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1245059
registered interest false more like this
date less than 2020-10-20more like thismore than 2020-10-20
answering body
Department of Health and Social Care more like this
answering dept id 17 remove filter
answering dept short name Health and Social Care more like this
answering dept sort name Health and Social Care more like this
hansard heading Rare Diseases: Medical Treatments more like this
house id 1 more like this
legislature
25259
pref label House of Commons more like this
question text To ask the Secretary of State for Health and Social Care, what plans his Department has to consult with rare disease patient groups throughout the UK to ensure that the proposed Innovative Medicines Fund is able to support access to innovative medicines for rare diseases. more like this
tabling member constituency Harrow East remove filter
tabling member printed
Bob Blackman more like this
uin 106326 more like this
answer
answer
is ministerial correction false remove filter
date of answer remove maximum value filtermore like thismore than 2020-11-04
answer text <p>Proposals for the Innovative Medicines Fund are in development and we expect NHS England and NHS Improvement and the National Institute for Health and Care Excellence to lead an engagement exercise early next year.</p><p>The engagement exercise will involve the pharmaceutical industry, the National Health Service and associated bodies and patient groups, including those with rare diseases.</p><p> </p> more like this
answering member constituency Bury St Edmunds more like this
answering member printed Jo Churchill more like this
question first answered
less than 2020-11-04T14:41:48.717Zmore like thismore than 2020-11-04T14:41:48.717Z
answering member
4380
label Biography information for Jo Churchill more like this
tabling member
4005
label Biography information for Bob Blackman more like this
1237036
registered interest false more like this
date less than 2020-09-23more like thismore than 2020-09-23
answering body
Department of Health and Social Care more like this
answering dept id 17 remove filter
answering dept short name Health and Social Care more like this
answering dept sort name Health and Social Care more like this
hansard heading Dementia: Coronavirus more like this
house id 1 more like this
legislature
25259
pref label House of Commons more like this
question text To ask the Secretary of State for Health and Social Care, what plans he has to ensure people with dementia can have safe social contact with their family and friends during the covid-19 outbreak. more like this
tabling member constituency Harrow East remove filter
tabling member printed
Bob Blackman more like this
uin 94400 more like this
answer
answer
is ministerial correction false remove filter
date of answer less than 2020-10-08more like thismore than 2020-10-08
answer text <p>The Government guidance ‘Coronavirus (COVID-19): Meeting with others safely (social distancing)’ provides guidance for seeing friends and family and can be used by people living with dementia and their family and friends. The guidance is available at the following link:</p><p><a href="https://www.gov.uk/government/publications/coronavirus-covid-19-meeting-with-others-safely-social-distancing/coronavirus-covid-19-meeting-with-others-safely-social-distancing" target="_blank">https://www.gov.uk/government/publications/coronavirus-covid-19-meeting-with-others-safely-social-distancing/coronavirus-covid-19-meeting-with-others-safely-social-distancing</a></p><p>The Government also published guidance on how people can make a support bubble with another household. The guidance is available at the following link:</p><p><a href="https://www.gov.uk/guidance/making-a-support-bubble-with-another-household" target="_blank">https://www.gov.uk/guidance/making-a-support-bubble-with-another-household</a></p><p>Local lockdown regulations exempt those providing care or assistance to a vulnerable person from the prohibition on household mixing.</p><p>In the ‘Adult social care: coronavirus (COVID-19) winter plan 2020 to 2021’, published on 18 September, we set out tightened infection prevention and control measures to enable visits to care home residents to continue safely. The plan is available at the following link:</p><p><a href="https://www.gov.uk/government/publications/adult-social-care-coronavirus-covid-19-winter-plan-2020-to-2021" target="_blank">https://www.gov.uk/government/publications/adult-social-care-coronavirus-covid-19-winter-plan-2020-to-2021</a></p><p>We published visiting guidance on 22 July 2020 which outlined how providers, based on the views of their local Director of Public Health, could take a dynamic risk-based approach to allow visiting where safe. This guidance will shortly be updated to reflect the changes announced in the winter plan and is available at the following link:</p><p><a href="https://www.gov.uk/government/publications/visiting-care-homes-during-coronavirus/update-on-policies-for-visiting-arrangements-in-care-homes" target="_blank">https://www.gov.uk/government/publications/visiting-care-homes-during-coronavirus/update-on-policies-for-visiting-arrangements-in-care-homes</a></p>
