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1037127

registered interest
date	07/01/2019
answering body	Department of Health and Social Care
answering dept id	17
answering dept short name	Health and Social Care
answering dept sort name	Health and Social Care
hansard heading	Palliative Care: Children
house id	1
legislature	25259 pref label House of Commons
question text	To ask the Secretary of State for Health and Social Care, if his Department will provide guidance to local commissioners to encourage the commissioning of support for the siblings of children with life-threatening and terminal conditions.
tabling member constituency	Washington and Sunderland West
tabling member printed	Mrs Sharon Hodgson
uin	205852
answer	answer is ministerial correction date of answer 15/01/2019 answer text <p>In December 2016, the National Institute for Health and Care Excellence (NICE) published the guideline ‘End of Life Care for Infants, Children and Young People: Planning and Management’.</p><p> </p><p>This guidance emphasises the need to be aware that siblings will need support to cope with their brother's or sister's condition and death and the effects of their parents' or carers' grieving. This may include social, practical, psychological and spiritual support.</p><p> </p><p>To support implementation of the guidance NHS England commissioned Together for Short Lives, a leading children’s end of life care charity, to examine services across the country to identify best practice in implementation of the guidance, as well as barriers, through interviews with local NHS services. More information about this work and a copy of the NICE guidance can be found at the following links:</p><p> </p><p><a href="http://www.togetherforshortlives.org.uk/changing-lives/supporting-care-professionals/introduction-childrens-palliative-care/nice-guidelines/" target="_blank">www.togetherforshortlives.org.uk/changing-lives/supporting-care-professionals/introduction-childrens-palliative-care/nice-guidelines/</a></p><p> </p><p><a href="http://www.nice.org.uk/guidance/ng61" target="_blank">www.nice.org.uk/guidance/ng61</a> <br></p><p>Hospices providing children and young people’s palliative care can also provide important support to the families of those caring for children with life limiting conditions. NHS England has recently announced plans to increase funding for children’s hospices to as much as £25 million a year over the next five years, as part of the NHS long term plan.</p> answering member constituency Gosport answering member printed Caroline Dinenage grouped question UIN 205854 question first answered 15/01/2019 12:30:02 answering member 4008 label Biography information for Dame Caroline Dinenage
tabling member	1521 label Biography information for Mrs Sharon Hodgson

1037128

registered interest
date	07/01/2019
answering body	Department of Health and Social Care
answering dept id	17
answering dept short name	Health and Social Care
answering dept sort name	Health and Social Care
hansard heading	Palliative Care: Children
house id	1
legislature	25259 pref label House of Commons
question text	To ask the Secretary of State for Health and Social Care, what assessment his Department has made of the needs of siblings of children with palliative care needs as part of the programme of work to deliver the Carers Action Plan.
tabling member constituency	Washington and Sunderland West
tabling member printed	Mrs Sharon Hodgson
uin	205853
answer	answer is ministerial correction date of answer 15/01/2019 answer text <p>The Government is committed to making sure young carers are not left behind. While some caring can be rewarding for young carers, they can experience poorer mental and physical health and miss out on opportunities in education and employment. We want to make sure that all young carers receive the support that they need.</p><p> </p><p>The Carers Action Plan aims to do this by focusing on improving the identification of young carers; improving their educational opportunities and outcomes; providing support to young carers, particularly to vulnerable children; and improving access to services.</p><p> </p><p>In December 2016 the National Institute for Health and Care Excellence published the guideline ‘End of Life Care for Infants, Children and Young People: Planning and Management’. The guidance emphasises the need to be aware that siblings will need support to cope with their brother's or sister's condition and death the effects of their parents' or carers' grieving. This may include social, practical, psychological and spiritual support.</p> answering member constituency Gosport answering member printed Caroline Dinenage question first answered 15/01/2019 12:20:14 answering member 4008 label Biography information for Dame Caroline Dinenage
tabling member	1521 label Biography information for Mrs Sharon Hodgson

