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1138929

registered interest
date	15/07/2019
answering body	Department for Work and Pensions
answering dept id	29
answering dept short name	Work and Pensions
answering dept sort name	Work and Pensions
hansard heading	Social Security Benefits: Terminal Illnesses
house id	1
legislature	25259 pref label House of Commons
question text	To ask the Secretary of State for Work and Pensions, how many applications for support under the special rules for terminal illness have been received by her Department in each year since the introduction of those rules.
tabling member constituency	Cardiff Central
tabling member printed	Jo Stevens
uin	277207
answer	answer is ministerial correction date of answer 18/07/2019 answer text <p>With regard to Personal Independence Payment (PIP), the latest available data on PIP registrations (applications) split by whether the claim was registered under Normal Rules or Special Rules for The Terminally Ill each month from the introduction of PIP in April 2013 to January 2019, the latest available data can be found at <a href="https://stat-xplore.dwp.gov.uk/" target="_blank">https://stat-xplore.dwp.gov.uk/</a></p><p> </p><p>The information requested could only be provided at disproportionate cost for Universal Credit, Employment and Support Allowance, Attendance Allowance and Disability Living Allowance.</p><p> </p><p>However, the available statistics for those terminally ill people who were allocated to the Support Group of Employment and Support Allowance, and terminally ill people on Disability Living Allowance and Attendance Allowance, can be found at:</p><p><a href="https://stat-xplore.dwp.gov.uk/" target="_blank">https://stat-xplore.dwp.gov.uk</a></p><p> </p><p>Guidance on how to use Stat-Xplore can be found here:</p><p><a href="https://stat-xplore.dwp.gov.uk/webapi/online-help/index.html" target="_blank">https://stat-xplore.dwp.gov.uk/webapi/online-help/index.html</a></p> answering member constituency North Swindon answering member printed Justin Tomlinson question first answered 18/07/2019 13:59:45 answering member 4105 label Biography information for Justin Tomlinson
tabling member	4425 label Biography information for Jo Stevens

1138422

registered interest
date	11/07/2019
answering body	Department for Work and Pensions
answering dept id	29
answering dept short name	Work and Pensions
answering dept sort name	Work and Pensions
hansard heading	Social Security Benefits: Terminal Illnesses
house id	1
legislature	25259 pref label House of Commons
question text	To ask the Secretary of State for Work and Pensions, what steps her Department is taking to improve access to benefits for all people who have been diagnosed as terminally ill.
tabling member constituency	Coventry South
tabling member printed	Mr Jim Cunningham
uin	276141
answer	answer is ministerial correction date of answer 16/07/2019 answer text <p>The Special Rules for Terminal Illness provide a guaranteed entitlement to benefit under a fast track process, without people being required to attend a face-to-face assessment.</p><p><strong> </strong></p><p>On 11 July the Secretary of State announced an in-depth evaluation of how the benefits system supports people nearing the end of their life, and those with the most severe conditions.</p> answering member constituency North Swindon answering member printed Justin Tomlinson question first answered 16/07/2019 12:38:34 answering member 4105 label Biography information for Justin Tomlinson
tabling member	308 label Biography information for Mr Jim Cunningham

1131366

registered interest
date	11/06/2019
answering body	Department for Work and Pensions
answering dept id	29
answering dept short name	Work and Pensions
answering dept sort name	Work and Pensions
hansard heading	Social Security Benefits: Terminal Illnesses
house id	1
legislature	25259 pref label House of Commons
question text	To ask the Secretary of State for Work and Pensions, if she publish a list of each consultation event or meeting her Department held during the process to develop the revised guidance notes for the DS1500 with the (a) dates on which those events or meetings took place and (b) names of the organisations or professional bodies represented at those events or meetings.
tabling member constituency	Vale of Clwyd
tabling member printed	Chris Ruane
uin	263067
answer	answer is ministerial correction date of answer 17/06/2019 answer text <p>The Department held two events, in December 2018 and January 2019. As well as a number of clinicians who attended in an individual capacity, organisations present were Marie Curie, the Motor Neurone Disease Association, Macmillan Cancer Support, and the Cystic Fibrosis Trust.</p> answering member constituency North Swindon answering member printed Justin Tomlinson question first answered 17/06/2019 15:14:42 answering member 4105 label Biography information for Justin Tomlinson
tabling member	534 label Biography information for Chris Ruane

