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1273898

registered interest
date	06/01/2021
answering body	Department of Health and Social Care
answering dept id	17
answering dept short name	Health and Social Care
answering dept sort name	Health and Social Care
hansard heading	Chronic Fatigue Syndrome: Research
house id	1
legislature	25259 pref label House of Commons
question text	To ask the Secretary of State for Health and Social Care, what steps his Department is taking to increase biomedical research on the causes and treatment of myalgic encephalomyelitis in the UK.
tabling member constituency	Bristol North West
tabling member printed	Darren Jones
uin	134061
answer	answer is ministerial correction date of answer 26/01/2021 answer text <p>The Department funds research through the National Institute for Health Research (NIHR). In 2020, the NIHR and the Medical Research Council, through UK Research and Innovation, came together to fund the world’s largest genome-wide association study of myalgic encephalomyelitis (ME), sometimes referred to as Chronic Fatigue Syndrome (CFS). This £3.2 million study, ‘DecodeME’, will analyse samples from 20,000 people with ME/CFS to search for genetic differences that may indicate underlying causes or an increased risk of developing the condition. DecodeME is a partnership between biomedical scientists at the University of Edinburgh and ME/CFS charities and people with lived experience of ME/CFS. It is hoped that the outcomes of this study will aid the development of diagnostic tests and targeted treatments.</p><p> </p> answering member constituency Charnwood answering member printed Edward Argar question first answered 26/01/2021 09:48:36 answering member 4362 label Biography information for Edward Argar
tabling member	4621 label Biography information for Darren Jones

1221575

registered interest
date	07/07/2020
answering body	Department of Health and Social Care
answering dept id	17
answering dept short name	Health and Social Care
answering dept sort name	Health and Social Care
hansard heading	Chronic Fatigue Syndrome: Research
house id	1
legislature	25259 pref label House of Commons
question text	To ask the Secretary of State for Health and Social Care, how much Government funding was allocated to biomedical research into myalgic encephalomyelitis in the financial years (a) 2017-18, (b) 2018-19 and (c) 2019-20.
tabling member constituency	Mole Valley
tabling member printed	Sir Paul Beresford
uin	70282
answer	answer is ministerial correction date of answer 23/07/2020 answer text <p>The following table shows how much Government funding was allocated to biomedical research into myalgic encephalomyelitis (ME), also known as chronic fatigue syndrome (CFS) for financial years 2017-18, 2018-19 and 2019-20.</p><table><tbody><tr><td><p>Financial Year</p></td><td><p>£</p></td></tr><tr><td><p>2017-18</p></td><td><p>226,470</p></td></tr><tr><td><p>2018-19</p></td><td><p>396,467</p></td></tr><tr><td><p>2019-20</p></td><td><p>443,719</p></td></tr></tbody></table><p> </p><p>In addition to the funding set out above, the National Institute for Health Research, funded through the Department, and the Medical Research Council have recently announced a £3.2 million award to fund research into potential genetic connections to ME/CFS. The project will analyse samples from 20,000 people with ME/CFS to search for genetic differences that may indicate underlying causes or increase the risk of developing the condition.</p><p> </p><p> </p> answering member constituency Faversham and Mid Kent answering member printed Helen Whately question first answered 23/07/2020 17:08:44 answering member 4527 label Biography information for Helen Whately
tabling member	103 label Biography information for Sir Paul Beresford

1174940

registered interest
date	30/01/2020
answering body	Department of Health and Social Care
answering dept id	17
answering dept short name	Health and Social Care
answering dept sort name	Health and Social Care
hansard heading	Chronic Fatigue Syndrome: Research
house id	1
legislature	25259 pref label House of Commons
question text	To ask the Secretary of State for Health and Social Care, how much money from the public purse has been allocated to funding research on myalgic encephalomyelitis since 2010.
tabling member constituency	Portsmouth South
tabling member printed	Mr Stephen Morgan
uin	10460
answer	answer is ministerial correction date of answer 10/02/2020 answer text <p>Between 2010-11 to 2018-19, the National Institute for Health Research (NIHR) and the UK Research Innovation have funded £6,976,001 of research on myalgic encephalomyelitis, also referred to as chronic fatigue syndrome (ME/CFS).</p><p>While funding fluctuates in response to projects funded, spend on ME/CFS has remained stable in recent years, ranging from around £700-850,000. Given that funding has remained stable, no assessment has been made about the impact of change in the level of research funding.</p> answering member constituency Gosport answering member printed Caroline Dinenage grouped question UIN 10461 question first answered 10/02/2020 10:26:28 answering member 4008 label Biography information for Dame Caroline Dinenage
tabling member	4653 label Biography information for Stephen Morgan