1037129

registered interest
date	07/01/2019
answering body	Department of Health and Social Care
answering dept id	17
answering dept short name	Health and Social Care
answering dept sort name	Health and Social Care
hansard heading	Palliative Care: Children
house id	1
legislature	25259 pref label House of Commons
question text	To ask the Secretary of State for Health and Social Care, what funding is available to support the siblings of children with palliative care needs.
tabling member constituency	Washington and Sunderland West
tabling member printed	Mrs Sharon Hodgson
uin	205854
answer	answer is ministerial correction date of answer 15/01/2019 answer text <p>In December 2016, the National Institute for Health and Care Excellence (NICE) published the guideline ‘End of Life Care for Infants, Children and Young People: Planning and Management’.</p><p> </p><p>This guidance emphasises the need to be aware that siblings will need support to cope with their brother's or sister's condition and death and the effects of their parents' or carers' grieving. This may include social, practical, psychological and spiritual support.</p><p> </p><p>To support implementation of the guidance NHS England commissioned Together for Short Lives, a leading children’s end of life care charity, to examine services across the country to identify best practice in implementation of the guidance, as well as barriers, through interviews with local NHS services. More information about this work and a copy of the NICE guidance can be found at the following links:</p><p> </p><p><a href="http://www.togetherforshortlives.org.uk/changing-lives/supporting-care-professionals/introduction-childrens-palliative-care/nice-guidelines/" target="_blank">www.togetherforshortlives.org.uk/changing-lives/supporting-care-professionals/introduction-childrens-palliative-care/nice-guidelines/</a></p><p> </p><p><a href="http://www.nice.org.uk/guidance/ng61" target="_blank">www.nice.org.uk/guidance/ng61</a> <br></p><p>Hospices providing children and young people’s palliative care can also provide important support to the families of those caring for children with life limiting conditions. NHS England has recently announced plans to increase funding for children’s hospices to as much as £25 million a year over the next five years, as part of the NHS long term plan.</p> answering member constituency Gosport answering member printed Caroline Dinenage grouped question UIN 205852 question first answered 15/01/2019 12:30:02 answering member 4008 label Biography information for Dame Caroline Dinenage
tabling member	1521 label Biography information for Mrs Sharon Hodgson

1037176

registered interest
date	07/01/2019
answering body	Department of Health and Social Care
answering dept id	17
answering dept short name	Health and Social Care
answering dept sort name	Health and Social Care
hansard heading	Palliative Care: Children
house id	1
legislature	25259 pref label House of Commons
question text	To ask the Secretary of State for Health and Social Care, what steps he is taking to ensure that (a) clinical commissioning groups and (b) local authorities take account of demand for children's palliative care in planning and funding services.
tabling member constituency	St Austell and Newquay
tabling member printed	Steve Double
uin	205969
answer	answer is ministerial correction date of answer 15/01/2019 answer text <p>Work undertaken by NHS England and system partners at a national level includes supporting sustainability and transformation partnership (STP) planning to address end of life care in all settings, providing key data on services and populations to support appropriate planning and funding of end of life care. STPs bring together National Health Service, local authorities and other partners to agree system-wide priorities, and to plan collectively.</p><p> </p><p>NHS England is actively working to improve support to commissioners in funding and delivering children’s end of life care, and hospice care. In April 2017 NHS England made available a new specialist palliative care currency, one for adults and one for children, to support local areas in planning and delivering services, including hospice services. The currency can help local services better understand the complexity of palliative care and the investment needed to deliver it.</p><p> </p><p>NHS England also commissioned Together for Short Lives to promote the adoption of important new guidance from the National Institute for Health and Care Excellence, which sets out best practice on the care and treatment of children at the end of life.</p><p> </p><p>NHS England has established an Expert Group to bring together knowledge and expertise in children’s end of life care to consider the development of commissioning models suitable for this vulnerable group of patients. NHS England has identified clinical commissioning groups to pilot the new models and work is expected for completion in spring 2019.</p> answering member constituency Gosport answering member printed Caroline Dinenage question first answered 15/01/2019 12:24:07 answering member 4008 label Biography information for Dame Caroline Dinenage
tabling member	4452 label Biography information for Steve Double

