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1147887

registered interest
date	02/10/2019
answering body	Department of Health and Social Care
answering dept id	17
answering dept short name	Health and Social Care
answering dept sort name	Health and Social Care
hansard heading	Cochlear Implants
house id	1
legislature	25259 pref label House of Commons
question text	To ask the Secretary of State for Health and Social Care, when the new cochlear implant for deafness be available on the NHS.
tabling member constituency	Strangford
tabling member printed	Jim Shannon
uin	293581
answer	answer is ministerial correction date of answer 08/10/2019 answer text <p>NHS England commissions cochlear implants for patients who fulfil the criteria as described in the recently published he National Institute for Health and Care Excellence report ‘Cochlear implants for children and adults with severe to profound deafness: Technology appraisal guidance’ published on 7 March 2019 at the following link:</p><p><a href="https://www.nice.org.uk/guidance/ta566" target="_blank">https://www.nice.org.uk/guidance/ta566</a></p><p>There are a number of cochlear implant devices currently available. Specific advice about which of the devices currently available meet an individual patients requirements would be provided by a patient’s local specialist cochlear implant centre.</p><p> </p><p> </p><p> </p> answering member constituency Gosport answering member printed Caroline Dinenage question first answered 08/10/2019 10:55:43 answering member 4008 label Biography information for Dame Caroline Dinenage
tabling member	4131 label Biography information for Jim Shannon

1147891

registered interest
date	02/10/2019
answering body	Department of Health and Social Care
answering dept id	17
answering dept short name	Health and Social Care
answering dept sort name	Health and Social Care
hansard heading	Spina Bifida
house id	1
legislature	25259 pref label House of Commons
question text	To ask the Secretary of State for Health and Social Care, how many people have been diagnosed with spina bifida in each of the last three years.
tabling member constituency	Strangford
tabling member printed	Jim Shannon
uin	293583
answer	answer is ministerial correction date of answer 08/10/2019 answer text <p>The following table shows the number of reported cases of spina bifida in England in the last three years for which data are available. These data include all reported cases of spina bifida registerable in accordance with European network of population-based registries for the epidemiological surveillance of congenital anomalies (EUROCAT) guidance which is available at the following link:</p><p><a href="https://eu-rd-platform.jrc.ec.europa.eu/eurocat" target="_blank">https://eu-rd-platform.jrc.ec.europa.eu/eurocat</a></p><p>These data exclude spontaneous miscarriage before 20 weeks gestation and cases of spina bifida occulta.</p><p> </p><p>Number of reported cases of spina bifida in England, 2015 - 2017</p><table><tbody><tr><td><p>Year of birth</p></td><td><p>Number of reported spina bifida cases</p></td><td><p>Total number of births (coverage)</p></td><td><p>Total number of births in England</p></td><td><p>Estimated number of cases for England</p></td></tr><tr><td><p>2015</p></td><td><p>75</p></td><td><p>141,474</p></td><td><p>667,351</p></td><td><p>354</p></td></tr><tr><td><p>2016</p></td><td><p>204</p></td><td><p>329,301</p></td><td><p>666,050</p></td><td><p>413</p></td></tr><tr><td><p>2017</p></td><td><p>181</p></td><td><p>320,013</p></td><td><p>649,330</p></td><td><p>367</p></td></tr></tbody></table><p>Source: <a href="https://www.gov.uk/government/publications/ncardrs-congenital-anomaly-annual-data" target="_blank">https://www.gov.uk/government/publications/ncardrs-congenital-anomaly-annual-data</a></p><p> </p><p>The following table shows the estimated number of cases of congenital heart disease in England in the last three years for which data are available. These data include all reported cases of CHD registerable in accordance with European network of population-based registries for the epidemiological surveillance of congenital anomalies (EUROCAT) guidance which can be viewed at the following link</p><p><a href="https://eu-rd-platform.jrc.ec.europa.eu/eurocat" target="_blank">https://eu-rd-platform.jrc.ec.europa.eu/eurocat</a></p><p>This is likely to be an under-estimate of the actual number of cases as milder forms of congenital heart disease are often diagnosed later.</p><p> </p><p>The estimated number of reported cases of congenital heart disease in England, 2015 - 2017</p><table><tbody><tr><td><p>Year of birth</p></td><td><p>Number of reported CHD cases</p></td><td><p>Total number of births (coverage)</p></td><td><p>England Total number of births in England</p></td><td><p>Estimated number of cases for England</p></td></tr><tr><td><p>2015</p></td><td><p>706</p></td><td><p>141,474</p></td><td><p>667,351</p></td><td><p>3,330</p></td></tr><tr><td><p>2016</p></td><td><p>2,169</p></td><td><p>329,301</p></td><td><p>666,050</p></td><td><p>4,387</p></td></tr><tr><td><p>2017</p></td><td><p>2,188</p></td><td><p>320,013</p></td><td><p>649,330</p></td><td><p>4,440</p></td></tr></tbody></table><p> </p><p>Source: <a href="https://www.gov.uk/government/publications/ncardrs-congenital-anomaly-annual-data" target="_blank">https://www.gov.uk/government/publications/ncardrs-congenital-anomaly-annual-data</a></p><p> </p><p> </p><p> </p><p> </p> answering member constituency Gosport answering member printed Caroline Dinenage grouped question UIN 293587 question first answered 08/10/2019 10:58:35 answering member 4008 label Biography information for Dame Caroline Dinenage
tabling member	4131 label Biography information for Jim Shannon

