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1051454

registered interest
date	30/01/2019
answering body	Department for Work and Pensions
answering dept id	29
answering dept short name	Work and Pensions
answering dept sort name	Work and Pensions
hansard heading	Convention on the Rights of Persons with Disabilities
house id	1
legislature	25259 pref label House of Commons
question text	To ask the Secretary of State for Work and Pensions, what the Government's timescale is for (a) acknowledging the concluding observations from the UN convention on the rights of persons with disabilities and (b) responding to that convention's recommendations.
tabling member constituency	Bury North
tabling member printed	James Frith
uin	214659
answer	answer is ministerial correction date of answer 08/02/2019 answer text <p><strong> </strong></p><p>The Government is committed to the Convention on the Rights of Persons with Disabilities, and to the progressive realisation of the rights for disabled people that it sets out.</p><p> </p><p>We have provided our first report to the UN Committee as requested. We published this report on 6 September 2018. This report and accompanying ministerial letter setting out the UK's progress are available on GOV.UK website:</p><p><a href="https://www.gov.uk/government/publications/disabled-peoples-rights-information-following-the-uks-first-periodic-review" target="_blank">https://www.gov.uk/government/publications/disabled-peoples-rights-information-following-the-uks-first-periodic-review</a></p><p> </p><p>I tabled a Written Statement (HCWS938) on 6 September 2018, providing an update on the UK’s follow-up response to the UN Committee on the Rights of Persons with Disabilities: <a href="https://www.parliament.uk/business/publications/written-questions-answers-statements/written-statement/Commons/2018-09-06/HCWS938" target="_blank">https://www.parliament.uk/business/publications/written-questions-answers-statements/written-statement/Commons/2018-09-06/HCWS938</a></p><p> </p><p>We will be responding to the recommendations in the Concluding Observations during our next periodic review, currently scheduled for 2023. In the meantime, we will be preparing in due course, as recommended by the UN Committee, a progress update on the 2016 inquiry recommendations.</p><p> </p><p> </p> answering member constituency Truro and Falmouth answering member printed Sarah Newton question first answered 08/02/2019 12:57:03 answering member 4071 label Biography information for Sarah Newton
tabling member	4637 label Biography information for James Frith

1050614

registered interest
date	29/01/2019
answering body	Department for Education
answering dept id	60
answering dept short name	Education
answering dept sort name	Education
hansard heading	Special Educational Needs
house id	1
legislature	25259 pref label House of Commons
question text	To ask the Secretary of State for Education, with reference to Article 24 of the United Nations Convention on the Rights of Persons with Disabilities, what recent steps the Government has taken to support the (a) inclusive education of disabled children and young people and (b) progressive removal of barriers to education and participation in mainstream education.
tabling member constituency	Bury North
tabling member printed	James Frith
uin	214131
answer	answer is ministerial correction date of answer 05/02/2019 answer text <p>The government’s commitment to inclusive education of disabled children and young people and the progressive removal of barriers to learning and participation in mainstream education is at the heart of the special educational needs and disabilities (SEND) system. We have made substantial reforms to strengthen the SEND system in recent years, to improve the identification and meeting of the needs of children and young people and to improve families’ experiences of the system. As part of this, the Children and Families Act (2014) secured the general presumption in law of mainstream education in relation to decisions about where children and young people with SEND should be educated, complementing the protections in the Equality Act (2010) against disability discrimination.</p><p> </p><p>Recent steps we have taken to help disabled children and young people reach their full potential in mainstream education include the fact that we have been closely monitoring the pressures on high needs budgets and have provided additional high needs funding for local authorities, alongside their 2019-20 Dedicated Schools Grant (DSG) allocations: a further £125 million in 2018-19 and £125 million of high needs funding for 2019-20.</p><p> </p><p>We are investing £365 million in the Special Provision Capital Fund from 2018 to 2021, helping local authorities create new school places and improve existing facilities for children and young people with SEND. This capital funding is not ring-fenced and local authorities can use it as they see fit to improve special provision in their local areas. The funding can be invested in a range of settings, including mainstream and special schools or academies. We have required local authorities to publish their plans on how they use this funding, and these show that many local authorities intend to expand their specialist provision in mainstream schools.</p><p> </p><p>We recognise the importance of staff in mainstream schools having the skills to identify and meet the needs of pupils with SEND. This is why, for example, we have awarded a 2 year, £3.4 million contract to the Whole School SEND Consortium, led by Nasen, to deliver a programme of work to drive education institutions to prioritise SEND and equip schools to identify and meet the relevant training needs of their workforce. We have also funded the Autism Education Trust since 2011 to deliver autism awareness training to education staff in early years, schools and further education settings. This training has so far reached more than 195,000 people - not just teachers and teaching assistants, but also support staff such as receptionists, dining hall staff and caretakers, encouraging a ‘whole school’ approach to supporting pupils with autism. We are also reviewing the current SEND content in the Initial Teacher Training provision (ITT) and building on our existing SEND specialist qualifications to develop a continuum of learning from ITT, through teachers’ early careers and into specialist and leadership roles in support of the upcoming Teacher Recruitment and Retention Strategy.</p><p> </p> answering member constituency Stratford-on-Avon answering member printed Nadhim Zahawi question first answered 05/02/2019 18:06:08 answering member 4113 label Biography information for Nadhim Zahawi
tabling member	4637 label Biography information for James Frith

