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1579651

registered interest
date	23/01/2023
answering body	Department of Health and Social Care
answering dept id	17
answering dept short name	Health and Social Care
answering dept sort name	Health and Social Care
hansard heading	Medical Records: Data Protection
house id	1
legislature	25259 pref label House of Commons
question text	To ask the Secretary of State for Health and Social Care, pursuant to the Answer of 23 December 2022 to Question 111586, on Medical Records: Data Protection, in which specific circumstances personal health data can be used for purposes beyond individual care and treatment; what is the legal basis for any such disclosure; and whether his Department informs the affected patients.
tabling member constituency	Newcastle upon Tyne Central
tabling member printed	Chi Onwurah
uin	129802
answer	answer is ministerial correction date of answer 31/01/2023 answer text <p>Health and care organisations must ensure there is a lawful basis for sharing confidential patient information from a person's medical records for purposes beyond their individual care and treatment. This will generally mean that the person has provided their consent; there is a statutory or other legal requirement to disclose information; or there is an overriding public interest justification.</p><p>When using personal data, health and care organisations must comply with UK General Data Protection Regulation (UKGDPR) requirements and are guided by the eight Caldicott principles which state that confidential patient information should only be used when it is lawful, necessary and there is a clear purpose for doing so.</p><p>There are a limited number of legal gateways that set aside the common law duty of confidentiality, such as the powers of NHS Digital under the Health and Social Care Act 2012 to require or request data- for example for purposes directed by the Secretary of State for Health and Social Care. In addition, where it can be demonstrated that it is impracticable to obtain patient consent or work with anonymised data, the Health Service (Control of Patient Information) Regulations 2002 permit personal information to be used for cancer registries, communicable diseases and other threats to public health and enable the approval of the use of confidential patient information for other ‘medical purpose’s such as research, clinical audit and service planning by the Health Research Authority (HRA), for research, or the Secretary of State, for other medical purposes. Before approving such applications, the HRA and Secretary of State must be advised by the Confidentiality Advisory Group, an independent body which considers all applications, balancing patient and public interest with appropriate use of confidential patient information without consent.</p><p>Both the UKGDPR and Caldicott principles include specific principles related to transparency and it is the responsibility of each health and care organisation to make a range of information materials readily available to patients and members of the public about what, why, how, when and where confidential patient information might be shared.</p> answering member constituency Colchester answering member printed Will Quince grouped question UIN 129803 question first answered 31/01/2023 16:25:16 answering member 4423 label Biography information for Will Quince previous answer version 50770 answering member constituency Colchester answering member printed Will Quince answering member 4423 label Biography information for Will Quince
tabling member	4124 label Biography information for Chi Onwurah

1552156

registered interest
date	15/12/2022
answering body	Department of Health and Social Care
answering dept id	17
answering dept short name	Health and Social Care
answering dept sort name	Health and Social Care
hansard heading	Medical Records: Data Protection
house id	1
legislature	25259 pref label House of Commons
question text	To ask the Secretary of State for Health and Social Care, what his Department's policy is on the sharing of personal health data with organisations outside the NHS (a) with and (b) without a person's permission.
tabling member constituency	Newcastle upon Tyne Central
tabling member printed	Chi Onwurah
uin	111586
answer	answer is ministerial correction date of answer 23/12/2022 answer text <p>The use of patient information must comply with data protection legislation and the common law duty of confidence, where appropriate. Personal health data can only be used for purposes beyond individual care and treatment in specific circumstances and there must be a legal basis for any disclosure.</p><p>Confidential patient information can only be shared for non-health purposes where an individual has provided consent, where there is an over-riding public interest, where the information is required by law, or where there is a legal gateway which sets aside the common law duty of confidence. Any disclosure of patient data held within NHS Digital must comply with section 261 of the Health and Social Care Act 2012. Applications for access to patient data held by NHS Digital is made to its Data Access Request Service.</p><p>The National Data Opt-Out introduced in 2018 allows patients, in specified circumstances, to opt-out of their information being used for research or planning purposes and has been mandatory since 31 July 2022.</p> answering member constituency Colchester answering member printed Will Quince question first answered 23/12/2022 14:59:22 answering member 4423 label Biography information for Will Quince previous answer version 43984 answering member constituency Colchester answering member printed Will Quince answering member 4423 label Biography information for Will Quince
tabling member	4124 label Biography information for Chi Onwurah

