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1144593

registered interest
date	04/09/2019
answering body	Department of Health and Social Care
answering dept id	17
answering dept short name	Health and Social Care
answering dept sort name	Health and Social Care
hansard heading	Motor Neurone Disease: Sports
house id	1
legislature	25259 pref label House of Commons
question text	To ask the Secretary of State for Health and Social Care, whether he has commissioned research into the connection between head injuries sustained through sport and and motor neurone disease.
tabling member constituency	Strangford
tabling member printed	Jim Shannon
uin	286744
answer	answer is ministerial correction date of answer 09/09/2019 answer text <p>The Department funds health research through the National Institute for Health Research (NIHR). The NIHR welcomes funding applications for research into any aspect of human health. However, the NIHR has not conducted any research into links between head injuries sustained through sport and motor neurone disease.</p><p>It is not usual practice to ring-fence funds for particular topics or conditions. Applications are subject to peer review and judged in open competition, with awards being made on the basis of the importance of the topic to patients and health and care services, value for money and scientific quality. In all disease areas, the amount of NIHR funding depends on the volume and quality of scientific activity.</p> answering member constituency Gosport answering member printed Caroline Dinenage question first answered 09/09/2019 17:30:07 answering member 4008 label Biography information for Dame Caroline Dinenage
tabling member	4131 label Biography information for Jim Shannon

1144595

registered interest
date	04/09/2019
answering body	Department of Health and Social Care
answering dept id	17
answering dept short name	Health and Social Care
answering dept sort name	Health and Social Care
hansard heading	Parkinson's Disease: Surgery
house id	1
legislature	25259 pref label House of Commons
question text	To ask the Secretary of State for Health and Social Care, what plans he has to make deep brain stimulation for the treatment of Parkinson's disease available on the NHS.
tabling member constituency	Strangford
tabling member printed	Jim Shannon
uin	286746
answer	answer is ministerial correction date of answer 09/09/2019 answer text <p>The National Institute for Health and Care Excellence (NICE) guidance ‘Parkinson’s disease in adults’, published in July 2017 sets out evidence-based guidance for healthcare professionals and commissioners in the care treatment and support of people with Parkinson’s disease.</p><p>The guidance recommends that clinicians should consider deep brain stimulation for people with advanced Parkinson's disease whose symptoms are not adequately controlled by best medical therapy.</p><p>NHS England commissions deep brain stimulation for people with movement disorders, including Parkinson’s disease, in line with the criteria set out in its national commissioning. Both the NICE guidance and the commissioning policy can be found at the following links:</p><p><a href="http://www.nice.org.uk/guidance/ng71" target="_blank">www.nice.org.uk/guidance/ng71</a></p><p><a href="http://www.england.nhs.uk/commissioning/spec-services/npc-crg/group-d/d04/" target="_blank">www.england.nhs.uk/commissioning/spec-services/npc-crg/group-d/d04/</a></p><p> </p><p> </p> answering member constituency Gosport answering member printed Caroline Dinenage question first answered 09/09/2019 17:24:11 answering member 4008 label Biography information for Dame Caroline Dinenage
tabling member	4131 label Biography information for Jim Shannon

1144596

registered interest
date	04/09/2019
answering body	Department of Health and Social Care
answering dept id	17
answering dept short name	Health and Social Care
answering dept sort name	Health and Social Care
hansard heading	Alzheimer's Disease: Diagnosis
house id	1
legislature	25259 pref label House of Commons
question text	To ask the Secretary of State for Health and Social Care, what steps he is taking to improve the early detection of Alzheimer's disease.
tabling member constituency	Strangford
tabling member printed	Jim Shannon
uin	286747
answer	answer is ministerial correction date of answer 09/09/2019 answer text <p>Alzheimer's disease is the most common type of dementia in the United Kingdom.</p><p>The Challenge on Dementia 2020 sets out the ambition for two thirds of people with dementia to receive a formal diagnosis. This has been achieved and exceeded nationally. Our focus now is on reducing the variation in local diagnosis rates and NHS England have published guidance and put programmes in place to further improve the quality and timeliness of diagnosis across the country.</p><p>For example, the ‘Implementation guide and resource pack for dementia care’ published in July 2017 sets out key recommendations on how services should be configured to provide good quality diagnosis and post-diagnostic care for people with dementia and their carers. It includes key roles and activity in primary care and memory assessment services to facilitate an accurate and timely diagnosis of dementia, while ensuring access to appropriate support following diagnosis. The resource pack is available at the following link:</p><p><a href="https://www.england.nhs.uk/mental-health/dementia/implementation-guide-and-resource-pack-for-dementia-care/" target="_blank">https://www.england.nhs.uk/mental-health/dementia/implementation-guide-and-resource-pack-for-dementia-care/</a></p><p> </p><p> </p> answering member constituency Gosport answering member printed Caroline Dinenage question first answered 09/09/2019 16:15:34 answering member 4008 label Biography information for Dame Caroline Dinenage
tabling member	4131 label Biography information for Jim Shannon

