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100728
registered interest false more like this
date less than 2014-10-23more like thismore than 2014-10-23
answering body
Department of Health more like this
answering dept id 17 more like this
answering dept short name Health more like this
answering dept sort name Health more like this
hansard heading Motor Neurone Disease remove filter
house id 1 more like this
legislature
25259
pref label House of Commons more like this
question text To ask the Secretary of State for Health, how much from the public purse has been spent on research into motor neurone disease in each of the last five years. more like this
tabling member constituency Leicester West more like this
tabling member printed
Liz Kendall more like this
uin 211730 more like this
answer
answer
is ministerial correction true more like this
date of answer less than 2014-10-29more like thismore than 2014-10-29
answer text <p>The following table shows estimated expenditure on research on asthma, motor neurone disease (MND) and osteoporosis by the Medical Research Council, other Research Councils and Innovate UK, and by the National Institute for Health (NIHR) through its research programmes, research centres and units, and research fellowships.</p><p> </p><p> </p><p> </p><p><em>£ million</em></p><p> </p><table><tbody><tr><td> </td><td><p>2009-10</p></td><td><p>2010-11</p></td><td><p>2011-12</p></td><td><p>2012-13</p></td><td><p>2013-14</p></td></tr><tr><td colspan="6"><p>Asthma</p></td></tr><tr><td><p>Medical Research Council</p></td><td><p><del class="ministerial">22.2 </del><ins class="ministerial">6.6</ins></p></td><td><p><del class="ministerial">17.5 </del><ins class="ministerial">5.3</ins></p></td><td><p><del class="ministerial">17.2</del><ins class="ministerial"> 4.5</ins></p></td><td><p><del class="ministerial">19.4</del><ins class="ministerial"> 3.6</ins></p></td><td><p><del class="ministerial">18.8</del><ins class="ministerial"> 5.4</ins></p></td></tr><tr><td><p>Other Research Councils and Innovate UK</p></td><td><p>0.0</p></td><td><p>0.1</p></td><td><p>0.3</p></td><td><p>1.5</p></td><td><p>0.8</p></td></tr><tr><td><p>National Institute for Health Research</p></td><td><p>2.6</p></td><td><p>3.4</p></td><td><p>2.4</p></td><td><p>3.4</p></td><td><p>3.8</p></td></tr><tr><td><p>Total</p></td><td><p><del class="ministerial">24.8</del><ins class="ministerial"> 9.2</ins></p></td><td><p><del class="ministerial">21.0</del><ins class="ministerial"> 8.8</ins></p></td><td><p><del class="ministerial">19.9</del><ins class="ministerial"> 7.2</ins></p></td><td><p><del class="ministerial">24.3 </del><ins class="ministerial">8.5</ins></p></td><td><p><del class="ministerial">23.4</del> <ins class="ministerial">10.0</ins></p></td></tr><tr><td colspan="6"><p>Motor Neurone Research</p></td></tr><tr><td><p>Medical Research Council</p></td><td><p>7.0</p></td><td><p>7.5</p></td><td><p>4.2</p></td><td><p>4.1</p></td><td><p>3.6</p></td></tr><tr><td><p>Other Research Councils and Innovate UK</p></td><td><p>0.2</p></td><td><p>0.2</p></td><td><p>0.4</p></td><td><p>0.7</p></td><td><p>1.0</p></td></tr><tr><td><p>National Institute for Health Research</p></td><td><p>0.1</p></td><td><p>0.1</p></td><td><p>0.4</p></td><td><p>0.7</p></td><td><p>0.5</p></td></tr><tr><td><p>Total</p></td><td><p>7.3</p></td><td><p>7.8</p></td><td><p>5.0</p></td><td><p>5.5</p></td><td><p>5.1</p></td></tr><tr><td colspan="6"><p>Osteoporosis</p></td></tr><tr><td><p>Medical Research Council</p></td><td><p>6.2</p></td><td><p>5.4</p></td><td><p>5.1</p></td><td><p>4.6</p></td><td><p>5.9</p></td></tr><tr><td><p>Other Research Councils and Innovate UK</p></td><td><p>0.0</p></td><td><p>0.0</p></td><td><p>0.1</p></td><td><p>0.4</p></td><td><p>1.0</p></td></tr><tr><td><p>National Institute for Health Research</p></td><td><p>0.3</p></td><td><p>0.7</p></td><td><p>0.8</p></td><td><p>1.3</p></td><td><p>1.8</p></td></tr><tr><td><p>Total</p></td><td><p>6.5</p></td><td><p>6.1</p></td><td><p>6.0</p></td><td><p>6.3</p></td><td><p>8.7</p></td></tr></tbody></table><p> </p><p> </p><p> </p><p>The figures shown for asthma exclude research into air pollution and potential effects on health outcomes including asthma.</p><p> </p><p> </p><p> </p><p>Total spend by the NIHR on asthma, MND and osteoporosis is higher than the figures shown because expenditure by the NIHR Clinical Research Network (CRN) on these diseases cannot be disaggregated from total CRN expenditure. NIHR expenditure relating to development of new drugs for asthma, MND and osteroporosis occurs primarily through NIHR research infrastructure including the CRN and cannot be disaggregated from total expenditure.</p><p> </p><p> </p><p> </p><p>Information on MRC expenditure into the development of new drugs for asthma, MND or osteoporosis is not available.</p><p> </p>
