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1135182

registered interest
date	27/06/2019
answering body	Department of Health and Social Care
answering dept id	17
answering dept short name	Health and Social Care
answering dept sort name	Health and Social Care
hansard heading	Genomics: Screening
house id	1
legislature	25259 pref label House of Commons
question text	To ask the Secretary of State for Health and Social Care, which diagnostic tests will whole genome sequencing replace, particularly for blood cancers.
tabling member constituency	Sheffield South East
tabling member printed	Mr Clive Betts
uin	270281
answer	answer is ministerial correction date of answer 05/07/2019 answer text <p>During 2019, the National Health Service will begin to offer whole genome sequencing (WGS) as part of clinical care for:</p><p>- Seriously ill children likely to have a rare genetic disorder;</p><p>- People with one of 21 rare conditions where current evidence supports early adoption of WGS as a diagnostic test; and</p><p>- People with specific types of cancer for which there is likely to be the greatest patient benefit from using WGS – children with cancer, sarcoma and acute myeloid leukaemia.</p><p> </p><p>WGS will only replace existing diagnostic tests once the testing is demonstrated to be clinically safe to replace existing diagnostic testing. Initially, existing diagnostic testing will continue to be performed alongside WGS testing where clinically appropriate. This will continue until WGS is able to fully support clinical decision making within clinically appropriate timescales.</p><p>Current testing for blood cancers includes a number of diagnostic tests, the current expectation is that WGS will not be used to replace tests that require very fast turnaround times (under 24 hours) or high sensitivity.</p><p>WGS and non-WGS testing that will be available as part of clinical care is outlined in the National Genomic Test Directory at the following link:</p><p> </p><p><a href="https://www.england.nhs.uk/publication/national-genomic-test-directories/" target="_blank">https://www.england.nhs.uk/publication/national-genomic-test-directories/</a></p><p> </p><p>The UK Genetic Testing Network (UKGTN) published the NHS Directory of Genetic Disorders/Genes for Diagnostic Testing, which evaluated and recommended genetic tests for rare and inherited disorders for the National Health Service across the UK. However, there was not an equivalent for cancer genomic testing. The National Genomic Test Directory specifies which genomic tests are commissioned by the NHS in England, the technology by which they are available, and the patients who will be eligible to access to a test.</p><p>The National Genomic Test Directory will be updated on an annual basis and NHS England will implement a clear and transparent process, supported by a Clinical and Scientific Expert Panel, to determine which tests are available within the NHS. This will include reviewing any tests that may be retired or replaced by more modern technology, such as WGS. As the price of WGS falls and the clinical evidence improves, we envisage that it will be extended to more conditions and therefore more patients.</p><p> </p><p><strong> </strong></p><p><strong> </strong></p> answering member constituency Gosport answering member printed Caroline Dinenage grouped question UIN 270282 270283 question first answered 05/07/2019 09:24:02 answering member 4008 label Biography information for Dame Caroline Dinenage
tabling member	394 label Biography information for Mr Clive Betts

