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100411

registered interest
date	22/10/2014
answering body	Department of Health
answering dept id	17
answering dept short name	Health
answering dept sort name	Health
hansard heading	Cystic Fibrosis
house id	1
legislature	25259 pref label House of Commons
question text	To ask the Secretary of State for Health, what steps the Government is taking to support research into new treatments for people with cystic fibrosis.
tabling member constituency	Barnsley Central
tabling member printed	Dan Jarvis
uin	211584
answer	answer is ministerial correction date of answer 27/10/2014 answer text <p>The National Institute for Health Research (NIHR) Evaluation, Trials and Studies Coordinating Centre manages the Efficacy and Mechanism Evaluation programme. With funding from the Medical Research Council, this programme is currently supporting a £3.3 million trial of repeated application of gene therapy in patients with cystic fibrosis. The report of this trial is expected to be published in August 2015.</p><p> </p><p><strong> </strong></p><p> </p><p>A range of commercial and researcher-led cystic fibrosis treatment trials and studies are hosted by NIHR research infrastructure including the NIHR Clinical Research Network, NIHR biomedical research centres and units, and NIHR clinical research facilities for experimental medicine.</p><p> </p><p><strong> </strong></p><p> </p><p><strong> </strong></p><p> </p><p><strong> </strong></p><p> </p><p><strong> </strong></p><p> </p> answering member constituency Mid Norfolk answering member printed George Freeman question first answered 27/10/2014 16:52:12 answering member 4020 label Biography information for George Freeman
tabling member	4243 label Biography information for Dan Jarvis

64769

registered interest
date	30/06/2014
answering body	Department of Health
answering dept id	17
answering dept short name	Health
answering dept sort name	Health
hansard heading	Cystic Fibrosis
house id	1
legislature	25259 pref label House of Commons
question text	To ask the Secretary of State for Health, how many cystic fibrosis sufferers have died while being on the waiting list for a lung transplant in each of the last five years.
tabling member constituency	Haltemprice and Howden
tabling member printed	Mr David Davis
uin	203030
answer	answer is ministerial correction date of answer 03/07/2014 answer text <p>The information requested is in the following table:</p><p> </p><p>Patients with cystic fibrosis, who have died whilst actively waiting on the lung transplant list (by year of death not year of registration)</p><p> </p><table><tbody><tr><td><p>Financial Year</p></td><td><p>Patients</p></td></tr><tr><td><p>2013-14</p></td><td><p>19</p></td></tr><tr><td><p>2012-13</p></td><td><p>19</p></td></tr><tr><td><p>2011-12</p></td><td><p>14</p></td></tr><tr><td><p>2010-11</p></td><td><p>19</p></td></tr><tr><td><p>2009-10</p></td><td><p>27</p></td></tr></tbody></table><p> </p><p><em>Source</em>: NHS Blood and Transplant</p><p> </p> answering member constituency Battersea answering member printed Jane Ellison question first answered 03/07/2014 13:00:07 answering member 3918 label Biography information for Jane Ellison
tabling member	373 label Biography information for Sir David Davis

62931

registered interest
date	19/06/2014
answering body	Department of Health
answering dept id	17
answering dept short name	Health
answering dept sort name	Health
hansard heading	Cystic Fibrosis
house id	1
legislature	25259 pref label House of Commons
question text	To ask the Secretary of State for Health, what assessment his Department has made of the effect on health services of an increase in the number of adult patients with cystic fibrosis.
tabling member constituency	Liverpool, Wavertree
tabling member printed	Luciana Berger
uin	201591
answer	answer is ministerial correction date of answer 24/06/2014 answer text <p>NHS England recognises that the number of adults with cystic fibrosis (CF) is gradually increasing over time. The growth in numbers is taken into account by NHS England as part of its annual commissioning process and will be considered in the ongoing development of its five year specialised commissioning strategy.</p><p> </p><p>Information concerning the number of people living with CF in each of the last four years is not available. In the following table we have provided the number of CF patients (adults and children) cared for by specialist centres in England in each of the last three years. This data has only been collected since the introduction of the tariff for CF services in 2011.</p><p> </p><table><tbody><tr><td><p>Year</p></td><td><p>Patients</p></td></tr><tr><td><p>2011</p></td><td><p>7,291</p></td></tr><tr><td><p>2012</p></td><td><p>7,620</p></td></tr><tr><td><p>2013</p></td><td><p>7,778</p></td></tr></tbody></table><p> </p><p>We would expect all CF patients to have a CF specialist in charge of their care and, as part of the ongoing support they receive, to be assessed at specialist centres.</p><p> </p> answering member constituency North Norfolk answering member printed Norman Lamb grouped question UIN 201568 question first answered 24/06/2014 13:48:12 answering member 1439 label Biography information for Norman Lamb
tabling member	4036 label Biography information for Luciana Berger