1174944

registered interest
date	30/01/2020
answering body	Department of Health and Social Care
answering dept id	17
answering dept short name	Health and Social Care
answering dept sort name	Health and Social Care
hansard heading	Chronic Fatigue Syndrome: Research
house id	1
legislature	25259 pref label House of Commons
question text	To ask the Secretary of State for Health and Social Care, if he will make an assessment of the effect of recent changes in the level of funding for research into myalgic encephalomyelitis on clinical understanding of that condition.
tabling member constituency	Portsmouth South
tabling member printed	Mr Stephen Morgan
uin	10461
answer	answer is ministerial correction date of answer 10/02/2020 answer text <p>Between 2010-11 to 2018-19, the National Institute for Health Research (NIHR) and the UK Research Innovation have funded £6,976,001 of research on myalgic encephalomyelitis, also referred to as chronic fatigue syndrome (ME/CFS).</p><p>While funding fluctuates in response to projects funded, spend on ME/CFS has remained stable in recent years, ranging from around £700-850,000. Given that funding has remained stable, no assessment has been made about the impact of change in the level of research funding.</p> answering member constituency Gosport answering member printed Caroline Dinenage grouped question UIN 10460 question first answered 10/02/2020 10:26:28 answering member 4008 label Biography information for Dame Caroline Dinenage
tabling member	4653 label Biography information for Stephen Morgan

1109504

registered interest
date	03/04/2019
answering body	Department of Health and Social Care
answering dept id	17
answering dept short name	Health and Social Care
answering dept sort name	Health and Social Care
hansard heading	Chronic Fatigue Syndrome: Research
house id	1
legislature	25259 pref label House of Commons
question text	To ask the Secretary of State for Health and Social Care, if he make an assessment of the potential merits of ring-fencing funding for high-quality ME research as the Government has done for dementia and brain cancer.
tabling member constituency	Derby North
tabling member printed	Chris Williamson
uin	240545
answer	answer is ministerial correction date of answer 08/04/2019 answer text <p>The Department for Health and Social Care funds research through the National Institute for Health Research (NIHR). The Government also supports research relating to myalgic encephalomyelitis (ME) through the Medical Research Council (MRC), part of the Department for Business, Environment and Industrial Strategy partner organisation, UK Research and Innovation. Both the NIHR and the MRC welcome funding applications for research into any aspect of human health, including ME; it is not usual practice to ring-fence funds for particular topics or conditions. Applications to the NIHR and the MRC are subject to peer review and judged in open competition, with awards being made on the basis of the importance of the topic to patients and health and care services, value for money and scientific quality.</p><p> </p><p>Research into chronic fatigue syndrome CFS/ME is an area of strategic importance for the MRC and the only medical condition for which the MRC has a dedicated Highlight Notice which identifies areas where proposals are particularly encouraged. These include proposals which have a focus on the underpinning mechanisms of ME/CFS, with priority areas including immune dysregulation; pain; improved sub-phenotyping and stratification of ME/CFS; and mechanisms of ME/CFS in children and young people.</p> answering member constituency Gosport answering member printed Caroline Dinenage question first answered 08/04/2019 15:29:48 answering member 4008 label Biography information for Dame Caroline Dinenage
tabling member	3976 label Biography information for Chris Williamson

1091289

registered interest
date	19/03/2019
answering body	Department for Business, Energy and Industrial Strategy
answering dept id	201
answering dept short name	Business, Energy and Industrial Strategy
answering dept sort name	Business, Energy and Industrial Strategy
hansard heading	Chronic Fatigue Syndrome: Research
house id	1
legislature	25259 pref label House of Commons
question text	To ask the Secretary of State for Business, Energy and Industrial Strategy, what assessment he has made of the potential merits of ring-fencing Medical Research Council funds for biomedical research on myalgic encephalomyelitis (ME) in order to ensure that overall research funding for ME is proportional to that spent on research into similarly prevalent health conditions.
tabling member constituency	Loughborough
tabling member printed	Nicky Morgan
uin	234154
answer	answer is ministerial correction date of answer 28/03/2019 answer text <p>I refer my rt. hon. Friend to the answer I gave to my hon. Friend the Member for North West Norfolk on 20th March 2019 to Question <a href="https://www.parliament.uk/business/publications/written-questions-answers-statements/written-question/Commons/2019-03-13/231931/" target="_blank">231931</a>.</p> answering member constituency Kingswood answering member printed Chris Skidmore question first answered 28/03/2019 16:59:08 answering member 4021 label Biography information for Chris Skidmore
tabling member	4027 label Biography information for Baroness Morgan of Cotes