1144234

registered interest
date	03/09/2019
answering body	Department of Health and Social Care
answering dept id	17
answering dept short name	Health and Social Care
answering dept sort name	Health and Social Care
hansard heading	Continuing Care
house id	1
legislature	25259 pref label House of Commons
question text	To ask the Secretary of State for Health and Social Care, what steps the Government is taking to ensure consistency in the granting of NHS Continuing Healthcare throughout Clinical Commissioning Groups.
tabling member constituency	Crewe and Nantwich
tabling member printed	Laura Smith
uin	286348
answer	answer is ministerial correction date of answer 09/09/2019 answer text <p>There will always be some variation across clinical commissioning groups (CCGs) in NHS Continuing Healthcare eligibility (NHS CHC), due to a wide variety of reasons, including, but not limited to, the age dispersion within the local population and variations between geographical areas in terms of their level of health need.</p><p>In 2017 NHS England launched an NHS CHC Strategic Improvement Programme and is helping CCGs to improve their application of the NHS CHC National Framework. The Programme aims are to provide fair access to CHC in a way which ensures better outcomes, better experience, and better use of resources.</p><p>As part of this programme NHS England is working with NHS CCGs to address variation in performance and NHS CHC eligibility rates. To better understand the nature of variation in eligibility, NHS England has developed a clustering methodology, which groups together NHS CCGs with similar demographics. Additionally, the national CHC e-learning offer has been extended and enhanced, and a national competency framework developed to support CHC staff to deliver the National Framework consistently.</p><p> </p> answering member constituency Gosport answering member printed Caroline Dinenage question first answered 09/09/2019 16:14:45 answering member 4008 label Biography information for Dame Caroline Dinenage
tabling member	4648 label Biography information for Laura Smith

1144249

registered interest
date	03/09/2019
answering body	Department of Health and Social Care
answering dept id	17
answering dept short name	Health and Social Care
answering dept sort name	Health and Social Care
hansard heading	Palliative Care: Children
house id	1
legislature	25259 pref label House of Commons
question text	To ask the Secretary of State for Health and Social Care, which provider organisations NHS England is commissioning to provide specialised paediatric palliative care as defined by E03/S/H 2013/14 NHS Standard Contract For Paediatric Medicine: Palliative Care in 2019-20; and how much NHS England pays for those services.
tabling member constituency	Strangford
tabling member printed	Jim Shannon
uin	286238
answer	answer is ministerial correction date of answer 09/09/2019 answer text <p>NHS England is commissioning the following providers to provide specialised paediatric palliative care as defined by E03/S/H 2013/14 NHS Standard Contract for Paediatric Medicine: Palliative Care in 2019-20.</p><p> </p><table><tbody><tr><td><p>Provider</p></td></tr><tr><td><p>Alder Hey Children's NHS Foundation Trust</p></td></tr><tr><td><p>Great Ormond Street Hospital For Children NHS Foundation Trust</p></td></tr><tr><td><p>Birmingham Women's and Children's NHS Foundation Trust</p></td></tr><tr><td><p>Guy'S And St Thomas' NHS Foundation Trust</p></td></tr><tr><td><p>Sheffield Children's NHS Foundation Trust</p></td></tr><tr><td><p>University Hospitals Bristol NHS Foundation Trust</p></td></tr><tr><td><p>Leeds Teaching Hospitals NHS Trust</p></td></tr><tr><td><p>Cambridge University Hospitals NHS Foundation Trust</p></td></tr><tr><td><p>Shrewsbury And Telford Hospital NHS Trust</p></td></tr><tr><td><p>Taunton And Somerset NHS Foundation Trust</p></td></tr></tbody></table><p> </p><p>In 2018/19 the total recorded spend on specialised paediatric palliative care was £22.8 million, the latest figures available.</p> answering member constituency Gosport answering member printed Caroline Dinenage question first answered 09/09/2019 17:19:12 answering member 4008 label Biography information for Dame Caroline Dinenage
tabling member	4131 label Biography information for Jim Shannon