answering member constituency Mid Norfolk more like this
answering member printed George Freeman more like this
question first answered
less than 2014-10-29T17:12:28.3318918Zmore like thismore than 2014-10-29T17:12:28.3318918Z
question first ministerially corrected
less than 2014-11-13T10:22:56.0372213Zmore like thismore than 2014-11-13T10:22:56.0372213Z
answering member
4020
label Biography information for George Freeman more like this
previous answer version
25123
answering member constituency Mid Norfolk more like this
answering member printed George Freeman more like this
answering member
4020
label Biography information for George Freeman more like this
tabling member
4026
label Biography information for Liz Kendall more like this
100401
registered interest false more like this
date less than 2014-10-22more like thismore than 2014-10-22
answering body
Department of Health more like this
answering dept id 17 more like this
answering dept short name Health more like this
answering dept sort name Health more like this
hansard heading Motor Neurone Disease remove filter
house id 1 more like this
legislature
25259
pref label House of Commons more like this
question text To ask the Secretary of State for Health, what steps he is taking to ensure that the NHS is meeting the communication needs of people with motor neurone disease. more like this
tabling member constituency Birkenhead more like this
tabling member printed
Mr Frank Field more like this
uin 211515 more like this
answer
answer
is ministerial correction false more like this
date of answer less than 2014-10-29more like thismore than 2014-10-29
answer text <p>Since 1 April 2013 NHS England has been responsible for commissioning Alternative and Augmentative Communication (AAC) aids for patients with complex disability whose needs require specialised assessment, including for patients with motor neurone disease. Commissioning of non-specialised AAC aids is the responsibility of local clinical commissioning groups.</p><p> </p><p> </p><p> </p><p>NHS England has published a service specification for specialised AAC aids that sets out what should be in place for providers to offer evidence-based, safe and effective services. The specification can be found at:</p><p> </p><p> </p><p> </p><p><a href="http://www.england.nhs.uk/wp-content/uploads/2013/06/d01-com-dis-equ-alt-aug-comm-aids.pdf" target="_blank">www.england.nhs.uk/wp-content/uploads/2013/06/d01-com-dis-equ-alt-aug-comm-aids.pdf</a></p><p> </p><p> </p><p> </p><p>NHS England has identified an additional £22.5 million funding for AAC and Environmental Controls in 2014-15. They have been working closely with the Motor Neurone Disease Association (MNDA) to ensure this funding is equitably distributed across England in a fair and consistent manner. The MNDA are representing all patients on the panel which is reviewing this funding allocation.</p><p> </p>
answering member constituency North Norfolk more like this
answering member printed Norman Lamb more like this
question first answered
less than 2014-10-29T17:16:16.5530137Zmore like thismore than 2014-10-29T17:16:16.5530137Z
answering member
1439
label Biography information for Norman Lamb more like this
tabling member
478
label Biography information for Lord Field of Birkenhead more like this
99848
registered interest false more like this
date less than 2014-10-20more like thismore than 2014-10-20
answering body
Department of Health more like this
answering dept id 17 more like this
answering dept short name Health more like this
answering dept sort name Health more like this
hansard heading Motor Neurone Disease remove filter
house id 1 more like this
legislature
25259
pref label House of Commons more like this
question text To ask the Secretary of State for Health, what assessment he has made of the availability of augmentative and alternative communication aids for sufferers of motor neurone disease in (a) Surrey and Sussex and (b) England; and if he will make a statement. more like this
tabling member constituency Woking more like this
tabling member printed
Jonathan Lord more like this
uin 211112 more like this
answer
answer
is ministerial correction false more like this
date of answer less than 2014-10-27more like thismore than 2014-10-27
