date	09/07/2019
	answering body	Department of Health and Social Care
	answering dept id	17
	answering dept short name	Health and Social Care
	answering dept sort name	Health and Social Care
	hansard heading	Health Services and Social Services: Data Protection
	house id	2
	legislature	25277 pref label House of Lords
	question text	To ask Her Majesty's Government what plans they have to explore the scope to design a dedicated privacy shield confined to health and care data before negotiating a trade deal with the government of the United States after Brexit.
	tabling member printed	Lord Freyberg
	uin	HL17044
	answer	answer is ministerial correction date of answer 23/07/2019 answer text <p>The Government has committed to maintaining a high level of data protection standards, which are set out in the Data Protection Act 2018.</p><p>These safeguards allow the public to have trust in how and why their data is used and it is important that we maintain them. Access and use of data should always be done lawfully, safely and securely. We reiterate that National Health Service data must always be held securely, with appropriate and strong privacy and cyber-security protections.</p><p>As the United Kingdom leaves the European Union we have made arrangements with the United States that will ensure that in both ‘deal’ and ‘no deal’ scenarios, transfers of personal data from the UK to US Privacy Shield participant organisations can continue to be made under the Privacy Shield Framework.</p> answering member printed Baroness Blackwood of North Oxford grouped question UIN HL17043 question first answered 23/07/2019 15:33:07 answering member 4019 label Biography information for Baroness Blackwood of North Oxford
	tabling member	2593 label Biography information for Lord Freyberg

1145225

	registered interest
	date	05/09/2019
	answering body	Department of Health and Social Care
	answering dept id	17
	answering dept short name	Health and Social Care
	answering dept sort name	Health and Social Care
	hansard heading	Department of Health and Social Care: Databases
	house id	2
	legislature	25277 pref label House of Lords
	question text	To ask Her Majesty's Government how many reports have been commissioned in the last three years on the value or curation of data controlled or generated by (1) the National Health Service, (2) the Department of Health and Social Care, and (3) arms-length bodies of that department; which departments commissioned those reports; when those reports were completed or are due to be completed; which organisations produced those reports; what was the cost of each of those reports; what are the titles of those reports; and whether those reports are in the public domain.
	tabling member printed	Lord Freyberg
	uin	HL17752
	answer	answer is ministerial correction date of answer 09/09/2019 answer text <p>The information is not held centrally and could only be obtained at disproportionate cost.</p> answering member printed Baroness Blackwood of North Oxford question first answered 09/09/2019 16:55:40 answering member 4019 label Biography information for Baroness Blackwood of North Oxford
	tabling member	2593 label Biography information for Lord Freyberg

1220849

	registered interest
	date	06/07/2020
	answering body	Department of Health and Social Care
	answering dept id	17
	answering dept short name	Health and Social Care
	answering dept sort name	Health and Social Care
	hansard heading	Medical Records: Data Protection
	house id	2
	legislature	25277 pref label House of Lords
	question text	To ask Her Majesty's Government whether notices issued under the Health Service (Control of Patient Information) Regulations 2002 in March cover the release of patient identifiable information to local public health teams; and if so, which (1) legal, or (2) policy, provisions prevent local directors of public health from receiving such information.
	tabling member printed	Lord Freyberg
	uin	HL6451
	answer	answer is ministerial correction date of answer 17/07/2020 answer text <p>It is of vital importance that the health and care sector is able to access the data it needs to respond to COVID-19. A Control of Patient Information Notice was issued to require a range of organisations to share and process data for COVID-19 purposes. This should include sharing data with public health teams responding to COVID-19.</p><p> </p><p>The Notice only applies to data processed for COVID-19 purposes and organisations must also meet other regulatory and legal requirements such as the General Data Protection Regulation.</p><p> </p><p>Public Health England is making available to all local authorities information on positive tests</p><p>for COVID-19. Public Health England also routinely shares personal data with local authorities to manage and control local clusters and outbreaks of certain infectious diseases.</p> answering member printed Lord Bethell question first answered 17/07/2020 12:39:21 answering member 4708 label Biography information for Lord Bethell
	tabling member	2593 label Biography information for Lord Freyberg

1220850

	registered interest
	date	06/07/2020
	answering body	Department of Health and Social Care
	answering dept id	17
	answering dept short name	Health and Social Care
	answering dept sort name	Health and Social Care
	hansard heading	Medical Records: Data Protection
	house id	2
	legislature	25277 pref label House of Lords
	question text	To ask Her Majesty's Government whether the Data Protection Impact Assessment for the NHS COVID-19 Data Store published on 5 June covers the release of patient identifiable information to local public health teams; and if so, which (1) legal, or (2) policy, provisions prevent local directors of public health from receiving such information.
	tabling member printed	Lord Freyberg
	uin	HL6452
	answer	answer is ministerial correction date of answer 17/07/2020 answer text <p>The COVID-19 Data Store does not hold patient identifiable data, as all data is de-identified (pseudonymised) in line with Information Commissioner’s Office (ICO) guidance and best practice, prior to being imported to the database. Therefore, the release of patient identifiable information to local public health teams, via the COVID-19 Data Store, is not possible.</p><p>NHS England is the data controller for all data held within the COVID-19 data store and ensures (via contractual arrangements) that data storage and processes are fully compliant with legislation and best practice.</p> answering member printed Lord Bethell question first answered 17/07/2020 12:19:55 answering member 4708 label Biography information for Lord Bethell
	tabling member	2593 label Biography information for Lord Freyberg

1218112

	registered interest
	date	25/06/2020
	answering body	Department of Health and Social Care
	answering dept id	17
	answering dept short name	Health and Social Care
	answering dept sort name	Health and Social Care
	hansard heading	NHSX: Faculty
	house id	2
	legislature	25277 pref label House of Lords
	question text	To ask Her Majesty's Government what plans they have to publish a Data Protection Impact Assessment of Faculty AI’s work on data dashboards and modelling for NHSX.
	tabling member printed	Lord Freyberg
	uin	HL6155
	answer	answer is ministerial correction date of answer 07/07/2020 answer text <p>The Data Protection Impact Assessment is already published online by NHS England.</p> answering member printed Lord Bethell question first answered 07/07/2020 16:56:56 answering member 4708 label Biography information for Lord Bethell
	tabling member	2593 label Biography information for Lord Freyberg