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1547413

registered interest
date	01/12/2022
answering body	Department of Health and Social Care
answering dept id	17
answering dept short name	Health and Social Care
answering dept sort name	Health and Social Care
hansard heading	Chronic Fatigue Syndrome: Research
house id	1
legislature	25259 pref label House of Commons
question text	To ask the Secretary of State for Health and Social Care, how much his Department plans to spend on biomedical research into the (a) causes, (b) consequences and (c) treatment of Myalgic encephalomyelitis in 2022-23.
tabling member constituency	Hampstead and Kilburn
tabling member printed	Tulip Siddiq
uin	101028
answer	answer is ministerial correction date of answer 13/12/2022 answer text <p>The Department funds research through the National Institute for Health and Care Research (NIHR). The NIHR has provided approximately £4.4 million for research on myalgic encephalomyelitis/chronic fatigue syndrome (ME/CFS) since 2011. In addition, the NIHR and the Medical Research Council have jointly funded a £3.2 million study into genetics and ME/CFS. The study will analyse samples from 25,000 people with ME/CFS to search for genetic differences which may indicate underlying causes or an increased risk of developing the condition.</p> answering member constituency Colchester answering member printed Will Quince question first answered 13/12/2022 17:58:57 answering member 4423 label Biography information for Will Quince
tabling member	4518 label Biography information for Tulip Siddiq

1464981

registered interest
date	23/05/2022
answering body	Department of Health and Social Care
answering dept id	17
answering dept short name	Health and Social Care
answering dept sort name	Health and Social Care
hansard heading	Chronic Fatigue Syndrome: Research
house id	1
legislature	25259 pref label House of Commons
question text	To ask the Secretary of State for Health and Social Care, if he will increase funding for research into myalgic encephalomyelitis; and what steps he is taking to meet the additional needs of people living with myalgic encephalomyelitis and other similar chronic conditions.
tabling member constituency	Ynys Môn
tabling member printed	Virginia Crosbie
uin	6962
answer	answer is ministerial correction date of answer 01/06/2022 answer text <p>The Department has asked the UK Clinical Research Collaboration to convene a subgroup on myalgic encephalomyelitis/chronic fatigue syndrome (ME/CFS) with a range of stakeholders, including research funders, to ensure high quality applications for research into ME/CFS and support the research community to build capacity and capability.</p><p>On 12 May 2022, we announced the intention to develop a cross-Government Delivery Plan for ME/CFS in England. The delivery plan will build on the recommendations of the ME/CFS Priority Setting Partnership and the recently updated guideline from the National Institute for Health and Care Excellence to ensure that people living with ME/CFS have the appropriate support.</p><p>NHS England and NHS Improvement are establishing a task and finish group to produce guidance on the provision of high-quality services for people living with long term pain by September 2022. The guidance is aimed at integrated care systems to provide core principles which can be used to inform the development of local models of care to support people living with chronic pain.</p><p> </p> answering member constituency Chichester answering member printed Gillian Keegan question first answered 01/06/2022 09:33:29 answering member 4680 label Biography information for Gillian Keegan previous answer version 3432 answering member constituency Chichester answering member printed Gillian Keegan answering member 4680 label Biography information for Gillian Keegan
tabling member	4859 label Biography information for Virginia Crosbie

1433442

registered interest
date	21/02/2022
answering body	Department of Health and Social Care
answering dept id	17
answering dept short name	Health and Social Care
answering dept sort name	Health and Social Care
hansard heading	Chronic Fatigue Syndrome: Research
house id	2
legislature	25277 pref label House of Lords
question text	To ask Her Majesty's Government whether they have plans to provide additional funding for Myalgic Encephalomyelitis (ME) research; and if so, when.
tabling member printed	Baroness Ritchie of Downpatrick
uin	HL6301
answer	answer is ministerial correction date of answer 03/03/2022 answer text <p>No specific assessment of the services available to people with myalgic encephalomyelitis and chronic fatigue syndrome (ME/CFS) has been made. Clinical commissioning groups are best placed to plan, assess and commission ME/CFS care services. These processes are subject to local prioritisation and funding and should take into account best practice guidance, such as the National Institute for Health and Care Excellence’s (NICE) most recent guidelines. Whilst guidelines are not mandatory, clinicians and commissioners are expected to take them fully into account in designing services that meet the needs of their local population and to work towards their implementation over time.</p><p>We continue to consider options to improve outcomes for people with ME/CFS and their families, including the potential development of a national strategy. The Government invests in health research through the National Institute for Health Research (NIHR) and the Medical Research Council (MRC). The NIHR and MRC welcome high-quality applications for research into all aspects of ME/CFS. While there are no plans to provide additional funding at this time, both funders are considering how they can support the academic community to drive research in this underserved area.</p> answering member printed Lord Kamall grouped question UIN HL6298 HL6299 HL6300 question first answered 03/03/2022 11:54:35 answering member 4909 label Biography information for Lord Kamall
tabling member	4130 label Biography information for Baroness Ritchie of Downpatrick

