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1135182

registered interest
date	27/06/2019
answering body	Department of Health and Social Care
answering dept id	17
answering dept short name	Health and Social Care
answering dept sort name	Health and Social Care
hansard heading	Genomics: Screening
house id	1
legislature	25259 pref label House of Commons
question text	To ask the Secretary of State for Health and Social Care, which diagnostic tests will whole genome sequencing replace, particularly for blood cancers.
tabling member constituency	Sheffield South East
tabling member printed	Mr Clive Betts
uin	270281
answer	answer is ministerial correction date of answer 05/07/2019 answer text <p>During 2019, the National Health Service will begin to offer whole genome sequencing (WGS) as part of clinical care for:</p><p>- Seriously ill children likely to have a rare genetic disorder;</p><p>- People with one of 21 rare conditions where current evidence supports early adoption of WGS as a diagnostic test; and</p><p>- People with specific types of cancer for which there is likely to be the greatest patient benefit from using WGS – children with cancer, sarcoma and acute myeloid leukaemia.</p><p> </p><p>WGS will only replace existing diagnostic tests once the testing is demonstrated to be clinically safe to replace existing diagnostic testing. Initially, existing diagnostic testing will continue to be performed alongside WGS testing where clinically appropriate. This will continue until WGS is able to fully support clinical decision making within clinically appropriate timescales.</p><p>Current testing for blood cancers includes a number of diagnostic tests, the current expectation is that WGS will not be used to replace tests that require very fast turnaround times (under 24 hours) or high sensitivity.</p><p>WGS and non-WGS testing that will be available as part of clinical care is outlined in the National Genomic Test Directory at the following link:</p><p> </p><p><a href="https://www.england.nhs.uk/publication/national-genomic-test-directories/" target="_blank">https://www.england.nhs.uk/publication/national-genomic-test-directories/</a></p><p> </p><p>The UK Genetic Testing Network (UKGTN) published the NHS Directory of Genetic Disorders/Genes for Diagnostic Testing, which evaluated and recommended genetic tests for rare and inherited disorders for the National Health Service across the UK. However, there was not an equivalent for cancer genomic testing. The National Genomic Test Directory specifies which genomic tests are commissioned by the NHS in England, the technology by which they are available, and the patients who will be eligible to access to a test.</p><p>The National Genomic Test Directory will be updated on an annual basis and NHS England will implement a clear and transparent process, supported by a Clinical and Scientific Expert Panel, to determine which tests are available within the NHS. This will include reviewing any tests that may be retired or replaced by more modern technology, such as WGS. As the price of WGS falls and the clinical evidence improves, we envisage that it will be extended to more conditions and therefore more patients.</p><p> </p><p><strong> </strong></p><p><strong> </strong></p> answering member constituency Gosport answering member printed Caroline Dinenage grouped question UIN 270282 270283 question first answered 05/07/2019 09:24:02 answering member 4008 label Biography information for Dame Caroline Dinenage
tabling member	394 label Biography information for Mr Clive Betts

1135183

registered interest
date	27/06/2019
answering body	Department of Health and Social Care
answering dept id	17
answering dept short name	Health and Social Care
answering dept sort name	Health and Social Care
hansard heading	Genetics: Screening
house id	1
legislature	25259 pref label House of Commons
question text	To ask the Secretary of State for Health and Social Care, whether the National Genomic Test Directory directly replaces the NHS Directory of Genetic Disorders/Genes for Diagnostic Testing.
tabling member constituency	Sheffield South East
tabling member printed	Mr Clive Betts
uin	270282
answer	answer is ministerial correction date of answer 05/07/2019 answer text <p>During 2019, the National Health Service will begin to offer whole genome sequencing (WGS) as part of clinical care for:</p><p>- Seriously ill children likely to have a rare genetic disorder;</p><p>- People with one of 21 rare conditions where current evidence supports early adoption of WGS as a diagnostic test; and</p><p>- People with specific types of cancer for which there is likely to be the greatest patient benefit from using WGS – children with cancer, sarcoma and acute myeloid leukaemia.</p><p> </p><p>WGS will only replace existing diagnostic tests once the testing is demonstrated to be clinically safe to replace existing diagnostic testing. Initially, existing diagnostic testing will continue to be performed alongside WGS testing where clinically appropriate. This will continue until WGS is able to fully support clinical decision making within clinically appropriate timescales.</p><p>Current testing for blood cancers includes a number of diagnostic tests, the current expectation is that WGS will not be used to replace tests that require very fast turnaround times (under 24 hours) or high sensitivity.</p><p>WGS and non-WGS testing that will be available as part of clinical care is outlined in the National Genomic Test Directory at the following link:</p><p> </p><p><a href="https://www.england.nhs.uk/publication/national-genomic-test-directories/" target="_blank">https://www.england.nhs.uk/publication/national-genomic-test-directories/</a></p><p> </p><p>The UK Genetic Testing Network (UKGTN) published the NHS Directory of Genetic Disorders/Genes for Diagnostic Testing, which evaluated and recommended genetic tests for rare and inherited disorders for the National Health Service across the UK. However, there was not an equivalent for cancer genomic testing. The National Genomic Test Directory specifies which genomic tests are commissioned by the NHS in England, the technology by which they are available, and the patients who will be eligible to access to a test.</p><p>The National Genomic Test Directory will be updated on an annual basis and NHS England will implement a clear and transparent process, supported by a Clinical and Scientific Expert Panel, to determine which tests are available within the NHS. This will include reviewing any tests that may be retired or replaced by more modern technology, such as WGS. As the price of WGS falls and the clinical evidence improves, we envisage that it will be extended to more conditions and therefore more patients.</p><p> </p><p><strong> </strong></p><p><strong> </strong></p> answering member constituency Gosport answering member printed Caroline Dinenage grouped question UIN 270281 270283 question first answered 05/07/2019 09:24:02 answering member 4008 label Biography information for Dame Caroline Dinenage
tabling member	394 label Biography information for Mr Clive Betts