1147895

registered interest
date	02/10/2019
answering body	Department of Health and Social Care
answering dept id	17
answering dept short name	Health and Social Care
answering dept sort name	Health and Social Care
hansard heading	Lung Diseases
house id	1
legislature	25259 pref label House of Commons
question text	To ask the Secretary of State for Health and Social Care, how many people have been diagnosed with pulmonary fibrosis by (a) age and (b) gender in each of the last three years.
tabling member constituency	Strangford
tabling member printed	Jim Shannon
uin	293585
answer	answer is ministerial correction date of answer 08/10/2019 answer text <p>The information requested on pulmonary fibrosis diagnoses is provided in the attached document.</p><p> </p> answering member constituency Gosport answering member printed Caroline Dinenage question first answered 08/10/2019 11:07:40 answering member 4008 label Biography information for Dame Caroline Dinenage attachment 1 file name PQ293585 response.xlsx title pq293585 table
tabling member	4131 label Biography information for Jim Shannon

1147899

registered interest
date	02/10/2019
answering body	Department of Health and Social Care
answering dept id	17
answering dept short name	Health and Social Care
answering dept sort name	Health and Social Care
hansard heading	Heart Diseases: Children
house id	1
legislature	25259 pref label House of Commons
question text	To ask the Secretary of State for Health and Social Care, what estimate he has made of the number of children in the UK diagnosed with congenital heart disease in each of the last five years.
tabling member constituency	Strangford
tabling member printed	Jim Shannon
uin	293587
answer	answer is ministerial correction date of answer 08/10/2019 answer text <p>The following table shows the number of reported cases of spina bifida in England in the last three years for which data are available. These data include all reported cases of spina bifida registerable in accordance with European network of population-based registries for the epidemiological surveillance of congenital anomalies (EUROCAT) guidance which is available at the following link:</p><p><a href="https://eu-rd-platform.jrc.ec.europa.eu/eurocat" target="_blank">https://eu-rd-platform.jrc.ec.europa.eu/eurocat</a></p><p>These data exclude spontaneous miscarriage before 20 weeks gestation and cases of spina bifida occulta.</p><p> </p><p>Number of reported cases of spina bifida in England, 2015 - 2017</p><table><tbody><tr><td><p>Year of birth</p></td><td><p>Number of reported spina bifida cases</p></td><td><p>Total number of births (coverage)</p></td><td><p>Total number of births in England</p></td><td><p>Estimated number of cases for England</p></td></tr><tr><td><p>2015</p></td><td><p>75</p></td><td><p>141,474</p></td><td><p>667,351</p></td><td><p>354</p></td></tr><tr><td><p>2016</p></td><td><p>204</p></td><td><p>329,301</p></td><td><p>666,050</p></td><td><p>413</p></td></tr><tr><td><p>2017</p></td><td><p>181</p></td><td><p>320,013</p></td><td><p>649,330</p></td><td><p>367</p></td></tr></tbody></table><p>Source: <a href="https://www.gov.uk/government/publications/ncardrs-congenital-anomaly-annual-data" target="_blank">https://www.gov.uk/government/publications/ncardrs-congenital-anomaly-annual-data</a></p><p> </p><p>The following table shows the estimated number of cases of congenital heart disease in England in the last three years for which data are available. These data include all reported cases of CHD registerable in accordance with European network of population-based registries for the epidemiological surveillance of congenital anomalies (EUROCAT) guidance which can be viewed at the following link</p><p><a href="https://eu-rd-platform.jrc.ec.europa.eu/eurocat" target="_blank">https://eu-rd-platform.jrc.ec.europa.eu/eurocat</a></p><p>This is likely to be an under-estimate of the actual number of cases as milder forms of congenital heart disease are often diagnosed later.