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<p>In 2019, NHS England identified those specialised services in which patients with
rare diseases are treated and asked the 150 providers that deliver these services
to self-assess against three key criteria: care coordination; alert cards; and transition.
In total, 1,000 clinical teams undertook the assessment and the completion rate was
85%. Of those providers that self-assessed: 91% confirmed that there is a person responsible
for coordinating the care of any patient with a rare disease; 56% confirmed that they
gave each person an alert card; and 91% confirmed that they had active transition
in place.</p><p>Alert cards are already used in some hospitals that treat patients
with thrombotic thrombocytopenic purpura. NHS England is currently in the process
of commissioning a service for patients with thrombotic thrombocytopenic purpura.
Once a full, national service is established, an alert card will be rolled out across
the service.</p>
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