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1135751

	registered interest
	date	01/07/2019
	answering body	Department of Health and Social Care
	answering dept id	17
	answering dept short name	Health and Social Care
	answering dept sort name	Health and Social Care
	hansard heading	100,000 Genomes Project
	house id	2
	legislature	25277 pref label House of Lords
	question text	To ask Her Majesty's Government whether those who have taken part in the NHS 100,000 Genome Project are being denied access to their own genome data; and if so, why.
	tabling member printed	Lord Scriven
	uin	HL16844
	answer	answer is ministerial correction date of answer 10/07/2019 answer text <p>Genomics England is committed to returning results to every patient in the 100,000 Genomes Project via their National Health Service clinical team. All of the patient results will have been returned to the NHS by the end of the year.</p><p>Under the Data Protection Legislation, participants in the 100,000 Genomes Project can request their genomic and clinical data. However, a whole genome sequence is around 3 billion letters long and written in code so it is very difficult to interpret. Genomics England can provide access to a visual representation on request or provide access to the raw data. A NHS clinical team is the best route to providing a clinical interpretation of the genome results.</p> answering member printed Baroness Blackwood of North Oxford question first answered 10/07/2019 15:26:14 answering member 4019 label Biography information for Baroness Blackwood of North Oxford
	tabling member	4333 label Biography information for Lord Scriven

1137381

	registered interest
	date	08/07/2019
	answering body	Foreign and Commonwealth Office
	answering dept id	16
	answering dept short name	Foreign and Commonwealth Office
	answering dept sort name	Foreign and Commonwealth Office
	hansard heading	Abdel Moneim Aboul Fotouh
	house id	2
	legislature	25277 pref label House of Lords
	question text	To ask Her Majesty's Government what representations they intend to make to the government of Egypt about the case for transferring Abdel Moneim Aboul Fotouh from prison to hospital for urgent medical treatment.
	tabling member printed	Lord Hylton
	uin	HL16988
	answer	answer is ministerial correction date of answer 15/07/2019 answer text <p>​We have been closely engaged on the case of Abdel Moneim Aboul Fotouh. Officials raised his case with Egyptian authorities on 4 July in London and on 7 July in Cairo. We will continue to urge the Egyptian authorities to ensure all detainees are treated in accordance with relevant international human right standards and continue to raise the importance of access to medical care.</p> answering member printed Lord Ahmad of Wimbledon question first answered 15/07/2019 15:16:49 answering member 4210 label Biography information for Lord Ahmad of Wimbledon
	tabling member	2018 label Biography information for Lord Hylton

1134669

	registered interest
	date	25/06/2019
	answering body	Department of Health and Social Care
	answering dept id	17
	answering dept short name	Health and Social Care
	answering dept sort name	Health and Social Care
	hansard heading	Abortion
	house id	2
	legislature	25277 pref label House of Lords
	question text	To ask Her Majesty's Government whether there are any circumstances in which a pregnancy that does not (1) pose a risk to the physical health of a mother, and (2) involve a foetus that has been diagnosed with a disability, can be involuntarily terminated.
	tabling member printed	Lord Alton of Liverpool
	uin	HL16636
	answer	answer is ministerial correction date of answer 05/07/2019 answer text <p>A decision to terminate a pregnancy must comply with the legal requirements of the Abortion Act 1967. In circumstances where a person lacks capacity, the courts have the authority to make serious healthcare and treatment decisions, in the best interests of the person and pursuant to the Mental Capacity Act 2005, and this could include whether a pregnancy should be terminated.</p> answering member printed Baroness Blackwood of North Oxford question first answered 05/07/2019 10:55:39 answering member 4019 label Biography information for Baroness Blackwood of North Oxford
	tabling member	738 label Biography information for Lord Alton of Liverpool

