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99850
star this property registered interest false more like this
star this property date remove filter
star this property answering body
Department of Health more like this
star this property answering dept id 17 more like this
star this property answering dept short name Health more like this
unstar this property answering dept sort name Health more like this
star this property hansard heading Medical Equipment: West Midlands more like this
star this property house id 1 more like this
star this property legislature
25259
star this property pref label House of Commons more like this
star this property question text To ask the Secretary of State for Health, if he will take steps to ensure the routine commissioning of cough assist machines in the West Midlands. more like this
star this property tabling member constituency Sutton Coldfield more like this
star this property tabling member printed
Mr Andrew Mitchell more like this
star this property uin 211129 more like this
star this property answer
answer
unstar this property is ministerial correction false more like this
star this property date of answer remove filter
star this property answer text <p>Since 1 April 2013, NHS England has been responsible for commissioning specialised neurological services, which includes services for patients with neuromuscular disorders, such as muscular dystrophy. NHS England has published a neurosciences specification, which sets out what providers must have in place to offer high quality care and treatment for patients.</p><p> </p><p> </p><p> </p><p>The neurosciences service specification describes when patients should be referred to specialist respiratory services and the circumstances in which cough assist devices should be considered. It is available from the NHS England website at this link:</p><p> </p><p> </p><p> </p><p>http://www.england.nhs.uk/wp-content/uploads/2013/06/d04-neurosci-spec-neuro.pdf.</p><p> </p><p> </p><p> </p><p>A copy of this document has also been attached.</p><p> </p><p> </p><p> </p><p>The equipment and respiratory support of cough assist is the commissioning responsibility of clinical commissioning groups, delivered through local specialist respiratory services, according to any local clinical commissioning policy they may have in place.</p><p> </p>
star this property answering member constituency Battersea more like this
unstar this property answering member printed Jane Ellison more like this
star this property question first answered
less than 2014-10-27T16:43:52.2085406Zmore like thisremove minimum value filter
star this property answering member
3918
star this property label Biography information for Jane Ellison more like this
star this property attachment
1
star this property file name NHS England neuroscience service specification.pdf more like this
star this property title Neurosciences service specification more like this
star this property tabling member
1211
unstar this property label Biography information for Mr Andrew Mitchell more like this
99855
star this property registered interest false more like this
star this property date remove filter
star this property answering body
Department of Health more like this
star this property answering dept id 17 more like this
star this property answering dept short name Health more like this
unstar this property answering dept sort name Health more like this
star this property hansard heading Blood Diseases more like this
star this property house id 1 more like this
star this property legislature
25259
star this property pref label House of Commons more like this
star this property question text To ask the Secretary of State for Health, what discussions his Department has had with (a) the Haemophilia Society, (b) the Manor House Group, (c) Tainted Blood, (d) the Hepatitis C Trust and (e) the Contaminated Blood campaign in the last two years. more like this
star this property tabling member constituency Kingston upon Hull North more like this
star this property tabling member printed
Diana Johnson more like this
star this property uin 211077 more like this
star this property answer
answer
unstar this property is ministerial correction false more like this
star this property date of answer remove filter
star this property answer text <p>In the last two years, the Department has met with the Haemophilia Society about haemophilia services, grant funding for the Society and support for haemophiliacs infected or affected by HIV and/or hepatitis C through historic treatment with NHS-supplied blood products.</p><p> </p><p> </p><p> </p><p>The Department has met with the Hepatitis C Trust about hepatitis C services, grant funding for the Trust and support for individuals infected or affected by hepatitis C through historic treatment with NHS-supplied blood or blood products.</p><p> </p><p> </p><p> </p><p>The Department has met with representatives of the Manor House Group, Tainted Blood and the Contaminated Blood Campaign about support for individuals infected or affected by HIV and/or hepatitis C through historic treatment with NHS-supplied blood or blood products, the scientific and clinical evidence for hepatitis C, and haemophilia services.</p><p> </p><p><strong> </strong></p><p> </p><p><strong> </strong></p><p> </p> more like this
star this property answering member constituency Battersea more like this
unstar this property answering member printed Jane Ellison more like this
star this property question first answered
