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1010414
registered interest false more like this
date less than 2018-11-19more like thismore than 2018-11-19
answering body
Northern Ireland Office more like this
answering dept id 21 more like this
answering dept short name Northern Ireland more like this
answering dept sort name Northern Ireland more like this
hansard heading Lumacaftor/ivacaftor: Northern Ireland more like this
house id 1 more like this
legislature
25259
pref label House of Commons more like this
question text To ask the Secretary of State for Northern Ireland, if she will meet families of cystic fibrosis sufferers in Northern Ireland who are seeking to secure the availability of Orkambi on the NHS; and if she will make a statement. more like this
tabling member constituency North Down more like this
tabling member printed
Lady Hermon more like this
uin 192815 remove filter
answer
answer
is ministerial correction false more like this
date of answer less than 2018-11-26more like thismore than 2018-11-26
answer text <p>Thank you for raising this important issue. I realise that the availability of Orkambi is currently the subject of negotiation involving Vertex Pharmaceuticals, NHS England and the National Institute for Health and Care Excellence (NICE).</p><p> </p><p>As these negotiations are ongoing, I will ask my officials to monitor progress on this issue and update you as soon as there is greater clarity.</p> more like this
answering member constituency Weston-super-Mare more like this
answering member printed John Penrose remove filter
question first answered
less than 2018-11-26T11:40:48.57Zmore like thismore than 2018-11-26T11:40:48.57Z
answering member
1584
label Biography information for John Penrose more like this
tabling member
1437
label Biography information for Lady Hermon more like this