1128546

registered interest
date	23/05/2019
answering body	Department for Work and Pensions
answering dept id	29
answering dept short name	Work and Pensions
answering dept sort name	Work and Pensions
hansard heading	Social Security Benefits: Terminal Illnesses
house id	1
legislature	25259 pref label House of Commons
question text	To ask the Secretary of State for Work and Pensions, whether she has made an assessment of the effectiveness of Scottish Government guidance for registered medical professionals on making clinical judgments about terminal illness; and if she will make a statement.
tabling member constituency	Bridgend
tabling member printed	Mrs Madeleine Moon
uin	257689
answer	answer is ministerial correction date of answer 10/06/2019 answer text <p>It is a matter for the Scottish Government how they assess entitlement for devolved benefits and to decide on appropriate guidance to support that.</p> answering member constituency North Swindon answering member printed Justin Tomlinson question first answered 10/06/2019 14:18:31 answering member 4105 label Biography information for Justin Tomlinson
tabling member	1490 label Biography information for Mrs Madeleine Moon

1128547

registered interest
date	23/05/2019
answering body	Department for Work and Pensions
answering dept id	29
answering dept short name	Work and Pensions
answering dept sort name	Work and Pensions
hansard heading	Social Security Benefits: Terminal Illnesses
house id	1
legislature	25259 pref label House of Commons
question text	To ask the Secretary of State for Work and Pensions, whether Scottish Government guidance for registered medical professionals on making clinical judgments about terminal illness was a contributory factor in revised UK guidance notes for the DS1500 form.
tabling member constituency	Bridgend
tabling member printed	Mrs Madeleine Moon
uin	257690
answer	answer is ministerial correction date of answer 10/06/2019 answer text <p>A variety of stakeholders were involved in the development of the revised guidance notes for the DS1500 form. This included specialist clinicians as well as disability charities, representing a broad clinical perspective. This work was a result of our continual improvement activity and engagement with stakeholders.</p> answering member constituency North Swindon answering member printed Justin Tomlinson grouped question UIN 257691 question first answered 10/06/2019 14:15:25 answering member 4105 label Biography information for Justin Tomlinson
tabling member	1490 label Biography information for Mrs Madeleine Moon

1128548

registered interest
date	23/05/2019
answering body	Department for Work and Pensions
answering dept id	29
answering dept short name	Work and Pensions
answering dept sort name	Work and Pensions
hansard heading	Social Security Benefits: Terminal Illnesses
house id	1
legislature	25259 pref label House of Commons
question text	To ask the Secretary of State for Work and Pensions, how many (a) consultants, (b) GPs and (c) specialist nurses were consulted during the process to develop the revised guidance notes for the DS1500 form.
tabling member constituency	Bridgend
tabling member printed	Mrs Madeleine Moon
uin	257691
answer	answer is ministerial correction date of answer 10/06/2019 answer text <p>A variety of stakeholders were involved in the development of the revised guidance notes for the DS1500 form. This included specialist clinicians as well as disability charities, representing a broad clinical perspective. This work was a result of our continual improvement activity and engagement with stakeholders.</p> answering member constituency North Swindon answering member printed Justin Tomlinson grouped question UIN 257690 question first answered 10/06/2019 14:15:25 answering member 4105 label Biography information for Justin Tomlinson
tabling member	1490 label Biography information for Mrs Madeleine Moon

1128549

registered interest
date	23/05/2019
answering body	Department for Work and Pensions
answering dept id	29
answering dept short name	Work and Pensions
answering dept sort name	Work and Pensions
hansard heading	Social Security Benefits: Terminal Illnesses
house id	1
legislature	25259 pref label House of Commons
question text	To ask the Secretary of State for Work and Pensions, pursuant to the Answer on 18 March 2019 to Question 230077, Personal Independence Payment, for what reasons 100 claims made under special rules for the terminally ill were disallowed due to non-return of Part 2 within the time limit.
tabling member constituency	Bridgend
tabling member printed	Mrs Madeleine Moon
uin	257692
answer	answer is ministerial correction date of answer 07/06/2019 answer text <p>The information requested is not readily available and could only be provided at disproportionate cost.</p><p> </p><p>Some claims to Personal Independence Payment made under special rules for terminally ill people can be found not to satisfy the definition of terminal illness. When this occurs the claim is processed under the normal rules, which includes asking the claimant to complete a PIP2 questionnaire. A claim can be disallowed if the claimant fails to return the PIP2 questionnaire under the normal rules process, even though the claimant originally made their claim under special rules for terminally ill people.</p> answering member constituency North Swindon answering member printed Justin Tomlinson question first answered 07/06/2019 15:16:19 answering member 4105 label Biography information for Justin Tomlinson
tabling member	1490 label Biography information for Mrs Madeleine Moon

