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1124901
registered interest false more like this
date less than 2019-05-07more like thismore than 2019-05-07
answering body
Department of Health and Social Care more like this
answering dept id 17 more like this
answering dept short name Health and Social Care more like this
answering dept sort name Health and Social Care more like this
hansard heading Nusinersen more like this
house id 2 more like this
legislature
25277
pref label House of Lords more like this
question text To ask Her Majesty's Government what discussions they have had with (1) NICE, (2) NHS England, and (3) Biogen, on a Managed Access Agreement for Spinal Muscular Atrophy treatment, Spinraza. more like this
tabling member printed
Baroness Thomas of Winchester more like this
uin HL15576 more like this
answer
answer
is ministerial correction false more like this
date of answer remove filter
answer text <p>Departmental officials are in regular contact with colleagues in the National Institute for Health and Care Excellence (NICE) and NHS England about a range of issues, including progress in discussions about a potential managed access agreement for Spinraza (nusinersen). Ministers have also held meetings with Biogen, NICE and NHS England on a number of occasions, at which the availability of Spinraza was discussed.</p><p>NHS England and NICE have made stakeholders and the public aware of the outcome of its appraisal committee meeting and NICE is now able to recommend the use of Spinraza for National Health Service patients in England, subject to a managed access agreement agreed between NHS England and Biogen. The final appraisal document will be published in due course.</p><p> </p> more like this
answering member printed Baroness Blackwood of North Oxford more like this
grouped question UIN HL15577 more like this
question first answered
remove filter
answering member
4019
label Biography information for Baroness Blackwood of North Oxford more like this
tabling member
3785
label Biography information for Baroness Thomas of Winchester more like this