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1061134

registered interest
date	14/02/2019
answering body	Department for Business, Energy and Industrial Strategy
answering dept id	201
answering dept short name	Business, Energy and Industrial Strategy
answering dept sort name	Business, Energy and Industrial Strategy
hansard heading	Chronic Fatigue Syndrome: Research
house id	1
legislature	25259 pref label House of Commons
question text	To ask the Secretary of State for Business, Energy and Industrial Strategy, how many grant applications have been made to the Medical Research Council for ME/CFS related research since 2010; how many of those applications have been awarded funding; and if he will make a statement.
tabling member constituency	Washington and Sunderland West
tabling member printed	Mrs Sharon Hodgson
uin	221619
answer	answer is ministerial correction date of answer 22/02/2019 answer text <p>Since 2009/10, the Medical Research Council (MRC) has received 32 research proposals relating to Chronic Fatigue Syndrome/Myalgic Encephalomyelitis (CFS/ME), seven of which have been funded.</p><p> </p><p>The MRC supports research in response to proposals from the research community. High quality applications on any aspect of human health are always welcomed and awards are made according to their scientific quality and importance to human health.</p> answering member constituency Kingswood answering member printed Chris Skidmore question first answered 22/02/2019 13:02:02 answering member 4021 label Biography information for Chris Skidmore
tabling member	1521 label Biography information for Mrs Sharon Hodgson

1061135

registered interest
date	14/02/2019
answering body	Department of Health and Social Care
answering dept id	17
answering dept short name	Health and Social Care
answering dept sort name	Health and Social Care
hansard heading	Chronic Fatigue Syndrome: Research
house id	1
legislature	25259 pref label House of Commons
question text	To ask the Secretary of State for Health and Social Care, how much funding his Department has allocated to ME/CFS for (a) biopsychological and (b) biopsychosocial research in each year since 2010; and if he will make a statement.
tabling member constituency	Washington and Sunderland West
tabling member printed	Mrs Sharon Hodgson
uin	221620
answer	answer is ministerial correction date of answer 22/02/2019 answer text <p>We do not hold the information requested on funding for myalgic encephalitis/chronic fatigue syndrome (ME/CFS) research according to biopsychological, biopsychosocial and biomedical research.</p><p>The following table shows information provided by the National Institute for Health Research (NIHR) on Departmental programme research funding for ME/CFS, per year, since financial year 2010-11. Further information on this research is available through the NIHR Journals Library at the following link:</p><p><a href="https://www.journalslibrary.nihr.ac.uk/programmes/" target="_blank">https://www.journalslibrary.nihr.ac.uk/programmes/</a></p><p> </p><table><tbody><tr><td><p>Financial Year</p></td><td><p>£</p></td></tr><tr><td><p>2010-11</p></td><td><p>189,438</p></td></tr><tr><td><p>2011-12</p></td><td><p>381,874</p></td></tr><tr><td><p>2012-13</p></td><td><p>501,461</p></td></tr><tr><td><p>2013-14</p></td><td><p>561,950</p></td></tr><tr><td><p>2014-15</p></td><td><p>426,055</p></td></tr><tr><td><p>2015-16</p></td><td><p>475,676</p></td></tr><tr><td><p>2016-17</p></td><td><p>554,785</p></td></tr><tr><td><p>2017-18</p></td><td><p>464,902</p></td></tr></tbody></table><p> </p><p>The NIHR welcomes funding applications for research into any aspect of human health, including ME/CFS; it is not usual practice to ring-fence funds for particular topics or conditions. Applications are subject to peer review and judged in open competition, with awards being made on the basis of the importance of the topic to patients and health and care services, value for money and scientific quality.</p> answering member constituency Gosport answering member printed Caroline Dinenage grouped question UIN 221621 question first answered 22/02/2019 08:01:04 answering member 4008 label Biography information for Dame Caroline Dinenage
tabling member	1521 label Biography information for Mrs Sharon Hodgson