1546604

registered interest
date	29/11/2022
answering body	Department of Health and Social Care
answering dept id	17
answering dept short name	Health and Social Care
answering dept sort name	Health and Social Care
hansard heading	Clinical Trials: Costs
house id	1
legislature	25259 pref label House of Commons
question text	To ask the Secretary of State for Health and Social Care, whether his Department has plans to legislate to make clinical trial costs public information.
tabling member constituency	Newcastle upon Tyne Central
tabling member printed	Chi Onwurah
uin	98763
answer	answer is ministerial correction date of answer 06/12/2022 answer text <p>There are no plans to do so.</p> answering member constituency Colchester answering member printed Will Quince question first answered 06/12/2022 10:11:51 answering member 4423 label Biography information for Will Quince previous answer version 39309 answering member constituency Colchester answering member printed Will Quince answering member 4423 label Biography information for Will Quince
tabling member	4124 label Biography information for Chi Onwurah

1536554

registered interest
date	26/10/2022
answering body	Department of Health and Social Care
answering dept id	17
answering dept short name	Health and Social Care
answering dept sort name	Health and Social Care
hansard heading	Voluntary Scheme for Branded Medicines Pricing and Access
house id	1
legislature	25259 pref label House of Commons
question text	To ask the Secretary of State for Health and Social Care, what (a) meetings and (b) discussions he has with representatives of (i) pharmaceutical and (ii) life science companies on changes to the Voluntary Scheme for Branded Medicines Pricing and Access (VPAS); and what assessment he has made of the potential impact of changes to the VPAS rebate rate on foreign direct investment into UK life science R&D.
tabling member constituency	Newcastle upon Tyne Central
tabling member printed	Chi Onwurah
uin	72255
answer	answer is ministerial correction date of answer 03/11/2022 answer text <p>Ministerial meetings are published on GOV.UK at the following link:</p><p> </p><p><a href="https://www.gov.uk/government/collections/ministerial-gifts-hospitality-overseas-travel-and-meetings#2022" target="_blank">https://www.gov.uk/government/collections/ministerial-gifts-hospitality-overseas-travel-and-meetings#2022</a></p><p> </p><p>No specific assessment of the potential impact of changes to the Voluntary Scheme for Branded Medicines Pricing and Access rebate rate has been made. Changes to payment percentages reflects the Scheme working as intended to adjust for increased sales of branded medicines to the National Health Service. This will result in payment percentages at the rates projected when the Scheme was agreed with industry.</p> answering member constituency Colchester answering member printed Will Quince question first answered 03/11/2022 18:15:17 answering member 4423 label Biography information for Will Quince previous answer version 29183 answering member constituency Colchester answering member printed Will Quince answering member 4423 label Biography information for Will Quince
tabling member	4124 label Biography information for Chi Onwurah

1172530

registered interest
date	22/01/2020
answering body	Department for Work and Pensions
answering dept id	29
answering dept short name	Work and Pensions
answering dept sort name	Work and Pensions
hansard heading	Food Poverty: Newcastle upon Tyne
house id	1
legislature	25259 pref label House of Commons
question text	To ask the Secretary of State for Work and Pensions, what steps he plans to take to tackle food poverty in Newcastle upon Tyne constituency.
tabling member constituency	Newcastle upon Tyne Central
tabling member printed	Chi Onwurah
uin	6678
answer	answer is ministerial correction date of answer 28/01/2020 answer text <p>The government is committed to delivering a sustainable long-term solution to poverty in all its forms and in all parts of the UK by building a strong economy and ensuring that the benefit system works with the tax system and the labour market to support employment and higher pay.</p><p>The evidence shows that full time work substantially reduces the risk of being in poverty. Universal Credit is designed to help people move into work faster, stay in work longer and spend more time looking to increase their earnings, provides more financial help with childcare costs and removes the 16-hour ‘cliff edge<strong>’</strong> for those who are working. To help families keep more of what they earn we have delivered another rise in the National Living Wage, increasing a full-time worker’s annual pay by over £2,750 since its introduction, and by nearly £3,700 with the recently announced rise from this April, with our tax changes making basic rate tax payers over £1,200 better off from April 2019, compared with 2010.</p><p>In order to develop a better understanding of the drivers of food insecurity and identify which groups are most at risk we have introduced a new set of food security questions in the Family Resources Survey questionnaire from April 2019 onwards. This will enable us in the future to monitor the prevalence and severity of household food insecurity across the UK and for specific groups.</p> answering member constituency Colchester answering member printed Will Quince grouped question UIN 7197 question first answered 28/01/2020 17:41:58 answering member 4423 label Biography information for Will Quince previous answer version 3147 answering member constituency Colchester answering member printed Will Quince answering member 4423 label Biography information for Will Quince
tabling member	4124 label Biography information for Chi Onwurah