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348259

registered interest
date	03/06/2015
answering body	Department of Health
answering dept id	17
answering dept short name	Health
answering dept sort name	Health
hansard heading	Batten Disease: Health Services
house id	1
legislature	25259 pref label House of Commons
question text	To ask the Secretary of State for Health, what assessment he has made of the adequacy of provisions to treat people who have Batten Disease.
tabling member constituency	Leeds North West
tabling member printed	Greg Mulholland
uin	994
answer	answer is ministerial correction date of answer 12/06/2015 answer text <p>The neuronal ceriod lipofuscinoses (Batten disease) are a set of severely disabling degenerative diseases. Care is given in regional paediatric neuroscience centres and by local teams. We are advised by NHS England that it is at an early stage of discussion about the possibility of establishing expert centres for Batten disease. This disease does not feature in the highly specialised work programme for 2015/16 but NHS England will be considering it for inclusion in the 2016/17 work programme.</p><p> </p> answering member constituency Battersea answering member printed Jane Ellison question first answered 12/06/2015 10:58:52 answering member 3918 label Biography information for Jane Ellison
tabling member	1540 label Biography information for Greg Mulholland

348260

registered interest
date	03/06/2015
answering body	Department of Health
answering dept id	17
answering dept short name	Health
answering dept sort name	Health
hansard heading	Batten Disease: Health Services
house id	1
legislature	25259 pref label House of Commons
question text	To ask the Secretary of State for Health, what steps he is taking to support research into the treatment of Batten Disease.
tabling member constituency	Leeds North West
tabling member printed	Greg Mulholland
uin	995
answer	answer is ministerial correction date of answer 12/06/2015 answer text <p>The National Institute for Health Research (NIHR) Clinical Research Network is hosting a commercial study to evaluate the safety and effectiveness of cerliponase alfa in patients with late-infantile neuronal ceroid lipofuscinosis type 2, a form of Batten disease. The NIHR also welcomes funding applications for research into any aspect of human health, including treatment of Batten disease. These applications are subject to peer review and judged in open competition, with awards being made on the basis of the importance of the topic to patients and health and care services, value for money and scientific quality.</p><p> </p> answering member constituency Mid Norfolk answering member printed George Freeman question first answered 12/06/2015 10:53:53 answering member 4020 label Biography information for George Freeman
tabling member	1540 label Biography information for Greg Mulholland

348268

registered interest
date	03/06/2015
answering body	Department of Health
answering dept id	17
answering dept short name	Health
answering dept sort name	Health
hansard heading	IVF: Licensing
house id	1
legislature	25259 pref label House of Commons
question text	To ask the Secretary of State for Health, what estimate he has made of the number of licences the Human Fertilisation and Embryology Authority will grant under the Human Fertilisation and Embryology (Mitochondrial Donation) Regulations 2015 over the next three years.
tabling member constituency	North Antrim
tabling member printed	Ian Paisley
uin	1046
answer	answer is ministerial correction date of answer 12/06/2015 answer text <p>The Department has made no estimate of the number of licences that the Human Fertilisation and Embryology Authorisation (HFEA) might grant over the next three years.</p><p> </p><p> </p><p> </p><p>The HFEA will make an assessment of applications as set out in the Human Fertilisation and Embryology (Mitochondrial Donation) Regulations 2015.</p><p> </p> answering member constituency Battersea answering member printed Jane Ellison question first answered 12/06/2015 10:55:23 answering member 3918 label Biography information for Jane Ellison
tabling member	4129 label Biography information for Ian Paisley