1135067

	registered interest
	date	26/06/2019
	answering body	Ministry of Justice
	answering dept id	54
	answering dept short name	Justice
	answering dept sort name	Justice
	hansard heading	Abortion: Autism and Learning Disability
	house id	2
	legislature	25277 pref label House of Lords
	question text	To ask Her Majesty's Government how many times the Court of Protection has ordered the termination of a pregnancy in a woman with a learning disability or autism in the last ten years; and on how many occasions this has been against the wishes of the woman or her family.
	tabling member printed	Baroness Hollins
	uin	HL16694
	answer	answer is ministerial correction date of answer 09/07/2019 answer text <p>The information requested is not held centrally and could only be obtained at a disproportionate cost.</p> answering member printed Lord Keen of Elie question first answered 09/07/2019 14:48:10 answering member 4538 label Biography information for Lord Keen of Elie
	tabling member	4190 label Biography information for Baroness Hollins

1134671

	registered interest
	date	25/06/2019
	answering body	Ministry of Justice
	answering dept id	54
	answering dept short name	Justice
	answering dept sort name	Justice
	hansard heading	Abortion: Mental Illness
	house id	2
	legislature	25277 pref label House of Lords
	question text	To ask Her Majesty's Government what assessment they have made of the Court of Appeal ruling overturning the decision of the Court of Protection to allow a mentally ill woman to be given an abortion against her wishes; what implications they consider that case to have for the rights of those with learning disabilities to become parents; and what steps, if any, they intend to take in the light of the Court of Appeal's ruling.
	tabling member printed	Lord Alton of Liverpool
	uin	HL16638
	answer	answer is ministerial correction date of answer 10/07/2019 answer text <p>This is an extremely difficult and sensitive case, and the Government will consider the Court of Appeal judgment carefully.</p><p> </p><p>The Court of Protection hears cases about some of the most vulnerable people in society, making decisions about personal welfare – including serious medical treatment - where the person lacks capacity to do so for themselves. In doing so it must follow the principles of the Mental Capacity Act 2005 (MCA). In particular the MCA stipulates that decisions must be in the person’s best interests, taking into account all the circumstances of the case, including the wishes, feelings, beliefs and values of the person, and must be the least restrictive of their rights and freedoms.</p><p> </p><p>It is right that such serious and difficult decisions – particularly where there is disagreement about what is in the person’s best interests - are made by the independent judiciary.</p><p> </p><p>The statutory MCA Code of Practice provides practical guidance on the operation of the MCA and is currently under review. We have sought input from a range of interested stakeholders through a call for evidence in January and propose to consult on a revised Code towards the end of this year.</p> answering member printed Lord Keen of Elie question first answered 10/07/2019 11:30:53 answering member 4538 label Biography information for Lord Keen of Elie
	tabling member	738 label Biography information for Lord Alton of Liverpool

1136781

	registered interest
	date	03/07/2019
	answering body	Department of Health and Social Care
	answering dept id	17
	answering dept short name	Health and Social Care
	answering dept sort name	Health and Social Care
	hansard heading	Academic Health Science Networks
	house id	2
	legislature	25277 pref label House of Lords
	question text	To ask Her Majesty's Government by what process, during the current development of policy options for Academic Health Science Centres (AHSC), potential new AHSCs can be considered in areas of England currently unrepresented by existing AHSCs.
	tabling member printed	Lord Willis of Knaresborough
	uin	HL16931
	answer	answer is ministerial correction date of answer 17/07/2019 answer text <p>The Department-designated Academic Health Science Centres (AHSCs) along with the Academic Health Science Networks (AHSNs) and the National Institute for Health Research (NIHR) Applied Research Collaborations (ARCs) are all important components of the country’s health research and innovation ecosystem.</p><p>The six current Department-designated AHSCs were made on the basis of an open competition, which was open to eligible National Health Service and University partnerships across England. The recommendations for designation were made to the Department by an international independent panel.</p><p>The remit of the Accelerated Access Collaborative (AAC) has recently been expanded to become the umbrella body across the United Kingdom health innovation eco-system. The AAC has been asked to consider the role of new AHSCs within the health system and to ensure that they complement the innovation landscape, rather than add further complexity to it.</p><p>It is not possible to provide specific details of the scope and nature of the new designation process at this stage given that the AAC is currently actively considering this. However, it is expected that the future designation process would be open to all NHS and University partnerships across England which meet the published specification to apply, including partnerships in areas of England where there is currently no Departmental-AHSC. As with the previous AHSC designation process, any future process will be run via a full and open competition, assessed by an independent expert panel. Rigorous conflict of interest policies will also be in place throughout the process for all involved to ensure any potential conflicts are dealt with appropriately.</p><p>The existing Departmental-AHSC designation will be extended until the end of March 2020 to enable a new designation process to be undertaken. The Department’s expectation is that AHSCs will play an increasingly important role in the health innovation and research landscape over the coming years.</p><p>As currently, the success of any newly designated AHSCs will require close interplay and cooperation between research infrastructure, including NIHR Biomedical Research Centres (BRCs) and the NIHR ARCs, and with the AHSNs and wider innovation landscape.</p><p>As part of annual monitoring of the existing Department-designated AHSCs, examples of innovations arising from them have been reported to have been made available to patients in the NHS. These include:</p><p>- The King’s Health Partners Heart Failure Service, which brings together clinical, research and educational expertise to deliver world class heart care in south London, helping people with heart failure live longer and with better quality of life;</p><p>- University College London Partners AHSC adoption of a Learning Health System to standardise data entry and allowing the widespread trialling of novel tools to detect atrial fibrillation early;</p><p>- The Manchester AHSC working with partners to align research around core health and social care priorities; and supporting the roll out of a single blood test driven decision-aid for patients presenting with chest pain at local emergency departments; and</p><p>- The roll out of the innovative Sleepio app by the Oxford AHSN to support those suffering from insomnia across Oxfordshire, Berkshire and Buckinghamshire.</p> answering member printed Baroness Blackwood of North Oxford grouped question UIN HL16932 HL16934 question first answered 17/07/2019 16:29:08 answering member 4019 label Biography information for Baroness Blackwood of North Oxford
	tabling member	4151 label Biography information for Lord Willis of Knaresborough

