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1719722
registered interest false more like this
date less than 2024-05-21more like thismore than 2024-05-21
answering body
Department of Health and Social Care more like this
answering dept id 17 more like this
answering dept short name Health and Social Care remove filter
answering dept sort name Health and Social Care more like this
hansard heading Hospices: Children more like this
house id 1 more like this
legislature
25259
pref label House of Commons more like this
question text To ask the Secretary of State for Health and Social Care, pursuant to the Answer of 15 May 2024 to Question 25226, on Hospices: Children, when she plans that consideration of the future of the NHS Children's Hospice Grant beyond 2024/25 will be concluded. more like this
tabling member constituency Leeds North East more like this
tabling member printed
Fabian Hamilton more like this
uin 27289 more like this
answer
answer
is ministerial correction false more like this
date of answer less than 2024-05-24more like thismore than 2024-05-24
answer text <p>The Government is committed to the long-term sustainability of high-quality palliative and end of life care for all children and young people. The Children's Hospice Grant ended in 2023/24. NHS England has, however, once again provided £25 million of funding for children’s hospices for 2024/25, which will be distributed via integrated care boards as part of the Service Development Fund, in line with the move to wider National Health Service devolution. NHS England is currently considering the future of this funding stream beyond 2024/25.</p><p>NHS England has developed a palliative and end of life care dashboard, which brings together all relevant local data in one place. The dashboard helps commissioners understand the palliative and end of life care needs of their local population.</p> more like this
answering member constituency Faversham and Mid Kent more like this
answering member printed Helen Whately more like this
grouped question UIN 27290 more like this
question first answered
less than 2024-05-24T08:33:31.73Zmore like thismore than 2024-05-24T08:33:31.73Z
answering member
4527
label Biography information for Helen Whately more like this
tabling member
415
label Biography information for Fabian Hamilton more like this
1719723
registered interest false more like this
date less than 2024-05-21more like thismore than 2024-05-21
answering body
Department of Health and Social Care more like this
answering dept id 17 more like this
answering dept short name Health and Social Care remove filter
answering dept sort name Health and Social Care more like this
hansard heading Hospices: Children more like this
house id 1 more like this
legislature
25259
pref label House of Commons more like this
question text To ask the Secretary of State for Health and Social Care, pursuant to the Answer on 15 May 2024 to Question 25226 on Hospices: Children, what factors she plans to take into account when considering the future of the NHS Children's Hospice Grant beyond 2024-25. more like this
tabling member constituency Leeds North East more like this
tabling member printed
Fabian Hamilton more like this
uin 27290 more like this
answer
answer
is ministerial correction false more like this
date of answer less than 2024-05-24more like thismore than 2024-05-24
answer text <p>The Government is committed to the long-term sustainability of high-quality palliative and end of life care for all children and young people. The Children's Hospice Grant ended in 2023/24. NHS England has, however, once again provided £25 million of funding for children’s hospices for 2024/25, which will be distributed via integrated care boards as part of the Service Development Fund, in line with the move to wider National Health Service devolution. NHS England is currently considering the future of this funding stream beyond 2024/25.</p><p>NHS England has developed a palliative and end of life care dashboard, which brings together all relevant local data in one place. The dashboard helps commissioners understand the palliative and end of life care needs of their local population.</p> more like this
answering member constituency Faversham and Mid Kent more like this
answering member printed Helen Whately more like this
grouped question UIN 27289 more like this
question first answered
less than 2024-05-24T08:33:31.79Zmore like thismore than 2024-05-24T08:33:31.79Z
answering member
4527
label Biography information for Helen Whately more like this
tabling member
415
label Biography information for Fabian Hamilton more like this
1718804
registered interest false more like this
date less than 2024-05-16more like thismore than 2024-05-16
answering body
Department of Health and Social Care more like this
answering dept id 17 more like this
answering dept short name Health and Social Care remove filter
answering dept sort name Health and Social Care more like this
hansard heading Chronic Fatigue Syndrome: Medical Treatments more like this
house id 1 more like this
legislature
25259
pref label House of Commons more like this