</p><p> </p><p>The estimated number of reported cases of congenital heart disease in England, 2015 - 2017</p><table><tbody><tr><td><p>Year of birth</p></td><td><p>Number of reported CHD cases</p></td><td><p>Total number of births (coverage)</p></td><td><p>England Total number of births in England</p></td><td><p>Estimated number of cases for England</p></td></tr><tr><td><p>2015</p></td><td><p>706</p></td><td><p>141,474</p></td><td><p>667,351</p></td><td><p>3,330</p></td></tr><tr><td><p>2016</p></td><td><p>2,169</p></td><td><p>329,301</p></td><td><p>666,050</p></td><td><p>4,387</p></td></tr><tr><td><p>2017</p></td><td><p>2,188</p></td><td><p>320,013</p></td><td><p>649,330</p></td><td><p>4,440</p></td></tr></tbody></table><p> </p><p>Source: <a href="https://www.gov.uk/government/publications/ncardrs-congenital-anomaly-annual-data" target="_blank">https://www.gov.uk/government/publications/ncardrs-congenital-anomaly-annual-data</a></p><p> </p><p> </p><p> </p><p> </p> answering member constituency Gosport answering member printed Caroline Dinenage grouped question UIN 293583 question first answered 08/10/2019 10:58:35 answering member 4008 label Biography information for Dame Caroline Dinenage
tabling member	4131 label Biography information for Jim Shannon

1144593

registered interest
date	04/09/2019
answering body	Department of Health and Social Care
answering dept id	17
answering dept short name	Health and Social Care
answering dept sort name	Health and Social Care
hansard heading	Motor Neurone Disease: Sports
house id	1
legislature	25259 pref label House of Commons
question text	To ask the Secretary of State for Health and Social Care, whether he has commissioned research into the connection between head injuries sustained through sport and and motor neurone disease.
tabling member constituency	Strangford
tabling member printed	Jim Shannon
uin	286744
answer	answer is ministerial correction date of answer 09/09/2019 answer text <p>The Department funds health research through the National Institute for Health Research (NIHR). The NIHR welcomes funding applications for research into any aspect of human health. However, the NIHR has not conducted any research into links between head injuries sustained through sport and motor neurone disease.</p><p>It is not usual practice to ring-fence funds for particular topics or conditions. Applications are subject to peer review and judged in open competition, with awards being made on the basis of the importance of the topic to patients and health and care services, value for money and scientific quality. In all disease areas, the amount of NIHR funding depends on the volume and quality of scientific activity.</p> answering member constituency Gosport answering member printed Caroline Dinenage question first answered 09/09/2019 17:30:07 answering member 4008 label Biography information for Dame Caroline Dinenage
tabling member	4131 label Biography information for Jim Shannon