1136784

	registered interest
	date	03/07/2019
	answering body	Department of Health and Social Care
	answering dept id	17
	answering dept short name	Health and Social Care
	answering dept sort name	Health and Social Care
	hansard heading	Academic Health Science Networks
	house id	2
	legislature	25277 pref label House of Lords
	question text	To ask Her Majesty's Government what assessment they have made of whether the innovations arising from the current phase of Academic Health Science Centres are being made available to patients throughout the NHS.
	tabling member printed	Lord Willis of Knaresborough
	uin	HL16934
	answer	answer is ministerial correction date of answer 17/07/2019 answer text <p>The Department-designated Academic Health Science Centres (AHSCs) along with the Academic Health Science Networks (AHSNs) and the National Institute for Health Research (NIHR) Applied Research Collaborations (ARCs) are all important components of the country’s health research and innovation ecosystem.</p><p>The six current Department-designated AHSCs were made on the basis of an open competition, which was open to eligible National Health Service and University partnerships across England. The recommendations for designation were made to the Department by an international independent panel.</p><p>The remit of the Accelerated Access Collaborative (AAC) has recently been expanded to become the umbrella body across the United Kingdom health innovation eco-system. The AAC has been asked to consider the role of new AHSCs within the health system and to ensure that they complement the innovation landscape, rather than add further complexity to it.</p><p>It is not possible to provide specific details of the scope and nature of the new designation process at this stage given that the AAC is currently actively considering this. However, it is expected that the future designation process would be open to all NHS and University partnerships across England which meet the published specification to apply, including partnerships in areas of England where there is currently no Departmental-AHSC. As with the previous AHSC designation process, any future process will be run via a full and open competition, assessed by an independent expert panel. Rigorous conflict of interest policies will also be in place throughout the process for all involved to ensure any potential conflicts are dealt with appropriately.</p><p>The existing Departmental-AHSC designation will be extended until the end of March 2020 to enable a new designation process to be undertaken. The Department’s expectation is that AHSCs will play an increasingly important role in the health innovation and research landscape over the coming years.</p><p>As currently, the success of any newly designated AHSCs will require close interplay and cooperation between research infrastructure, including NIHR Biomedical Research Centres (BRCs) and the NIHR ARCs, and with the AHSNs and wider innovation landscape.</p><p>As part of annual monitoring of the existing Department-designated AHSCs, examples of innovations arising from them have been reported to have been made available to patients in the NHS. These include:</p><p>- The King’s Health Partners Heart Failure Service, which brings together clinical, research and educational expertise to deliver world class heart care in south London, helping people with heart failure live longer and with better quality of life;</p><p>- University College London Partners AHSC adoption of a Learning Health System to standardise data entry and allowing the widespread trialling of novel tools to detect atrial fibrillation early;</p><p>- The Manchester AHSC working with partners to align research around core health and social care priorities; and supporting the roll out of a single blood test driven decision-aid for patients presenting with chest pain at local emergency departments; and</p><p>- The roll out of the innovative Sleepio app by the Oxford AHSN to support those suffering from insomnia across Oxfordshire, Berkshire and Buckinghamshire.</p> answering member printed Baroness Blackwood of North Oxford grouped question UIN HL16931 HL16932 question first answered 17/07/2019 16:29:08 answering member 4019 label Biography information for Baroness Blackwood of North Oxford
	tabling member	4151 label Biography information for Lord Willis of Knaresborough