answer text <p>Since April 1 2013 NHS England has been responsible for commissioning Alternative and Augmentative Communication (AAC) aids for patients with complex disability whose needs require specialised assessment, including for patients with motor neurone disease (MND). Commissioning of non-specialised AAC aids is the responsibility of local clinical commissioning groups.</p><p> </p><p> </p><p> </p><p>NHS England has published a service specification for specialised AAC aids that sets out what should be in place for providers to offer evidence-based, safe and effective services and supports equity of access to a nationally consistent, high quality service for patients across the country including in Surrey and Sussex. The specification can be found at:</p><p> </p><p> </p><p> </p><p>www.england.nhs.uk/wp-content/uploads/2013/06/d01-com-dis-equ-alt-aug-comm-aids.pdf</p><p> </p><p> </p><p> </p><p> </p><p> </p><p>NHS England has identified an additional £22.5 million funding for AAC and Environmental Controls in 2014-15. They have been working closely with the Motor Neurone Disease Association (MNDA) to ensure this funding is equitably distributed across England in a fair and consistent manner. The MNDA are representing all patients on the panel which is reviewing this funding allocation.</p><p> </p><p> </p><p> </p>
answering member constituency North Norfolk more like this
answering member printed Norman Lamb more like this
question first answered
less than 2014-10-27T17:07:49.9958913Zmore like thismore than 2014-10-27T17:07:49.9958913Z
answering member
1439
label Biography information for Norman Lamb more like this
tabling member
4090
label Biography information for Mr Jonathan Lord more like this
92583
registered interest false more like this
date less than 2014-10-10more like thismore than 2014-10-10
answering body
Department of Health more like this
answering dept id 17 more like this
answering dept short name Health more like this
answering dept sort name Health more like this
hansard heading Motor Neurone Disease remove filter
house id 1 more like this
legislature
25259
pref label House of Commons more like this
question text To ask the Secretary of State for Health, what assessment he has made of the adequacy of the availability of assistive communications equipment for people with motor neurone disease; and what steps his Department has taken to improve such provision. more like this
tabling member constituency Newcastle upon Tyne East more like this
tabling member printed
Mr Nicholas Brown more like this
uin 209927 more like this
answer
answer
is ministerial correction false more like this
date of answer less than 2014-10-17more like thismore than 2014-10-17
answer text <p>Since 1 April 2013 NHS England has been responsible for commissioning Alternative and Augmentative Communication (AAC) aids for patients with complex disability whose needs require specialised assessment.</p><p> </p><p> </p><p> </p><p>NHS England has identified an additional £22.5 million funding for AAC and Environmental Controls in 2014-15. They have been working closely with the Motor Neurone Disease Association (MNDA) to ensure this funding is equitably distributed across England in a fair and consistent manner. The MNDA are representing all patients on the panel which is reviewing this funding allocation.</p><p> </p><p> </p><p> </p><p>The service specification and management protocols for this service contain clear standards for providers to supply communication devices within an agreed timescale depending on the complexity. The specification can be found at:</p><p> </p><p> </p><p> </p><p><a href="http://www.england.nhs.uk/ourwork/commissioning/spec-services/npc-crg/group-d/d01/" target="_blank">www.england.nhs.uk/ourwork/commissioning/spec-services/npc-crg/group-d/d01/</a></p><p> </p>
answering member constituency North Norfolk more like this
answering member printed Norman Lamb more like this
question first answered
less than 2014-10-17T12:18:32.2556495Zmore like thismore than 2014-10-17T12:18:32.2556495Z
answering member
1439
label Biography information for Norman Lamb more like this
tabling member
523
label Biography information for Mr Nicholas Brown more like this
79393
registered interest false more like this
date less than 2014-07-22more like thismore than 2014-07-22
answering body
Department of Health more like this
answering dept id 17 more like this
answering dept short name Health more like this
answering dept sort name Health more like this
hansard heading Motor Neurone Disease remove filter
house id 1 more like this
legislature
25259
pref label House of Commons more like this
question text To ask the Secretary of State for Health, how much funding his Department has allocated to research into motor neurone disease in each of last 10 years. more like this
tabling member constituency Glasgow North West more like this
tabling member printed
John Robertson more like this
uin 206942 more like this
answer
answer
is ministerial correction false more like this
date of answer less than 2014-09-03more like thismore than 2014-09-03