62948

registered interest
date	19/06/2014
answering body	Department of Health
answering dept id	17
answering dept short name	Health
answering dept sort name	Health
hansard heading	Cystic Fibrosis
house id	1
legislature	25259 pref label House of Commons
question text	To ask the Secretary of State for Health, how many people were living with cystic fibrosis in each of the last four years.
tabling member constituency	Liverpool, Wavertree
tabling member printed	Luciana Berger
uin	201568
answer	answer is ministerial correction date of answer 24/06/2014 answer text <p>NHS England recognises that the number of adults with cystic fibrosis (CF) is gradually increasing over time. The growth in numbers is taken into account by NHS England as part of its annual commissioning process and will be considered in the ongoing development of its five year specialised commissioning strategy.</p><p> </p><p>Information concerning the number of people living with CF in each of the last four years is not available. In the following table we have provided the number of CF patients (adults and children) cared for by specialist centres in England in each of the last three years. This data has only been collected since the introduction of the tariff for CF services in 2011.</p><p> </p><table><tbody><tr><td><p>Year</p></td><td><p>Patients</p></td></tr><tr><td><p>2011</p></td><td><p>7,291</p></td></tr><tr><td><p>2012</p></td><td><p>7,620</p></td></tr><tr><td><p>2013</p></td><td><p>7,778</p></td></tr></tbody></table><p> </p><p>We would expect all CF patients to have a CF specialist in charge of their care and, as part of the ongoing support they receive, to be assessed at specialist centres.</p><p> </p> answering member constituency North Norfolk answering member printed Norman Lamb grouped question UIN 201591 question first answered 24/06/2014 13:48:12 answering member 1439 label Biography information for Norman Lamb
tabling member	4036 label Biography information for Luciana Berger

62318

registered interest
date	17/06/2014
answering body	Department of Health
answering dept id	17
answering dept short name	Health
answering dept sort name	Health
hansard heading	Cystic Fibrosis
house id	1
legislature	25259 pref label House of Commons
question text	To ask the Secretary of State for Health, what (a) number and (b) proportion of adult cystic fibrosis centres in England have (i) reached and (ii) exceeded the maximum capacity of 250 patients recommended by the Cystic Fibrosis Trust in each of the last four years.
tabling member constituency	Liverpool, Wavertree
tabling member printed	Luciana Berger
uin	201133
answer	answer is ministerial correction date of answer 23/06/2014 answer text <p>Information concerning the number of adult cystic fibrosis (CF) patients cared for by CF centres in England in each of the last four years is not available. This data has only been collected since the introduction of the tariff for CF services in 2011.</p><p> </p><p>In the attached table we have provided the number and proportion of CF centres treating 250 patients or more in each of the last three years.</p><p>It should be noted that the<em>Standards of Care</em>, updated by CF Trust in 2011 does not state that 250 patients is the maximum number a CF centre should treat, but rather that when a centre reaches 250 patients, and anticipates that numbers will continue to rise, the development of alternative specialist centres should be considered.</p><p> </p><p> </p> answering member constituency North Norfolk answering member printed Norman Lamb question first answered 23/06/2014 15:28:46 answering member 1439 label Biography information for Norman Lamb attachment 1 file name PQ201133 - Table.docx title Table
tabling member	4036 label Biography information for Luciana Berger

61748

registered interest
date	12/06/2014
answering body	Department of Health
answering dept id	17
answering dept short name	Health
answering dept sort name	Health
hansard heading	Cystic Fibrosis
house id	1
legislature	25259 pref label House of Commons
question text	To ask the Secretary of State for Health, how many adult cystic fibrosis patients were being cared for by specialist centres in each of the last 10 years.
tabling member constituency	Newcastle upon Tyne Central
tabling member printed	Chi Onwurah
uin	200612
answer	answer is ministerial correction date of answer 17/06/2014 answer text <p>Information concerning the number of adult cystic fibrosis (CF) patients cared for by specialist centres in each of the last 10 years is not available. This data has only been collected since the introduction of the tariff for CF services in 2011, and in the following table we have provided the number of adult patients cared for in each year since that time:</p><p> </p><table><tbody><tr><td><p>Year</p></td><td><p>Adult Patients</p></td></tr><tr><td><p>2011</p></td><td><p>3,885</p></td></tr><tr><td><p>2012</p></td><td><p>4,107<br /></p></td></tr><tr><td><p>2013</p></td><td><p>4,244</p></td></tr></tbody></table><p> </p><p>More generally, we expect all CF patients to have a CF specialist in charge of their care and as part of the ongoing support they receive, to be assessed at specialist centres.</p><p> </p> answering member constituency North Norfolk answering member printed Norman Lamb question first answered 17/06/2014 13:42:24 answering member 1439 label Biography information for Norman Lamb
tabling member	4124 label Biography information for Chi Onwurah