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star this property registered interest false more like this
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Department of Health more like this
star this property answering dept id 17 more like this
unstar this property answering dept short name Health more like this
star this property answering dept sort name Health more like this
star this property hansard heading Neurofibromatosis more like this
star this property house id 2 more like this
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25277
star this property pref label House of Lords more like this
star this property question text To ask Her Majesty's Government what is the scale of neurofibromatosis Type 1 in the United Kingdom. more like this
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Lord Hunt of Kings Heath more like this
star this property uin HL962 more like this
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answer
star this property is ministerial correction false more like this
star this property date of answer less than 2014-07-14more like thismore than 2014-07-14
unstar this property answer text <p>The number of people with neurofibromatosis type 1 (NF1) in England is estimated to number 11,267. The condition can be mild in some patients, manifesting itself only in patches of skin discolouration and soft benign bumps under the skin (neurofibromas), but for others NF1 causes more serious complications, including a rare form of cancer, curvature of the spine and nerve problems caused by more invasive neurofibromas.</p><p> </p><p>Since 1 April 2013, NHS England has been responsible for securing high quality care for all patients with complex NF1 as part of its specialised commissioning responsibilities. NHS England's NF1 service specification clearly sets out what needs to be in place for providers to offer evidence-based, safe and effective care, ensuring equity of access to a nationally consistent, high quality service. Specialist care is delivered by two designated centres based in Manchester (Central Manchester University Hospitals NHS Foundation Trust) and London (Guys and St. Thomas' NHS Foundation Trust, London) and these provide outreach support into other cities. The service is available to all patients with a suspected or confirmed diagnosis of NF1.</p><p> </p><p>The service specification can be viewed on the NHS England website at the following link:</p><p> </p><p>www.england.nhs.uk/wp-content/uploads/2013/06/b13-comp-neurofib-1.pdf.</p>
star this property answering member printed Earl Howe more like this
star this property grouped question UIN
HL960 more like this
HL961 more like this
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remove filter
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2000
star this property label Biography information for Earl Howe more like this
star this property tabling member
2024
unstar this property label Biography information for Lord Hunt of Kings Heath more like this