1144595

registered interest
date	04/09/2019
answering body	Department of Health and Social Care
answering dept id	17
answering dept short name	Health and Social Care
answering dept sort name	Health and Social Care
hansard heading	Parkinson's Disease: Surgery
house id	1
legislature	25259 pref label House of Commons
question text	To ask the Secretary of State for Health and Social Care, what plans he has to make deep brain stimulation for the treatment of Parkinson's disease available on the NHS.
tabling member constituency	Strangford
tabling member printed	Jim Shannon
uin	286746
answer	answer is ministerial correction date of answer 09/09/2019 answer text <p>The National Institute for Health and Care Excellence (NICE) guidance ‘Parkinson’s disease in adults’, published in July 2017 sets out evidence-based guidance for healthcare professionals and commissioners in the care treatment and support of people with Parkinson’s disease.</p><p>The guidance recommends that clinicians should consider deep brain stimulation for people with advanced Parkinson's disease whose symptoms are not adequately controlled by best medical therapy.</p><p>NHS England commissions deep brain stimulation for people with movement disorders, including Parkinson’s disease, in line with the criteria set out in its national commissioning. Both the NICE guidance and the commissioning policy can be found at the following links:</p><p><a href="http://www.nice.org.uk/guidance/ng71" target="_blank">www.nice.org.uk/guidance/ng71</a></p><p><a href="http://www.england.nhs.uk/commissioning/spec-services/npc-crg/group-d/d04/" target="_blank">www.england.nhs.uk/commissioning/spec-services/npc-crg/group-d/d04/</a></p><p> </p><p> </p> answering member constituency Gosport answering member printed Caroline Dinenage question first answered 09/09/2019 17:24:11 answering member 4008 label Biography information for Dame Caroline Dinenage
tabling member	4131 label Biography information for Jim Shannon

1144596

registered interest
date	04/09/2019
answering body	Department of Health and Social Care
answering dept id	17
answering dept short name	Health and Social Care
answering dept sort name	Health and Social Care
hansard heading	Alzheimer's Disease: Diagnosis
house id	1
legislature	25259 pref label House of Commons
question text	To ask the Secretary of State for Health and Social Care, what steps he is taking to improve the early detection of Alzheimer's disease.
tabling member constituency	Strangford
tabling member printed	Jim Shannon
uin	286747
answer	answer is ministerial correction date of answer 09/09/2019 answer text <p>Alzheimer's disease is the most common type of dementia in the United Kingdom.</p><p>The Challenge on Dementia 2020 sets out the ambition for two thirds of people with dementia to receive a formal diagnosis. This has been achieved and exceeded nationally. Our focus now is on reducing the variation in local diagnosis rates and NHS England have published guidance and put programmes in place to further improve the quality and timeliness of diagnosis across the country.</p><p>For example, the ‘Implementation guide and resource pack for dementia care’ published in July 2017 sets out key recommendations on how services should be configured to provide good quality diagnosis and post-diagnostic care for people with dementia and their carers. It includes key roles and activity in primary care and memory assessment services to facilitate an accurate and timely diagnosis of dementia, while ensuring access to appropriate support following diagnosis. The resource pack is available at the following link:</p><p><a href="https://www.england.nhs.uk/mental-health/dementia/implementation-guide-and-resource-pack-for-dementia-care/" target="_blank">https://www.england.nhs.uk/mental-health/dementia/implementation-guide-and-resource-pack-for-dementia-care/</a></p><p> </p><p> </p> answering member constituency Gosport answering member printed Caroline Dinenage question first answered 09/09/2019 16:15:34 answering member 4008 label Biography information for Dame Caroline Dinenage
tabling member	4131 label Biography information for Jim Shannon

1144249

registered interest
date	03/09/2019
answering body	Department of Health and Social Care
answering dept id	17
answering dept short name	Health and Social Care
answering dept sort name	Health and Social Care
hansard heading	Palliative Care: Children
house id	1
legislature	25259 pref label House of Commons
question text	To ask the Secretary of State for Health and Social Care, which provider organisations NHS England is commissioning to provide specialised paediatric palliative care as defined by E03/S/H 2013/14 NHS Standard Contract For Paediatric Medicine: Palliative Care in 2019-20; and how much NHS England pays for those services.
tabling member constituency	Strangford
tabling member printed	Jim Shannon
uin	286238
answer	answer is ministerial correction date of answer 09/09/2019 answer text <p>NHS England is commissioning the following providers to provide specialised paediatric palliative care as defined by E03/S/H 2013/14 NHS Standard Contract for Paediatric Medicine: Palliative Care in 2019-20.</p><p> </p><table><tbody><tr><td><p>Provider</p></td></tr><tr><td><p>Alder Hey Children's NHS Foundation Trust</p></td></tr><tr><td><p>Great Ormond Street Hospital For Children NHS Foundation Trust</p></td></tr><tr><td><p>Birmingham Women's and Children's NHS Foundation Trust</p></td></tr><tr><td><p>Guy'S And St Thomas' NHS Foundation Trust</p></td></tr><tr><td><p>Sheffield Children's NHS Foundation Trust</p></td></tr><tr><td><p>University Hospitals Bristol NHS Foundation Trust</p></td></tr><tr><td><p>Leeds Teaching Hospitals NHS Trust</p></td></tr><tr><td><p>Cambridge University Hospitals NHS Foundation Trust</p></td></tr><tr><td><p>Shrewsbury And Telford Hospital NHS Trust</p></td></tr><tr><td><p>Taunton And Somerset NHS Foundation Trust</p></td></tr></tbody></table><p> </p><p>In 2018/19 the total recorded spend on specialised paediatric palliative care was £22.8 million, the latest figures available.</p> answering member constituency Gosport answering member printed Caroline Dinenage question first answered 09/09/2019 17:19:12 answering member 4008 label Biography information for Dame Caroline Dinenage
tabling member	4131 label Biography information for Jim Shannon

