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758768

	registered interest
	date	07/09/2017
	answering body	Department of Health
	answering dept id	17
	answering dept short name	Health
	answering dept sort name	Health
	hansard heading	Neuromuscular Disorders
	house id	1
	legislature	25259 pref label House of Commons
	question text	To ask the Secretary of State for Health, what steps he is taking to increase the number of neuromuscular care advisors for people with muscle-wasting conditions.
	tabling member constituency	Falkirk
	tabling member printed	John McNally
	uin	9390
	answer	answer is ministerial correction date of answer 12/09/2017 answer text <p>NHS England is responsible for commissioning specialised neurological services, including some services for patients with neuromuscular disorders. NHS England has published a service specification for neurological care that includes an exemplar service specification for neuromuscular conditions which sets out what providers must have in place to offer evidence-based, safe and effective services. The service specification for neurological care can be found at the following link:</p><p><a href="http://www.england.nhs.uk/wp-content/uploads/2013/06/d04-neurosci-spec-neuro.pdf" target="_blank">www.england.nhs.uk/wp-content/uploads/2013/06/d04-neurosci-spec-neuro.pdf</a></p><p>NHS providers, working with local area teams, may establish patient access to neuromuscular care advisers if they consider it would benefit service provision and such decisions are a local matter.</p> answering member constituency Winchester answering member printed Steve Brine question first answered 12/09/2017 16:35:04 answering member 4067 label Biography information for Steve Brine
	tabling member	4424 label Biography information for John McNally

834743

	registered interest
	date	01/02/2018
	answering body	Department of Health and Social Care
	answering dept id	17
	answering dept short name	Health and Social Care
	answering dept sort name	Health and Social Care
	hansard heading	Cerebral Palsy: Children and Young People
	house id	1
	legislature	25259 pref label House of Commons
	question text	To ask the Secretary of State for Health and Social Care, what steps his Department is taking to support the implementation of the NICE Quality Standard on cerebral palsy in children and young people.
	tabling member constituency	Falkirk
	tabling member printed	John McNally
	uin	126175
	answer	answer is ministerial correction date of answer 07/02/2018 answer text <p>Quality standards (QS) are important in setting out to patients, the public, commissioners and providers what a high quality service should look like in a particular area of care. Whilst providers and commissioners must have regard to the National Institute for Health and Care Excellence (NICE) QS in planning and delivering services, they do not provide a comprehensive service specification and are not mandatory.</p><p> </p><p>The NICE QS: Cerebral palsy in children and young people was published on 10 October 2017. This standard covers the diagnosis, assessment and management of cerebral palsy and comprises four Quality Statements which describe high quality cerebral palsy care that can be used for the measurement and improvement of services locally. These statements are drawn from existing, evidence based guidance; in this case NICE’s cerebral palsy clinical guideline, published in January 2017. Both the QS and guideline can be found at the following links:</p><p><a href="http://www.nice.org.uk/guidance/qs162/resources/cerebral-palsy-in-children-and-young-people-pdf-75545597081797" target="_blank">www.nice.org.uk/guidance/qs162/resources/cerebral-palsy-in-children-and-young-people-pdf-75545597081797</a></p><p> </p><p><a href="http://www.nice.org.uk/guidance/ng62/resources/cerebral-palsy-in-under-25s-assessment-and-management-pdf-1837570402501" target="_blank">www.nice.org.uk/guidance/ng62/resources/cerebral-palsy-in-under-25s-assessment-and-management-pdf-1837570402501</a></p> answering member constituency Winchester answering member printed Steve Brine question first answered 07/02/2018 16:23:40 answering member 4067 label Biography information for Steve Brine
	tabling member	4424 label Biography information for John McNally

834746

	registered interest
	date	01/02/2018
	answering body	Department of Health and Social Care
	answering dept id	17
	answering dept short name	Health and Social Care
	answering dept sort name	Health and Social Care
	hansard heading	Cerebral Palsy
	house id	1
	legislature	25259 pref label House of Commons
	question text	To ask the Secretary of State for Health and Social Care, what assessment his Department has made of the potential merits of introducing a national cerebral palsy register to record incidences of the condition and improve the provision of treatment for people affected.
	tabling member constituency	Falkirk
	tabling member printed	John McNally
	uin	126176
	answer	answer is ministerial correction date of answer 07/02/2018 answer text <p>No assessment has been made. NHS England is responsible for securing high quality outcomes for people with cerebral palsy, and it has advised that there are currently no plans to establish a national register of children with the condition.</p><p> </p><p>PACE, the charity which supports children and families affected by motor disorders such as cerebral palsy indicates that the current United Kingdom incidence rate of cerebral palsy is around one in 400 births and that approximately 1,800 children are diagnosed with cerebral palsy every year.</p> answering member constituency Winchester answering member printed Steve Brine question first answered 07/02/2018 16:25:25 answering member 4067 label Biography information for Steve Brine
	tabling member	4424 label Biography information for John McNally

837438

	registered interest
	date	05/02/2018
	answering body	Department of Health and Social Care
	answering dept id	17
	answering dept short name	Health and Social Care
	answering dept sort name	Health and Social Care
	hansard heading	Cerebral Palsy: Screening
	house id	1
	legislature	25259 pref label House of Commons
	question text	To ask the Secretary of State for Health and Social Care, what assessment his Department has made of the potential financial savings to (a) health, (b) social care services and (c) education services of the early identification of cerebral palsy.
	tabling member constituency	Falkirk
	tabling member printed	John McNally
	uin	126557
	answer	answer is ministerial correction date of answer 08/02/2018 answer text <p>No assessment has been made.</p><p> </p><p>However, the National Institute for Health and Care Excellence (NICE) published guidelines in January 2017 on the assessment and management of cerebral palsy. This provides authoritative, evidence-based guidance for healthcare professionals in identifying the early signs of cerebral palsy. Further information can be found via the following link:</p><p><a href="http://www.nice.org.uk/guidance/ng62" target="_blank">www.nice.org.uk/guidance/ng62</a></p><p>Further to this, as part of the mandated reviews, health visitors (specialised nurses or midwives) assess the development of children between 0-5 years. They are skilled in early identification of delays, or concerns, in development. In such circumstances they will make a referral to a community paediatrician who will be able to diagnose any conditions, including cerebral palsy.</p> answering member constituency Winchester answering member printed Steve Brine question first answered 08/02/2018 12:19:17 answering member 4067 label Biography information for Steve Brine
	tabling member	4424 label Biography information for John McNally