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1225148

registered interest
date	15/07/2020
answering body	Department of Health and Social Care
answering dept id	17
answering dept short name	Health and Social Care
answering dept sort name	Health and Social Care
hansard heading	Multiple Sclerosis
house id	1
legislature	25259 pref label House of Commons
question text	To ask the Secretary of State for Health and Social Care, what estimate his Department has made of the number of people affected by secondary progressive multiple sclerosis.
tabling member constituency	West Lancashire
tabling member printed	Rosie Cooper
uin	74470
answer	answer is ministerial correction date of answer 23/07/2020 answer text <p>The National Institute for Health and Care Excellence estimates that secondary progressive multiple sclerosis (MS) affects around 9,000 people in England. Secondary progressive MS is a stage which comes after relapsing remitting MS for many people with the condition. After a diagnosis of relapsing remitting MS has been established, clinicians will observe the patient's symptoms over a period of time, in order to determine if they are associated with secondary progressive MS. With this type of MS, a person’s disability gets steadily worse and they are less likely to have relapses (when symptoms get worse but then get better).</p> answering member constituency Faversham and Mid Kent answering member printed Helen Whately grouped question UIN 74471 question first answered 23/07/2020 11:36:53 answering member 4527 label Biography information for Helen Whately previous answer version 38832 answering member constituency Faversham and Mid Kent answering member printed Helen Whately answering member 4527 label Biography information for Helen Whately
tabling member	1538 label Biography information for Rosie Cooper

1225150

registered interest
date	15/07/2020
answering body	Department of Health and Social Care
answering dept id	17
answering dept short name	Health and Social Care
answering dept sort name	Health and Social Care
hansard heading	Multiple Sclerosis: Diagnosis
house id	1
legislature	25259 pref label House of Commons
question text	To ask the Secretary of State for Health and Social Care, what steps his Department is taking to improve the diagnosis of secondary progressive multiple sclerosis.
tabling member constituency	West Lancashire
tabling member printed	Rosie Cooper
uin	74471
answer	answer is ministerial correction date of answer 23/07/2020 answer text <p>The National Institute for Health and Care Excellence estimates that secondary progressive multiple sclerosis (MS) affects around 9,000 people in England. Secondary progressive MS is a stage which comes after relapsing remitting MS for many people with the condition. After a diagnosis of relapsing remitting MS has been established, clinicians will observe the patient's symptoms over a period of time, in order to determine if they are associated with secondary progressive MS. With this type of MS, a person’s disability gets steadily worse and they are less likely to have relapses (when symptoms get worse but then get better).</p> answering member constituency Faversham and Mid Kent answering member printed Helen Whately grouped question UIN 74470 question first answered 23/07/2020 11:36:53 answering member 4527 label Biography information for Helen Whately previous answer version 38833 answering member constituency Faversham and Mid Kent answering member printed Helen Whately answering member 4527 label Biography information for Helen Whately
tabling member	1538 label Biography information for Rosie Cooper

1225152

registered interest
date	15/07/2020
answering body	Department of Health and Social Care
answering dept id	17
answering dept short name	Health and Social Care
answering dept sort name	Health and Social Care
hansard heading	Multiple Sclerosis: Health Services
house id	1
legislature	25259 pref label House of Commons
question text	To ask the Secretary of State for Health and Social Care, what support his Department is providing to local NHS services to improve the care of people with secondary progressive multiple sclerosis.
tabling member constituency	West Lancashire
tabling member printed	Rosie Cooper
uin	74472
answer	answer is ministerial correction date of answer 23/07/2020 answer text <p>In order to improve the care and outcomes for people with progressive neurological conditions, such as secondary progressive multiple sclerosis (MS), NHS England and NHS Improvement produced a progressive neurological conditions RightCare toolkit, in collaboration with key stakeholders such as the MS Trust and the MS Society. This toolkit supports systems to understand the priorities in care for people living with various progressive neurological conditions, in line with best practice guidelines.</p><p> </p><p>The National Institute for Health and Care Excellence (NICE) guideline ‘Multiple sclerosis in adults: management’, updated in 2019 sets out best practice on the diagnosis, treatment, care and support of people MS. On secondary progressive MS, the guidance sets out that “While a variety of symptomatic treatments is available, progression in secondary progressive MS is currently intractable, and immunomodulatory strategies used for relapse remitting MS have not proven effective when extended into secondary progressive MS.”</p><p> </p><p> </p> answering member constituency Faversham and Mid Kent answering member printed Helen Whately grouped question UIN 74473 question first answered 23/07/2020 11:44:05 answering member 4527 label Biography information for Helen Whately
tabling member	1538 label Biography information for Rosie Cooper

