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<p>The content of the Personal Child Health Record (PCHR) is overseen by a multi-disciplinary
group hosted by the Royal College of Paediatrics and Child Health (RCPCH). The inclusion
of a body map in the paper-based version of the PCHR to help improve recognition of
conditions such as neurofibromatosis has previously been discussed.</p><p>Whilst it
is recognised that some areas choose to include a body map in the paper-based version
of the PCHR they issue to new parents/carers at a child’s birth, the RCPCH hosted
committee rejected a request for it to be included universally. The matter has subsequently
been referred to the UK National Screening Committee for further consideration.</p><p>An
electronic version of the PCHR is being piloted and will be further developed. Access
to information on neurofibromatosis and other conditions which can be accessed by
parents, carers or health professionals will be considered as part of this process.</p><p>
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