answering member constituency Faversham and Mid Kent more like this
answering member printed Helen Whately more like this
question first answered
less than 2020-10-08T16:37:44.927Zmore like thismore than 2020-10-08T16:37:44.927Z
answering member
4527
label Biography information for Helen Whately more like this
tabling member
4005
label Biography information for Bob Blackman more like this
1235501
registered interest false more like this
date less than 2020-09-17more like thismore than 2020-09-17
answering body
Department of Health and Social Care more like this
answering dept id 17 remove filter
answering dept short name Health and Social Care more like this
answering dept sort name Health and Social Care more like this
hansard heading Stem Cells: Donors more like this
house id 1 more like this
legislature
25259
pref label House of Commons more like this
question text To ask the Secretary of State for Health and Social Care, what steps he has taken to encourage higher donor registration among mixed ethnicity donors to the UK stem cell and bone marrow register. more like this
tabling member constituency Harrow East remove filter
tabling member printed
Bob Blackman more like this
uin 91625 more like this
answer
answer
is ministerial correction false remove filter
date of answer less than 2020-10-12more like thismore than 2020-10-12
answer text <p>Since 2011 the Department has provided over £26.8 million in financial support to NHS Blood and Transplant and Anthony Nolan to enable the establishment of a unified United Kingdom Stem Cell Registry and improve access to, and outcomes of, stem cell donation.</p><p>This includes improving equity of access to unrelated donor stem cell transplantation for all ethnicities, including those with mixed ethnicities, through targeted recruitment to the UK Stem Cell Registry. Anthony Nolan have established a taskforce dedicated to engaging with supporters from minority ethnic backgrounds, including those with mixed ethnicities, which will co-create content and recruitment campaigns that serve and resonate with target audiences. Additionally, they are working closely with partners – such as the African Caribbean Leukaemia Trust and the Rik Basra Leukaemia Campaign - to focus recruitment in ethnically diverse areas of the UK, and to target recruitment on currently under-represented groups.</p>
answering member constituency Faversham and Mid Kent more like this
answering member printed Helen Whately more like this
question first answered
less than 2020-10-12T10:11:28.567Zmore like thismore than 2020-10-12T10:11:28.567Z
answering member
4527
label Biography information for Helen Whately more like this
tabling member
4005
label Biography information for Bob Blackman more like this
1231638
registered interest false more like this
date less than 2020-09-04more like thismore than 2020-09-04
answering body
Department of Health and Social Care more like this
answering dept id 17 remove filter
answering dept short name Health and Social Care more like this
answering dept sort name Health and Social Care more like this
hansard heading Stem Cells: Donors more like this
house id 1 more like this
legislature
25259
pref label House of Commons more like this
question text To ask the Secretary of State for Health and Social Care, what steps he has taken to encourage higher donor registration among (a) all people and (b) mixed ethnicity donors to the UK stem cell and bone marrow register. more like this
tabling member constituency Harrow East remove filter
tabling member printed
Bob Blackman more like this
uin 85022 more like this
answer
answer
is ministerial correction false remove filter
date of answer less than 2020-09-28more like thismore than 2020-09-28