1135183

registered interest
date	27/06/2019
answering body	Department of Health and Social Care
answering dept id	17
answering dept short name	Health and Social Care
answering dept sort name	Health and Social Care
hansard heading	Genetics: Screening
house id	1
legislature	25259 pref label House of Commons
question text	To ask the Secretary of State for Health and Social Care, whether the National Genomic Test Directory directly replaces the NHS Directory of Genetic Disorders/Genes for Diagnostic Testing.
tabling member constituency	Sheffield South East
tabling member printed	Mr Clive Betts
uin	270282
answer	answer is ministerial correction date of answer 05/07/2019 answer text <p>During 2019, the National Health Service will begin to offer whole genome sequencing (WGS) as part of clinical care for:</p><p>- Seriously ill children likely to have a rare genetic disorder;</p><p>- People with one of 21 rare conditions where current evidence supports early adoption of WGS as a diagnostic test; and</p><p>- People with specific types of cancer for which there is likely to be the greatest patient benefit from using WGS – children with cancer, sarcoma and acute myeloid leukaemia.</p><p> </p><p>WGS will only replace existing diagnostic tests once the testing is demonstrated to be clinically safe to replace existing diagnostic testing. Initially, existing diagnostic testing will continue to be performed alongside WGS testing where clinically appropriate. This will continue until WGS is able to fully support clinical decision making within clinically appropriate timescales.</p><p>Current testing for blood cancers includes a number of diagnostic tests, the current expectation is that WGS will not be used to replace tests that require very fast turnaround times (under 24 hours) or high sensitivity.</p><p>WGS and non-WGS testing that will be available as part of clinical care is outlined in the National Genomic Test Directory at the following link:</p><p> </p><p><a href="https://www.england.nhs.uk/publication/national-genomic-test-directories/" target="_blank">https://www.england.nhs.uk/publication/national-genomic-test-directories/</a></p><p> </p><p>The UK Genetic Testing Network (UKGTN) published the NHS Directory of Genetic Disorders/Genes for Diagnostic Testing, which evaluated and recommended genetic tests for rare and inherited disorders for the National Health Service across the UK. However, there was not an equivalent for cancer genomic testing. The National Genomic Test Directory specifies which genomic tests are commissioned by the NHS in England, the technology by which they are available, and the patients who will be eligible to access to a test.</p><p>The National Genomic Test Directory will be updated on an annual basis and NHS England will implement a clear and transparent process, supported by a Clinical and Scientific Expert Panel, to determine which tests are available within the NHS. This will include reviewing any tests that may be retired or replaced by more modern technology, such as WGS. As the price of WGS falls and the clinical evidence improves, we envisage that it will be extended to more conditions and therefore more patients.</p><p> </p><p><strong> </strong></p><p><strong> </strong></p> answering member constituency Gosport answering member printed Caroline Dinenage grouped question UIN 270281 270283 question first answered 05/07/2019 09:24:02 answering member 4008 label Biography information for Dame Caroline Dinenage
tabling member	394 label Biography information for Mr Clive Betts

1135184

registered interest
date	27/06/2019
answering body	Department of Health and Social Care
answering dept id	17
answering dept short name	Health and Social Care
answering dept sort name	Health and Social Care
hansard heading	Genomics: Screening
house id	1
legislature	25259 pref label House of Commons
question text	To ask the Secretary of State for Health and Social Care, how will new tests be added to the National Genomic Test Directory.
tabling member constituency	Sheffield South East
tabling member printed	Mr Clive Betts
uin	270283
answer	answer is ministerial correction date of answer 05/07/2019 answer text <p>During 2019, the National Health Service will begin to offer whole genome sequencing (WGS) as part of clinical care for:</p><p>- Seriously ill children likely to have a rare genetic disorder;</p><p>- People with one of 21 rare conditions where current evidence supports early adoption of WGS as a diagnostic test; and</p><p>- People with specific types of cancer for which there is likely to be the greatest patient benefit from using WGS – children with cancer, sarcoma and acute myeloid leukaemia.</p><p> </p><p>WGS will only replace existing diagnostic tests once the testing is demonstrated to be clinically safe to replace existing diagnostic testing. Initially, existing diagnostic testing will continue to be performed alongside WGS testing where clinically appropriate. This will continue until WGS is able to fully support clinical decision making within clinically appropriate timescales.</p><p>Current testing for blood cancers includes a number of diagnostic tests, the current expectation is that WGS will not be used to replace tests that require very fast turnaround times (under 24 hours) or high sensitivity.</p><p>WGS and non-WGS testing that will be available as part of clinical care is outlined in the National Genomic Test Directory at the following link:</p><p> </p><p><a href="https://www.england.nhs.uk/publication/national-genomic-test-directories/" target="_blank">https://www.england.nhs.uk/publication/national-genomic-test-directories/</a></p><p> </p><p>The UK Genetic Testing Network (UKGTN) published the NHS Directory of Genetic Disorders/Genes for Diagnostic Testing, which evaluated and recommended genetic tests for rare and inherited disorders for the National Health Service across the UK. However, there was not an equivalent for cancer genomic testing. The National Genomic Test Directory specifies which genomic tests are commissioned by the NHS in England, the technology by which they are available, and the patients who will be eligible to access to a test.</p><p>The National Genomic Test Directory will be updated on an annual basis and NHS England will implement a clear and transparent process, supported by a Clinical and Scientific Expert Panel, to determine which tests are available within the NHS. This will include reviewing any tests that may be retired or replaced by more modern technology, such as WGS. As the price of WGS falls and the clinical evidence improves, we envisage that it will be extended to more conditions and therefore more patients.</p><p> </p><p><strong> </strong></p><p><strong> </strong></p> answering member constituency Gosport answering member printed Caroline Dinenage grouped question UIN 270281 270282 question first answered 05/07/2019 09:24:02 answering member 4008 label Biography information for Dame Caroline Dinenage
tabling member	394 label Biography information for Mr Clive Betts

