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<p>We’re working hard to support research, and provide the best possible care to those
living with sickle cell disease (SCD) across the country. The Department funds health
and care research through the National Institute for Health and Care Research (NIHR).
Over the past five financial years, the NIHR has invested more than £8 million in
funding and support for SCD research.</p><p>NHS Blood and Transplant (NHSBT) is the
largest provider of apheresis services, a blood transfusion used to treat SCD. NHSBT
will be delivering projects over the next 12 months that will increase both nursing
capacity and the physical space in which apheresis occurs. We are also working to
increase Ro subtype blood donation numbers, the blood type used to treat SCD, identify
opportunities to improve clinical pathways, and deliver world-leading treatments,
such as the new blood matching genetic test announced by NHS England earlier this
year, which will reduce the risk of side effects and offer more personalised care.</p><p>NHS
England’s Chief Executive Officer has committed to improving the treatment and outcomes
of patients with SCD, and has commissioned a Sickle Cell Pathway Quality Improvement
work package. A quality improvement review of existing processes has led to a range
of improvements including awareness, education, and training of both patients and
professionals.</p><p>The National Healthcare Inequalities Improvement Programme (HiQiP)
has recently introduced a number of initiatives as part of the wider aim of tackling
inequalities for people living with SCD. This includes: piloting of urgent and emergency
department bypass units in London and Manchester, which will ensure people with SCD
with an uncomplicated vaso-occlusive crisis are assessed and given pain relief in
a timely manner; the provision of a credit card sized Sickle Cell Alert Card to all
people with SCD, to alert medical and clinical staff that the carrier is a registered
SCD patient and that they should be managed as a medical emergency; a London wide
commissioning for the design and upload of a patient care record onto an interoperable
digital platform which, when fully operational, will give clinicians and medical personnel
in different regions access to a patient’s personalised care and analgesia record,
removing ambiguity on effective treatment; and several products to support the above,
including a communications campaign to raise awareness of existing NHS England arrangements
to support people with SCD to save money on the costs of regular prescriptions, as
well as the Can you tell it's Sickle Cell campaign and an e-learning module, both
from NHS England. Further information on the Can you tell it's Sickle Cell campaign
and the e-learning module is available respectively, at the following links:</p><p><a
href="https://www.england.nhs.uk/2022/06/nhs-launches-lifesaving-sickle-cell-campaign/"
target="_blank">https://www.england.nhs.uk/2022/06/nhs-launches-lifesaving-sickle-cell-campaign/</a></p><p><a
href="https://www.e-lfh.org.uk/programmes/health-inequalities/" target="_blank">https://www.e-lfh.org.uk/programmes/health-inequalities/</a></p>
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