answer text <p>Since 2011 the Department has provided over £26.8 million in financial support to NHS Blood and Transplant and Anthony Nolan to enable the establishment of a unified United Kingdom Stem Cell Registry and improve access to, and outcomes of, stem cell donation. This includes improving equity of access to unrelated donor stem cell transplantation for black, Asian and minority ethnic (BAME) patients through targeted recruitment to the UK Stem Cell Registry.</p><p>There are now 1.6 million donors on the UK’s aligned stem cell registry which is part of a worldwide network of 76 stem cell registries, which list over 36 million donors worldwide and co-operate to match donors to patients across the globe.</p><p>Current funding includes very specific stipulations about the numbers of newly registered bone marrow donors, and the proportion of umbilical cords stored in the UK Cord Blood Bank that must be from BAME backgrounds (35-40%). There are now 1.6 million donors on the UK’s aligned stem cell registry and the proportion of BAME donors in the UK registry has gone up from 11% to 14% between 2014 and 2019. In 2018, 22% of newly registered potential donors were from BAME backgrounds.</p>
answering member constituency Faversham and Mid Kent more like this
answering member printed Helen Whately more like this
question first answered
less than 2020-09-28T12:34:48.067Zmore like thismore than 2020-09-28T12:34:48.067Z
answering member
4527
label Biography information for Helen Whately more like this
tabling member
4005
label Biography information for Bob Blackman more like this
1224453
registered interest false more like this
date less than 2020-07-14more like thismore than 2020-07-14
answering body
Department of Health and Social Care more like this
answering dept id 17 remove filter
answering dept short name Health and Social Care more like this
answering dept sort name Health and Social Care more like this
hansard heading Mental Health Act 1983 more like this
house id 1 more like this
legislature
25259
pref label House of Commons more like this
question text To ask the Secretary of State for Health and Social Care, when he plans to bring forward legislative proposals to reform the Mental Health Act 1983; and whether he plans to make provisions on children's mental health services a central part of those legislative proposals. more like this
tabling member constituency Harrow East remove filter
tabling member printed
Bob Blackman more like this
uin 73799 more like this
answer
answer
is ministerial correction false remove filter
date of answer less than 2020-07-24more like thismore than 2020-07-24
answer text <p>We have committed to publishing a White Paper which will set out the Government’s response to Sir Simon Wessely’s Independent Review of the Mental Health Act 1983 and pave the way for reform of the Act.</p><p> </p><p>We will publish our White Paper as soon as it is possible to do so. We will consult publicly on our proposals and will bring forward a Bill to amend the Act when parliamentary time allows.</p><p> </p><p>The Independent Review made a number of recommendations around how the law works for children and young people. The Government will respond to these in the White Paper.</p><p> </p><p>The Mental Health Act 1983 covers the assessment, treatment and rights of people of all ages with a mental health disorder. It does not cover the provision of children’s mental health services.</p><p> </p> more like this
answering member constituency Mid Bedfordshire more like this
answering member printed Ms Nadine Dorries more like this
question first answered
less than 2020-07-24T14:06:48.223Zmore like thismore than 2020-07-24T14:06:48.223Z
answering member
1481
label Biography information for Ms Nadine Dorries more like this
tabling member
4005
label Biography information for Bob Blackman more like this
1219155
registered interest false more like this
date less than 2020-06-30more like thismore than 2020-06-30
answering body
Department of Health and Social Care more like this
answering dept id 17 remove filter
answering dept short name Health and Social Care more like this
answering dept sort name Health and Social Care more like this
hansard heading Rare Diseases: Medical Treatments more like this
house id 1 more like this
legislature
25259
pref label House of Commons more like this
question text To ask the Secretary of State for Health and Social Care, with reference to the findings of the 2017 Office for Health Economics report entitled Comparing Access to Orphan Medicinal Products in the United Kingdom and other European countries, what steps his Department is taking to help ensure that people with rare diseases can access the latest treatments. more like this
tabling member constituency Harrow East remove filter
tabling member printed
Bob Blackman more like this
uin 66850 more like this
answer
answer
is ministerial correction false remove filter
date of answer less than 2020-07-17more like thismore than 2020-07-17