1382722

registered interest
date	26/11/2021
answering body	Department of Health and Social Care
answering dept id	17
answering dept short name	Health and Social Care
answering dept sort name	Health and Social Care
hansard heading	Chronic Fatigue Syndrome: Research
house id	1
legislature	25259 pref label House of Commons
question text	To ask the Secretary of State for Health and Social Care, whether he has plans to fund research into mitochondria cells and the effect upon them in relation to sufferers of Myalgic Encephalomyelitis and Chronic Fatigue Syndrome; and if he will make a statement.
tabling member constituency	Arfon
tabling member printed	Hywel Williams
uin	82269
answer	answer is ministerial correction date of answer 01/12/2021 answer text <p>The Department funds research through the National Institute for Health Research (NIHR). The NIHR welcomes funding applications for research into any aspect of human health, including myalgic encephalomyelitis and chronic fatigue syndrome (ME/CFS). However, it is not usual practice to ring-fence funds for particular topics or conditions. Applications are subject to peer review and judged in open competition, with awards being made on the basis of the importance of the topic to patients and health and care services, value for money and scientific quality. We will continue to work with stakeholders to consider how best to support continued research into ME/CFS.</p> answering member constituency Lewes answering member printed Maria Caulfield question first answered 01/12/2021 16:41:45 answering member 4492 label Biography information for Maria Caulfield
tabling member	1397 label Biography information for Hywel Williams

1351181

registered interest
date	18/08/2021
answering body	Department of Health and Social Care
answering dept id	17
answering dept short name	Health and Social Care
answering dept sort name	Health and Social Care
hansard heading	Chronic Fatigue Syndrome: Research
house id	1
legislature	25259 pref label House of Commons
question text	To ask the Secretary of State for Health and Social Care, whether he has made a recent assessment of the potential merits of increasing funding for research into ME and Chronic Fatigue Syndrome.
tabling member constituency	Lewisham East
tabling member printed	Janet Daby
uin	41247
answer	answer is ministerial correction date of answer 06/09/2021 answer text <p>The Government invests in health research through the National Institute for Health Research (NIHR) and the Medical Research Council (MRC), through UK Research and Innovation. The NIHR and MRC both welcome high-quality applications for research into all aspects of myalgic encephalomyelitis (ME), otherwise known as chronic fatigue syndrome (CFS). No assessment has been made of the merits of increasing funding for research into ME/CFS. While it is not usual practice for the NIHR and MRC to ring-fence funds for particular topics or conditions, the MRC has had a cross-board highlight notice on CFS/ME open since 2003.</p> answering member constituency Charnwood answering member printed Edward Argar question first answered 06/09/2021 11:52:14 answering member 4362 label Biography information for Edward Argar
tabling member	4698 label Biography information for Janet Daby

1349461

registered interest
date	22/07/2021
answering body	Department of Health and Social Care
answering dept id	17
answering dept short name	Health and Social Care
answering dept sort name	Health and Social Care
hansard heading	Chronic Fatigue Syndrome: Research
house id	1
legislature	25259 pref label House of Commons
question text	To ask the Secretary of State for Health and Social Care, how much Government funding has been provided to ME research in each of the last three years.
tabling member constituency	Nottingham North
tabling member printed	Alex Norris
uin	38397
answer	answer is ministerial correction date of answer 06/09/2021 answer text <p>The following table shows the funding for research into myalgic encephalomyelitis through the National Institute for Health Research and UK Research and Innovation in the last three years.</p><table><tbody><tr><td><p>Financial Year</p></td><td><p>£</p></td></tr><tr><td><p>2018-19</p></td><td><p>£862,212</p></td></tr><tr><td><p>2019-20</p></td><td><p>£691,516</p></td></tr><tr><td><p>2020-21</p></td><td><p>£907,848</p></td></tr></tbody></table> answering member constituency Charnwood answering member printed Edward Argar question first answered 06/09/2021 11:40:51 answering member 4362 label Biography information for Edward Argar
tabling member	4641 label Biography information for Alex Norris

1273898

registered interest
date	06/01/2021
answering body	Department of Health and Social Care
answering dept id	17
answering dept short name	Health and Social Care
answering dept sort name	Health and Social Care
hansard heading	Chronic Fatigue Syndrome: Research
house id	1
legislature	25259 pref label House of Commons
question text	To ask the Secretary of State for Health and Social Care, what steps his Department is taking to increase biomedical research on the causes and treatment of myalgic encephalomyelitis in the UK.
tabling member constituency	Bristol North West
tabling member printed	Darren Jones
uin	134061
answer	answer is ministerial correction date of answer 26/01/2021 answer text <p>The Department funds research through the National Institute for Health Research (NIHR). In 2020, the NIHR and the Medical Research Council, through UK Research and Innovation, came together to fund the world’s largest genome-wide association study of myalgic encephalomyelitis (ME), sometimes referred to as Chronic Fatigue Syndrome (CFS). This £3.2 million study, ‘DecodeME’, will analyse samples from 20,000 people with ME/CFS to search for genetic differences that may indicate underlying causes or an increased risk of developing the condition. DecodeME is a partnership between biomedical scientists at the University of Edinburgh and ME/CFS charities and people with lived experience of ME/CFS. It is hoped that the outcomes of this study will aid the development of diagnostic tests and targeted treatments.</p><p> </p> answering member constituency Charnwood answering member printed Edward Argar question first answered 26/01/2021 09:48:36 answering member 4362 label Biography information for Edward Argar
tabling member	4621 label Biography information for Darren Jones