1144256

registered interest
date	03/09/2019
answering body	Department of Health and Social Care
answering dept id	17
answering dept short name	Health and Social Care
answering dept sort name	Health and Social Care
hansard heading	Asthma: Death
house id	1
legislature	25259 pref label House of Commons
question text	To ask the Secretary of State for Health and Social Care, what steps he is taking to implement the recommendations of the 2014 National Review of Asthma Deaths to reduce further avoidable deaths from asthma.
tabling member constituency	Hampstead and Kilburn
tabling member printed	Tulip Siddiq
uin	286317
answer	answer is ministerial correction date of answer 09/09/2019 answer text <p>The Department collaborated with the Royal College of Physicians on the National Review of Asthma Deaths and welcomed this report. Since its publication, significant improvements have been made in asthma care.</p><p>Respiratory disease, including asthma, is a clinical priority within the NHS Long Term Plan, which aims to improve outcomes for patients through earlier diagnosis and increased access to treatments. The Respiratory Delivery Board will take forward respiratory proposals set out in the Plan by working with key partners.</p> answering member constituency Gosport answering member printed Caroline Dinenage question first answered 09/09/2019 16:58:53 answering member 4008 label Biography information for Dame Caroline Dinenage
tabling member	4518 label Biography information for Tulip Siddiq

1144259

registered interest
date	03/09/2019
answering body	Department of Health and Social Care
answering dept id	17
answering dept short name	Health and Social Care
answering dept sort name	Health and Social Care
hansard heading	Asthma: Health Services
house id	1
legislature	25259 pref label House of Commons
question text	To ask the Secretary of State for Health and Social Care, what steps his Department has taken to ensure compliance with NICE guidelines on the treatment of asthma that require general practices to provide follow-up care to people who have received treatment in an emergency care setting for an asthma attack within two working days of discharge.
tabling member constituency	Hampstead and Kilburn
tabling member printed	Tulip Siddiq
uin	286319
answer	answer is ministerial correction date of answer 09/09/2019 answer text <p>The National Institute for Health and Care Excellence (NICE) clinical guideline on the diagnosis and management of asthma, published in 2017, provides authoritative, evidence-based guidance for healthcare professionals, including on the pharmacological management of asthma. NICE guidelines are based on a thorough assessment of the available evidence and are developed through extensive engagement with stakeholders, including patient and professional representatives. Healthcare professionals are expected to take them fully into account. NICE is currently carrying out a partial update of its guideline and expects to publish final guidance in January 2020.</p> answering member constituency Gosport answering member printed Caroline Dinenage question first answered 09/09/2019 16:59:55 answering member 4008 label Biography information for Dame Caroline Dinenage
tabling member	4518 label Biography information for Tulip Siddiq

