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1138819

registered interest
date	15/07/2019
answering body	Department of Health and Social Care
answering dept id	17
answering dept short name	Health and Social Care
answering dept sort name	Health and Social Care
hansard heading	Health Services: Technology
house id	1
legislature	25259 pref label House of Commons
question text	To ask the Secretary of State for Health and Social Care, what steps he will take to ensure the broadest number of patient groups can participate in the National Institute for Health and Care Excellence’s review of health technology assessment methods and processes.
tabling member constituency	Scunthorpe
tabling member printed	Nic Dakin
uin	277172
answer	answer is ministerial correction date of answer 23/07/2019 answer text <p>There are three patient/lay representatives on the methods working group with a wide range of experience, covering a range of topic areas, reflecting the programmes under review. Two of the patient/lay representatives also belong to the Patients Involved in NICE coalition.</p><p>Patient groups will be involved in the review of each of the specific methodological areas as detailed in the paper presented to the NICE board on 17 July 2019. Experts in the area will be invited to participate in topic specific methods task and finish groups.</p><p>NICE has established a dedicated patient working group. There are six patient organisation representatives on the group, including those who belong to the Patients Involved in NICE coalition. The group will work directly with patient/carer groups to coordinate the patient perspective on both methods and process. A stakeholder workshop with patient groups was held in January 2019 that included representatives from 22 patient organisations.</p><p>The patient working group has recently disseminated a survey to patient umbrella groups to develop a clear understanding of the patient perspective on both methods and processes. The survey runs until 5pm on Monday 12 August 2019. It will be promoted via social media and sent directly to groups working with NICE. Patient organisations can communicate with representatives on the methods working group and patient working group outside of this survey.</p><p>Patient organisations will have the opportunity to comment directly on proposals during the public consultation in summer 2020.</p><p>NICE is implementing other opportunities to encourage more patient group involvement throughout the review via provision of a subscription based bulletin for updates and information (which people can subscribe to via their website) and exploring arrangements of additional engagement sessions (i.e. webinars), as and when appropriate.</p><p> </p> answering member constituency South Ribble answering member printed Seema Kennedy grouped question UIN 277170 277171 question first answered 23/07/2019 16:34:14 answering member 4455 label Biography information for Seema Kennedy
tabling member	4056 label Biography information for Nic Dakin

1138859

registered interest
date	15/07/2019
answering body	Department of Health and Social Care
answering dept id	17
answering dept short name	Health and Social Care
answering dept sort name	Health and Social Care
hansard heading	Genetics: Screening
house id	1
legislature	25259 pref label House of Commons
question text	To ask the Secretary of State for Health and Social Care, with reference to the Clinical Advisory Group for Genomics, if he will set out (a) its terms of reference, (b) when it will first meet, (c) how patient voice will be incorporated into its work, (d) who it will report to and (e) when the (i) Commissioning Policy for Preimplantation Genetic Diagnosis review and (ii) other work of its predecessor, the Clinical Reference Group for Medical Genetics, will be completed; and if he will make a statement.
tabling member constituency	Hornsey and Wood Green
tabling member printed	Catherine West
uin	277243
answer	answer is ministerial correction date of answer 23/07/2019 answer text <p>NHS England has paused the recruitment for the clinical genetics clinical reference group to ensure the right advisory groups are in place to provide clinical advice across the breadth and depth of the future NHS Genomic Medicine Service.</p><p>These new arrangements will need consider clinical genetics and genetic counselling, but also wider implications of genomics for the National Health Service. Any future arrangements will have appropriate representation, including patient and public voices.</p><p>NHS England is progressing the clinical commissioning policy for Preimplantation Genetic Diagnosis (PGD). This work will include assessment of the treatment pathways for existing PGD services and consideration of the ethical issues. NHS England will continue to seek input from clinicians and patients throughout this work.</p> answering member constituency Gosport answering member printed Caroline Dinenage question first answered 23/07/2019 16:06:02 answering member 4008 label Biography information for Dame Caroline Dinenage
tabling member	4523 label Biography information for Catherine West

1138879

registered interest
date	15/07/2019
answering body	Department of Health and Social Care
answering dept id	17
answering dept short name	Health and Social Care
answering dept sort name	Health and Social Care
hansard heading	Audiology and Hearing Aids
house id	1
legislature	25259 pref label House of Commons
question text	To ask the Secretary of State for Health and Social Care, pursuant to the Answer on 12 June 2019 to Question 260081, whether his Department will require Clinical Commissioning Groups to collect and publish data in a comparable form on (a) the amount spent on audiology services, (b) the number of hearing aids fitted and (c) outcomes of hearing aid fittings.
tabling member constituency	North Tyneside
tabling member printed	Mary Glindon
uin	277193
answer	answer is ministerial correction date of answer 23/07/2019 answer text <p>Clinical commissioning groups (CCGs) are responsible for the collection and collation of audiology data to enable them to manage regional needs. NHS England has no plans to mandate CCGs to collect or publish their data in a comparable form.</p> answering member constituency Gosport answering member printed Caroline Dinenage question first answered 23/07/2019 16:03:42 answering member 4008 label Biography information for Dame Caroline Dinenage
tabling member	4126 label Biography information for Mary Glindon