answer text <p>The National Institute for Health and Care Excellence (NICE) issues guidance for the National Health Service on whether drugs and other treatments represent an effective use of NHS resources through its technology appraisal (TA) and highly specialised technologies (HST) programmes, including drugs for patients with rare diseases. 86% of NICE’s TA recommendations, and 100% of its HST recommendations, for orphan drugs have been positive since 2013.</p><p>Through the Early Access to Medicines Scheme, we are already making important drugs available to patients. So far around 1,500 patients have benefited from the scheme, which enables drugs to be used in clinical practice in parallel with later stages of the regulatory process.</p><p> </p> more like this
answering member constituency Bury St Edmunds more like this
answering member printed Jo Churchill more like this
question first answered
less than 2020-07-17T09:54:14.5Zmore like thismore than 2020-07-17T09:54:14.5Z
answering member
4380
label Biography information for Jo Churchill more like this
tabling member
4005
label Biography information for Bob Blackman more like this
1218760
registered interest false more like this
date less than 2020-06-29more like thismore than 2020-06-29
answering body
Department of Health and Social Care more like this
answering dept id 17 remove filter
answering dept short name Health and Social Care more like this
answering dept sort name Health and Social Care more like this
hansard heading Smoking: Public Health more like this
house id 1 more like this
legislature
25259
pref label House of Commons more like this
question text To ask the Secretary of State for Health and Social Care, how much his Department has spent from the public purse on campaigns to promote the cessation of smoking in (a) 2018-19 and (b) 2019-20. more like this
tabling member constituency Harrow East remove filter
tabling member printed
Bob Blackman more like this
uin 66027 more like this
answer
answer
is ministerial correction false remove filter
date of answer less than 2020-07-13more like thismore than 2020-07-13
answer text <p>Expenditure on smoking cessation promotion by Public Health England for the periods of 2018-19 and 2019-20 are as follows: <br></p><p>2018-19: £2.16 million <br></p><p>2019-20: £1.78 million</p><p>The figures reference expenditure for advertising on television, radio, national press, regional press, out of home (outdoor), cinema, social and digital advertising.</p><p>All figures rounded to the nearest £10,000 and do not include VAT.</p><p>Recruitment advertising and media partnerships are not included. Paid search is not included.</p><p> </p> more like this
answering member constituency Bury St Edmunds more like this
answering member printed Jo Churchill more like this
question first answered
less than 2020-07-13T16:02:40.083Zmore like thismore than 2020-07-13T16:02:40.083Z
answering member
4380
label Biography information for Jo Churchill more like this
tabling member
4005
label Biography information for Bob Blackman more like this
1218807
registered interest false more like this
date less than 2020-06-29more like thismore than 2020-06-29
answering body
Department of Health and Social Care more like this
answering dept id 17 remove filter
answering dept short name Health and Social Care more like this
answering dept sort name Health and Social Care more like this
hansard heading Thrombotic Thrombocytopenic Purpura more like this
house id 1 more like this
legislature
25259
pref label House of Commons more like this
question text To ask the Secretary of State for Health and Social Care, what data his Department holds on the (a) current prevalence and (b) annual incidence of thrombotic thrombocytopenic purpura (TTP) in England; and how that data is collected. more like this
tabling member constituency Harrow East remove filter
tabling member printed
Bob Blackman more like this
uin 66028 more like this
answer
answer
is ministerial correction false remove filter
date of answer less than 2020-07-16more like thismore than 2020-07-16
answer text <p>The National Congenital Anomaly and Rare Disease Registration Service (NCARDRS) records people with congenital anomalies and rare diseases across the whole of England. Data collection for rare diseases is at an early stage and currently NCARDRS does not collect data on thrombotic thrombocytopenic purpura (TTP). NCARDRS is working to expand rare disease registration and will work with interested parties to advance data collection on rare diseases including TTP.</p> more like this
answering member constituency Bury St Edmunds more like this
answering member printed Jo Churchill more like this
grouped question UIN 66029 more like this
question first answered