1088440

registered interest
date	13/03/2019
answering body	Department for Business, Energy and Industrial Strategy
answering dept id	201
answering dept short name	Business, Energy and Industrial Strategy
answering dept sort name	Business, Energy and Industrial Strategy
hansard heading	Chronic Fatigue Syndrome: Research
house id	1
legislature	25259 pref label House of Commons
question text	To ask the Secretary of State for Business, Energy and Industrial Strategy, what assessment he has made of the potential merits of ring-fencing Medical Research Council funds for biomedical research into ME in order to ensure that overall research funding for ME is proportional to that spent on research into similarly prevalent health conditions.
tabling member constituency	North West Norfolk
tabling member printed	Sir Henry Bellingham
uin	231931
answer	answer is ministerial correction date of answer 20/03/2019 answer text <p>The Medical Research Council (MRC) is part of the BEIS partner organisation, UK Research and Innovation. The MRC supports research relating to Chronic Fatigue Syndrome/Myalgic Encephalomyelitis (CFS/ME) in response to high-quality proposals from the research community.</p><p> </p><p>The MRC does not generally ring-fence funding for specific conditions, however CFS/ME is an identified priority area for the MRC. Proposals are particularly encouraged in areas that explore the underpinning mechanisms of CFS/ME (including immune dysregulation), pain, improved sub-phenotyping and stratification of CFS/ME disease, and mechanisms of CFS/ME in children.</p><p> </p><p>All proposals are subject to peer review and judged in open competition, with awards being made according to their scientific quality and importance to human health.</p><p> </p> answering member constituency Kingswood answering member printed Chris Skidmore question first answered 20/03/2019 11:25:25 answering member 4021 label Biography information for Chris Skidmore
tabling member	1441 label Biography information for Lord Bellingham

1061134

registered interest
date	14/02/2019
answering body	Department for Business, Energy and Industrial Strategy
answering dept id	201
answering dept short name	Business, Energy and Industrial Strategy
answering dept sort name	Business, Energy and Industrial Strategy
hansard heading	Chronic Fatigue Syndrome: Research
house id	1
legislature	25259 pref label House of Commons
question text	To ask the Secretary of State for Business, Energy and Industrial Strategy, how many grant applications have been made to the Medical Research Council for ME/CFS related research since 2010; how many of those applications have been awarded funding; and if he will make a statement.
tabling member constituency	Washington and Sunderland West
tabling member printed	Mrs Sharon Hodgson
uin	221619
answer	answer is ministerial correction date of answer 22/02/2019 answer text <p>Since 2009/10, the Medical Research Council (MRC) has received 32 research proposals relating to Chronic Fatigue Syndrome/Myalgic Encephalomyelitis (CFS/ME), seven of which have been funded.</p><p> </p><p>The MRC supports research in response to proposals from the research community. High quality applications on any aspect of human health are always welcomed and awards are made according to their scientific quality and importance to human health.</p> answering member constituency Kingswood answering member printed Chris Skidmore question first answered 22/02/2019 13:02:02 answering member 4021 label Biography information for Chris Skidmore
tabling member	1521 label Biography information for Mrs Sharon Hodgson

