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question first answered	2014-09-01T13:32:32.8787761Z
min ddp modified	2015-02-07T04:02:31.430Z
min ddp created	2014-05-01T19:31:02.270Z
registered interest	false
max date	2014-10-21
creator › label	Biography information for Andrew Percy

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registered interest

date

exactly:

or between:
and

answering body

answering dept id

answering dept short name

answering dept sort name

hansard heading

house id

legislature


pref label

question text

tabling member constituency

tabling member printed

uin

answer

is ministerial correction

date of answer

exactly:

or between:
and

answer text

answering member constituency

answering member printed

grouped question UIN

question first answered

answering member


label

tabling member


label

79376

registered interest

date

22/07/2014

answering body

Department of Health

answering dept id

answering dept short name

Health

answering dept sort name

Health

hansard heading

Idiopathic Pulmonary Fibrosis

house id

legislature

25259

pref label	House of Commons

question text

To ask the Secretary of State for Health, what processes are in place to ensure that idiopathic pulmonary fibrosis patients in the NHS and their families have access to high quality information about that condition.

tabling member constituency

Brigg and Goole

tabling member printed

Andrew Percy

uin

207029

answer

is ministerial correction

date of answer

01/09/2014

answer text

Information for both health professionals and patients about idiopathic pulmonary fibrosis (IPF) is available on the National institute for Health and Clinical Excellence (NICE) website at the following link: www.nice.org.uk/Guidance/Conditions-and-diseases/Respiratory-conditions/Pulmonary-fibrosis A guideline for IPF and a NICE Technology Appraisal for Pirfenidone as a treatment for IPF are available and an IPF Quality Standard is currently in development.The British Lung Foundation also offers advice which can be found at:www.blf.org.uk/Search?query=idiopathic+pulmonary+fibrosis Patient and public voice members are represented on the Specialised Respiratory Clinical Reference Group. Details can be found at:www.england.nhs.uk/ourwork/commissioning/spec-services/npc-crg/group-a/a14/The NHS standard contract for interstitial lung disease makes reference to the additional roles that specialist centres providing care have in relation to patient education and patient support groups.www.england.nhs.uk/wp-content/uploads/2013/06/a14-respiratory-inters-lung.pdf

answering member constituency

Battersea

answering member printed

Jane Ellison

grouped question UIN

207026

question first answered

01/09/2014 13:32:32

answering member

3918

label	Biography information for Jane Ellison

tabling member

3939

label	Biography information for Andrew Percy