1061136

registered interest
date	14/02/2019
answering body	Department of Health and Social Care
answering dept id	17
answering dept short name	Health and Social Care
answering dept sort name	Health and Social Care
hansard heading	Chronic Fatigue Syndrome: Research
house id	1
legislature	25259 pref label House of Commons
question text	To ask the Secretary of State for Health and Social Care, how much funding his Department has allocated to ME/CFS for biomedical research in each year since 2010; and if he will make a statement.
tabling member constituency	Washington and Sunderland West
tabling member printed	Mrs Sharon Hodgson
uin	221621
answer	answer is ministerial correction date of answer 22/02/2019 answer text <p>We do not hold the information requested on funding for myalgic encephalitis/chronic fatigue syndrome (ME/CFS) research according to biopsychological, biopsychosocial and biomedical research.</p><p>The following table shows information provided by the National Institute for Health Research (NIHR) on Departmental programme research funding for ME/CFS, per year, since financial year 2010-11. Further information on this research is available through the NIHR Journals Library at the following link:</p><p><a href="https://www.journalslibrary.nihr.ac.uk/programmes/" target="_blank">https://www.journalslibrary.nihr.ac.uk/programmes/</a></p><p> </p><table><tbody><tr><td><p>Financial Year</p></td><td><p>£</p></td></tr><tr><td><p>2010-11</p></td><td><p>189,438</p></td></tr><tr><td><p>2011-12</p></td><td><p>381,874</p></td></tr><tr><td><p>2012-13</p></td><td><p>501,461</p></td></tr><tr><td><p>2013-14</p></td><td><p>561,950</p></td></tr><tr><td><p>2014-15</p></td><td><p>426,055</p></td></tr><tr><td><p>2015-16</p></td><td><p>475,676</p></td></tr><tr><td><p>2016-17</p></td><td><p>554,785</p></td></tr><tr><td><p>2017-18</p></td><td><p>464,902</p></td></tr></tbody></table><p> </p><p>The NIHR welcomes funding applications for research into any aspect of human health, including ME/CFS; it is not usual practice to ring-fence funds for particular topics or conditions. Applications are subject to peer review and judged in open competition, with awards being made on the basis of the importance of the topic to patients and health and care services, value for money and scientific quality.</p> answering member constituency Gosport answering member printed Caroline Dinenage grouped question UIN 221620 question first answered 22/02/2019 08:01:05 answering member 4008 label Biography information for Dame Caroline Dinenage
tabling member	1521 label Biography information for Mrs Sharon Hodgson

1055255

registered interest
date	05/02/2019
answering body	Department of Health and Social Care
answering dept id	17
answering dept short name	Health and Social Care
answering dept sort name	Health and Social Care
hansard heading	Chronic Fatigue Syndrome: Research
house id	1
legislature	25259 pref label House of Commons
question text	To ask the Secretary of State for Health and Social Care, what plans his Department has to allocate additional funding to support biomedical research into the diagnosis and treatment of myalgic encephalomyelitis.
tabling member constituency	Carshalton and Wallington
tabling member printed	Tom Brake
uin	216906
answer	answer is ministerial correction date of answer 13/02/2019 answer text <p>The National Institute for Health Research welcomes funding applications for research into any aspect of human health, including myalgic encephalomyelitis; it is not usual practice to ring-fence funds for particular topics or conditions. Applications are subject to peer review and judged in open competition, with awards being made on the basis of the importance of the topic to patients and health and care services, value for money and scientific quality.</p> answering member constituency Gosport answering member printed Caroline Dinenage question first answered 13/02/2019 17:11:17 answering member 4008 label Biography information for Dame Caroline Dinenage
tabling member	151 label Biography information for Tom Brake

