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809126
registered interest false more like this
date less than 2017-12-19more like thismore than 2017-12-19
answering body
Department of Health more like this
answering dept id 17 more like this
answering dept short name Health more like this
answering dept sort name Health more like this
hansard heading Skin Diseases more like this
house id 1 more like this
legislature
25259
pref label House of Commons more like this
question text What estimate he has made of the number of patients with Erythropoietic Protoporphyria. more like this
tabling member constituency Newport East more like this
tabling member printed
Jessica Morden more like this
uin 903031 more like this
answer
answer
is ministerial correction false more like this
date of answer less than 2017-12-19more like thismore than 2017-12-19
answer text <p>In 2016/17 there were 54 National Health Service admissions in England with a primary diagnosis of Erythropoietic Protoporphyria.</p><p> </p><p>Whilst the numbers of people with a particular rare disease can be very small, 3.5 million people in the United Kingdom have a rare disease. We know, as with the hon. Member’s constituent, that these diseases can have a heart-breaking impact on a person’s health.</p><p> </p><p>That‘s why the UK is committed to building on our position as a world-leader in the diagnosis and treatment of rare diseases.</p> more like this
answering member constituency Winchester remove filter
answering member printed Steve Brine more like this
question first answered
less than 2017-12-19T17:07:30.853Zmore like thismore than 2017-12-19T17:07:30.853Z
answering member
4067
label Biography information for Steve Brine more like this
tabling member
1548
label Biography information for Jessica Morden more like this