1140794

registered interest
date	22/07/2019
answering body	Department of Health and Social Care
answering dept id	17
answering dept short name	Health and Social Care
answering dept sort name	Health and Social Care
hansard heading	Medicine: Research
house id	1
legislature	25259 pref label House of Commons
question text	To ask the Secretary of State for Health and Social Care, what recent assessment he has made of UK capacity in translational research.
tabling member constituency	Strangford
tabling member printed	Jim Shannon
uin	280239
answer	answer is ministerial correction date of answer 26/07/2019 answer text <p>The Medical Research Council (MRC) covers basic through to translational research, with translational research and applied, clinical, public health and social care research funded by the Department via the National Institute for Health Research (NIHR).</p><p>The NIHR’s funding for research includes support for research infrastructure which is critically important in providing the resources, support and facilities that the National Health Service needs to conduct first-class research across the full pathway of discovery science to evaluation. The sustained, long-term funding to put in place through the NIHR infrastructure has been widely recognised as having transformed the health research environment in the United Kingdom. For example, there has been five-fold increase in early phase (phase I and phase II) trials since 2009 within the NIHR early translational research infrastructure in the NHS (2,842 phase I and phase II trials in 2017/18 compared to just 496 in 2009/10).</p><p>The MRC are also currently undertaking an evaluation of 10 years of MRC-funded translation research which is expected to be completed in September 2019.</p><p>The MRC and the NIHR also work in partnership through the Efficacy and Mechanism Evaluation programme which funds studies evaluating interventions with potential to make a step-change in the promotion of health, treatment of disease and improvement of rehabilitation or long-term care.</p><p> </p><p><strong> </strong></p><p><strong> </strong></p> answering member constituency Gosport answering member printed Caroline Dinenage question first answered 26/07/2019 11:44:44 answering member 4008 label Biography information for Dame Caroline Dinenage
tabling member	4131 label Biography information for Jim Shannon

1139372

registered interest
date	16/07/2019
answering body	Department of Health and Social Care
answering dept id	17
answering dept short name	Health and Social Care
answering dept sort name	Health and Social Care
hansard heading	Sophie Holman
house id	1
legislature	25259 pref label House of Commons
question text	To ask the Secretary of State for Health and Social Care, what response his Department has provided to the Prevention of Future Deaths report on the death of Sophie Holman.
tabling member constituency	Strangford
tabling member printed	Jim Shannon
uin	277727
answer	answer is ministerial correction date of answer 23/07/2019 answer text <p>The Department responded to the Prevention of Future Deaths Report issued by the Assistant Coroner for the Eastern Area of Greater London following the inquest into the death of Sophie Holman on 24 April 2019.</p><p>Publication of the Department’s response is a matter for the Chief Coroner as set out in Coroners (investigations) Regulations 2013.</p><p>The Government is committed to doing all it can to ensure the National Health Service learns from tragic, avoidable deaths and provides high quality, safe care for all patients. This is demonstrated by publication of the NHS Patient Safety Strategy on 2 July 2019. The strategy provides a framework for patient safety improvement over the next 10 years and sits alongside the NHS Long Term Plan.</p> answering member constituency Gosport answering member printed Caroline Dinenage question first answered 23/07/2019 16:04:26 answering member 4008 label Biography information for Dame Caroline Dinenage
tabling member	4131 label Biography information for Jim Shannon