348269

registered interest
date	03/06/2015
answering body	Department of Health
answering dept id	17
answering dept short name	Health
answering dept sort name	Health
hansard heading	Gene Therapies
house id	1
legislature	25259 pref label House of Commons
question text	To ask the Secretary of State for Health, whether it is his policy to permit Clustered Regularly Interspaced Short Palindromic Repeats techniques in the UK.
tabling member constituency	North Antrim
tabling member printed	Ian Paisley
uin	1099
answer	answer is ministerial correction date of answer 12/06/2015 answer text <p>The use of Clustered Regular Interspaced Short Palindromic Repeats (CRISPR) is one of the many new technologies emerging in the field of genetic research. The technique is rapidly becoming a standard method to introduce mutations into cell lines and laboratory animals in order to understand the cause of serious diseases such as cancer and dementia and identify new therapies.</p><p> </p><p> </p><p> </p><p>The United Kingdom has a strong and clear regulatory framework that bans genetic modifications of the nuclear genome that can be inherited from one generation to another. The use of CRISPR is permissible in the UK in a research setting, as long as any research carried out has the appropriate approvals. In the case of human embryos, research but not treatment using these techniques would be permissible provided the UK national regulator, the Human Fertilisation and Embryology Authority, was satisfied that the research met the criteria set out in the Human Fertilisation and Embryology Act 1990, as amended.</p><p> </p> answering member constituency Mid Norfolk answering member printed George Freeman question first answered 12/06/2015 10:48:23 answering member 4020 label Biography information for George Freeman
tabling member	4129 label Biography information for Ian Paisley

348270

registered interest
date	03/06/2015
answering body	Department for Culture Media and Sport
answering dept id	10
answering dept short name	Culture, Media and Sport
answering dept sort name	Culture, Media and Sport
hansard heading	Digital Technology: Disability
house id	1
legislature	25259 pref label House of Commons
question text	To ask the Secretary of State for Culture, Media and Sport, what steps he is taking to prevent the digital exclusion of people with sensory loss.
tabling member constituency	Birkenhead
tabling member printed	Frank Field
uin	946
answer	answer is ministerial correction date of answer 12/06/2015 answer text <p>The Government remains committed to seeing an improvement in the provision of access services for video-on-demand (VoD) services and will continue to monitor progress. If ATVOD's 2015 annual survey of VOD Services indicates that significant progress has not been made, then as stated in the Connectivity, Content and Consumers Paper (July 2013) we will consider legislation in 2016.</p><p> </p> answering member constituency Wantage answering member printed Mr Edward Vaizey question first answered 12/06/2015 13:21:30 answering member 1580 label Biography information for Lord Vaizey of Didcot
tabling member	478 label Biography information for Lord Field of Birkenhead

348271

registered interest
date	03/06/2015
answering body	Department for Culture Media and Sport
answering dept id	10
answering dept short name	Culture, Media and Sport
answering dept sort name	Culture, Media and Sport
hansard heading	Internet: Sales
house id	1
legislature	25259 pref label House of Commons
question text	To ask the Secretary of State for Culture, Media and Sport, what discussions his Department has had with Nominet on the stakeholders who would be consulted on the sale of .uk domain names to .co.uk domain name holders.
tabling member constituency	Chesterfield
tabling member printed	Toby Perkins
uin	948
answer	answer is ministerial correction date of answer 12/06/2015 answer text <p>The department has had no separate, specific discussions with Nominet on the stakeholders who would be consulted on the same of .uk domain names. However, the issue was discussed at a number of Nominet Policy Stakeholder Committee meetings, of which the Department is a member of. This was an important forum for discussion about wider stakeholder engagement on this consultation.</p><p> </p><p>As with all consultations, we would expect Nominet to consult with all interested parties, including civil society, the private sector and the technical community, in line with the multi-stakeholder model for internet governance that the government supports.</p> answering member constituency Wantage answering member printed Mr Edward Vaizey question first answered 12/06/2015 13:23:59 answering member 1580 label Biography information for Lord Vaizey of Didcot
tabling member	3952 label Biography information for Mr Toby Perkins