1221575

registered interest
date	07/07/2020
answering body	Department of Health and Social Care
answering dept id	17
answering dept short name	Health and Social Care
answering dept sort name	Health and Social Care
hansard heading	Chronic Fatigue Syndrome: Research
house id	1
legislature	25259 pref label House of Commons
question text	To ask the Secretary of State for Health and Social Care, how much Government funding was allocated to biomedical research into myalgic encephalomyelitis in the financial years (a) 2017-18, (b) 2018-19 and (c) 2019-20.
tabling member constituency	Mole Valley
tabling member printed	Sir Paul Beresford
uin	70282
answer	answer is ministerial correction date of answer 23/07/2020 answer text <p>The following table shows how much Government funding was allocated to biomedical research into myalgic encephalomyelitis (ME), also known as chronic fatigue syndrome (CFS) for financial years 2017-18, 2018-19 and 2019-20.</p><table><tbody><tr><td><p>Financial Year</p></td><td><p>£</p></td></tr><tr><td><p>2017-18</p></td><td><p>226,470</p></td></tr><tr><td><p>2018-19</p></td><td><p>396,467</p></td></tr><tr><td><p>2019-20</p></td><td><p>443,719</p></td></tr></tbody></table><p> </p><p>In addition to the funding set out above, the National Institute for Health Research, funded through the Department, and the Medical Research Council have recently announced a £3.2 million award to fund research into potential genetic connections to ME/CFS. The project will analyse samples from 20,000 people with ME/CFS to search for genetic differences that may indicate underlying causes or increase the risk of developing the condition.</p><p> </p><p> </p> answering member constituency Faversham and Mid Kent answering member printed Helen Whately question first answered 23/07/2020 17:08:44 answering member 4527 label Biography information for Helen Whately
tabling member	103 label Biography information for Sir Paul Beresford

1174940

registered interest
date	30/01/2020
answering body	Department of Health and Social Care
answering dept id	17
answering dept short name	Health and Social Care
answering dept sort name	Health and Social Care
hansard heading	Chronic Fatigue Syndrome: Research
house id	1
legislature	25259 pref label House of Commons
question text	To ask the Secretary of State for Health and Social Care, how much money from the public purse has been allocated to funding research on myalgic encephalomyelitis since 2010.
tabling member constituency	Portsmouth South
tabling member printed	Mr Stephen Morgan
uin	10460
answer	answer is ministerial correction date of answer 10/02/2020 answer text <p>Between 2010-11 to 2018-19, the National Institute for Health Research (NIHR) and the UK Research Innovation have funded £6,976,001 of research on myalgic encephalomyelitis, also referred to as chronic fatigue syndrome (ME/CFS).</p><p>While funding fluctuates in response to projects funded, spend on ME/CFS has remained stable in recent years, ranging from around £700-850,000. Given that funding has remained stable, no assessment has been made about the impact of change in the level of research funding.</p> answering member constituency Gosport answering member printed Caroline Dinenage grouped question UIN 10461 question first answered 10/02/2020 10:26:28 answering member 4008 label Biography information for Dame Caroline Dinenage
tabling member	4653 label Biography information for Stephen Morgan

1174944

registered interest
date	30/01/2020
answering body	Department of Health and Social Care
answering dept id	17
answering dept short name	Health and Social Care
answering dept sort name	Health and Social Care
hansard heading	Chronic Fatigue Syndrome: Research
house id	1
legislature	25259 pref label House of Commons
question text	To ask the Secretary of State for Health and Social Care, if he will make an assessment of the effect of recent changes in the level of funding for research into myalgic encephalomyelitis on clinical understanding of that condition.
tabling member constituency	Portsmouth South
tabling member printed	Mr Stephen Morgan
uin	10461
answer	answer is ministerial correction date of answer 10/02/2020 answer text <p>Between 2010-11 to 2018-19, the National Institute for Health Research (NIHR) and the UK Research Innovation have funded £6,976,001 of research on myalgic encephalomyelitis, also referred to as chronic fatigue syndrome (ME/CFS).</p><p>While funding fluctuates in response to projects funded, spend on ME/CFS has remained stable in recent years, ranging from around £700-850,000. Given that funding has remained stable, no assessment has been made about the impact of change in the level of research funding.</p> answering member constituency Gosport answering member printed Caroline Dinenage grouped question UIN 10460 question first answered 10/02/2020 10:26:28 answering member 4008 label Biography information for Dame Caroline Dinenage
tabling member	4653 label Biography information for Stephen Morgan