less than 2020-07-16T19:58:47.593Zmore like thismore than 2020-07-16T19:58:47.593Z
answering member
4380
label Biography information for Jo Churchill more like this
tabling member
4005
label Biography information for Bob Blackman more like this
1218808
registered interest false more like this
date less than 2020-06-29more like thismore than 2020-06-29
answering body
Department of Health and Social Care more like this
answering dept id 17 remove filter
answering dept short name Health and Social Care more like this
answering dept sort name Health and Social Care more like this
hansard heading Thrombotic Thrombocytopenic Purpura more like this
house id 1 more like this
legislature
25259
pref label House of Commons more like this
question text To ask the Secretary of State for Health and Social Care, what steps his Department is taking to improve the (a) diagnosis, (b) mortality and (c) morbidity rate of thrombotic thrombocytopenic purpura. more like this
tabling member constituency Harrow East remove filter
tabling member printed
Bob Blackman more like this
uin 66029 more like this
answer
answer
is ministerial correction false remove filter
date of answer less than 2020-07-16more like thismore than 2020-07-16
answer text <p>The National Congenital Anomaly and Rare Disease Registration Service (NCARDRS) records people with congenital anomalies and rare diseases across the whole of England. Data collection for rare diseases is at an early stage and currently NCARDRS does not collect data on thrombotic thrombocytopenic purpura (TTP). NCARDRS is working to expand rare disease registration and will work with interested parties to advance data collection on rare diseases including TTP.</p> more like this
answering member constituency Bury St Edmunds more like this
answering member printed Jo Churchill more like this
grouped question UIN 66028 more like this
question first answered
less than 2020-07-16T19:58:47.657Zmore like thismore than 2020-07-16T19:58:47.657Z
answering member
4380
label Biography information for Jo Churchill more like this
tabling member
4005
label Biography information for Bob Blackman more like this
1218809
registered interest false more like this
date less than 2020-06-29more like thismore than 2020-06-29
answering body
Department of Health and Social Care more like this
answering dept id 17 remove filter
answering dept short name Health and Social Care more like this
answering dept sort name Health and Social Care more like this
hansard heading Rare Diseases: Patients more like this
house id 1 more like this
legislature
25259
pref label House of Commons more like this
question text To ask the Secretary of State for Health and Social Care, with reference to the UK strategy for rare diseases: implementation plan for England published on 29 January 2018, what progress the Government has made on working with providers to produce alert cards for patients with rare diseases; and whether people with thrombotic thrombocytopenic purpura (TTP) will be included in the list of those eligible to receive an alert card. more like this
tabling member constituency Harrow East remove filter
tabling member printed
Bob Blackman more like this
uin 66030 more like this
answer
answer
is ministerial correction false remove filter
date of answer less than 2020-07-17more like thismore than 2020-07-17
answer text <p>In 2019, NHS England identified those specialised services in which patients with rare diseases are treated and asked the 150 providers that deliver these services to self-assess against three key criteria: care coordination; alert cards; and transition. In total, 1,000 clinical teams undertook the assessment and the completion rate was 85%. Of those providers that self-assessed: 91% confirmed that there is a person responsible for coordinating the care of any patient with a rare disease; 56% confirmed that they gave each person an alert card; and 91% confirmed that they had active transition in place.</p><p>Alert cards are already used in some hospitals that treat patients with thrombotic thrombocytopenic purpura. NHS England is currently in the process of commissioning a service for patients with thrombotic thrombocytopenic purpura. Once a full, national service is established, an alert card will be rolled out across the service.</p> more like this
answering member constituency Bury St Edmunds more like this
answering member printed Jo Churchill more like this
question first answered
less than 2020-07-17T10:07:56.42Zmore like thismore than 2020-07-17T10:07:56.42Z
answering member
4380
label Biography information for Jo Churchill more like this
tabling member
4005
label Biography information for Bob Blackman more like this