348281

registered interest
date	03/06/2015
answering body	Ministry of Defence
answering dept id	11
answering dept short name	Defence
answering dept sort name	Defence
hansard heading	Iraq: Military Aid
house id	1
legislature	25259 pref label House of Commons
question text	To ask the Secretary of State for Defence, pursuant to the Answer of 27 May 2015 to Question 207, whether Explosive Risk Management Ltd was contracted to provide counter-IED training in Iraq in 2014; whether a counter-IED course was provided to Kurdish Peshmerga in 2014; and if he will make a statement.
tabling member constituency	Bridgend
tabling member printed	Mrs Madeleine Moon
uin	1095
answer	answer is ministerial correction date of answer 11/06/2015 answer text <p>Explosive Risk Management Ltd was contracted to deliver C-IED training in Iraq in 2014. Through these training services, a four week course was delivered to the Peshmerga in the Kurdistan Region of Iraq in 2014. A similar course was due to be delivered in southern Iraq, but was withdrawn prematurely due to security issues.</p><p>This contract was not included in my previous answer of 5 June 2015 to Question number 207 as the service was for training not security.</p> answering member constituency Portsmouth North answering member printed Penny Mordaunt question first answered 11/06/2015 16:12:18 answering member 4017 label Biography information for Penny Mordaunt
tabling member	1490 label Biography information for Mrs Madeleine Moon

348284

registered interest
date	03/06/2015
answering body	Department of Health
answering dept id	17
answering dept short name	Health
answering dept sort name	Health
hansard heading	Dementia: Social Services
house id	1
legislature	25259 pref label House of Commons
question text	To ask the Secretary of State for Health, what steps he is taking to co-ordinate with other government departments on provisions of (a) support networks, (b) sheltered accommodation and (c) carers for people diagnosed with dementia.
tabling member constituency	Strangford
tabling member printed	Jim Shannon
uin	940
answer	answer is ministerial correction date of answer 12/06/2015 answer text <p>On 21 February 2015 The Prime Minister’s Challenge on Dementia 2020 was published, building on the achievements of the Prime Minister’s challenge on dementia 2012-2015. The Government is clear that dementia remains a priority and will implement the 2020 Challenge in full to make sure that dementia care, support, awareness and research are transformed by 2020.</p><p> </p><p><strong> </strong></p><p> </p><p>The 2020 Challenge raises the importance of social action solutions such as peer support and befriending services which can also provide practical and emotional support to people with dementia and carers, reduce isolation and prevent crisis. The impact of these interventions is being robustly tested so that evidence on the most effective interventions can be disseminated.</p><p> </p><p> </p><p> </p><p>During the Prime Minister’s challenge on dementia 2012-2015 the Department of Health in partnership with Public Health England and the Alzheimer’s Society made significant progress on the Dementia Friends and dementia friendly communities campaigns. We currently have over 1 million Dementia Friends, achieving our target of reaching 1 million Dementia Friends by March 2015. Alzheimer’s Society are committed to delivering an additional 3 million Dementia Friends in England by 2020.</p><p> </p><p> </p><p> </p><p>92 communities across England have signed up to Alzheimer’s Society’s foundation-stage recognition process for dementia friendly communities.</p><p> </p><p> </p><p> </p><p>The Department of Health has been working closely with the Housing Learning and Improvement network to develop a memorandum of understanding for the housing sector including the development of services specifically for people with dementia.</p><p> </p><p> </p><p> </p><p>The Government launched the Care and Support Specialised Housing Fund (CASSH) in October 2012 which is due to run until April 2018 to support the development of specialised housing for older people (including those with dementia), adults with physical disabilities, learning disabilities or mental health needs. The Department of Health worked closely with Department for Communities and Local Government on the CASSH.</p><p> </p><p> </p><p> </p><p>In May 2014, NHS England published its Commitment to carers. Amongst its commitments, NHS England confirmed it will support timely dementia diagnosis and the best available treatment for everyone who needs it, including support for their carers and highlighted that the revised Dementia Direct Enhanced Service includes an offer of a health check for carers and signposting for information and support.</p><p> </p><p> </p><p> </p><p>A variety of Government Departments play vital roles in supporting carers and this is coordinated through updated action plans underpinned by the National Carers Strategy. Departments continue to work together to explore innovative ways of improving support for cares. For example, the Department of Health, Government Equality Office and Department for Work and Pensions have jointly invested £1.6 million to fund pilots in nine local authority areas to explore ways in which people can be supported to combine work and care.</p><p> </p><p> </p><p> </p><p>The Department of Health led on the introduction of the Care Act 2014, which gives local authorities legal duties to support carers in a number of ways. This includes individual rights for carers to get an assessment, plus a right to support to meet any needs assessed as eligible against the national minimum eligibility threshold. The Department of Health has provided £104 million of funding to local authorities for these rights in 2015/16.</p><p> </p> answering member constituency Battersea answering member printed Jane Ellison question first answered 12/06/2015 10:39:28 answering member 3918 label Biography information for Jane Ellison
tabling member	4131 label Biography information for Jim Shannon