less than 2014-10-27T17:05:12.1997021Zmore like thismore than 2014-10-27T17:05:12.1997021Z
star this property answering member
3918
star this property label Biography information for Jane Ellison more like this
star this property tabling member
1533
unstar this property label Biography information for Diana Johnson more like this
99857
star this property registered interest false more like this
star this property date remove filter
star this property answering body
Department of Health more like this
star this property answering dept id 17 more like this
star this property answering dept short name Health more like this
unstar this property answering dept sort name Health more like this
star this property hansard heading Hepatitis more like this
star this property house id 1 more like this
star this property legislature
25259
star this property pref label House of Commons more like this
star this property question text To ask the Secretary of State for Health, how many (a) first-stage payments and (b) second-stage payments have been made from the Skipton Fund to the estates of individuals who contracted hepatitis C following NHS treatment with blood products between 1970 and 1995 but who died before 29 August 2003; what the total amount of money paid out to these estates was; how many total applications for lump sum payments were made by the families and dependants of these victims from 10 January to the end of March 2011; how many applications were refused on the basis that they came in too late; whether his Department has received any representations from (i) the families of victims, (ii) campaign groups and (iii) the Skipton Fund or Caxton Foundation about the time available to apply. more like this
star this property tabling member constituency Kingston upon Hull North more like this
star this property tabling member printed
Diana Johnson more like this
star this property uin 211080 more like this
star this property answer
answer
unstar this property is ministerial correction false more like this
star this property date of answer remove filter
star this property answer text <p>The following table sets out the number of payments and total paid out by Skipton Fund Ltd to the estates of individuals who contracted hepatitis C through treatment with NHS supplied blood or blood products prior to 1991 and who died prior to 29 August 2003.</p><p> </p><p> </p><p> </p><table><tbody><tr><td rowspan="2"><p> </p></td><td colspan="2"><p>(a) Stage 1</p></td><td colspan="2"><p>(b) Of whom have also received Stage 2*</p></td></tr><tr><td><p>Number of payments</p></td><td><p>Total cost (£)</p></td><td><p>Number of payments</p></td><td><p>Total cost (£)</p></td></tr><tr><td><p>For all individuals</p></td><td><p>472</p></td><td><p>9,440,000.00</p></td><td><p>258</p></td><td><p>12,900,000.00</p></td></tr><tr><td><p>Comprising individuals with a bleeding disorder treated with plasma derived products</p></td><td><p>441</p></td><td><p>8,820,000.00</p></td><td><p>236</p></td><td><p>11,800,000.00</p></td></tr><tr><td><p>And individuals treated with a whole blood transfusion</p></td><td><p>31</p></td><td><p>620,000.00</p></td><td><p>22</p></td><td><p>1,100,000.00</p></td></tr></tbody></table><p> </p><p>*Stage 2 payment is made for individuals who received a stage 1 payment and progressed to more severe hepatitis C related disease.</p><p> </p><p> </p><p> </p><p>There were 81 such applications before 31 March 2011. However, the deadline initially set of 31 March 2011 was for registrations with the Skipton Fund and not completed applications. No applications have been refused to date for missing the deadline.</p><p> </p><p> </p><p> </p><p>The Department received representations from campaign groups and families of deceased individuals in relation to the deadline, and worked with the Skipton Fund in 2011 to agree that any late registrations would be processed, provided the individual registering had good reason for the late registration.</p><p> </p><p><strong> </strong></p><p> </p>
star this property answering member constituency Battersea more like this
unstar this property answering member printed Jane Ellison more like this
star this property question first answered
less than 2014-10-27T17:01:00.4560226Zmore like thismore than 2014-10-27T17:01:00.4560226Z
star this property answering member
3918
star this property label Biography information for Jane Ellison more like this
star this property tabling member
1533
unstar this property label Biography information for Diana Johnson more like this
99858
star this property registered interest false more like this
star this property date remove filter
star this property answering body
Department of Health more like this
star this property answering dept id 17 more like this
star this property answering dept short name Health more like this
unstar this property answering dept sort name Health more like this
star this property hansard heading Blood: Contamination more like this
star this property house id 1 more like this
star this property legislature
25259
star this property pref label House of Commons more like this
star this property question text To ask the Secretary of State for Health, whether benefits an individual receives are taken into account when deciding an individual's eligibility for discretionary financial payments from the (a) Caxton Foundation, (b) Macfarlane Trust and (c) Eileen Trust. more like this
star this property tabling member constituency Kingston upon Hull North more like this
star this property tabling member printed