1050033

registered interest
date	28/01/2019
answering body	Department of Health and Social Care
answering dept id	17
answering dept short name	Health and Social Care
answering dept sort name	Health and Social Care
hansard heading	Chronic Fatigue Syndrome: Research
house id	1
legislature	25259 pref label House of Commons
question text	To ask the Secretary of State for Health and Social Care, what plans he has to support biomedical research into the diagnosis and treatment of ME.
tabling member constituency	Harlow
tabling member printed	Robert Halfon
uin	213339
answer	answer is ministerial correction date of answer 04/02/2019 answer text <p>The National Institute for Health Research welcomes funding applications for research into any aspect of human health, including myalgic encephalomyelitis; it is not usual practice to ring-fence funds for particular topics or conditions. Applications are subject to peer review and judged in open competition, with awards being made on the basis of the importance of the topic to patients and health and care services, value for money and scientific quality.</p> answering member constituency Gosport answering member printed Caroline Dinenage question first answered 04/02/2019 17:24:39 answering member 4008 label Biography information for Dame Caroline Dinenage
tabling member	3985 label Biography information for Robert Halfon

1046874

registered interest
date	23/01/2019
answering body	Department of Health and Social Care
answering dept id	17
answering dept short name	Health and Social Care
answering dept sort name	Health and Social Care
hansard heading	Chronic Fatigue Syndrome: Research
house id	1
legislature	25259 pref label House of Commons
question text	To ask the Secretary of State for Health and Social Care, what recent funding has been made available for research into myalgic encephalomyelitis.
tabling member constituency	Bath
tabling member printed	Wera Hobhouse
uin	211844
answer	answer is ministerial correction date of answer 31/01/2019 answer text <p>The National Institute for Health Research (NIHR), on behalf of the Department, funded £1,495,363 of programme research on myalgic encephalomyelitis (ME), also known as chronic fatigue syndrome (CFS), over the last three financial years (up to 2017/18). Further information on this research is available through the NIHR Journals Library at the following link:</p><p><a href="https://www.journalslibrary.nihr.ac.uk/programmes/" target="_blank">https://www.journalslibrary.nihr.ac.uk/programmes/</a></p><p>The NIHR welcomes funding applications for research into any aspect of human health, including ME/CFS; it is not usual practice to ring-fence funds for particular topics or conditions. Applications are subject to peer review and judged in open competition, with awards being made on the basis of the importance of the topic to patients and health and care services, value for money and scientific quality.</p> answering member constituency Gosport answering member printed Caroline Dinenage question first answered 31/01/2019 17:21:07 answering member 4008 label Biography information for Dame Caroline Dinenage
tabling member	4602 label Biography information for Wera Hobhouse

964066

registered interest
date	03/09/2018
answering body	Department of Health and Social Care
answering dept id	17
answering dept short name	Health and Social Care
answering dept sort name	Health and Social Care
hansard heading	Chronic Fatigue Syndrome: Research
house id	1
legislature	25259 pref label House of Commons
question text	To ask the Secretary of State for Health and Social Care, what steps his Department is taking to support biomedical research on myalgic encephalomyelitis.
tabling member constituency	Glasgow Central
tabling member printed	Alison Thewliss
uin	169455
answer	answer is ministerial correction date of answer 11/09/2018 answer text <p>The Department’s National Institute for Health Research (NIHR) recognises that myalgic encephalomyelitis (ME) is a debilitating condition. The NIHR is speaking with the Chronic Fatigue Syndrome/ME Research Collaborative and patient representatives about how best we can support a joined up approach to high quality research into this complex disorder.</p><p> </p><p>The NIHR welcomes funding applications for research into any aspect of human health, including ME; it is not usual practice to ring-fence funds for particular topics or conditions. Applications are subject to peer review and judged in open competition, with awards being made on the basis of the importance of the topic to patients and health and care services, value for money and scientific quality.</p> answering member constituency Gosport answering member printed Caroline Dinenage question first answered 11/09/2018 13:55:58 answering member 4008 label Biography information for Dame Caroline Dinenage
tabling member	4430 label Biography information for Alison Thewliss