1132282

registered interest
date	14/06/2019
answering body	Department of Health and Social Care
answering dept id	17
answering dept short name	Health and Social Care
answering dept sort name	Health and Social Care
hansard heading	Genomics: Health Services
house id	1
legislature	25259 pref label House of Commons
question text	To ask the Secretary of State for Health and Social Care, what estimate he has made of the number of patients that will benefit from whole genome sequencing in the first year of its introduction; and what steps is he taking to ensure the adequacy of trained professionals to provide that service.
tabling member constituency	Sheffield South East
tabling member printed	Mr Clive Betts
uin	264725
answer	answer is ministerial correction date of answer 19/06/2019 answer text <p>As part of the NHS Long Term Plan, the National Health Service has committed to sequencing 500,000 whole genomes by 2023/24.</p><p>During 2019, the NHS will begin to offer whole genome sequencing (WGS) as part of clinical care for:</p><p>- Seriously ill children likely to have a rare genetic disorder;</p><p>- People with one of 21 rare conditions where current evidence supports early adoption of WGS as a diagnostic test;</p><p>- People with specific types of cancer for which there is likely to be the greatest patient benefit from using WGS – children with cancer, sarcoma and Acute Myeloid Leukaemia.</p><p> </p><p>As the price of whole genome sequencing falls and the evidence improves, we envisage that it will be extended to more conditions and therefore more patients.</p> answering member constituency Gosport answering member printed Caroline Dinenage question first answered 19/06/2019 16:17:13 answering member 4008 label Biography information for Dame Caroline Dinenage
tabling member	394 label Biography information for Mr Clive Betts

1132005

registered interest
date	13/06/2019
answering body	Ministry of Housing, Communities and Local Government
answering dept id	7
answering dept short name	Housing, Communities and Local Government
answering dept sort name	Housing, Communities and Local Government
hansard heading	Local Government: Audit
house id	1
legislature	25259 pref label House of Commons
question text	To ask the Secretary of State for Housing, Communities and Local Government, what assessment he has made of the implications for his policies of the failure of EY to complete local authority audits within the required time limits.
tabling member constituency	Sheffield South East
tabling member printed	Mr Clive Betts
uin	264322
answer	answer is ministerial correction date of answer 18/06/2019 answer text <p>We are aware of this issue, affecting 19 local government bodies and, together with Public Sector Audit Appointments Ltd, are monitoring the situation. It is not acceptable for a professional services firm like EY to be unable to meet its contractual obligations to the statutory timetable and we expect the situation to be resolved as quickly as possible.</p><p>The forthcoming review of the local audit regime will consider the implications of our audit policy, including the timeliness of audit completion.</p> answering member constituency Richmond (Yorks) answering member printed Rishi Sunak question first answered 18/06/2019 13:27:52 answering member 4483 label Biography information for Rishi Sunak
tabling member	394 label Biography information for Mr Clive Betts

1132006

registered interest
date	13/06/2019
answering body	Department for Transport
answering dept id	27
answering dept short name	Transport
answering dept sort name	Transport
hansard heading	Charter Flights: Licensing
house id	1
legislature	25259 pref label House of Commons
question text	To ask the Secretary of State for Transport, pursuant to the Answer of 8 May 2019 to Question 249823, Civil Aviation Authority, what recent estimate he has made of the scale of unlawful passenger transport operations.
tabling member constituency	Sheffield South East
tabling member printed	Mr Clive Betts
uin	264323
answer	answer is ministerial correction date of answer 18/06/2019 answer text <p>The CAA, as the independent safety regulator, has not made an estimate of the scale of unlawful passenger transport operations.</p><p> </p><p>There are strict rules in place that require commercial air transport operations to be operated by the holder of an Air Operator Certificate (AOC) and an Operating Licence (OL). It is an offence to operate a commercial air transport flight without an AOC or OL.</p><p> </p><p>Since 2016, the CAA’s investigations and enforcement team has received 21 allegations of illegal public transport. The CAA investigates such allegations and will prosecute people where there is sufficient evidence, and where it is in the public interest to do so. The CAA also conducts spot check visits to airfields and public events where aeroplane and helicopter operations take place, and where it finds evidence that a flight may have operated illegally it has the power to detain an aircraft and, where appropriate, take enforcement action.</p> answering member constituency Northampton North answering member printed Michael Ellis question first answered 18/06/2019 11:18:40 answering member 4116 label Biography information for Sir Michael Ellis
tabling member	394 label Biography information for Mr Clive Betts