1135184

registered interest
date	27/06/2019
answering body	Department of Health and Social Care
answering dept id	17
answering dept short name	Health and Social Care
answering dept sort name	Health and Social Care
hansard heading	Genomics: Screening
house id	1
legislature	25259 pref label House of Commons
question text	To ask the Secretary of State for Health and Social Care, how will new tests be added to the National Genomic Test Directory.
tabling member constituency	Sheffield South East
tabling member printed	Mr Clive Betts
uin	270283
answer	answer is ministerial correction date of answer 05/07/2019 answer text <p>During 2019, the National Health Service will begin to offer whole genome sequencing (WGS) as part of clinical care for:</p><p>- Seriously ill children likely to have a rare genetic disorder;</p><p>- People with one of 21 rare conditions where current evidence supports early adoption of WGS as a diagnostic test; and</p><p>- People with specific types of cancer for which there is likely to be the greatest patient benefit from using WGS – children with cancer, sarcoma and acute myeloid leukaemia.</p><p> </p><p>WGS will only replace existing diagnostic tests once the testing is demonstrated to be clinically safe to replace existing diagnostic testing. Initially, existing diagnostic testing will continue to be performed alongside WGS testing where clinically appropriate. This will continue until WGS is able to fully support clinical decision making within clinically appropriate timescales.</p><p>Current testing for blood cancers includes a number of diagnostic tests, the current expectation is that WGS will not be used to replace tests that require very fast turnaround times (under 24 hours) or high sensitivity.</p><p>WGS and non-WGS testing that will be available as part of clinical care is outlined in the National Genomic Test Directory at the following link:</p><p> </p><p><a href="https://www.england.nhs.uk/publication/national-genomic-test-directories/" target="_blank">https://www.england.nhs.uk/publication/national-genomic-test-directories/</a></p><p> </p><p>The UK Genetic Testing Network (UKGTN) published the NHS Directory of Genetic Disorders/Genes for Diagnostic Testing, which evaluated and recommended genetic tests for rare and inherited disorders for the National Health Service across the UK. However, there was not an equivalent for cancer genomic testing. The National Genomic Test Directory specifies which genomic tests are commissioned by the NHS in England, the technology by which they are available, and the patients who will be eligible to access to a test.</p><p>The National Genomic Test Directory will be updated on an annual basis and NHS England will implement a clear and transparent process, supported by a Clinical and Scientific Expert Panel, to determine which tests are available within the NHS. This will include reviewing any tests that may be retired or replaced by more modern technology, such as WGS. As the price of WGS falls and the clinical evidence improves, we envisage that it will be extended to more conditions and therefore more patients.</p><p> </p><p><strong> </strong></p><p><strong> </strong></p> answering member constituency Gosport answering member printed Caroline Dinenage grouped question UIN 270281 270282 question first answered 05/07/2019 09:24:02 answering member 4008 label Biography information for Dame Caroline Dinenage
tabling member	394 label Biography information for Mr Clive Betts

