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1124901

	registered interest
	date	07/05/2019
	answering body	Department of Health and Social Care
	answering dept id	17
	answering dept short name	Health and Social Care
	answering dept sort name	Health and Social Care
	hansard heading	Nusinersen
	house id	2
	legislature	25277 pref label House of Lords
	question text	To ask Her Majesty's Government what discussions they have had with (1) NICE, (2) NHS England, and (3) Biogen, on a Managed Access Agreement for Spinal Muscular Atrophy treatment, Spinraza.
	tabling member printed	Baroness Thomas of Winchester
	uin	HL15576
	answer	answer is ministerial correction date of answer 17/05/2019 answer text <p>Departmental officials are in regular contact with colleagues in the National Institute for Health and Care Excellence (NICE) and NHS England about a range of issues, including progress in discussions about a potential managed access agreement for Spinraza (nusinersen). Ministers have also held meetings with Biogen, NICE and NHS England on a number of occasions, at which the availability of Spinraza was discussed.</p><p>NHS England and NICE have made stakeholders and the public aware of the outcome of its appraisal committee meeting and NICE is now able to recommend the use of Spinraza for National Health Service patients in England, subject to a managed access agreement agreed between NHS England and Biogen. The final appraisal document will be published in due course.</p><p> </p> answering member printed Baroness Blackwood of North Oxford grouped question UIN HL15577 question first answered 17/05/2019 11:07:46 answering member 4019 label Biography information for Baroness Blackwood of North Oxford
	tabling member	3785 label Biography information for Baroness Thomas of Winchester

1124902

	registered interest
	date	07/05/2019
	answering body	Department of Health and Social Care
	answering dept id	17
	answering dept short name	Health and Social Care
	answering dept sort name	Health and Social Care
	hansard heading	National Institute for Health and Care Excellence
	house id	2
	legislature	25277 pref label House of Lords
	question text	To ask Her Majesty's Government when they estimate that NICE will publish the outcome of the NICE Evaluation Committee meeting held on 6 March.
	tabling member printed	Baroness Thomas of Winchester
	uin	HL15577
	answer	answer is ministerial correction date of answer 17/05/2019 answer text <p>Departmental officials are in regular contact with colleagues in the National Institute for Health and Care Excellence (NICE) and NHS England about a range of issues, including progress in discussions about a potential managed access agreement for Spinraza (nusinersen). Ministers have also held meetings with Biogen, NICE and NHS England on a number of occasions, at which the availability of Spinraza was discussed.</p><p>NHS England and NICE have made stakeholders and the public aware of the outcome of its appraisal committee meeting and NICE is now able to recommend the use of Spinraza for National Health Service patients in England, subject to a managed access agreement agreed between NHS England and Biogen. The final appraisal document will be published in due course.</p><p> </p> answering member printed Baroness Blackwood of North Oxford grouped question UIN HL15576 question first answered 17/05/2019 11:07:46 answering member 4019 label Biography information for Baroness Blackwood of North Oxford
	tabling member	3785 label Biography information for Baroness Thomas of Winchester

1124883

	registered interest
	date	07/05/2019
	answering body	Northern Ireland Office
	answering dept id	21
	answering dept short name	Northern Ireland
	answering dept sort name	Northern Ireland
	hansard heading	Northern Ireland Renewable Heat Incentive Scheme
	house id	2
	legislature	25277 pref label House of Lords
	question text	To ask Her Majesty's Government, further to the proposal by Lord Duncan of Springbank on 19 March (HL Deb, col 1408) that the Department of the Economy Northern Ireland would establish a unit under independent chairmanship, to examine the case of every individual who has received funds from the Renewable Heat Incentive initiative and believes they have experienced hardship, whether that proposal has been implemented; if so, who has been appointed as chairman; what appointment criteria were applied to any such appointment; and whether the Secretary of State for Northern Ireland discussed this appointment with the Permanent Secretary of the Department of the Economy Northern Ireland.
	tabling member printed	Lord Maginnis of Drumglass
	uin	HL15558
	answer	answer is ministerial correction date of answer 17/05/2019 answer text <p>The Department for the Economy has undertaken to set up an RHI Hardship Unit. They repeated this commitment during their evidence session to the Northern Ireland Affairs Committee on 8th May. Given the complexities and skill-sets required, the Department is currently considering an independent panel rather than just an independent chair. As this is a devolved matter it will be for the Department for the Economy to set the necessary criteria, and ensure that the Hardship Unit is made up of suitably qualified and independent members. The Department plans for the panel to have its first sitting by the end of the summer.</p> answering member printed Lord Duncan of Springbank question first answered 17/05/2019 11:08:49 answering member 4686 label Biography information for Lord Duncan of Springbank
	tabling member	648 label Biography information for Lord Maginnis of Drumglass