answer text <p> </p><p>Prior to the establishment of the National Institute for Health Research (NIHR) in April 2006, the main part of the Department's total health research expenditure was devolved to and managed by national health service organisations. From April 2006 to March 2009, transitional research funding was allocated to these organisations at reducing levels. The organisations have accounted for their use of the allocations they have received from the Department in an annual research and development report. The reports identify total, aggregated expenditure on national priority areas but do not provide details of spend on research into specific diseases including motor neurone disease (MND).</p><p> </p><p> </p><p> </p><p>Expenditure on MND research by the NIHR from 2009-10 through research programmes, research centres and units, and research fellowships is shown in the following table.</p><p> </p><p> </p><p> </p><p><em>£ million</em></p><p> </p><table><tbody><tr><td><p>2009-10</p></td><td><p>2010-11</p></td><td><p>2011-12</p></td><td><p>2012-13</p></td><td><p>2013-14</p></td></tr><tr><td><p>0.1</p></td><td><p>0.1</p></td><td><p>0.4</p></td><td><p>0.7</p></td><td><p>0.5</p></td></tr></tbody></table><p> </p><p> </p><p> </p><p>Total spend by the NIHR on MND research is higher than this because expenditure by the NIHR Clinical Research Network (CRN) on this topic cannot be disaggregated from total CRN expenditure.</p><p> </p><p> </p><p> </p><p>My Rt. hon. Friend the Secretary of State for Health (Jeremy Hunt) has had no discussions on funding for MND research with the Scottish Government Cabinet Secretary for Health and Wellbeing.</p><p> </p>
answering member constituency Central Suffolk and North Ipswich more like this
answering member printed Dr Daniel Poulter more like this
grouped question UIN 206931 more like this
question first answered
less than 2014-09-03T14:35:42.8449035Zmore like thismore than 2014-09-03T14:35:42.8449035Z
answering member
3932
label Biography information for Dr Dan Poulter more like this
tabling member
605
label Biography information for John Robertson more like this
78233
registered interest false more like this
date less than 2014-07-15more like thismore than 2014-07-15
answering body
Department of Health more like this
answering dept id 17 more like this
answering dept short name Health more like this
answering dept sort name Health more like this
hansard heading Motor Neurone Disease remove filter
house id 2 more like this
legislature
25277
pref label House of Lords more like this
question text To ask Her Majesty’s Government how much has been spent on research into the causes of, and treatment and cure for, motor neurone disease by all publicly funded departments and bodies in each year since 2010. more like this
tabling member printed
Lord Foulkes of Cumnock more like this
uin HL1128 more like this
answer
answer
is ministerial correction false more like this
date of answer less than 2014-07-23more like thismore than 2014-07-23
answer text <p> </p><p>The following table shows expenditure on research on motor neurone disease (MND) and amyotrophic lateral sclerosis (ALS - a sub type of MND) by the Medical Research Council and by the National Institute for Health Research (NIHR) through its research programmes, research centres and units, and research fellowships.</p><p> </p><p>£ million</p><p><em> </em></p><table><tbody><tr><td><p> </p></td><td><p>2010-11</p></td><td><p>2011-12</p></td><td><p>2012-13</p></td><td><p>2013-14</p></td></tr><tr><td><p>Medical Research Council</p></td><td><p>7.5</p></td><td><p>4.2</p></td><td><p>4.1</p></td><td><p>n/a</p></td></tr><tr><td><p>National Institute for Health Research</p></td><td><p>0.1</p></td><td><p>0.4</p></td><td><p>0.7</p></td><td><p>0.5</p></td></tr><tr><td><p>Total</p></td><td><p>7.6</p></td><td><p>4.6</p></td><td><p>4.8</p></td><td><p>n/a</p></td></tr></tbody></table><p> </p><p>Total spend by the NIHR on MND/ALS is higher than this because expenditure by the NIHR Clinical Research Network (CRN) on this topic cannot be disaggregated from total CRN expenditure.</p>
answering member printed Earl Howe more like this
question first answered
less than 2014-07-23T12:25:56.3724795Zmore like thismore than 2014-07-23T12:25:56.3724795Z
answering member
2000
label Biography information for Earl Howe more like this
tabling member
579
label Biography information for Lord Foulkes of Cumnock more like this
62327
registered interest false more like this
date less than 2014-06-17more like thismore than 2014-06-17
answering body
Department of Health more like this
answering dept id 17 more like this
answering dept short name Health more like this
answering dept sort name Health more like this