1132282

registered interest
date	14/06/2019
answering body	Department of Health and Social Care
answering dept id	17
answering dept short name	Health and Social Care
answering dept sort name	Health and Social Care
hansard heading	Genomics: Health Services
house id	1
legislature	25259 pref label House of Commons
question text	To ask the Secretary of State for Health and Social Care, what estimate he has made of the number of patients that will benefit from whole genome sequencing in the first year of its introduction; and what steps is he taking to ensure the adequacy of trained professionals to provide that service.
tabling member constituency	Sheffield South East
tabling member printed	Mr Clive Betts
uin	264725
answer	answer is ministerial correction date of answer 19/06/2019 answer text <p>As part of the NHS Long Term Plan, the National Health Service has committed to sequencing 500,000 whole genomes by 2023/24.</p><p>During 2019, the NHS will begin to offer whole genome sequencing (WGS) as part of clinical care for:</p><p>- Seriously ill children likely to have a rare genetic disorder;</p><p>- People with one of 21 rare conditions where current evidence supports early adoption of WGS as a diagnostic test;</p><p>- People with specific types of cancer for which there is likely to be the greatest patient benefit from using WGS – children with cancer, sarcoma and Acute Myeloid Leukaemia.</p><p> </p><p>As the price of whole genome sequencing falls and the evidence improves, we envisage that it will be extended to more conditions and therefore more patients.</p> answering member constituency Gosport answering member printed Caroline Dinenage question first answered 19/06/2019 16:17:13 answering member 4008 label Biography information for Dame Caroline Dinenage
tabling member	394 label Biography information for Mr Clive Betts

1082575

registered interest
date	06/03/2019
answering body	Department of Health and Social Care
answering dept id	17
answering dept short name	Health and Social Care
answering dept sort name	Health and Social Care
hansard heading	Respite Care
house id	1
legislature	25259 pref label House of Commons
question text	To ask the Secretary of State for Health and Social Care, how much funding allocated to councils for respite care has been accessed to date; and what steps his Department is taking to encourage carers to make use of that support.
tabling member constituency	Sheffield South East
tabling member printed	Mr Clive Betts
uin	229090
answer	answer is ministerial correction date of answer 11/03/2019 answer text <p>Since 2015, the National Health Service contribution to the Better Care Fund (BCF) has included funding to support the implementation of the Care Act 2014, including £130 million which has been made available each year for Carers’ Breaks via the NHS clinical commissioning groups (CCG) minimum contribution to the BCF.</p><p>Locally agreed between local authorities (LAs) and CCGs, joint BCF plans set out the level of resource that will be dedicated to carer-specific support, including carers’ breaks, and identify how the chosen methods for supporting carers will help to meet key outcomes. These BCF plans are agreed locally at Health and Wellbeing Board level as part of the BCF Assurance process, and funding is released under the premise that the requirements and conditions of the Fund are met. The local level allocation data is not readily available at a national level.</p><p>We recognise the importance of carers being able to take a break from their caring role. Through the Carers Action Plan, we have committed to promoting best practice for LAs, service providers and commissioners on carer breaks and respite care. In doing so this will support them to help carers to take a break by highlighting best practice and provide advice and information for carers seeking respite breaks.</p> answering member constituency Gosport answering member printed Caroline Dinenage question first answered 11/03/2019 17:10:29 answering member 4008 label Biography information for Dame Caroline Dinenage
tabling member	394 label Biography information for Mr Clive Betts

1082576

registered interest
date	06/03/2019
answering body	Department of Health and Social Care
answering dept id	17
answering dept short name	Health and Social Care
answering dept sort name	Health and Social Care
hansard heading	Care Workers: Registration
house id	1
legislature	25259 pref label House of Commons
question text	To ask the Secretary of State for Health and Social Care, whether the Government plans to introduce a requirement for social care workers in England to be registered.
tabling member constituency	Sheffield South East
tabling member printed	Mr Clive Betts
uin	229091
answer	answer is ministerial correction date of answer 11/03/2019 answer text <p>Care workers in England are subject to employer checks and controls including a Disclosure and Barring Service check. Since 2015, healthcare assistants and care support workers have been expected to achieve the care certificate before working unsupervised. This contains 15 standards setting out a common set of skills, knowledge and behaviours that are needed in order to provide safe, high quality and compassionate care.</p><p> </p><p>The Government is committed to a proportionate system of safeguards for the professionals who work in the health and care system. Statutory professional regulation should only be used in cases where the risks to the public cannot be mitigated in other ways. We have no plans to introduce a requirement for social care workers in England to be registered in England at this time.</p> answering member constituency Gosport answering member printed Caroline Dinenage question first answered 11/03/2019 17:07:02 answering member 4008 label Biography information for Dame Caroline Dinenage
tabling member	394 label Biography information for Mr Clive Betts