1134717

	registered interest
	date	25/06/2019
	answering body	Department for Education
	answering dept id	60
	answering dept short name	Education
	answering dept sort name	Education
	hansard heading	Academies: Standards
	house id	2
	legislature	25277 pref label House of Lords
	question text	To ask Her Majesty's Government what recent assessment they have made of the effectiveness of multi-academy trusts in delivering improvements in academic performance in schools.
	tabling member printed	Lord Watson of Invergowrie
	uin	HL16684
	answer	answer is ministerial correction date of answer 05/07/2019 answer text <p>Performance data illustrates how disadvantaged pupils in academy trusts are making more progress at GCSE level than the equivalent national average. Data for key stage 4 and academy trust performance in 2018 is attached and is available here:</p><p><a href="https://assets.publishing.service.gov.uk/government/uploads/system/uploads/attachment_data/file/774014/2018_KS4_main_text.pdf" target="_blank">https://assets.publishing.service.gov.uk/government/uploads/system/uploads/attachment_data/file/774014/2018_KS4_main_text.pdf</a>.</p><p>In primary schools within academy trusts, disadvantaged pupils performed significantly better than the equivalent national average in writing and maths. Data for key stage 2 and academy trust performance is attached and is available here:</p><p><a href="https://assets.publishing.service.gov.uk/government/uploads/system/uploads/attachment_data/file/774446/KS2_Revised_2018_text_MATS_20190130.pdf" target="_blank">https://assets.publishing.service.gov.uk/government/uploads/system/uploads/attachment_data/file/774446/KS2_Revised_2018_text_MATS_20190130.pdf</a>.</p><p>The ‘Academy Trust Survey’, published by the department in 2017, indicates that virtually all academy trusts surveyed (96%) with 2 or more academies believe that their structure has facilitated collaboration, and most have formal relationships with schools outside their academy trust. By working in partnership with each other, schools can benefit from sharing staff, curriculum expertise and effective pedagogy, and drive down the costs of procurement.</p><p>Our ambition is for every school that wants to, to benefit from the autonomy and freedom to innovate that academy status offers and for schools to collaborate through strong academy trusts.</p><p>The ‘Academy Trust Survey’ has been attached and is available here:</p><p><a href="https://assets.publishing.service.gov.uk/government/uploads/system/uploads/attachment_data/file/629779/Academy_Trust_Survey_2017.pdf" target="_blank">https://assets.publishing.service.gov.uk/government/uploads/system/uploads/attachment_data/file/629779/Academy_Trust_Survey_2017.pdf</a>.</p> answering member printed Lord Agnew of Oulton attachment 1 file name HL16684_KS4_performance .pdf title HL16684_chart 2 file name HL16684_KS2_national_curriculum.pdf title HL16684_chart 3 file name HL16684_Academy_Trust_Survey_2017.pdf title HL16684_survey question first answered 05/07/2019 11:00:16 answering member 4689 label Biography information for Lord Agnew of Oulton
	tabling member	1241 label Biography information for Lord Watson of Invergowrie