1050615

registered interest
date	29/01/2019
answering body	Department for Education
answering dept id	60
answering dept short name	Education
answering dept sort name	Education
hansard heading	Special Educational Needs: Free Schools
house id	1
legislature	25259 pref label House of Commons
question text	To ask the Secretary of State for Education, what recent assessment he has made of the implications for his Department's obligations under Article 24 of the UN Convention on the Rights of Persons with Disabilities of the free school programme; and how many special schools have opened under that programme.
tabling member constituency	Bury North
tabling member printed	James Frith
uin	214132
answer	answer is ministerial correction date of answer 05/02/2019 answer text <p>Our ambition for children with special educational needs (SEN) and disabilities is exactly the same as it is for all children – we want them to be able to do their best in school and reach their potential, including in free schools.</p><p>As part of our commitments under the United Nations Convention of the Rights of Persons with Disabilities, we are committed to inclusive education of disabled children and the progressive removal of barriers to learning and participation in mainstream education. The Children and Families Act 2014 secures the general presumption in law of mainstream education in relation to decisions about where children with SEN should be educated; and the Equality Act 2010 provides protection from disability discrimination. The SEN system rightly places considerable weight on the views of parents as to where a child with complex needs should be educated. While many parents of disabled children choose mainstream education, others will want a specialist setting. Some children have complex SEN that mean that the best educational experience for them is in a school that specialises in meeting those needs. For them, a special school is a positive choice.</p><p>We have opened new special schools through the free schools programme: as of 1 January 2019, there are 34 open special free schools, and a further 55 special free schools have been approved to open in the future.</p> answering member constituency Stratford-on-Avon answering member printed Nadhim Zahawi question first answered 05/02/2019 17:15:14 answering member 4113 label Biography information for Nadhim Zahawi
tabling member	4637 label Biography information for James Frith

1037134

registered interest
date	07/01/2019
answering body	Department of Health and Social Care
answering dept id	17
answering dept short name	Health and Social Care
answering dept sort name	Health and Social Care
hansard heading	Continuing Care
house id	1
legislature	25259 pref label House of Commons
question text	To ask the Secretary of State for Health and Social Care, how many claims for continuing care payments remain outstanding since the deadline for applications was set.
tabling member constituency	Bury North
tabling member printed	James Frith
uin	206023
answer	answer is ministerial correction date of answer 15/01/2019 answer text <p>In March 2012, deadlines were introduced for requests for an assessment for NHS Continuing Healthcare ‘previously unassessed periods of care’ between 1 April 2004 and 31 March 2012 in England. Approximately 63,000 requests for an assessment were received, with approximately 25,000 resulting in a full assessment.</p><p> </p><p>As at 30 November 2018, the number of payments for periods of care within the 2004-2012 period that remain outstanding is 624. This number relates to cases which have been assessed as eligible (either initially or on appeal) and for which payments remain outstanding.</p><p> </p><p>Data on NHS Continuing Healthcare previously unassessed periods of care from April 2012 is not held.</p> answering member constituency Gosport answering member printed Caroline Dinenage question first answered 15/01/2019 12:26:00 answering member 4008 label Biography information for Dame Caroline Dinenage
tabling member	4637 label Biography information for James Frith

