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<p>In January 2021, the Government published the UK Rare Diseases Framework, providing
a national vision for how to improve the lives of those living with rare diseases.
The framework lists four priorities, collaboratively developed with the rare disease
community, which are: helping patients get a final diagnosis faster; increasing awareness
of rare diseases among healthcare professionals; better coordination of care; and
improving access to specialist care, treatment, and drugs. The principles of the UK
Rare Diseases Framework commit the four nations to ensuring that any impacts on health
inequalities are considered when developing action plans.</p><p>Each year since 2021
we have published an England Rare Diseases Action Plan, with health equity highlighted
as a focus area. On 29 February 2024 we published the third England Rare Diseases
Action Plan, which is working to address these priorities. Several actions have been
committed to in this year and previous year’s action plans, that relate to equitable
access to specialised care and support for patients with rare diseases.</p>
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