1022834

registered interest
date	10/12/2018
answering body	Department of Health and Social Care
answering dept id	17
answering dept short name	Health and Social Care
answering dept sort name	Health and Social Care
hansard heading	Palliative Care: Children
house id	1
legislature	25259 pref label House of Commons
question text	To ask the Secretary of State for Health and Social Care, pursuant to the Answer of 5 December 2018 to Question 197449 on Palliative Care: Children and Young People, whether Health Education England is taking steps to develop staff to fulfil the end of life choice commitment for children as set out in its mandate from the Government; and if he will make a statement.
tabling member constituency	Washington and Sunderland West
tabling member printed	Mrs Sharon Hodgson
uin	200568
answer	answer is ministerial correction date of answer 18/12/2018 answer text <p>The Government’s mandates to Health Education England (HEE) since 2014/15 contained an overall goal by 2020 of ensuring all staff delivering end of life care are appropriately trained, especially in the five priorities for care of the dying person and the Ambitions Framework. Working in partnership with stakeholders across the system, HEE has delivered the following:</p><p>- publication of End of Life Care Core Skills Education and Training Framework;</p><p>- collaboration with the Nursing and Midwifery Council, General Medical Council and Health and Care Professions Council to influence curricula on end of life care;</p><p>- over 160 highly interactive e-learning materials for end of life care; and</p><p>- work with Community Education Partnership Networks to support inclusion of asset based work in local End of Life Care plans - recognising the value of individuals and communities in supporting individuals in end of life care - and published a ‘How to’ guide on asset based approaches.</p> answering member constituency Wimbledon answering member printed Stephen Hammond question first answered 18/12/2018 10:45:46 answering member 1585 label Biography information for Stephen Hammond
tabling member	1521 label Biography information for Mrs Sharon Hodgson

1016326

registered interest
date	28/11/2018
answering body	Department of Health and Social Care
answering dept id	17
answering dept short name	Health and Social Care
answering dept sort name	Health and Social Care
hansard heading	Palliative Care: Children
house id	1
legislature	25259 pref label House of Commons
question text	To ask the Secretary of State for Health and Social Care, pursuant to the Answer of 8 November 2018 to Question 189538 on Palliative Care: Children, what processes (a) NHS England and (b) his Department have in place to assess the level of collaboration between the relevant authorities and organisations.
tabling member constituency	Birmingham, Selly Oak
tabling member printed	Steve McCabe
uin	196694
answer	answer is ministerial correction date of answer 05/12/2018 answer text <p>NHS England and the Department do not currently have any processes for measuring or monitoring collaboration between services involved in delivering children’s palliative care. NHS England and the Department would expect all the partners involved to be regularly talking to, and working with, relevant organisations, given their remit to identify overall local need and to join up services.</p><p> </p><p>As with the vast majority of NHS services, the funding and commissioning of palliative and end of life care is a local matter over which individual National Health Service commissioners have responsibility. Local commissioners are best placed to understand the needs of local populations and commission services to meet those needs accordingly. The only exception to this are small numbers of specialist paediatric palliative care inpatient services, commissioned nationally by NHS England from eight centres across England as part of its remit to deliver specialised services.</p><p> </p><p>To support effective service collaboration locally, NHS England has worked with Public Health England and the Care Quality Commission to provide bespoke end of life care data and support packs to sustainability and transformation partnerships to plan for, and improve, end of life care services.</p> answering member constituency Gosport answering member printed Caroline Dinenage question first answered 05/12/2018 12:08:40 answering member 4008 label Biography information for Dame Caroline Dinenage
tabling member	298 label Biography information for Steve McCabe

1015532

registered interest
date	27/11/2018
answering body	Department of Health and Social Care
answering dept id	17
answering dept short name	Health and Social Care
answering dept sort name	Health and Social Care
hansard heading	Palliative Care: Children
house id	1
legislature	25259 pref label House of Commons
question text	To ask the Secretary of State for Health and Social Care, if he will develop outcome indicators to measure the extent to which children with life-limiting conditions and their families are able to make choices on the palliative care they receive.
tabling member constituency	Oldham East and Saddleworth
tabling member printed	Debbie Abrahams
uin	196297
answer	answer is ministerial correction date of answer 03/12/2018 answer text <p>Public Health England has no plans to develop indicators on the extent to which children with life limiting conditions and their families are able to make choices on the palliative care they receive. Data is not held on patient preferences for palliative care on which to base such indicators.</p> answering member constituency Gosport answering member printed Caroline Dinenage question first answered 03/12/2018 17:39:16 answering member 4008 label Biography information for Dame Caroline Dinenage
tabling member	4212 label Biography information for Debbie Abrahams

