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385972
registered interest false more like this
date less than 2015-06-26more like thismore than 2015-06-26
answering body
Department of Health more like this
answering dept id 17 more like this
answering dept short name Health more like this
answering dept sort name Health more like this
hansard heading Huntington's Disease: Health Services more like this
house id 1 more like this
legislature
25259
pref label House of Commons more like this
question text To ask the Secretary of State for Health, what plans his Department has for regional or national multi-disciplinary care teams to incorporate aspects of Huntington's disease care; and if he will make a statement. more like this
tabling member constituency North Tyneside more like this
tabling member printed
Mary Glindon remove filter
uin 4481 remove filter
answer
answer
is ministerial correction false more like this
date of answer less than 2015-07-01more like thismore than 2015-07-01
answer text <p>NHS England commissions adult specialised neuroscience services, including those for people with complex neurological diseases. Although some of this specialised care would be related to Huntington's Disease, much of the care that patients require can be accessed through local hospital and general practitioner (GP) services which are funded by clinical commissioning groups.</p><p> </p><p> </p><p> </p><p>Patients with Huntington's Disease have access to a range of NHS services including those provided by GPs and associated health professionals, neurology services, occupational therapists, speech and language therapists, local mental health services and palliative care where appropriate.</p><p> </p><p> </p><p> </p><p>The Neurosciences Clinical Reference Group (CRG) is continuing to work on the development of a draft neuropsychiatry service specification which will be of relevance for patients with Huntington’s Disease. The service specification will outline the multi-disciplinary approach to caring for patients with long term conditions who require assessment and help in managing a neurological problem.</p><p> </p><p> </p><p> </p><p>The CRG is also tasked to consider the current service specification and describe in detail where services are specialised and can only be delivered in a tertiary centre and where services can be part of a hub and spoke arrangement with secondary care (in a hospital closer to home). This should assist in the day to day care and access as care closer to home for some conditions, will be supported by advice where needed from the specialised centre and delivered in the local hospital.</p><p> </p>
answering member constituency Battersea more like this
answering member printed Jane Ellison more like this
question first answered
less than 2015-07-01T13:15:42.523Zmore like thismore than 2015-07-01T13:15:42.523Z
answering member
3918
label Biography information for Jane Ellison more like this
tabling member
4126
label Biography information for Mary Glindon more like this