1144340

registered interest
date	03/09/2019
answering body	Department of Health and Social Care
answering dept id	17
answering dept short name	Health and Social Care
answering dept sort name	Health and Social Care
hansard heading	Palliative Care: Children
house id	1
legislature	25259 pref label House of Commons
question text	To ask the Secretary of State for Health and Social Care, how much NHS England spent on commissioning specialised paediatric palliative care as defined by E03/S/H 2013/14 NHS Standard Contract For Paediatric Medicine: Palliative Care’ in (a) 2016-17, (b) 2017-18 and (c) 2018-19.
tabling member constituency	Newcastle upon Tyne North
tabling member printed	Catherine McKinnell
uin	286226
answer	answer is ministerial correction date of answer 09/09/2019 answer text <p>The NHS England Personalised Care Group is reviewing the commissioning, service models, contracting and pricing structure for children and young people’s palliative and end of life care. Within that context, work is underway to develop a national service specification for all aspects of end of life care covering community, hospital, hospice and tertiary care.</p><p>The following table outlines the funding for specialised paediatric palliative care covering 2016-2019. The overall figures are based on financial information using National Programme of Care codes and are taken from the NHS England annual spend analysis exercise. This exercise uses Provider Aggregate Contract Monitoring (ACM) as the basis for the data; and where this data is incomplete regional commissioning hubs will apportion / estimate any missing values. There are anomalies in the data held on these services. As part of the review of the specialised service specification, the End of Life Care Sub group is also reviewing the current contracting and funding arrangements with hospitals providing tertiary level palliative care services.</p><p>Year Spend £ million</p><p>2016/17 26.1</p><p>2017/18 19.9</p><p>2018/19 22.8</p> answering member constituency Gosport answering member printed Caroline Dinenage question first answered 09/09/2019 16:07:35 answering member 4008 label Biography information for Dame Caroline Dinenage
tabling member	4125 label Biography information for Catherine McKinnell

1142686

registered interest
date	02/09/2019
answering body	Department of Health and Social Care
answering dept id	17
answering dept short name	Health and Social Care
answering dept sort name	Health and Social Care
hansard heading	Gene Therapies
house id	1
legislature	25259 pref label House of Commons
question text	To ask the Secretary of State for Health and Social Care, what plans NHS England has to implement gene therapy treatments.
tabling member constituency	Wolverhampton South West
tabling member printed	Eleanor Smith
uin	284172
answer	answer is ministerial correction date of answer 09/09/2019 answer text <p>As set out in the NHS Long Term Plan, the National Health Service is committed to supporting the timely introduction of the most clinically and cost effective treatments for patients. Cell and gene therapies have the potential to provide great benefits for patients, and the NHS is leading the world in creating access to these treatments.</p><p>For example, patients in England were among the first in the world to benefit from CAR T cell therapy, which uses their own immune system to fight cancers. The NHS will also now be funding voretigene neparvovec, also known as Luxturna, a revolutionary form of new treatment for blindness in children.</p><p>The NHS is working with the National Institute for Health and Care Excellence and other partners in the Accelerated Access Collaborative to take a proactive approach in preparing for cell and gene therapies and other innovative treatments.</p><p> </p> answering member constituency Gosport answering member printed Caroline Dinenage question first answered 09/09/2019 17:29:21 answering member 4008 label Biography information for Dame Caroline Dinenage
tabling member	4609 label Biography information for Eleanor Smith

1142687

registered interest
date	02/09/2019
answering body	Department of Health and Social Care
answering dept id	17
answering dept short name	Health and Social Care
answering dept sort name	Health and Social Care
hansard heading	Cystic Fibrosis: Diagnosis
house id	1
legislature	25259 pref label House of Commons
question text	To ask the Secretary of State for Health and Social Care, what recent assessment his Department has made of the potential merits of making cystic fibrosis checks routine in (a) antenatal care and (b) neonatal care.
tabling member constituency	Bermondsey and Old Southwark
tabling member printed	Neil Coyle
uin	284174
answer	answer is ministerial correction date of answer 09/09/2019 answer text <p>The United Kingdom National Screening Committee (UK NSC) advises ministers and the National Health Service in the four UK countries about all aspects of screening and supports implementation of screening programmes. All screening programmes are introduced following a robust process using peer reviewed evidence that shows the benefits to screen clearly outweigh harm.</p><p>Earlier this year, the UK NSC looked at the evidence to offer population screening for cystic fibrosis (CF) in pregnancy and recommended that this should not be introduced. This is because screening during pregnancy would be difficult. Further, there is no new evidence to support screening. Ministers accepted this recommendation.</p><p>However, the NHS Newborn Blood spot Screening Programme screens for cystic fibrosis in newborn babies alongside eight other conditions. Newborn blood spot screening in England is offered between five and eight days after the baby is born.<em> </em></p><p><strong> </strong></p><p><strong><em> </em></strong></p><p><strong> </strong></p><p><strong> </strong></p> answering member constituency Gosport answering member printed Caroline Dinenage question first answered 09/09/2019 18:17:04 answering member 4008 label Biography information for Dame Caroline Dinenage
tabling member	4368 label Biography information for Neil Coyle