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1049589

registered interest
date	28/01/2019
answering body	Department of Health and Social Care
answering dept id	17
answering dept short name	Health and Social Care
answering dept sort name	Health and Social Care
hansard heading	Genetics
house id	2
legislature	25277 pref label House of Lords
question text	To ask Her Majesty's Government who authorised NHS England's scheme to allow people to pay to have their genes sequenced on the condition that they share their data.
tabling member printed	Lord Scriven
uin	HL13175
answer	answer is ministerial correction date of answer 11/02/2019 answer text <p>The second Life Sciences Sector Deal, published by the Government in December 2018, announced that Genomics England will undertake development work on a new service to enable volunteers to pay for a personalised report on their unique genetic makeup.</p><p>Genomics England are in the early stages of developing the scheme, working with patient groups and the public as well as key partners, including the National Health Service.</p><p>It will be developed in line with the founding principles of the NHS and established to the highest ethical standards.</p> answering member printed Baroness Blackwood of North Oxford grouped question UIN HL13176 question first answered 11/02/2019 17:38:56 answering member 4019 label Biography information for Baroness Blackwood of North Oxford
tabling member	4333 label Biography information for Lord Scriven

1049591

registered interest
date	28/01/2019
answering body	Department of Health and Social Care
answering dept id	17
answering dept short name	Health and Social Care
answering dept sort name	Health and Social Care
hansard heading	Genetics
house id	2
legislature	25277 pref label House of Lords
question text	To ask Her Majesty's Government what assessment they have made of the ethics implications of NHS England's scheme to allow people to pay to have their genes sequenced on the condition that they share their data.
tabling member printed	Lord Scriven
uin	HL13176
answer	answer is ministerial correction date of answer 11/02/2019 answer text <p>The second Life Sciences Sector Deal, published by the Government in December 2018, announced that Genomics England will undertake development work on a new service to enable volunteers to pay for a personalised report on their unique genetic makeup.</p><p>Genomics England are in the early stages of developing the scheme, working with patient groups and the public as well as key partners, including the National Health Service.</p><p>It will be developed in line with the founding principles of the NHS and established to the highest ethical standards.</p> answering member printed Baroness Blackwood of North Oxford grouped question UIN HL13175 question first answered 11/02/2019 17:38:57 answering member 4019 label Biography information for Baroness Blackwood of North Oxford
tabling member	4333 label Biography information for Lord Scriven

1025363

registered interest
date	14/12/2018
answering body	Department of Health and Social Care
answering dept id	17
answering dept short name	Health and Social Care
answering dept sort name	Health and Social Care
hansard heading	DeepMind
house id	2
legislature	25277 pref label House of Lords
question text	To ask Her Majesty's Government, further to the Written Answer by Lord O'Shaughnessy on 6 December (HL11728), what explanation they have received regarding Google’s plans for DeepMind Health; what assurances they have received that data transferred as part of the integration of DeepMind Health into Google cannot be used by any Google subsidiary; and whether the adequacy of these any arrangements in this regard will be independently verified.
tabling member printed	Lord Scriven
uin	HL12329
answer	answer is ministerial correction date of answer 20/12/2018 answer text <p>We have sought reassurance that none of the current contracts with National Health Service trusts will be transferred to Google, and any changes will require the agreement of the trusts. The patient data processed for Streams will remain controlled by the trusts, and will not be used for any purpose other than the provision of direct patient care, as specified in existing agreements.</p><p>We are working with DeepMind and Google as they consider how to provide assurance on the use of patient data as Streams grows into a global product. The Code of Conduct for Data Driven Technologies sets out the principles that we expect NHS trusts and industry partners to follow.</p> answering member printed Lord O'Shaughnessy question first answered 20/12/2018 14:05:39 answering member 4545 label Biography information for Lord O'Shaughnessy
tabling member	4333 label Biography information for Lord Scriven

1012536

registered interest
date	22/11/2018
answering body	Department of Health and Social Care
answering dept id	17
answering dept short name	Health and Social Care
answering dept sort name	Health and Social Care
hansard heading	DeepMind
house id	2
legislature	25277 pref label House of Lords
question text	To ask Her Majesty's Government what representations they have made to Google about the abolition of DeepMind Health’s independent review committee following the integration of DeepMind Health into Google; and what assessment they have made of the impact on the confidentiality of NHS patients’ data of DeepMind Health no longer being a separate subsidiary of Google.
tabling member printed	Lord Scriven
uin	HL11728
answer	answer is ministerial correction date of answer 06/12/2018 answer text <p>We will seek a full explanation from Google about its plans, including why they have halted the independent review panel and how they intend to replace this function.</p><p>We will work with regulators, including the Information Commissioner’s Office, and the Centre for Data Ethics and Innovation to ensure anything that happens as a result of the transfer of Streams respects patients’ privacy and complies fully with the law.</p><p>I met with DeepMind recently and raised this issue with them.</p> answering member printed Lord O'Shaughnessy question first answered 06/12/2018 15:09:34 answering member 4545 label Biography information for Lord O'Shaughnessy
tabling member	4333 label Biography information for Lord Scriven

1012537

registered interest
date	22/11/2018
answering body	Department of Health and Social Care
answering dept id	17
answering dept short name	Health and Social Care
answering dept sort name	Health and Social Care
hansard heading	DeepMind
house id	2
legislature	25277 pref label House of Lords
question text	To ask Her Majesty's Government what information was provided to NHS patients whose data are held by DeepMind Health before that company was integrated into Google rather than being a separate subsidiary; and whether patients gave informed consent for the handling of their data to be changed.
tabling member printed	Lord Scriven
uin	HL11729
answer	answer is ministerial correction date of answer 06/12/2018 answer text <p>At this moment in time no contracts have been signed or amended, or other arrangements put in place, and the Streams team have been open with us at the Department about their plans for the transition.</p><p>National Health Service trusts are the data controller and retain the responsibility for how the data is used and for gaining patient consent for any change of use.</p><p>We have received assurances from DeepMind that no Personally Identifiable Data has been transferred as a result of this corporate restructure.</p> answering member printed Lord O'Shaughnessy question first answered 06/12/2018 15:10:17 answering member 4545 label Biography information for Lord O'Shaughnessy
tabling member	4333 label Biography information for Lord Scriven

1012538

registered interest
date	22/11/2018
answering body	Department of Health and Social Care
answering dept id	17
answering dept short name	Health and Social Care
answering dept sort name	Health and Social Care
hansard heading	DeepMind
house id	2
legislature	25277 pref label House of Lords
question text	To ask Her Majesty's Government what independent verification is in place to make sure that the NHS data handled by DeepMind Health will be used only for appropriate purposes now that DeepMind Health is no longer a separate subsidiary of Google but has been fully integrated.
tabling member printed	Lord Scriven
uin	HL11730
answer	answer is ministerial correction date of answer 04/12/2018 answer text <p>We will work with regulators including the Health Research Agency, the Medicines and Healthcare products Regulatory Agency and the Information Commissioner’s Office, and with the Centre for Data Ethics and Innovation to ensure anything that happens as a result of the transfer of Streams respects patients’ privacy and complies fully with the law.</p> answering member printed Lord O'Shaughnessy question first answered 04/12/2018 14:21:40 answering member 4545 label Biography information for Lord O'Shaughnessy
tabling member	4333 label Biography information for Lord Scriven