1136777

	registered interest
	date	03/07/2019
	answering body	Department for Digital, Culture, Media and Sport
	answering dept id	10
	answering dept short name	Digital, Culture, Media and Sport
	answering dept sort name	Digital, Culture, Media and Sport
	hansard heading	Advertising: Internet
	house id	2
	legislature	25277 pref label House of Lords
	question text	To ask Her Majesty's Government what assessment they have made of the market power held by online platforms on competition in the advertising sector.
	tabling member printed	Lord Taylor of Warwick
	uin	HL16927
	answer	answer is ministerial correction date of answer 12/07/2019 answer text <p>Digital markets, including online advertising, are an increasingly important part of everyday life and it's vital that we ensure they work for everyone - citizens, businesses and society as a whole.</p><p> </p><p>As part of the Cairncross Review into the future sustainability of the UK press, the Department of Digital, Culture, Media &amp; Sport (DCMS) published independent analysis on the structure of the online advertising sector, which is available to view at: https://www.gov.uk/government/publications/the-cairncross-review-a-sustainable-future-for-journalism</p><p> </p><p>In line with the Cairncross and Furman Review recommendations, the Competition and Markets Authority (CMA) has launched a market study into online platforms and the digital advertising market that will assess the market power held by online platforms. This will complement the forthcoming DCMS review of online advertising regulation and government's response to the recommendations made by the Cairncross Review.</p><p> </p><p>This CMA study comes at a pivotal time, as we look to promote competition in digital markets while ensuring that consumers benefit from new technology and innovation. The findings will be invaluable in helping us better understand the evolving digital landscape and complement our wider work, including the upcoming Competition Green Paper on opening up digital markets.</p> answering member printed Lord Ashton of Hyde question first answered 12/07/2019 12:27:27 answering member 4247 label Biography information for Lord Ashton of Hyde
	tabling member	1796 label Biography information for Lord Taylor of Warwick

1136765

	registered interest
	date	03/07/2019
	answering body	Department for Environment, Food and Rural Affairs
	answering dept id	13
	answering dept short name	Environment, Food and Rural Affairs
	answering dept sort name	Environment, Food and Rural Affairs
	hansard heading	Agriculture: Seasonal Workers
	house id	2
	legislature	25277 pref label House of Lords
	question text	To ask Her Majesty's Government what assessment they have made of the assistance that seasonal farm workers from the Ukraine could provide in meeting the UK’s agricultural requirements; and what barriers, if any, there are to their entry.
	tabling member printed	Lord Patten
	uin	HL16915
	answer	answer is ministerial correction date of answer 16/07/2019 answer text <p>The Government has introduced a new immigration pilot scheme for 2019 and 2020 enabling up to 2,500 non-European Economic Area migrant workers, including seasonal workers from Ukraine, to come to the UK to undertake seasonal employment in the edible horticultural sector.</p><p> </p><p>This pilot will test the effectiveness of our immigration system at alleviating seasonal labour shortages during peak production periods, whilst reducing immigration to sustainable levels and continuing to welcome those who make an invaluable contribution.</p><p> </p><p>This pilot is not designed to meet the full labour needs of the horticultural sector. Rather we are seeking to evaluate the immigration pilot’s ability to assist in alleviating labour shortages during peak production periods.</p><p> </p><p>Defra and the Home Office will work closely to monitor the pilot, and review its performance against the stated objectives. This pilot will help inform our understanding of how such immigration routes perform in a modern global context, and support the design of our new immigration system laid out in the recent White Paper. Defra is working to improve the official evidence based on temporary worker supply and demand, through a new quarterly survey of growers, the results of which we will consider carefully. We are also working closely with industry to understand trends in labour demand and supply.</p><p> </p><p>Immigration issues are reserved and remain the policy responsibility of the Home Office. After we leave the EU, we must ensure that we have an immigration system that works in the best interest of the whole of the UK.</p><p> </p><p>Defra is working closely with the Home Office to ensure that there is a long term strategy for agricultural labour as part of the future immigration strategy. The Home Office has launched a 12-month engagement programme with sectors across the UK to enable businesses and other stakeholders to shape the development of the future skills based immigration system.</p><p> </p><p>As such, there are no plans to expand this pilot at this time. We wish to fully assess this pilot and the results will help to inform the design of the new immigration system from January 2021.</p> answering member printed Lord Gardiner of Kimble question first answered 16/07/2019 14:24:07 answering member 4161 label Biography information for Lord Gardiner of Kimble
	tabling member	1137 label Biography information for Lord Patten