1037136

registered interest
date	07/01/2019
answering body	Department of Health and Social Care
answering dept id	17
answering dept short name	Health and Social Care
answering dept sort name	Health and Social Care
hansard heading	Continuing Care
house id	1
legislature	25259 pref label House of Commons
question text	To ask the Secretary of State for Health and Social Care, what estimate he has made of the cost to the public purse of funding the outstanding retrospective claims under the continuing care programme; what interest rate is being applied to such claims; and what estimate he has made of the average cost to the public purse of those outstanding claims.
tabling member constituency	Bury North
tabling member printed	James Frith
uin	206024
answer	answer is ministerial correction date of answer 15/01/2019 answer text <p>The estimated cost of reimbursement for the outstanding claims from periods of care between 1 April 2004 and 31 March 2012 is £14.5 million. Data on claims for previously unassessed periods of care from 1 April 2012 is not held.</p><p> </p><p>The ‘NHS Continuing Healthcare Refreshed Redress Guidance’, published on 1 April 2015, advises clinical commissioning groups to calculate interest using the Retail Price Index. The estimated average cost per claim is £23,000.</p> answering member constituency Gosport answering member printed Caroline Dinenage question first answered 15/01/2019 12:25:12 answering member 4008 label Biography information for Dame Caroline Dinenage
tabling member	4637 label Biography information for James Frith

1037137

registered interest
date	07/01/2019
answering body	Department of Health and Social Care
answering dept id	17
answering dept short name	Health and Social Care
answering dept sort name	Health and Social Care
hansard heading	Orphan Drugs: Regulation
house id	1
legislature	25259 pref label House of Commons
question text	To ask the Secretary of State for Health and Social Care, when his Department plans to publish its consultation on the regulation of orphan drugs after the UK leaves the EU.
tabling member constituency	Bury North
tabling member printed	James Frith
uin	206025
answer	answer is ministerial correction date of answer 16/01/2019 answer text <p>The Government is committed to the safe and effective regulation of medicines in the United Kingdom; ensuring patients and the public have fast access to new, innovative medicines, including medicines for rare diseases.</p><p> </p><p>The Medicines and Healthcare products Regulatory Agency (MHRA) launched in October 2018 a consultation on the regulation of medicines in the event of a ‘no deal’ exit, which included the proposed UK approach to the regulation of orphan medicines post-exit, including on incentives to encourage such medicines onto the UK market. Following this consultation, the MHRA, on 3 January 2019, published guidance on the UK proposed arrangements for the regulation of orphan medicines, in the event of a ‘no deal’ exit. This can be accessed at the following link:</p><p> </p><p><a href="https://www.gov.uk/government/publications/further-guidance-note-on-the-regulation-of-medicines-medical-devices-and-clinical-trials-if-theres-no-brexit-deal" target="_blank">https://www.gov.uk/government/publications/further-guidance-note-on-the-regulation-of-medicines-medical-devices-and-clinical-trials-if-theres-no-brexit-deal</a></p> answering member constituency Thurrock answering member printed Jackie Doyle-Price question first answered 16/01/2019 17:20:56 answering member 4065 label Biography information for Dame Jackie Doyle-Price
tabling member	4637 label Biography information for James Frith

1037138

registered interest
date	07/01/2019
answering body	Department of Health and Social Care
answering dept id	17
answering dept short name	Health and Social Care
answering dept sort name	Health and Social Care
hansard heading	Rare Diseases
house id	1
legislature	25259 pref label House of Commons
question text	To ask the Secretary of State for Health and Social Care, what measures he is taking to utilise UK genomic medical research to improve outcomes for patients living with rare diseases.
tabling member constituency	Bury North
tabling member printed	James Frith
uin	206026
answer	answer is ministerial correction date of answer 10/01/2019 answer text <p>The Government’s 2013 UK Strategy for Rare Diseases aims to improve the lives all those with a rare disease and is currently being implemented across England. The Strategy covers five areas including the role of research, with significant support from the National Institute of Health Research.</p><p> </p><p>In October 2018, the Secretary of State announced his ambition to sequence 5 million genomes in the next five years including 1 million whole genome sequences. This builds on the success of the transformative 100,000 Genomes Project which recruited people with rare, undiagnosed genetic diseases, and with cancer, and which reached 100,000 sequences in December 2018.</p><p> </p><p>The NHS Long Term Plan published on 7 January sets out the National Health Service’s commitment to research and innovation to drive outcome improvement, including through targeted investment in genomics. It confirmed that the new NHS Genomic Medicine Service will sequence 500,000 whole genomes by 2023/24 as part of the NHS’s contribution to the Government’s ambition for genomics. The NHS has become the first national health care system to offer whole genome sequencing as part of routine care. Another 500,000 whole genomes will be sequenced through UK Biobank as was announced in the 2017 Life Sciences Sector deal. Together, these activities will significantly increase the volume of high-quality genomic data for research to advance our knowledge to diagnose and treat rare diseases and other conditions to complement the research dataset already generated by the 100,000 Genomes Project.</p> answering member constituency Gosport answering member printed Caroline Dinenage question first answered 10/01/2019 15:18:43 answering member 4008 label Biography information for Dame Caroline Dinenage
tabling member	4637 label Biography information for James Frith