1132007

registered interest
date	13/06/2019
answering body	Department for International Trade
answering dept id	202
answering dept short name	International Trade
answering dept sort name	International Trade
hansard heading	BeoutQ
house id	1
legislature	25259 pref label House of Commons
question text	To ask the Secretary of State for International Trade, pursuant to the Answer of 8 April to Question 239902 on Saudi Arabia: Sports, Question 239903 on BeoutQ and Question 239904 on BeoutQ , what steps the Saudi Arabian Government has agreed to take as a result of those representations.
tabling member constituency	Sheffield South East
tabling member printed	Mr Clive Betts
uin	264324
answer	answer is ministerial correction date of answer 18/06/2019 answer text <p>HM Government Ministers and HM Ambassador in Riyadh continue to make representations on beoutQ and the Saudi Arabian Government has confirmed they are looking into the matter.</p> answering member constituency Beverley and Holderness answering member printed Graham Stuart question first answered 18/06/2019 15:07:47 answering member 1482 label Biography information for Graham Stuart
tabling member	394 label Biography information for Mr Clive Betts

1132008

registered interest
date	13/06/2019
answering body	Department for Education
answering dept id	60
answering dept short name	Education
answering dept sort name	Education
hansard heading	Academies: Private Finance Initiative
house id	1
legislature	25259 pref label House of Commons
question text	To ask the Secretary of State for Education, what the current value is of PFI contracts for academy schools that are managed by local authorities; and how much Government funding is allocated to local authorities to undertake that work.
tabling member constituency	Sheffield South East
tabling member printed	Mr Clive Betts
uin	264325
answer	answer is ministerial correction date of answer 18/06/2019 answer text <p>After a school undergoes conversion to an academy, it is no longer managed by local authorities. In the majority of cases, local authorities typically charge a fee to the schools and academies within a private finance initiative (PFI) contract in respect of local authority management of the PFI contract. The Department does not hold details on these fees. For further information, please contact the relevant local authority.</p> answering member constituency Bognor Regis and Littlehampton answering member printed Nick Gibb question first answered 18/06/2019 11:39:18 answering member 111 label Biography information for Nick Gibb
tabling member	394 label Biography information for Mr Clive Betts

1126477

registered interest
date	14/05/2019
answering body	Department for Transport
answering dept id	27
answering dept short name	Transport
answering dept sort name	Transport
hansard heading	East Midlands Rail Franchise: Rolling Stock
house id	1
legislature	25259 pref label House of Commons
question text	To ask the Secretary of State for Transport, pursuant to the Answer of 23 April 2019 to Question 244025 and the Answer of 8 May 2019 249827 on East Midlands Rail Franchise: Rolling Stock , what assurances he has received from the train operator as to which type of diesel trains will replace the current fleet on Midland Main Line intercity services; and where those trains will be procured from.
tabling member constituency	Sheffield South East
tabling member printed	Mr Clive Betts
uin	254132
answer	answer is ministerial correction date of answer 20/05/2019 answer text <p>Abellio’s bid contained assurances regarding the availability, capability and characteristics of the rolling stock that will be introduced on the Midland Mainline. With regard to the procurement of these trains, I refer the Honourable member to the answer given on 8 May [249827].</p><p> </p> answering member constituency Harrogate and Knaresborough answering member printed Andrew Jones question first answered 20/05/2019 15:00:24 answering member 3996 label Biography information for Andrew Jones
tabling member	394 label Biography information for Mr Clive Betts

1126478

registered interest
date	14/05/2019
answering body	Department for Transport
answering dept id	27
answering dept short name	Transport
answering dept sort name	Transport
hansard heading	Railways: Sheffield
house id	1
legislature	25259 pref label House of Commons
question text	To ask the Secretary of State for Transport, pursuant to the Answer of 8 May 2019 to Question 249824 on Railways: Sheffield, which organisation holds the information requested.
tabling member constituency	Sheffield South East
tabling member printed	Mr Clive Betts
uin	254133
answer	answer is ministerial correction date of answer 20/05/2019 answer text <p>Network Rail, who produce industry performance data, may hold the information requested.</p> answering member constituency Harrogate and Knaresborough answering member printed Andrew Jones question first answered 20/05/2019 15:03:27 answering member 3996 label Biography information for Andrew Jones
tabling member	394 label Biography information for Mr Clive Betts