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1547413

	registered interest
	date	01/12/2022
	answering body	Department of Health and Social Care
	answering dept id	17
	answering dept short name	Health and Social Care
	answering dept sort name	Health and Social Care
	hansard heading	Chronic Fatigue Syndrome: Research
	house id	1
	legislature	25259 pref label House of Commons
	question text	To ask the Secretary of State for Health and Social Care, how much his Department plans to spend on biomedical research into the (a) causes, (b) consequences and (c) treatment of Myalgic encephalomyelitis in 2022-23.
	tabling member constituency	Hampstead and Kilburn
	tabling member printed	Tulip Siddiq
	uin	101028
	answer	answer is ministerial correction date of answer 13/12/2022 answer text <p>The Department funds research through the National Institute for Health and Care Research (NIHR). The NIHR has provided approximately £4.4 million for research on myalgic encephalomyelitis/chronic fatigue syndrome (ME/CFS) since 2011. In addition, the NIHR and the Medical Research Council have jointly funded a £3.2 million study into genetics and ME/CFS. The study will analyse samples from 25,000 people with ME/CFS to search for genetic differences which may indicate underlying causes or an increased risk of developing the condition.</p> answering member constituency Colchester answering member printed Will Quince question first answered 13/12/2022 17:58:57 answering member 4423 label Biography information for Will Quince
	tabling member	4518 label Biography information for Tulip Siddiq

1623827

	registered interest
	date	25/04/2023
	answering body	Department of Health and Social Care
	answering dept id	17
	answering dept short name	Health and Social Care
	answering dept sort name	Health and Social Care
	hansard heading	Chronic Fatigue Syndrome: Research
	house id	1
	legislature	25259 pref label House of Commons
	question text	To ask the Secretary of State for Health and Social Care, what assessment he has made of the potential merits of providing additional funding for research into treatments for myalgic encephalomyelitis.
	tabling member constituency	Ealing Central and Acton
	tabling member printed	Dr Rupa Huq
	uin	182641
	answer	answer is ministerial correction date of answer 15/05/2023 answer text <p>The Department has asked the UK Clinical Research Collaboration to convene a subgroup on myalgic encephalomyelitis/chronic fatigue syndrome (ME/CFS) with a range of stakeholders, including research funders, to ensure high quality applications for research into ME/CFS and support the research community to build capacity and capability.</p><p>On 12 May 2022, we announced the intention to develop a cross-Government Delivery Plan for ME/CFS in England. The delivery plan will build on the recommendations of the ME/CFS Priority Setting Partnership and the recently updated guideline from the National Institute for Health and Care Excellence to ensure that people living with ME/CFS have the appropriate support.</p> answering member constituency Colchester answering member printed Will Quince question first answered 15/05/2023 12:23:38 answering member 4423 label Biography information for Will Quince previous answer version 72515 answering member constituency Colchester answering member printed Will Quince answering member 4423 label Biography information for Will Quince
	tabling member	4511 label Biography information for Dr Rupa Huq

1382722

	registered interest
	date	26/11/2021
	answering body	Department of Health and Social Care
	answering dept id	17
	answering dept short name	Health and Social Care
	answering dept sort name	Health and Social Care
	hansard heading	Chronic Fatigue Syndrome: Research
	house id	1
	legislature	25259 pref label House of Commons
	question text	To ask the Secretary of State for Health and Social Care, whether he has plans to fund research into mitochondria cells and the effect upon them in relation to sufferers of Myalgic Encephalomyelitis and Chronic Fatigue Syndrome; and if he will make a statement.
	tabling member constituency	Arfon
	tabling member printed	Hywel Williams
	uin	82269
	answer	answer is ministerial correction date of answer 01/12/2021 answer text <p>The Department funds research through the National Institute for Health Research (NIHR). The NIHR welcomes funding applications for research into any aspect of human health, including myalgic encephalomyelitis and chronic fatigue syndrome (ME/CFS). However, it is not usual practice to ring-fence funds for particular topics or conditions. Applications are subject to peer review and judged in open competition, with awards being made on the basis of the importance of the topic to patients and health and care services, value for money and scientific quality. We will continue to work with stakeholders to consider how best to support continued research into ME/CFS.</p> answering member constituency Lewes answering member printed Maria Caulfield question first answered 01/12/2021 16:41:45 answering member 4492 label Biography information for Maria Caulfield
	tabling member	1397 label Biography information for Hywel Williams

