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917326

registered interest
date	05/06/2018
answering body	Department of Health and Social Care
answering dept id	17
answering dept short name	Health and Social Care
answering dept sort name	Health and Social Care
hansard heading	Genetics: Screening
house id	1
legislature	25259 pref label House of Commons
question text	To ask the Secretary of State for Health and Social Care, what assessment (a) his Department and (b) Public Health England have made of the role of (i) genetic testing and (ii) population level genomic data to improve public health.
tabling member constituency	Strangford
tabling member printed	Jim Shannon
uin	150116
answer	answer is ministerial correction date of answer 13/06/2018 answer text <p>The United Kingdom National Screening Committee recently recommended that the use of Non-Invasive Prenatal Testing should be evaluated as an additional screening test in the antenatal screening programme for Down’s syndrome, Edwards’ syndrome and Patau syndrome. In addition to this, the use of next generation sequencing is currently being evaluated in the diagnostic pathway for babies found to be screen positive for cystic fibrosis.</p><p> </p><p>From October 2018, the National Health Service’s Genomic Medicine Service will, for the first time, be supported by a comprehensive directory of genomic tests for specified cancers and rare diseases that encompasses the entire testing repertoire from Whole Genomic Sequencing to tests for single genes, molecular markers and other functional genomic tests.</p><p> </p><p>This National Genomic Test Directory will be updated on an annual basis to keep pace with scientific and technological advances with a systematic review process in place to ensure continued value through the co-ordinated replacement of older tests with new and emerging approaches.</p><p> </p><p>The Test Directory will be updated annually, following advice from an expert scientific and clinical committee that will be established to operate in accordance with NHS England’s specialised services commissioning processes.</p><p> </p><p>The Chief Medical Officer for England’s annual report ‘Generation Genome’ provided a comprehensive overview of the role of clinical genomic testing and is being taken forward via the Minister-chaired National Genomics Board.</p> answering member constituency Gosport answering member printed Caroline Dinenage question first answered 13/06/2018 15:36:59 answering member 4008 label Biography information for Dame Caroline Dinenage
tabling member	4131 label Biography information for Jim Shannon

917327

registered interest
date	05/06/2018
answering body	Department of Health and Social Care
answering dept id	17
answering dept short name	Health and Social Care
answering dept sort name	Health and Social Care
hansard heading	Genetics: Screening
house id	1
legislature	25259 pref label House of Commons
question text	To ask the Secretary of State for Health and Social Care, whether there are plans in place to undertake a localised population-based genetic research study in England; and if he will make a statement.
tabling member constituency	Strangford
tabling member printed	Jim Shannon
uin	150117
answer	answer is ministerial correction date of answer 12/06/2018 answer text <p>The United Kingdom has a strong history of conducting cohort studies of this kind. The Department’s National Institute for Health Research welcomes funding applications for research into any aspect of human health, including localised population-based genetic research studies. These applications are subject to peer review and judged in open competition, with awards being made on the basis of the importance of the topic to patients and health and care services, value for money and scientific quality.</p> answering member constituency Gosport answering member printed Caroline Dinenage question first answered 12/06/2018 13:53:59 answering member 4008 label Biography information for Dame Caroline Dinenage
tabling member	4131 label Biography information for Jim Shannon

917328

registered interest
date	05/06/2018
answering body	Department of Health and Social Care
answering dept id	17
answering dept short name	Health and Social Care
answering dept sort name	Health and Social Care
hansard heading	Genetics: Screening
house id	1
legislature	25259 pref label House of Commons
question text	To ask the Secretary of State for Health and Social Care, whether his Department has made an assessment of the potential merits of rolling out population-wide genetic testing for mutations in the BRCA1 or BRCA2 genes.
tabling member constituency	Strangford
tabling member printed	Jim Shannon
uin	150118
answer	answer is ministerial correction date of answer 13/06/2018 answer text <p>In the Cancer Strategy for England, the independent Cancer Taskforce recommended that all women with non-mucinous epithelial ovarian cancer should be offered testing for BRCA1/BRCA2 at the point of diagnosis, and that all women under the age of 50 diagnosed with breast cancer should be offered testing for BRCA1/BRCA2 at the point of diagnosis.</p><p> </p><p>Testing women at the point of diagnosis can ensure access to the most relevant treatment and enable family members to understand their own risk and take preventative action where appropriate.</p><p> </p><p>As part of the National Health Service’s new Genomic Medicine Service, NHS England will publish a Test Directory to specify the genetic and genomic testing available in the NHS in England. The Test Directory will encompass the entire genetic and genomic testing repertoire, from Whole Genomic Sequencing to large panel tests and tests for single genes.</p><p> </p><p>The Test Directory will be updated annually, following advice from an expert scientific and clinical committee that will be established to operate in accordance with NHS England’s specialised services commissioning processes.</p> answering member constituency Gosport answering member printed Caroline Dinenage question first answered 13/06/2018 15:36:01 answering member 4008 label Biography information for Dame Caroline Dinenage
tabling member	4131 label Biography information for Jim Shannon