Diana Johnson more like this
star this property uin 211078 more like this
star this property answer
answer
unstar this property is ministerial correction false more like this
star this property date of answer remove filter
star this property answer text <p>When deciding an individual's eligibility for discretionary financial payments, the Caxton Foundation, Macfarlane Trust and Eileen Trust, all take benefits into account as part of overall household income.</p><p> </p><p> </p><p> </p> more like this
star this property answering member constituency Battersea more like this
unstar this property answering member printed Jane Ellison more like this
star this property question first answered
less than 2014-10-27T17:03:20.0195537Zmore like thismore than 2014-10-27T17:03:20.0195537Z
star this property answering member
3918
star this property label Biography information for Jane Ellison more like this
star this property tabling member
1533
unstar this property label Biography information for Diana Johnson more like this
99861
star this property registered interest false more like this
star this property date remove filter
star this property answering body
Department of Health more like this
star this property answering dept id 17 more like this
star this property answering dept short name Health more like this
unstar this property answering dept sort name Health more like this
star this property hansard heading Hepatitis more like this
star this property house id 1 more like this
star this property legislature
25259
star this property pref label House of Commons more like this
star this property question text To ask the Secretary of State for Health, what the basis is for the distinction between Stage 1 and Stage 2 of hepatitis C virus which determines the amount of support sufferers of the condition who contracted the virus following NHS treatment with blood products are entitled to; and what medical and expert advice his Department sought before establishing this distinction. more like this
star this property tabling member constituency Kingston upon Hull North more like this
star this property tabling member printed
Diana Johnson more like this
star this property uin 211083 more like this
star this property answer
answer
unstar this property is ministerial correction false more like this
star this property date of answer remove filter
star this property answer text <p>The decision that there should be a two-stage ex-gratia payment system was taken when the scheme was first established in 2003-04. An initial ‘stage 1’ lump sum payment was made in respect of chronic infection with hepatitis C, with a second ‘stage 2’ lump sum payment when people reached a more advanced stage of illness. The Department sought the advice of an independent group of experts regarding a medical trigger for the higher payment that could reliably be diagnosed with non-invasive tests that were available nationwide. The advice received was that the second lump sum payment should be triggered following a diagnosis of cirrhosis or liver cancer, or if a person had received a liver transplant.</p><p> </p><p> </p><p> </p><p>In addition, as a result of the 2010 expert review, a further condition was added to those conditions that triggered eligibility for the second stage payment, namely hepatitis C-associated B-cell non-Hodgkins Lymphoma.</p><p> </p><p> </p><p> </p><p><strong> </strong></p><p> </p><p><strong> </strong></p><p> </p><p><strong> </strong></p><p> </p>
star this property answering member constituency Battersea more like this
unstar this property answering member printed Jane Ellison more like this
star this property question first answered
less than 2014-10-27T17:11:03.5550551Zmore like thismore than 2014-10-27T17:11:03.5550551Z
star this property answering member
3918
star this property label Biography information for Jane Ellison more like this
star this property tabling member
1533
unstar this property label Biography information for Diana Johnson more like this
99870
star this property registered interest false more like this
star this property date remove filter
star this property answering body
Department of Health more like this
star this property answering dept id 17 more like this
star this property answering dept short name Health more like this
unstar this property answering dept sort name Health more like this
star this property hansard heading Hepatitis more like this
star this property house id 1 more like this
star this property legislature
25259
star this property pref label House of Commons more like this
star this property question text To ask the Secretary of State for Health, how many (a) first-stage payments and (b) second-stage payments have been made from the Skipton Fund to the estates of individuals who contracted Hepatitis C following NHS treatment with blood products between 1970 and 1995 but who died after 29 August 2003. more like this
star this property tabling member constituency Kingston upon Hull North more like this
star this property tabling member printed
Diana Johnson more like this
star this property uin 211079 more like this
star this property answer
answer
unstar this property is ministerial correction false more like this
star this property date of answer remove filter