1697668

	registered interest
	date	20/03/2024
	answering body	Department of Health and Social Care
	answering dept id	17
	answering dept short name	Health and Social Care
	answering dept sort name	Health and Social Care
	hansard heading	Chronic Fatigue Syndrome: Research
	house id	2
	legislature	25277 pref label House of Lords
	question text	To ask His Majesty's Government what plans they have to provide funding for biomedical research into (1) the causes of, and (2) potential cures for, myalgic encephalomyelitis.
	tabling member printed	Lord Hunt of Kings Heath
	uin	HL3460
	answer	answer is ministerial correction date of answer 27/03/2024 answer text <p>The Department provides funding for research through the National Institute for Health and Care Research (NIHR). The NIHR welcomes funding applications for research into any aspect of human health, including on the causes of, and potential cures for, myalgic encephalomyelitis (ME). These applications are subject to peer review and judged in open competition, with awards being made based on the importance of the topic to patients and health and care services, value for money and scientific quality. In all disease areas, the amount of NIHR funding depends on the volume and quality of scientific activity.</p><p>In the last five years, the NIHR has allocated approximately £3.44 million to support nine research projects on ME and chronic fatigue syndrome. The NIHR is also co-funding, with the Medical Research Council, a £3.2 million study (‘DecodeME’) which is the world’s largest genetic study of the disease.</p> answering member printed Lord Markham question first answered 27/03/2024 15:51:24 answering member 4948 label Biography information for Lord Markham
	tabling member	2024 label Biography information for Lord Hunt of Kings Heath

1698280

	registered interest
	date	25/03/2024
	answering body	Department of Health and Social Care
	answering dept id	17
	answering dept short name	Health and Social Care
	answering dept sort name	Health and Social Care
	hansard heading	Chronic Fatigue Syndrome: Research
	house id	2
	legislature	25277 pref label House of Lords
	question text	To ask His Majesty's Government what progress they have made on the funding of biomedical research into myalgic encephalomyelitis (ME) since the then Parliamentary Under Secretary of State for Health and Social Care stated on 24 January 2019 that “there have not been good enough research proposals in the ME space, partly because of the stigma … and partly because of the division in the medical community”.
	tabling member printed	Lord Hunt of Kings Heath
	uin	HL3584
	answer	answer is ministerial correction date of answer 08/04/2024 answer text <p>The Department funds research through the National Institute for Health and Care Research (NIHR). Since 2019, the NIHR has awarded £1.9 million for research into myalgic encephalomyelitis (ME), also known as chronic fatigue syndrome. The Medical Research Council (MRC), part of UK Research and Innovation (UKRI), has invested £3.6 million since 2019.</p><p>This funding includes the NIHR and UKRI co-funded DecodeME study, a £3.2 million study into the genetic underpinning of ME. The study will analyse samples from 25,000 people with ME, to search for genetic differences that may indicate underlying causes or an increased risk of developing the condition. This study aims to increase our understanding of the disease, and therefore contribute to the research base on diagnostic tests and targeted treatments for ME.</p><p>In 2020, the NIHR, the Chief Scientist Office in Scotland, and the MRC also funded the James Lind Alliance Priority Setting Partnership for ME, facilitated by the charity Action for ME. The report sets out the top 10 research priorities for ME. These recommendations have been co-produced through a process led by a steering group of people living with ME, carers, and clinicians.</p><p>In the interim delivery plan on ME, the Department recognised that there has been a relatively low amount of biomedical research funded on ME, compared with disease burden. The NIHR and MRC welcome applications for further biomedical research into ME. These applications are subject to peer review and judged in open competition, with awards being made on the basis of the importance of the topic to patients and health and care services, value for money, and scientific quality. In all disease areas, the amount of funding depends on the volume and quality of scientific activity.</p> answering member printed Lord Markham grouped question UIN HL3585 question first answered 08/04/2024 11:02:22 answering member 4948 label Biography information for Lord Markham
	tabling member	2024 label Biography information for Lord Hunt of Kings Heath