1012403

registered interest
date	22/11/2018
answering body	Department of Health and Social Care
answering dept id	17
answering dept short name	Health and Social Care
answering dept sort name	Health and Social Care
hansard heading	Palliative Care: Children
house id	1
legislature	25259 pref label House of Commons
question text	To ask the Secretary of State for Health and Social Care, what assessment he has made of the potential merits of developing a competency framework for the provision of children’s palliative care.
tabling member constituency	Liverpool, West Derby
tabling member printed	Stephen Twigg
uin	194576
answer	answer is ministerial correction date of answer 29/11/2018 answer text <p>No specific assessment has been made.</p> answering member constituency Gosport answering member printed Caroline Dinenage question first answered 29/11/2018 14:13:02 answering member 4008 label Biography information for Dame Caroline Dinenage
tabling member	167 label Biography information for Stephen Twigg

1011517

registered interest
date	21/11/2018
answering body	Department of Health and Social Care
answering dept id	17
answering dept short name	Health and Social Care
answering dept sort name	Health and Social Care
hansard heading	Palliative Care: Children
house id	1
legislature	25259 pref label House of Commons
question text	To ask the Secretary of State for Health and Social Care, whether he has taken steps to encourage Clinical Commissioning Groups and local authorities to jointly commission (a) short breaks for respite and (b) other children’s palliative care services.
tabling member constituency	Loughborough
tabling member printed	Nicky Morgan
uin	194164
answer	answer is ministerial correction date of answer 28/11/2018 answer text <p>NHS England and the Department expects clinical commissioning groups (CCGs) and local authorities to work collaboratively to commission appropriate respite and palliative care services for children with life-limiting conditions, to make the most efficient and effective use of health and social care funding.</p><p> </p><p>NHS England’s ‘Choice Commitment for end of life care’ document recognises that children’s palliative care is particularly dependent on this good collaboration between clinical and non-clinical services across a variety of settings. NHS England has also provided support to CCGs in this area in the form of a joint NHS 10 Point Efficiency Plan with NHS Improvement.</p><p> </p><p>NHS England is also working with colleagues across the National Health Service and local authorities to ensure the health and care needs of specific patient groups, including children’s palliative care services, are planned collaboratively where appropriate. This includes working with commissioners, clinicians, voluntary, community and social enterprises, local authorities and people with lived experience to refresh the children’s palliative and end of life care service specification and the commissioning pathway to reflect collective responsibilities across health and social care. Work will continue on this until spring 2019.</p> answering member constituency Gosport answering member printed Caroline Dinenage question first answered 28/11/2018 14:16:28 answering member 4008 label Biography information for Dame Caroline Dinenage
tabling member	4027 label Biography information for Baroness Morgan of Cotes

1011558

registered interest
date	21/11/2018
answering body	Department of Health and Social Care
answering dept id	17
answering dept short name	Health and Social Care
answering dept sort name	Health and Social Care
hansard heading	Palliative Care: Children
house id	1
legislature	25259 pref label House of Commons
question text	To ask the Secretary of State for Health and Social Care, what plans he has to include meeting the end of life care choice commitment for babies, children and young people in the new NHS long-term plan; and if he will make a statement.
tabling member constituency	East Ham
tabling member printed	Stephen Timms
uin	194000
answer	answer is ministerial correction date of answer 26/11/2018 answer text <p>‘Our Commitment to you for end of life care’, published in July 2016, set out what everyone should expect from their care at the end of life and the actions we are taking to make high quality, personalised care a reality for all, both adults and children. Through the Mandate to NHS England, we have asked NHS England to deliver the Choice Commitment, and through its National Programme Board for End of life Care, NHS England is working with all key system partners and stakeholders, including the children’s end of life care charity Together for Short Lives, to achieve this. A copy of the Choice Commitment and the One Year On progress report can be found at the following link:</p><p> </p><p><a href="http://www.gov.uk/government/publications/choice-in-end-of-life-care-government-response" target="_blank">www.gov.uk/government/publications/choice-in-end-of-life-care-government-response</a></p><p> </p><p>End of life care, including for babies, children and young people, is an important part of the proposals which are helping to shape the long-term plan for the National Health Service. The plan is expected for publication later this year.</p> answering member constituency Gosport answering member printed Caroline Dinenage question first answered 26/11/2018 16:12:26 answering member 4008 label Biography information for Dame Caroline Dinenage
tabling member	163 label Biography information for Sir Stephen Timms