hansard heading Motor Neurone Disease remove filter
house id 1 more like this
legislature
25259
pref label House of Commons more like this
question text To ask the Secretary of State for Health, what plans he has to extend pilot treatments for motor neurone disease; and what discussions he has had with his counterparts in the devolved adminstrations on those pilots. more like this
tabling member constituency Strangford more like this
tabling member printed
Jim Shannon more like this
uin 201027 more like this
answer
answer
is ministerial correction false more like this
date of answer less than 2014-06-24more like thismore than 2014-06-24
answer text <p>The Department is not managing any pilot treatments for motor neurone disease (MND) and no recent discussions have taken place between the Department's Ministers and the devolved administrations about pilots for MND.</p> more like this
answering member constituency North Norfolk more like this
answering member printed Norman Lamb more like this
question first answered
less than 2014-06-24T14:20:25.5682192Zmore like thismore than 2014-06-24T14:20:25.5682192Z
answering member
1439
label Biography information for Norman Lamb more like this
tabling member
4131
label Biography information for Jim Shannon more like this
58009
registered interest false more like this
date less than 2014-06-04more like thismore than 2014-06-04
answering body
Department of Health more like this
answering dept id 17 more like this
answering dept short name Health more like this
answering dept sort name Health more like this
hansard heading Motor Neurone Disease remove filter
house id 1 more like this
legislature
25259
pref label House of Commons more like this
question text To ask the Secretary of State for Health, how many people diagnosed with motor neurone disease there have been in the UK in each of the last five years. more like this
tabling member constituency Strangford more like this
tabling member printed
Jim Shannon more like this
uin 199099 more like this
answer
answer
is ministerial correction false more like this
date of answer less than 2014-06-10more like thismore than 2014-06-10
answer text <p>Data on the number of people diagnosed with motor neurone disease (MND) is not collected. However, it is estimated that there are about 5,000 people living with MND in the United Kingdom.</p><p> </p><p>Information regarding the number of people with MND who are using ‘eye gaze' technology, a type of specialised augmentative and assistive communication aid, is not held centrally.</p><p> </p> more like this
answering member constituency North Norfolk more like this
answering member printed Norman Lamb more like this
grouped question UIN 199100 more like this
question first answered
less than 2014-06-10T14:26:50.2023019Zmore like thismore than 2014-06-10T14:26:50.2023019Z
answering member
1439
label Biography information for Norman Lamb more like this
tabling member
4131
label Biography information for Jim Shannon more like this
58011
registered interest false more like this
date less than 2014-06-04more like thismore than 2014-06-04
answering body
Department of Health more like this
answering dept id 17 more like this
answering dept short name Health more like this
answering dept sort name Health more like this
hansard heading Motor Neurone Disease remove filter
house id 1 more like this
legislature
25259
pref label House of Commons more like this
question text To ask the Secretary of State for Health, how many people with motor neurone disease have been treated by the NHS with iGaze technology in each of the last five years. more like this
tabling member constituency Strangford more like this
tabling member printed
Jim Shannon more like this
uin 199100 more like this
answer
answer
is ministerial correction false more like this
date of answer less than 2014-06-10more like thismore than 2014-06-10
answer text <p>Data on the number of people diagnosed with motor neurone disease (MND) is not collected. However, it is estimated that there are about 5,000 people living with MND in the United Kingdom.</p><p> </p><p>Information regarding the number of people with MND who are using ‘eye gaze' technology, a type of specialised augmentative and assistive communication aid, is not held centrally.</p><p> </p> more like this
answering member constituency North Norfolk more like this
answering member printed Norman Lamb more like this
grouped question UIN 199099 more like this
question first answered
less than 2014-06-10T14:26:50.3343745Zmore like thismore than 2014-06-10T14:26:50.3343745Z
answering member
1439
label Biography information for Norman Lamb more like this
tabling member
4131
label Biography information for Jim Shannon more like this