1082577

registered interest
date	06/03/2019
answering body	Department of Health and Social Care
answering dept id	17
answering dept short name	Health and Social Care
answering dept sort name	Health and Social Care
hansard heading	Care Workers: Registration
house id	1
legislature	25259 pref label House of Commons
question text	To ask the Secretary of State for Health and Social Care, whether his Department is planning on introducing a requirement for social care workers to register with Care Quality Commission.
tabling member constituency	Sheffield South East
tabling member printed	Mr Clive Betts
uin	229092
answer	answer is ministerial correction date of answer 11/03/2019 answer text <p>Care workers in England are subject to employer checks and controls including a Disclosure and Barring Service check. Since 2015, healthcare assistants and care support workers have been expected to achieve the care certificate before working unsupervised. This contains 15 standards setting out a common set of skills, knowledge and behaviours that are needed in order to provide safe, high quality and compassionate care.</p><p> </p><p>The Government is committed to a proportionate system of safeguards for the professionals who work in the health and care system. Statutory professional regulation should only be used in cases where the risks to the public cannot be mitigated in other ways. We have no plans to introduce a requirement for social care workers in England to be registered in England at this time.</p> answering member constituency Gosport answering member printed Caroline Dinenage question first answered 11/03/2019 18:14:04 answering member 4008 label Biography information for Dame Caroline Dinenage
tabling member	394 label Biography information for Mr Clive Betts

1045911

registered interest
date	22/01/2019
answering body	Department of Health and Social Care
answering dept id	17
answering dept short name	Health and Social Care
answering dept sort name	Health and Social Care
hansard heading	Continuing Care
house id	1
legislature	25259 pref label House of Commons
question text	To ask the Secretary of State for Health and Social Care, how many people received continuing health care in each Care Commission Group; and the cost of that care in each of the last five years.
tabling member constituency	Sheffield South East
tabling member printed	Mr Clive Betts
uin	211100
answer	answer is ministerial correction date of answer 28/01/2019 answer text <p>A table showing the number of cases found eligible for NHS Continuing Healthcare (CHC) during the years from 2013-14 to 2017-18 is attached. The table refers to the clinical commissioning groups (CCGs) at that time; the total is for both standard and fast track NHS CHC.</p><p> </p><p>Tables showing CCG total NHS CHC expenditure by year, 2013-14 to 2017-18 is attached. Due to different number of weeks paid for in a care package, it is not possible to calculate an average package cost. Activity and cost data cannot therefore be used to approximate cost per person.</p> answering member constituency Gosport answering member printed Caroline Dinenage attachment 1 file name PQ211100 Annex B cost of CHC by CCG.xlsx title PQ211100 attached table 2 file name PQ211100 Annex A Number eligible by CCG format.xlsx title PQ211100 attached table question first answered 28/01/2019 14:37:07 answering member 4008 label Biography information for Dame Caroline Dinenage
tabling member	394 label Biography information for Mr Clive Betts

947037

registered interest
date	23/07/2018
answering body	Department of Health and Social Care
answering dept id	17
answering dept short name	Health and Social Care
answering dept sort name	Health and Social Care
hansard heading	Department of Health and Social Care: Annual Reports
house id	1
legislature	25259 pref label House of Commons
question text	To ask the Secretary of State for Health and Social Care, which agencies and other public bodies accountable to him will not have published their annual report and accounts for 2017-2018 by 31 July 2018; and what the reasons are for each such body not having done so by that date.
tabling member constituency	Sheffield South East
tabling member printed	Mr Clive Betts
uin	167136
answer	answer is ministerial correction date of answer 06/09/2018 answer text <p>A list of agencies and other public bodies which are accountable to the Department of Health and Social Care are listed on GOV.UK at the following link:</p><p> </p><p><a href="https://www.gov.uk/government/organisations" target="_blank">https://www.gov.uk/government/organisations</a></p><p> </p><p>All accounts that are published will appear on the bodies’ websites.</p><p> </p><p>As per the Government Resources and Accounts Act 2000, there is no legal requirement for agencies or other public bodies to publish their accounts before the January following year end.</p> answering member constituency Gosport answering member printed Caroline Dinenage question first answered 06/09/2018 15:53:29 answering member 4008 label Biography information for Dame Caroline Dinenage
tabling member	394 label Biography information for Mr Clive Betts