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<p>The review of whether to screen for spinal muscular atrophy (SMA) is under active
consideration. At the June UK National Screening Committee (UK NSC) meeting this was
tabled for discussion. Minutes of this meeting are available at the following link:</p><p><a
href="https://www.gov.uk/government/publications/uk-nsc-meeting-june-2023/uk-nsc-minutes-june-2023"
target="_blank">https://www.gov.uk/government/publications/uk-nsc-meeting-june-2023/uk-nsc-minutes-june-2023</a></p><p>The
UK NSC supported the proposal to commission a cost effectiveness modelling study and
to start planning a high-quality in-service evaluation to support a UK NSC recommendation.
Due to these new decisions made at the June meeting, no timetable has yet been developed.</p><p>As
per the UK NSC’s published process, the committee will hold a three-month public consultation
on SMA inviting stakeholders and members of the public to comment and submit further
evidence for consideration. It will keep the public abreast of developments via its
blogs and ongoing stakeholder engagement activities.</p>
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