star this property answer text <p>The following table sets out the number of Stage 1 and Stage 2 payments made to the estates of individuals infected with hepatitis C through treatment with National Health Service supplied blood or blood products and who died after 29 August 2003 and before the relevant payment was made.</p><p> </p><p> </p><p> </p><table><tbody><tr><td><p> </p></td><td><p>Stage 1</p></td><td><p>Stage 2</p></td></tr><tr><td><p>Total number of individuals</p></td><td><p>138</p></td><td><p>186</p></td></tr><tr><td><p>Comprising individuals with a bleeding disorder treated with plasma derived products</p></td><td><p>46</p></td><td><p>77</p></td></tr><tr><td><p>And individuals treated with a whole blood transfusion</p></td><td><p>92</p></td><td><p>109</p></td></tr></tbody></table><p> </p><p><em>Notes:</em></p><p> </p><p>The Stage 2 payment is made for individuals who received a stage 1 payment and progressed to more severe hepatitis C related disease.</p><p> </p><p><strong> </strong></p><p> </p><p>The number of Stage 2 payments to estates is greater than the number of Stage 1 payments to estates as some individuals who were alive on receipt of their Stage 1 payment (and so are not included in the stage 1 column in the table above) died before their Stage 2 payment was made.</p><p> </p><p><strong> </strong></p><p> </p><p><strong> </strong></p><p> </p>
star this property answering member constituency Battersea more like this
unstar this property answering member printed Jane Ellison more like this
star this property question first answered
remove maximum value filtermore like thismore than 2014-10-27T17:15:14.4347224Z
star this property answering member
3918
star this property label Biography information for Jane Ellison more like this
star this property tabling member
1533
unstar this property label Biography information for Diana Johnson more like this
99871
star this property registered interest false more like this
star this property date remove filter
star this property answering body
Department of Health more like this
star this property answering dept id 17 more like this
star this property answering dept short name Health more like this
unstar this property answering dept sort name Health more like this
star this property hansard heading Blood Diseases more like this
star this property house id 1 more like this
star this property legislature
25259
star this property pref label House of Commons more like this
star this property question text To ask the Secretary of State for Health, what progress the Haemophilia Alliance has made in revising the National Service Specification for bleeding disorders. more like this
star this property tabling member constituency Kingston upon Hull North more like this
star this property tabling member printed
Diana Johnson more like this
star this property uin 211076 more like this
star this property answer
answer
unstar this property is ministerial correction false more like this
star this property date of answer remove filter
star this property answer text <p>NHS England has published the service specification for haemophilia services in England which was developed by and is regularly reviewed by the Haemophilia Clinical Reference Group (CRG). The CRG is also engaged in policy development with NHS England.</p><p> </p><p> </p><p> </p> more like this
star this property answering member constituency Battersea more like this
unstar this property answering member printed Jane Ellison more like this
star this property question first answered
less than 2014-10-27T17:14:46.1204124Zmore like thismore than 2014-10-27T17:14:46.1204124Z
star this property answering member
3918
star this property label Biography information for Jane Ellison more like this
star this property tabling member
1533
unstar this property label Biography information for Diana Johnson more like this
99874
star this property registered interest false more like this
star this property date remove filter
star this property answering body
Department of Health more like this
star this property answering dept id 17 more like this
star this property answering dept short name Health more like this
unstar this property answering dept sort name Health more like this
star this property hansard heading Blood Diseases more like this
star this property house id 1 more like this
star this property legislature
25259
star this property pref label House of Commons more like this
star this property question text To ask the Secretary of State for Health, what the outcome was of the look-back exercise co-ordinated by the Haemophilia Alliance to identify patients with bleeding disorders previously undiagnosed with blood-related infections. more like this
star this property tabling member constituency Kingston upon Hull North more like this
star this property tabling member printed
Diana Johnson more like this
star this property uin 211033 more like this
star this property answer
answer
unstar this property is ministerial correction false more like this
star this property date of answer remove filter
star this property answer text <p>The look-back exercise was conducted by the United Kingdom Haemophilia Centre Doctors Organisation (UKHCDO). Results will be published later this year in the UKHCDO 2013 annual report.</p><p> </p> more like this
star this property answering member constituency Battersea more like this
unstar this property answering member printed Jane Ellison more like this
star this property question first answered
less than 2014-10-27T17:04:24.4830228Zmore like thismore than 2014-10-27T17:04:24.4830228Z
star this property answering member
3918
star this property label Biography information for Jane Ellison more like this
star this property tabling member
1533