1225153

registered interest
date	15/07/2020
answering body	Department of Health and Social Care
answering dept id	17
answering dept short name	Health and Social Care
answering dept sort name	Health and Social Care
hansard heading	Multiple Sclerosis: Health Services
house id	1
legislature	25259 pref label House of Commons
question text	To ask the Secretary of State for Health and Social Care, what steps his Department is taking to improve outcomes for people living with secondary progressive multiple sclerosis.
tabling member constituency	West Lancashire
tabling member printed	Rosie Cooper
uin	74473
answer	answer is ministerial correction date of answer 23/07/2020 answer text <p>In order to improve the care and outcomes for people with progressive neurological conditions, such as secondary progressive multiple sclerosis (MS), NHS England and NHS Improvement produced a progressive neurological conditions RightCare toolkit, in collaboration with key stakeholders such as the MS Trust and the MS Society. This toolkit supports systems to understand the priorities in care for people living with various progressive neurological conditions, in line with best practice guidelines.</p><p> </p><p>The National Institute for Health and Care Excellence (NICE) guideline ‘Multiple sclerosis in adults: management’, updated in 2019 sets out best practice on the diagnosis, treatment, care and support of people MS. On secondary progressive MS, the guidance sets out that “While a variety of symptomatic treatments is available, progression in secondary progressive MS is currently intractable, and immunomodulatory strategies used for relapse remitting MS have not proven effective when extended into secondary progressive MS.”</p><p> </p><p> </p> answering member constituency Faversham and Mid Kent answering member printed Helen Whately grouped question UIN 74472 question first answered 23/07/2020 11:44:05 answering member 4527 label Biography information for Helen Whately
tabling member	1538 label Biography information for Rosie Cooper

1225154

registered interest
date	15/07/2020
answering body	Department of Health and Social Care
answering dept id	17
answering dept short name	Health and Social Care
answering dept sort name	Health and Social Care
hansard heading	Multiple Sclerosis: Health Services
house id	1
legislature	25259 pref label House of Commons
question text	To ask the Secretary of State for Health and Social Care, what steps he plans to take to implement the recommendations of the report, The Forgotten Many: A 2020 Vision for Secondary Progressive Multiple Sclerosis, published in June 2020.
tabling member constituency	West Lancashire
tabling member printed	Rosie Cooper
uin	74474
answer	answer is ministerial correction date of answer 04/08/2020 answer text <p>‘The Forgotten Many: A 2020 Vision for Secondary Progressive Multiple Sclerosis’, was published in June 2020 and was funded by Novartis.</p><p>The report sets out a wide range of recommendations for NHS England and NHS Improvement and local commissioners around awareness, treatment pathways and support. NHS England and NHS Improvement are aware of the report, and a range of activity is underway to improve awareness, treatment, care and support for people neurological conditions, including secondary progressive multiple sclerosis (SPMS), which are relevant to the recommendations.</p> answering member constituency Faversham and Mid Kent answering member printed Helen Whately question first answered 04/08/2020 13:59:50 answering member 4527 label Biography information for Helen Whately previous answer version 38834 answering member constituency Faversham and Mid Kent answering member printed Helen Whately answering member 4527 label Biography information for Helen Whately
tabling member	1538 label Biography information for Rosie Cooper