855776

registered interest
date	05/03/2018
answering body	Department of Health and Social Care
answering dept id	17
answering dept short name	Health and Social Care
answering dept sort name	Health and Social Care
hansard heading	Genetics: Screening
house id	1
legislature	25259 pref label House of Commons
question text	To ask the Secretary of State for Health and Social Care, what assessment the Government has made of the effect on (a) jobs and (b) patient care of the potential reduction of genetic testing facilities in Newcastle.
tabling member constituency	Newcastle upon Tyne Central
tabling member printed	Chi Onwurah
uin	131081
answer	answer is ministerial correction date of answer 08/03/2018 answer text <p>The Government has welcomed and accepted the recommendations in the Chief Medical Officer for England Annual Report ‘Generation Genome’ published in July 2017. In her report, Dame Sally Davies recommended the recommissioning of genomics services nationally.</p><p> </p><p>NHS England launched a procurement for genomic laboratory services in December 2017, which is still live. The aim of the procurement is to put in place a world-class resource for the National Health Service delivering cutting-edge genomic technology to deliver equitable access for patient benefit. As part of the evaluation NHS England will assess, amongst other areas, the proposed organisational and governance structures of the genomic laboratories and their ability to deliver high quality genomic tests equitably to patients across England.</p> answering member constituency Thurrock answering member printed Jackie Doyle-Price question first answered 08/03/2018 11:57:12 answering member 4065 label Biography information for Dame Jackie Doyle-Price
tabling member	4124 label Biography information for Chi Onwurah

800812

registered interest
date	04/12/2017
answering body	Department of Health
answering dept id	17
answering dept short name	Health
answering dept sort name	Health
hansard heading	Genetics: Screening
house id	1
legislature	25259 pref label House of Commons
question text	To ask the Secretary of State for Health, if the Government will consult on extending the moratorium that allows people not to declare the results of genetic tests to insurers after 1 November 2019; and if he will make a statement.
tabling member constituency	Broxbourne
tabling member printed	Mr Charles Walker
uin	117433
answer	answer is ministerial correction date of answer 07/12/2017 answer text <p>The Government is working with the Association of British Insurers to renew the existing Concordat and Moratorium. We will be seeking the views of an established group of stakeholders with a view to publication in early 2018 ahead of the end date of the Concordat and Moratorium in November 2019.</p> answering member constituency Thurrock answering member printed Jackie Doyle-Price question first answered 07/12/2017 17:16:56 answering member 4065 label Biography information for Dame Jackie Doyle-Price
tabling member	1493 label Biography information for Sir Charles Walker

757687

registered interest
date	05/09/2017
answering body	Department of Health
answering dept id	17
answering dept short name	Health
answering dept sort name	Health
hansard heading	Genetics: Screening
house id	1
legislature	25259 pref label House of Commons
question text	To ask the Secretary of State for Health, what plans his Department has to issue technology guidelines to the new regional genetics laboratories in England on the storage of genetic data.
tabling member constituency	Newcastle upon Tyne Central
tabling member printed	Chi Onwurah
uin	8801
answer	answer is ministerial correction date of answer 13/09/2017 answer text <p>NHS England is currently preparing to procure a network of genomic laboratory hubs. A full service specification will be issued at the start of the formal procurement process that will set out the requirements for the future informatics and data infrastructure, including the storage of genetic data.</p> answering member constituency Thurrock answering member printed Jackie Doyle-Price question first answered 13/09/2017 15:45:48 answering member 4065 label Biography information for Dame Jackie Doyle-Price
tabling member	4124 label Biography information for Chi Onwurah