unstar this property label Biography information for Diana Johnson more like this
99884
star this property registered interest false more like this
star this property date remove filter
star this property answering body
Department of Health more like this
star this property answering dept id 17 more like this
star this property answering dept short name Health more like this
unstar this property answering dept sort name Health more like this
star this property hansard heading In Vitro Fertilisation more like this
star this property house id 1 more like this
star this property legislature
25259
star this property pref label House of Commons more like this
star this property question text To ask the Secretary of State for Health, where the unpublished, confidential evidence referred to in the updated Human Fertilisation and Embryology Authority report, Third scientific review of the safety and efficacy of methods to avoid mitochondrial disease through assisted conception will be published. more like this
star this property tabling member constituency Congleton more like this
star this property tabling member printed
Fiona Bruce more like this
star this property uin 211181 more like this
star this property answer
answer
unstar this property is ministerial correction false more like this
star this property date of answer remove filter
star this property answer text <p>The Human Fertilisation and Embryology Authority have advised that, by examining both published and unpublished research, the Expert Panel is able to take into account the very latest research on a confidential basis.</p><p> </p><p> </p><p> </p><p>Where the evidence is provided on a confidential basis, in time, that work will be published in peer reviewed journals. For example, some pieces of confidential evidence reviewed as part of the third scientific review have now been published in this way. These are:</p><p> </p><p> </p><p> </p><p>- Mitalipov, S. et al (2014). Limitations of Preimplantation Genetic Diagnosis for Mitochondrial DNA Diseases. Cell Reports 7(4);935-937</p><p> </p><p> </p><p> </p><p>- Chinnery PF. et al (2014) The challenges of mitochondrial replacement. PLoS Genet. 2014 24;10(4):e1004315</p><p> </p> more like this
star this property answering member constituency Battersea more like this
unstar this property answering member printed Jane Ellison more like this
star this property question first answered
less than 2014-10-27T17:02:21.5860631Zmore like thismore than 2014-10-27T17:02:21.5860631Z
star this property answering member
3918
star this property label Biography information for Jane Ellison more like this
star this property tabling member
3958
unstar this property label Biography information for Fiona Bruce more like this
99885
star this property registered interest false more like this
star this property date remove filter
star this property answering body
Department of Health more like this
star this property answering dept id 17 more like this
star this property answering dept short name Health more like this
unstar this property answering dept sort name Health more like this
star this property hansard heading Blood: Contamination more like this
star this property house id 1 more like this
star this property legislature
25259
star this property pref label House of Commons more like this
star this property question text To ask the Secretary of State for Health, pursuant to the Answer of 28 November 2012 to Question 129961, how many sufferers of bleeding disorders who received contaminated blood are in receipt of ex gratia packages; and what estimate he has made of the number who are eligible for such a package. more like this
star this property tabling member constituency Kingston upon Hull North more like this
star this property tabling member printed
Diana Johnson more like this
star this property uin 211183 more like this
star this property answer
answer
unstar this property is ministerial correction false more like this
star this property date of answer remove filter
star this property answer text <p>As at 22 October 2014, there are 532 individuals with bleeding disorders in receipt of at least one regular non-discretionary ex-gratia payment from MFET Ltd or Skipton Fund Ltd, for their HIV or Hepatitis C infection respectively. The Department has not made an estimate of those eligible for regular non-discretionary ex-gratia payments who have not to date applied for such payments.</p><p> </p><p> </p><p> </p><p>In addition, any individual with a bleeding disorder infected with HIV and in receipt of a regular payment from MFET Ltd is eligible to apply for discretionary support from the Macfarlane Trust. Any individual infected with only Hepatitis C who has received either a stage 1 or stage 2 payment from the Skipton Fund Ltd is eligible for discretionary support from the Caxton Foundation. There is also a range of other support for all such individuals, including counselling and cover for the cost of a Prescription Pre-payment Certificate.</p><p> </p> more like this
star this property answering member constituency Battersea more like this
unstar this property answering member printed Jane Ellison more like this
star this property question first answered
less than 2014-10-27T17:06:34.5275224Zmore like thismore than 2014-10-27T17:06:34.5275224Z
star this property answering member
3918
star this property label Biography information for Jane Ellison more like this
star this property tabling member
1533
unstar this property label Biography information for Diana Johnson more like this