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answering dept short name	Health and Social Care
identifier	275160
max ddp created	2019-07-17T14:40:19.187Z
min question first answered	2019-06-24T16:44:04.06Z
min answer › question first answered	2019-07-15T16:26:56.517Z
min ddp modified	2019-07-10T11:13:02.752Z
max answer › question first answered	2019-07-18T15:57:32.143Z

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registered interest

date

exactly:

or between:
and

answering body

answering dept id

answering dept short name

answering dept sort name

hansard heading

house id

legislature


pref label

question text

tabling member constituency

tabling member printed

uin

answer

is ministerial correction

date of answer

exactly:

or between:
and

answer text

answering member constituency

answering member printed

question first answered

answering member


label

tabling member


label

1137815

registered interest

date

09/07/2019

answering body

Department of Health and Social Care

answering dept id

answering dept short name

Health and Social Care

answering dept sort name

Health and Social Care

hansard heading

Stargardt Disease

house id

legislature

25259

pref label	House of Commons

question text

To ask the Secretary of State for Health and Social Care, what assessment his Department has made of the (a) prevalence and (b) adequacy of treatment options for the retinal degenerative disease Stargardt's.

tabling member constituency

Broxbourne

tabling member printed

Mr Charles Walker

uin

275160

answer

is ministerial correction

date of answer

16/07/2019

answer text

<p>The Department does not hold prevalence figures of retinal degenerative disease Stargardt's in England at present. The Government is working with Public Health England‘s National Congenital Anomaly and Rare Disease Registration Service (NCARDRS) which collects information about people with congenital abnormalities and rare diseases and covers the whole of England. NCARDRS is working to expand its data collection and work with interested parties to advance data collection including Stargardt's retinal degenerative disease.</p><p>Services for patients with retinal degenerative disease Stargardt's are provided by local clinical commissioning groups. There is currently no curative treatment available for patients. Patients are advised to reduce the speed of degeneration by avoiding exposure to bright light and wearing sunglasses.</p>

answering member constituency

South Ribble

answering member printed

Seema Kennedy

question first answered

16/07/2019 14:39:18

answering member

4455

label	Biography information for Seema Kennedy

tabling member

1493

label	Biography information for Sir Charles Walker