question text To ask the Secretary of State for Health and Social Care, whether her Department (a) has and (b) plans to provide funding for new treatments for ME or chronic fatigue syndrome. more like this
tabling member constituency Leeds North East more like this
tabling member printed
Fabian Hamilton more like this
uin 26662 more like this
answer
answer
is ministerial correction false more like this
date of answer less than 2024-05-21more like thismore than 2024-05-21
answer text <p>The Department, through the National Institute for Health and Care Research (NIHR), provides funding for research projects which aim to understand the underlying causes of myalgic encephalomyelitis, also known as chronic fatigue syndrome (ME/CFS), and find new treatments for the condition. As part of this, the NIHR and the Medical Research Council have funded the world’s largest genome-wide association study of ME/CFS. This £3.2 million study, termed DecodeME, will analyse samples from 25,000 people with ME/CFS to search for genetic differences that may indicate underlying causes, or an increased risk of developing the condition. By helping us to understand ME/CFS better, this research has the potential to lead to new treatments for the condition.</p><p>Integrated care boards (ICBs) are responsible for commissioning specialist ME/CFS services that meet the needs of their population, subject to local prioritisation and funding. The process of commissioning services should take into account best practice guidance, such as the National Institute for Health and Care Excellence’s guidance on ME/CFS diagnosis and management, published in October 2021. In addition, in October 2023, the British Association of Clinicians in ME/CFS published the ME/CFS National Services Survey. This report provides insight into the services being delivered for adults, children, and young people with ME/CFS.</p>
answering member constituency Pendle more like this
answering member printed Andrew Stephenson more like this
grouped question UIN 26663 more like this
question first answered
less than 2024-05-21T08:08:03.32Zmore like thismore than 2024-05-21T08:08:03.32Z
answering member
4044
label Biography information for Andrew Stephenson more like this
tabling member
415
label Biography information for Fabian Hamilton more like this
1718805
registered interest false more like this
date less than 2024-05-16more like thismore than 2024-05-16
answering body
Department of Health and Social Care more like this
answering dept id 17 more like this
answering dept short name Health and Social Care remove filter
answering dept sort name Health and Social Care more like this
hansard heading Chronic Fatigue Syndrome: Health Services more like this
house id 1 more like this
legislature
25259
pref label House of Commons more like this
question text To ask the Secretary of State for Health and Social Care, if she will make an assessment of the adequacy of NHS provision of specialist ME or chronic fatigue syndrome services; and if she will take steps to increase the number of clinicians who specialise in ME or chronic fatigue syndrome. more like this
tabling member constituency Leeds North East more like this
tabling member printed
Fabian Hamilton more like this
uin 26663 more like this
answer
answer
is ministerial correction false more like this
date of answer less than 2024-05-21more like thismore than 2024-05-21
answer text <p>The Department, through the National Institute for Health and Care Research (NIHR), provides funding for research projects which aim to understand the underlying causes of myalgic encephalomyelitis, also known as chronic fatigue syndrome (ME/CFS), and find new treatments for the condition. As part of this, the NIHR and the Medical Research Council have funded the world’s largest genome-wide association study of ME/CFS. This £3.2 million study, termed DecodeME, will analyse samples from 25,000 people with ME/CFS to search for genetic differences that may indicate underlying causes, or an increased risk of developing the condition. By helping us to understand ME/CFS better, this research has the potential to lead to new treatments for the condition.</p><p>Integrated care boards (ICBs) are responsible for commissioning specialist ME/CFS services that meet the needs of their population, subject to local prioritisation and funding. The process of commissioning services should take into account best practice guidance, such as the National Institute for Health and Care Excellence’s guidance on ME/CFS diagnosis and management, published in October 2021. In addition, in October 2023, the British Association of Clinicians in ME/CFS published the ME/CFS National Services Survey. This report provides insight into the services being delivered for adults, children, and young people with ME/CFS.</p>
answering member constituency Pendle more like this
answering member printed Andrew Stephenson more like this
grouped question UIN 26662 more like this
question first answered
less than 2024-05-21T08:08:03.367Zmore like thismore than 2024-05-21T08:08:03.367Z
answering member
4044
label Biography information for Andrew Stephenson more like this
tabling member
415
label Biography information for Fabian Hamilton more like this