1061135

registered interest
date	14/02/2019
answering body	Department of Health and Social Care
answering dept id	17
answering dept short name	Health and Social Care
answering dept sort name	Health and Social Care
hansard heading	Chronic Fatigue Syndrome: Research
house id	1
legislature	25259 pref label House of Commons
question text	To ask the Secretary of State for Health and Social Care, how much funding his Department has allocated to ME/CFS for (a) biopsychological and (b) biopsychosocial research in each year since 2010; and if he will make a statement.
tabling member constituency	Washington and Sunderland West
tabling member printed	Mrs Sharon Hodgson
uin	221620
answer	answer is ministerial correction date of answer 22/02/2019 answer text <p>We do not hold the information requested on funding for myalgic encephalitis/chronic fatigue syndrome (ME/CFS) research according to biopsychological, biopsychosocial and biomedical research.</p><p>The following table shows information provided by the National Institute for Health Research (NIHR) on Departmental programme research funding for ME/CFS, per year, since financial year 2010-11. Further information on this research is available through the NIHR Journals Library at the following link:</p><p><a href="https://www.journalslibrary.nihr.ac.uk/programmes/" target="_blank">https://www.journalslibrary.nihr.ac.uk/programmes/</a></p><p> </p><table><tbody><tr><td><p>Financial Year</p></td><td><p>£</p></td></tr><tr><td><p>2010-11</p></td><td><p>189,438</p></td></tr><tr><td><p>2011-12</p></td><td><p>381,874</p></td></tr><tr><td><p>2012-13</p></td><td><p>501,461</p></td></tr><tr><td><p>2013-14</p></td><td><p>561,950</p></td></tr><tr><td><p>2014-15</p></td><td><p>426,055</p></td></tr><tr><td><p>2015-16</p></td><td><p>475,676</p></td></tr><tr><td><p>2016-17</p></td><td><p>554,785</p></td></tr><tr><td><p>2017-18</p></td><td><p>464,902</p></td></tr></tbody></table><p> </p><p>The NIHR welcomes funding applications for research into any aspect of human health, including ME/CFS; it is not usual practice to ring-fence funds for particular topics or conditions. Applications are subject to peer review and judged in open competition, with awards being made on the basis of the importance of the topic to patients and health and care services, value for money and scientific quality.</p> answering member constituency Gosport answering member printed Caroline Dinenage grouped question UIN 221621 question first answered 22/02/2019 08:01:04 answering member 4008 label Biography information for Dame Caroline Dinenage
tabling member	1521 label Biography information for Mrs Sharon Hodgson

1061136

registered interest
date	14/02/2019
answering body	Department of Health and Social Care
answering dept id	17
answering dept short name	Health and Social Care
answering dept sort name	Health and Social Care
hansard heading	Chronic Fatigue Syndrome: Research
house id	1
legislature	25259 pref label House of Commons
question text	To ask the Secretary of State for Health and Social Care, how much funding his Department has allocated to ME/CFS for biomedical research in each year since 2010; and if he will make a statement.
tabling member constituency	Washington and Sunderland West
tabling member printed	Mrs Sharon Hodgson
uin	221621
answer	answer is ministerial correction date of answer 22/02/2019 answer text <p>We do not hold the information requested on funding for myalgic encephalitis/chronic fatigue syndrome (ME/CFS) research according to biopsychological, biopsychosocial and biomedical research.</p><p>The following table shows information provided by the National Institute for Health Research (NIHR) on Departmental programme research funding for ME/CFS, per year, since financial year 2010-11. Further information on this research is available through the NIHR Journals Library at the following link:</p><p><a href="https://www.journalslibrary.nihr.ac.uk/programmes/" target="_blank">https://www.journalslibrary.nihr.ac.uk/programmes/</a></p><p> </p><table><tbody><tr><td><p>Financial Year</p></td><td><p>£</p></td></tr><tr><td><p>2010-11</p></td><td><p>189,438</p></td></tr><tr><td><p>2011-12</p></td><td><p>381,874</p></td></tr><tr><td><p>2012-13</p></td><td><p>501,461</p></td></tr><tr><td><p>2013-14</p></td><td><p>561,950</p></td></tr><tr><td><p>2014-15</p></td><td><p>426,055</p></td></tr><tr><td><p>2015-16</p></td><td><p>475,676</p></td></tr><tr><td><p>2016-17</p></td><td><p>554,785</p></td></tr><tr><td><p>2017-18</p></td><td><p>464,902</p></td></tr></tbody></table><p> </p><p>The NIHR welcomes funding applications for research into any aspect of human health, including ME/CFS; it is not usual practice to ring-fence funds for particular topics or conditions. Applications are subject to peer review and judged in open competition, with awards being made on the basis of the importance of the topic to patients and health and care services, value for money and scientific quality.</p> answering member constituency Gosport answering member printed Caroline Dinenage grouped question UIN 221620 question first answered 22/02/2019 08:01:05 answering member 4008 label Biography information for Dame Caroline Dinenage
tabling member	1521 label Biography information for Mrs Sharon Hodgson