1037139

registered interest
date	07/01/2019
answering body	Department of Health and Social Care
answering dept id	17
answering dept short name	Health and Social Care
answering dept sort name	Health and Social Care
hansard heading	Rare Diseases
house id	1
legislature	25259 pref label House of Commons
question text	To ask the Secretary of State for Health and Social Care, what steps he is taking to ensure the availability of treatments for patients with rare diseases since the introduction of the Orphan Medical Product Regulation 2000.
tabling member constituency	Bury North
tabling member printed	James Frith
uin	206027
answer	answer is ministerial correction date of answer 15/01/2019 answer text <p>The Government is committed to improving the lives of all those affected by a rare disease. Implementation plans by NHS England and the Department were published jointly in January 2018 and describe the actions and framework in place to deliver this commitment to improve the lives of those affected by rare disease, as defined in the UK Strategy for Rare Diseases.</p><p> </p><p>Through its technology appraisal and highly specialised technologies programmes, the National Institute for Health and Care Excellence (NICE) plays an important role in ensuring that patients, including patients with rare diseases, are able to benefit from effective new treatments. NICE has recommended a number of drugs for rare diseases through these programmes that are now routinely funded by the National Health Service for eligible patients.</p> answering member constituency Winchester answering member printed Steve Brine question first answered 15/01/2019 16:13:10 answering member 4067 label Biography information for Steve Brine
tabling member	4637 label Biography information for James Frith

1029333

registered interest
date	20/12/2018
answering body	Department for International Development
answering dept id	20
answering dept short name	International Development
answering dept sort name	International Development
hansard heading	Israel: Palestinians
house id	1
legislature	25259 pref label House of Commons
question text	To ask the Secretary of State for International Development, what assessment her Department has made of the potential effect of the recently reported reductions in funding from the US to co-existence projects in Israel-Palestine on peace efforts in that region.
tabling member constituency	Bury North
tabling member printed	James Frith
uin	204610
answer	answer is ministerial correction date of answer 10/01/2019 answer text <p>DFID is aware of reports that USAID is currently unable to support coexistence projects in the West Bank and Gaza. The UK supports coexistence work both within green line Israel and across the Israel-OPTs boundary. All types of coexistence work can be valuable and help to foster greater understanding between communities from both sides of the conflict. Ultimately, however, the only way to achieve lasting coexistence is through a negotiated two-state solution that ends the occupation and delivers peace for both Israelis and Palestinians.</p><p> </p> answering member constituency North East Bedfordshire answering member printed Alistair Burt question first answered 10/01/2019 15:30:29 answering member 1201 label Biography information for Alistair Burt
tabling member	4637 label Biography information for James Frith

1029401

registered interest
date	20/12/2018
answering body	Department for Business, Energy and Industrial Strategy
answering dept id	201
answering dept short name	Business, Energy and Industrial Strategy
answering dept sort name	Business, Energy and Industrial Strategy
hansard heading	Department for Business, Energy and Industrial Strategy: Project Bank Accounts
house id	1
legislature	25259 pref label House of Commons
question text	To ask the Secretary of State for Business, Energy and Industrial Strategy, how many infrastructure contracts overseen by his Department have been let with the stipulation that a Project Bank Account must be applied in the last year.
tabling member constituency	Bury North
tabling member printed	James Frith
uin	204611
answer	answer is ministerial correction date of answer 08/01/2019 answer text <p>Central BEIS have not let any infrastructure contracts over the past year. We do not hold this information for BEIS Arms Lengths Bodies therefore this information could only be obtained at disproportionate cost.</p> answering member constituency Watford answering member printed Richard Harrington question first answered 08/01/2019 09:23:22 answering member 4068 label Biography information for Lord Harrington of Watford
tabling member	4637 label Biography information for James Frith