1698281

	registered interest
	date	25/03/2024
	answering body	Department of Health and Social Care
	answering dept id	17
	answering dept short name	Health and Social Care
	answering dept sort name	Health and Social Care
	hansard heading	Chronic Fatigue Syndrome: Research
	house id	2
	legislature	25277 pref label House of Lords
	question text	To ask His Majesty's Government how much research funding the National Institute for Health and Care Research and the Medical Research Council have invested in biomedical studies of the causes and treatment of myalgic encephalomyelitis (ME) and non-biomedical studies of ME since 2019.
	tabling member printed	Lord Hunt of Kings Heath
	uin	HL3585
	answer	answer is ministerial correction date of answer 08/04/2024 answer text <p>The Department funds research through the National Institute for Health and Care Research (NIHR). Since 2019, the NIHR has awarded £1.9 million for research into myalgic encephalomyelitis (ME), also known as chronic fatigue syndrome. The Medical Research Council (MRC), part of UK Research and Innovation (UKRI), has invested £3.6 million since 2019.</p><p>This funding includes the NIHR and UKRI co-funded DecodeME study, a £3.2 million study into the genetic underpinning of ME. The study will analyse samples from 25,000 people with ME, to search for genetic differences that may indicate underlying causes or an increased risk of developing the condition. This study aims to increase our understanding of the disease, and therefore contribute to the research base on diagnostic tests and targeted treatments for ME.</p><p>In 2020, the NIHR, the Chief Scientist Office in Scotland, and the MRC also funded the James Lind Alliance Priority Setting Partnership for ME, facilitated by the charity Action for ME. The report sets out the top 10 research priorities for ME. These recommendations have been co-produced through a process led by a steering group of people living with ME, carers, and clinicians.</p><p>In the interim delivery plan on ME, the Department recognised that there has been a relatively low amount of biomedical research funded on ME, compared with disease burden. The NIHR and MRC welcome applications for further biomedical research into ME. These applications are subject to peer review and judged in open competition, with awards being made on the basis of the importance of the topic to patients and health and care services, value for money, and scientific quality. In all disease areas, the amount of funding depends on the volume and quality of scientific activity.</p> answering member printed Lord Markham grouped question UIN HL3584 question first answered 08/04/2024 11:02:22 answering member 4948 label Biography information for Lord Markham
	tabling member	2024 label Biography information for Lord Hunt of Kings Heath

1433442

	registered interest
	date	21/02/2022
	answering body	Department of Health and Social Care
	answering dept id	17
	answering dept short name	Health and Social Care
	answering dept sort name	Health and Social Care
	hansard heading	Chronic Fatigue Syndrome: Research
	house id	2
	legislature	25277 pref label House of Lords
	question text	To ask Her Majesty's Government whether they have plans to provide additional funding for Myalgic Encephalomyelitis (ME) research; and if so, when.
	tabling member printed	Baroness Ritchie of Downpatrick
	uin	HL6301
	answer	answer is ministerial correction date of answer 03/03/2022 answer text <p>No specific assessment of the services available to people with myalgic encephalomyelitis and chronic fatigue syndrome (ME/CFS) has been made. Clinical commissioning groups are best placed to plan, assess and commission ME/CFS care services. These processes are subject to local prioritisation and funding and should take into account best practice guidance, such as the National Institute for Health and Care Excellence’s (NICE) most recent guidelines. Whilst guidelines are not mandatory, clinicians and commissioners are expected to take them fully into account in designing services that meet the needs of their local population and to work towards their implementation over time.</p><p>We continue to consider options to improve outcomes for people with ME/CFS and their families, including the potential development of a national strategy. The Government invests in health research through the National Institute for Health Research (NIHR) and the Medical Research Council (MRC). The NIHR and MRC welcome high-quality applications for research into all aspects of ME/CFS. While there are no plans to provide additional funding at this time, both funders are considering how they can support the academic community to drive research in this underserved area.</p> answering member printed Lord Kamall grouped question UIN HL6298 HL6299 HL6300 question first answered 03/03/2022 11:54:35 answering member 4909 label Biography information for Lord Kamall
	tabling member	4130 label Biography information for Baroness Ritchie of Downpatrick

