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62512
registered interest false more like this
date less than 2014-06-18more like thismore than 2014-06-18
answering body
Department of Health more like this
answering dept id 17 more like this
answering dept short name Health more like this
answering dept sort name Health remove filter
hansard heading Medical Records: Data Protection remove filter
house id 2 more like this
legislature
25277
pref label House of Lords more like this
question text To ask Her Majesty's Government what steps they are taking to ensure that patient data held by the National Health Service are not sold improperly. more like this
tabling member printed
Lord Bourne of Aberystwyth more like this
uin HL441 more like this
answer
answer
is ministerial correction false more like this
date of answer less than 2014-07-02more like thismore than 2014-07-02
answer text <p>National Health Service organisations are individually accountable for their management of patient information and must comply with the Data Protection Act 1998 and common law confidentiality requirements. The sale of patient identifiable data, without patient consent, would be an unlawful act. Where data is brought together in large databases for purposes other than care - for example, commissioning and medical research – the Government intends to ensure that data will be handled in secure environments, for a limited range of approved purposes and under strict controls. The Government will shortly be consulting on the controls and safeguards that should be established to reassure patients and the wider public.</p><p> </p><p>The Government has made changes through the Care Act to extend the role of the independent Confidentiality Advisory Group (CAG), which advises the Secretary of State and the Health Research Authority on non-direct care uses of confidential health data. The CAG can advise the Health and Social Care Information Centre and ensure, as outlined in the Care Act that there is a clear legal basis to support the disclosure of patient data and that data are only used for care related purposes.</p><p> </p>
answering member printed Earl Howe more like this
question first answered
less than 2014-07-02T12:54:11.6577169Zmore like thismore than 2014-07-02T12:54:11.6577169Z
answering member
2000
label Biography information for Earl Howe more like this
tabling member
4282
label Biography information for Lord Bourne of Aberystwyth more like this