1128550

registered interest
date	23/05/2019
answering body	Department for Work and Pensions
answering dept id	29
answering dept short name	Work and Pensions
answering dept sort name	Work and Pensions
hansard heading	Social Security Benefits: Terminal Illnesses
house id	1
legislature	25259 pref label House of Commons
question text	To ask the Secretary of State for Work and Pensions, what assessment she has made of the accessibility of the digital DS1500 service by GPs in the Welsh NHS who do not (a) have NHS smartcards and (b) use NHS.net email addresses.
tabling member constituency	Bridgend
tabling member printed	Mrs Madeleine Moon
uin	257693
answer	answer is ministerial correction date of answer 07/06/2019 answer text <p>User research with clinicians to develop the Report that a patient may live less than 6 months (Digital DS1500) found that using the NHS smartcard authentication into the service was the preferred approach to ensure sensitive patient data was protected. Extending smartcard identity management into Wales would be a decision for NHS Wales and at present there are no active plans to pursue this.</p> answering member constituency North Swindon answering member printed Justin Tomlinson question first answered 07/06/2019 15:08:21 answering member 4105 label Biography information for Justin Tomlinson
tabling member	1490 label Biography information for Mrs Madeleine Moon

1125924

registered interest
date	10/05/2019
answering body	Department for Work and Pensions
answering dept id	29
answering dept short name	Work and Pensions
answering dept sort name	Work and Pensions
hansard heading	Social Security Benefits: Terminal Illnesses
house id	1
legislature	25259 pref label House of Commons
question text	To ask the Secretary of State for Work and Pensions, if her Department will publish the recent advice given by the Deputy Chief Medical Officer on the definition of a terminal illness for the purpose of claiming benefits; and if she will make a statement.
tabling member constituency	Mansfield
tabling member printed	Ben Bradley
uin	252887
answer	answer is ministerial correction date of answer 20/05/2019 answer text <p><strong> </strong></p><p>The previous Deputy Chief Medical Officer carried out an informal meeting with a selection of specialist clinicians to discuss their views on the current Special Rules for Terminal Illness process. Being an informal meeting no formal report was produced.</p> answering member constituency North Swindon answering member printed Justin Tomlinson question first answered 20/05/2019 11:05:52 answering member 4105 label Biography information for Justin Tomlinson
tabling member	4663 label Biography information for Ben Bradley

1081902

registered interest
date	04/03/2019
answering body	Department for Work and Pensions
answering dept id	29
answering dept short name	Work and Pensions
answering dept sort name	Work and Pensions
hansard heading	Social Security Benefits: Terminal Illnesses
house id	1
legislature	25259 pref label House of Commons
question text	To ask the Secretary of State for Work and Pensions, what consultation with stakeholders his Department undertook in advance of its decision to include a reasonable expectation of death within six months provision as a requirement for the issue of a DS1500 form.
tabling member constituency	Birkenhead
tabling member printed	Frank Field
uin	227974
answer	answer is ministerial correction date of answer 07/03/2019 answer text <p>We take terminal illness very seriously and treat people in such circumstances with the upmost speed and sensitivity. Our process for supporting people who have a terminal illness with a life expectancy of six months or less has been designed specifically to enable decisions to be fast tracked at all stages. Where we receive a correctly completed form DS1500, the decision that a person has limited capability for work and work related activity is normally made within a few days.</p><p> </p><p>The DS1500 is not a claim form and its use in providing evidential support for claims from people who are terminally ill claiming benefit is not obligatory. GPs, Consultants and specialist nurses have direct access to the blank DS1500 report and either send the completed report to DWP or give it to the claimant or their representative.</p><p> </p><p>The special rules applying to people who are terminally ill, including the reasonable expectation of death within 6-month rule, were first introduced in 1990 for Attendance Allowance following a recommendation from the Social Security Advisory Committee. The rules are common to a range of benefits and are also used elsewhere, for example the Early Access to Financial Assistance Scheme, administered by the Pension Protection Fund. The design of Universal Credit for terminally ill claimants is based on this well tested process. This is not a separate entitlement; this is part of the Universal Credit process, and as such we do not hold the requested data. The Universal Credit Programme is considering what management information and data will be published.</p><p> </p><p>The Department and the Universal Credit Programme have regular meetings with key stakeholders to understand how our policies are working and discuss potential areas for improvement. We will continue to keep procedures under review to ensure that they work as effectively as possible.</p><p> </p><p>Universal Credit provides enhanced personalised support. All claimants, including terminally ill patients, receive continuous tailored support managed through personal work coaches, who know each person. Claimants have several options for how they would like to progress their claim, and we will support them in the most sensitive way possible.</p><p> </p><p>For example, if they would rather not continue submitting information online, our Jobcentre staff can either telephone or visit them, to provide support in making their initial claim and completing any other administrative tasks required to ensure that they receive the correct payment. If a claimant does not want to tell us about their condition themselves, then they can appoint a representative, such as a relative, friend, doctor or charitable organisation to let us know on their behalf. We accept information directly from claimant representatives, such as claimant appointees or third party organisations representing the claimant, as well as details supplied to DWP Universal Credit partnership managers or external engagement officials.</p> answering member constituency Truro and Falmouth answering member printed Sarah Newton grouped question UIN 227959 227960 227961 227975 227976 question first answered 07/03/2019 12:22:35 answering member 4071 label Biography information for Sarah Newton
tabling member	478 label Biography information for Lord Field of Birkenhead