348289

registered interest
date	03/06/2015
answering body	Department of Health
answering dept id	17
answering dept short name	Health
answering dept sort name	Health
hansard heading	Medical Records
house id	1
legislature	25259 pref label House of Commons
question text	To ask the Secretary of State for Health, whether his Department plans to send care.data communications simultaneously to patients in the three remaining pathfinder clinical commissioning groups; and on what date his Department plans to start contacting those patients in those areas.
tabling member constituency	Birmingham, Hall Green
tabling member printed	Mr Roger Godsiff
uin	945
answer	answer is ministerial correction date of answer 12/06/2015 answer text <p>Care.data communications will not be issued until Dame Fiona Caldicott the National Data Guardian, has advised the Secretary of State that she is satisfied with the safeguards NHS England has put in place.</p><p> </p><p> </p><p> </p><p>The decision to send patient communications will be made with each pathfinder area based on their readiness to proceed. No timeframes are being imposed by the programme.</p><p> </p> answering member constituency Mid Norfolk answering member printed George Freeman question first answered 12/06/2015 10:46:48 answering member 4020 label Biography information for George Freeman
tabling member	304 label Biography information for Mr Roger Godsiff

348292

registered interest
date	03/06/2015
answering body	Department of Health
answering dept id	17
answering dept short name	Health
answering dept sort name	Health
hansard heading	Pregnancy: Sodium Valproate
house id	1
legislature	25259 pref label House of Commons
question text	To ask the Secretary of State for Health, what steps he is taking to ensure that every pregnant women prescribed the anti-epilepsy drug sodium valproate is warned of the risk to her unborn child.
tabling member constituency	Brentwood and Ongar
tabling member printed	Sir Eric Pickles
uin	989
answer	answer is ministerial correction date of answer 12/06/2015 answer text <p>After completion of a United Kingdom-led European review in 2014, the Department worked with the Medicines and Healthcare products Regulatory Agency, healthcare professionals and patient groups to raise awareness and encourage discussion about the risks and benefits of sodium valproate between healthcare professionals and their patients.</p><p> </p><p> </p><p> </p><p>Several measures were put in place to minimise the prescribing of sodium valproate to women of childbearing potential (except where other drugs are ineffective or not tolerated) and to communicate the warnings around the drug sodium valproate to healthcare professionals and patients (particularly women of child bearing potential).</p><p> </p><p> </p><p> </p><p>There is now a mandatory requirement for all manufacturers to include the very latest information about the known risks of sodium valproate to the unborn child. The product information for healthcare professionals and patients has been updated to contain strengthened warnings about use in pregnancy and in women of child bearing age. New educational materials have been produced for use by healthcare professionals and patients that further highlight warnings of the risk of sodium valproate to the unborn child. Other actions include:</p><p> </p><p>- working with the Health and Social Care Information Centre on introducing red-flag warnings on general practitioner and community pharmacy IT systems;</p><p> </p><p>- updating the British National Formulary (BNF) and BNF for children; and</p><p> </p><p>- using existing Departmental and National Health Service communication channels to raise awareness and provide information to patients.</p><p> </p> answering member constituency Mid Norfolk answering member printed George Freeman question first answered 12/06/2015 10:40:35 answering member 4020 label Biography information for George Freeman
tabling member	33 label Biography information for Lord Pickles