809873

registered interest
date	19/12/2017
answering body	Department of Health
answering dept id	17
answering dept short name	Health
answering dept sort name	Health
hansard heading	Chronic Fatigue Syndrome: Research
house id	1
legislature	25259 pref label House of Commons
question text	To ask the Secretary of State for Health, what recent research his Department has commissioned on the diagnosis and treatment of ME.
tabling member constituency	Stroud
tabling member printed	Dr David Drew
uin	120493
answer	answer is ministerial correction date of answer 22/12/2017 answer text <p>The Department, through the National Institute for Health Research, has recently commissioned one project on the treatment of symptoms of Myalgic Encephalomyelitis (ME). Professor Esther Crawley, of the University of Bristol, was awarded funding for research entitled, ‘Investigating the effectiveness and cost effectiveness of using FITNET to treat paediatric CFS/ME in the UK’. This project began in May 2016. Full details of the research can be found at:</p><p> </p><p><a href="https://www.journalslibrary.nihr.ac.uk/programmes/hta/14192109/#/summary-of-research" target="_blank">https://www.journalslibrary.nihr.ac.uk/programmes/hta/14192109/#/summary-of-research</a></p> answering member constituency Thurrock answering member printed Jackie Doyle-Price question first answered 22/12/2017 14:31:09 answering member 4065 label Biography information for Dame Jackie Doyle-Price
tabling member	252 label Biography information for Dr David Drew

642415

registered interest
date	22/11/2016
answering body	Department for Business, Energy and Industrial Strategy
answering dept id	201
answering dept short name	Business, Energy and Industrial Strategy
answering dept sort name	Business, Energy and Industrial Strategy
hansard heading	Chronic Fatigue Syndrome: Research
house id	1
legislature	25259 pref label House of Commons
question text	To ask the Secretary of State for Business, Energy and Industrial Strategy, if he will take steps to identify those responsible for the Medical Research Council's policies towards ME research over the last decade; and if he will seek those people's removal from positions of influence over future of ME research.
tabling member constituency	Luton North
tabling member printed	Kelvin Hopkins
uin	54353
answer	answer is ministerial correction date of answer 30/11/2016 answer text <p>Management of individual staff within the Medical Research Council is a matter for the MRC as the legal employer.</p> answering member constituency Orpington answering member printed Joseph Johnson question first answered 30/11/2016 16:41:44 answering member 4039 label Biography information for Lord Johnson of Marylebone
tabling member	2 label Biography information for Kelvin Hopkins

642427

registered interest
date	22/11/2016
answering body	Department for Business, Energy and Industrial Strategy
answering dept id	201
answering dept short name	Business, Energy and Industrial Strategy
answering dept sort name	Business, Energy and Industrial Strategy
hansard heading	Chronic Fatigue Syndrome: Research
house id	1
legislature	25259 pref label House of Commons
question text	To ask the Secretary of State for Business, Energy and Industrial Strategy, if he will request that the Medical Research Council conducts an inquiry into the management of the PACE trial to ascertain whether any fraudulent activity has occurred.
tabling member constituency	Luton North
tabling member printed	Kelvin Hopkins
uin	54269
answer	answer is ministerial correction date of answer 28/11/2016 answer text <p>Queen Mary University of London, as the research organisation which held the award, is responsible for the management of the study, including the investigation of any concerns relating to research conduct and research integrity.</p><p>Whilst the Medical Research Council (MRC) was one of the funders of the PACE trial, the responsibility for the management of the trial rested with the host research institution, Queen Mary University of London (QMUL). This responsibility included oversight of the trial and the investigation of any well-founded allegations of misconduct that are brought to its attention. As part of this oversight, in accordance with MRC guidance on best practice, a trial steering committee was set up and supported by various sub-groups, including a data monitoring committee. The MRC was an observer on the trial steering committee.</p><p>Anyone wishing to raise concerns to over the conduct of individual researchers or research programmes is advised to contact QMUL in the first instance to allow the University to investigate appropriately. It would be inappropriate for BEIS to intervene in such investigations or to impose sanctions against researchers.</p> answering member constituency Orpington answering member printed Joseph Johnson grouped question UIN 54266 question first answered 28/11/2016 10:06:49 answering member 4039 label Biography information for Lord Johnson of Marylebone previous answer version 22830 answering member constituency Orpington answering member printed Joseph Johnson answering member 4039 label Biography information for Lord Johnson of Marylebone
tabling member	2 label Biography information for Kelvin Hopkins