1221575

	registered interest
	date	07/07/2020
	answering body	Department of Health and Social Care
	answering dept id	17
	answering dept short name	Health and Social Care
	answering dept sort name	Health and Social Care
	hansard heading	Chronic Fatigue Syndrome: Research
	house id	1
	legislature	25259 pref label House of Commons
	question text	To ask the Secretary of State for Health and Social Care, how much Government funding was allocated to biomedical research into myalgic encephalomyelitis in the financial years (a) 2017-18, (b) 2018-19 and (c) 2019-20.
	tabling member constituency	Mole Valley
	tabling member printed	Sir Paul Beresford
	uin	70282
	answer	answer is ministerial correction date of answer 23/07/2020 answer text <p>The following table shows how much Government funding was allocated to biomedical research into myalgic encephalomyelitis (ME), also known as chronic fatigue syndrome (CFS) for financial years 2017-18, 2018-19 and 2019-20.</p><table><tbody><tr><td><p>Financial Year</p></td><td><p>£</p></td></tr><tr><td><p>2017-18</p></td><td><p>226,470</p></td></tr><tr><td><p>2018-19</p></td><td><p>396,467</p></td></tr><tr><td><p>2019-20</p></td><td><p>443,719</p></td></tr></tbody></table><p> </p><p>In addition to the funding set out above, the National Institute for Health Research, funded through the Department, and the Medical Research Council have recently announced a £3.2 million award to fund research into potential genetic connections to ME/CFS. The project will analyse samples from 20,000 people with ME/CFS to search for genetic differences that may indicate underlying causes or increase the risk of developing the condition.</p><p> </p><p> </p> answering member constituency Faversham and Mid Kent answering member printed Helen Whately question first answered 23/07/2020 17:08:44 answering member 4527 label Biography information for Helen Whately
	tabling member	103 label Biography information for Sir Paul Beresford

1464981

	registered interest
	date	23/05/2022
	answering body	Department of Health and Social Care
	answering dept id	17
	answering dept short name	Health and Social Care
	answering dept sort name	Health and Social Care
	hansard heading	Chronic Fatigue Syndrome: Research
	house id	1
	legislature	25259 pref label House of Commons
	question text	To ask the Secretary of State for Health and Social Care, if he will increase funding for research into myalgic encephalomyelitis; and what steps he is taking to meet the additional needs of people living with myalgic encephalomyelitis and other similar chronic conditions.
	tabling member constituency	Ynys Môn
	tabling member printed	Virginia Crosbie
	uin	6962
	answer	answer is ministerial correction date of answer 01/06/2022 answer text <p>The Department has asked the UK Clinical Research Collaboration to convene a subgroup on myalgic encephalomyelitis/chronic fatigue syndrome (ME/CFS) with a range of stakeholders, including research funders, to ensure high quality applications for research into ME/CFS and support the research community to build capacity and capability.</p><p>On 12 May 2022, we announced the intention to develop a cross-Government Delivery Plan for ME/CFS in England. The delivery plan will build on the recommendations of the ME/CFS Priority Setting Partnership and the recently updated guideline from the National Institute for Health and Care Excellence to ensure that people living with ME/CFS have the appropriate support.</p><p>NHS England and NHS Improvement are establishing a task and finish group to produce guidance on the provision of high-quality services for people living with long term pain by September 2022. The guidance is aimed at integrated care systems to provide core principles which can be used to inform the development of local models of care to support people living with chronic pain.</p><p> </p> answering member constituency Chichester answering member printed Gillian Keegan question first answered 01/06/2022 09:33:29 answering member 4680 label Biography information for Gillian Keegan previous answer version 3432 answering member constituency Chichester answering member printed Gillian Keegan answering member 4680 label Biography information for Gillian Keegan
	tabling member	4859 label Biography information for Virginia Crosbie

1273898

	registered interest
	date	06/01/2021
	answering body	Department of Health and Social Care
	answering dept id	17
	answering dept short name	Health and Social Care
	answering dept sort name	Health and Social Care
	hansard heading	Chronic Fatigue Syndrome: Research
	house id	1
	legislature	25259 pref label House of Commons
	question text	To ask the Secretary of State for Health and Social Care, what steps his Department is taking to increase biomedical research on the causes and treatment of myalgic encephalomyelitis in the UK.
	tabling member constituency	Bristol North West
	tabling member printed	Darren Jones
	uin	134061
	answer	answer is ministerial correction date of answer 26/01/2021 answer text <p>The Department funds research through the National Institute for Health Research (NIHR). In 2020, the NIHR and the Medical Research Council, through UK Research and Innovation, came together to fund the world’s largest genome-wide association study of myalgic encephalomyelitis (ME), sometimes referred to as Chronic Fatigue Syndrome (CFS). This £3.2 million study, ‘DecodeME’, will analyse samples from 20,000 people with ME/CFS to search for genetic differences that may indicate underlying causes or an increased risk of developing the condition. DecodeME is a partnership between biomedical scientists at the University of Edinburgh and ME/CFS charities and people with lived experience of ME/CFS. It is hoped that the outcomes of this study will aid the development of diagnostic tests and targeted treatments.</p><p> </p> answering member constituency Charnwood answering member printed Edward Argar question first answered 26/01/2021 09:48:36 answering member 4362 label Biography information for Edward Argar
	tabling member	4621 label Biography information for Darren Jones