757692

registered interest
date	05/09/2017
answering body	Department of Health
answering dept id	17
answering dept short name	Health
answering dept sort name	Health
hansard heading	Genetics: Screening
house id	1
legislature	25259 pref label House of Commons
question text	To ask the Secretary of State for Health, what additional funding has been made available for the new regional genetic testing centres for IT infrastructure to exchange and store genetic testing data.
tabling member constituency	Newcastle upon Tyne Central
tabling member printed	Chi Onwurah
uin	8798
answer	answer is ministerial correction date of answer 13/09/2017 answer text <p>NHS England is currently preparing to procure a network of genomic laboratory hubs. A full service specification will be issued at the start of the formal procurement process that will set out the requirements for the future informatics infrastructure.</p> answering member constituency Thurrock answering member printed Jackie Doyle-Price question first answered 13/09/2017 15:56:25 answering member 4065 label Biography information for Dame Jackie Doyle-Price
tabling member	4124 label Biography information for Chi Onwurah

747621

registered interest
date	03/07/2017
answering body	Department of Health
answering dept id	17
answering dept short name	Health
answering dept sort name	Health
hansard heading	Genetics: Screening
house id	1
legislature	25259 pref label House of Commons
question text	To ask the Secretary of State for Health, when he plans to publish the data from the BRC1/2 tests carried out by the UK Genetic Testing Network.
tabling member constituency	Wellingborough
tabling member printed	Mr Peter Bone
uin	2423
answer	answer is ministerial correction date of answer 06/07/2017 answer text <p>The data on BRCA1/2 testing rates is now available for 2014/15 and 2015/16 for England and Scotland. The published data can be downloaded from the UK Genetic Testing Network website at:</p><p><a href="https://ukgtn.nhs.uk/resources/ukgtn-reports/ukgtn-molecular-genetic-test-activity-rates-in-the-united-kingdom/" target="_blank">https://ukgtn.nhs.uk/resources/ukgtn-reports/ukgtn-molecular-genetic-test-activity-rates-in-the-united-kingdom/</a></p> answering member constituency Thurrock answering member printed Jackie Doyle-Price question first answered 06/07/2017 09:52:32 answering member 4065 label Biography information for Dame Jackie Doyle-Price
tabling member	1581 label Biography information for Mr Peter Bone

535103

registered interest
date	11/07/2016
answering body	Department of Health
answering dept id	17
answering dept short name	Health
answering dept sort name	Health
hansard heading	Genetics: Screening
house id	2
legislature	25277 pref label House of Lords
question text	To ask Her Majesty’s Government, further to the Written Answer by Lord Prior of Brampton on 7 July (HL830), what prevents Genomic England from sharing all 8,408 genomes in the rare disease and all 1,671 cancer genomes programmes with the relevant commercial interpretation partners to accelerate the delivery of full reports back to patients.
tabling member printed	Lord Alton of Liverpool
uin	HL1099
answer	answer is ministerial correction date of answer 20/07/2016 answer text <p>The interpretation of a genome for clinical purposes requires high quality genomic and clinical data. Genomics England is expanding the access to genome data by clinical interpretation partners at an appropriate rate to avoid exceeding their capacity. This is to ensure there are interpretation services that are sustainable for the remainder of the project.</p> answering member printed Lord Prior of Brampton question first answered 20/07/2016 16:39:56 answering member 127 label Biography information for Lord Prior of Brampton
tabling member	738 label Biography information for Lord Alton of Liverpool

457363

registered interest
date	03/03/2016
answering body	Department of Health
answering dept id	17
answering dept short name	Health
answering dept sort name	Health
hansard heading	Genetics: Screening
house id	2
legislature	25277 pref label House of Lords
question text	To ask Her Majesty’s Government what timeframe has been agreed for Genomic England to publish a plan with patient volumes that can be shared with Parliament, and what steps they will take to hold the responsible individuals to account if they fail to deliver on any such plan.
tabling member printed	Lord Freyberg
uin	HL6689
answer	answer is ministerial correction date of answer 14/03/2016 answer text <p>There are currently no plans to publish future patient volumes. However, the Department holds delivery partners to account for delivery of the project.</p><p> </p> answering member printed Lord Prior of Brampton question first answered 14/03/2016 15:39:47 answering member 127 label Biography information for Lord Prior of Brampton
tabling member	2593 label Biography information for Lord Freyberg