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1064484

registered interest
date	20/02/2019
answering body	Department of Health and Social Care
answering dept id	17
answering dept short name	Health and Social Care
answering dept sort name	Health and Social Care
hansard heading	Palliative Care: Pregnancy
house id	1
legislature	25259 pref label House of Commons
question text	To ask the Secretary of State for Health and Social Care, what palliative care is available to mothers whose unborn baby receives a diagnosis of a life-limiting disability and wishes to carry her baby to full term; and what plans his Department has to increase the availability of such services.
tabling member constituency	Congleton
tabling member printed	Fiona Bruce
uin	224036
answer	answer is ministerial correction date of answer 25/02/2019 answer text <p>The Government is working to improve the care and support for mothers whose unborn baby receive a diagnosis of a life-limiting disability and who wish to carry their baby to full term.</p><p> </p><p>The National Institute for Health and Care Excellence (NICE) ‘Guidance on End of Life Care for Infants, Children and Young People with Life Limiting Conditions’ describes the care and support that families of children with life-limiting conditions should expect to receive. The NICE Quality Standards set out that parents should be given information about emotional and psychological support including how to access it; and when their child is nearing the end of their life, they should be supported in developing an advance care plan for their baby.</p><p> </p><p>These standards are reflected in ‘A Perinatal Pathway for Babies with Palliative Care Needs’ produced by the charity Together for Short Lives and in the ‘National Bereavement Care Pathway’ (NBCP). In 2018, the Department provided £106,000 in funding, in addition to an initial £50,000, to Sands, the stillbirth and neonatal death charity, to work with other baby loss charities and Royal Colleges to produce the NBCP to reduce the variation in the quality of bereavement care provided by the National Health Service. The NBCP is currently being rolled out officially to 32 trusts and in October 2018, all the NBCP guidance materials and tools were published online.</p><p> </p><p>In addition, the Long Term Plan sets out steps that the NHS is taking to improve access to perinatal mental healthcare for mothers and fathers, and support for parents whose children are in neonatal services as well as new investment in local children’s palliative and end of life care services including children’s hospices.</p> answering member constituency Thurrock answering member printed Jackie Doyle-Price question first answered 25/02/2019 16:13:24 answering member 4065 label Biography information for Dame Jackie Doyle-Price
tabling member	3958 label Biography information for Fiona Bruce

1055803

registered interest
date	06/02/2019
answering body	Department of Health and Social Care
answering dept id	17
answering dept short name	Health and Social Care
answering dept sort name	Health and Social Care
hansard heading	Parliamentary and Health Service Ombudsman
house id	1
legislature	25259 pref label House of Commons
question text	To ask the Secretary of State for Health and Social Care, what steps the Government is taking to ensure the effectiveness of the Parliamentary and Health Service Ombudsman.
tabling member constituency	Congleton
tabling member printed	Fiona Bruce
uin	217538
answer	answer is ministerial correction date of answer 11/02/2019 answer text <p>The Parliamentary and Health Service Ombudsman carries out independent investigations about unfair or improper or poor service by United Kingdom Government departments and their agencies, and the National Health Service in England. The Ombudsman is independent of Government, accountable directly to Parliament through the Public Administration and Constitutional Affairs Committee.</p> answering member constituency Thurrock answering member printed Jackie Doyle-Price question first answered 11/02/2019 15:08:49 answering member 4065 label Biography information for Dame Jackie Doyle-Price
tabling member	3958 label Biography information for Fiona Bruce

1055867

registered interest
date	06/02/2019
answering body	Department of Health and Social Care
answering dept id	17
answering dept short name	Health and Social Care
answering dept sort name	Health and Social Care
hansard heading	Down's Syndrome
house id	1
legislature	25259 pref label House of Commons
question text	To ask the Secretary of State for Health and Social Care, what steps he is taking to monitor the effect of non-invasive pregnancy testing on the number of babies born with Down’s syndrome.
tabling member constituency	Congleton
tabling member printed	Fiona Bruce
uin	217541
answer	answer is ministerial correction date of answer 11/02/2019 answer text <p>The national evaluative roll out for non-invasive pregnancy testing (NIPT) as a contingent screening test is yet to be implemented into the NHS Fetal Anomaly Screening Programme (FASP). Therefore, no information is held on the effect of NIPT on the number of babies born with Down’s syndrome.</p><p> </p><p>Once NIPT is rolled out, data on the choices women make regarding screening and/or diagnosis will be collected. Data will also be collected on the pregnancy outcomes of women who choose to have screening, including babies born with Down’s syndrome.</p> answering member constituency Thurrock answering member printed Jackie Doyle-Price question first answered 11/02/2019 15:02:56 answering member 4065 label Biography information for Dame Jackie Doyle-Price
tabling member	3958 label Biography information for Fiona Bruce

1055868

registered interest
date	06/02/2019
answering body	Department of Health and Social Care
answering dept id	17
answering dept short name	Health and Social Care
answering dept sort name	Health and Social Care
hansard heading	Abortion
house id	1
legislature	25259 pref label House of Commons
question text	To ask the Secretary of State for Health and Social Care, for what reason NICE in developing its guidelines on termination of pregnancy has not included an assessment of the physical, emotional and economic effect of premature births and their correlation with previous abortions.
tabling member constituency	Congleton
tabling member printed	Fiona Bruce
uin	217542
answer	answer is ministerial correction date of answer 14/02/2019 answer text <p>The Department referred the topic of termination of pregnancy to the National Institute for Health and Care Excellence (NICE) for the development of a guideline on service delivery of termination of pregnancy. NICE, as part of the planning for this guideline explored the views of stakeholders on what would be most useful to focus on through a workshop, meetings and through a scope consultation. The final scope of the termination of pregnancy guideline was based on the input that NICE received from the stakeholders that engaged with NICE.</p><p> </p><p>The scope of the termination of pregnancy guideline clearly sets out that the NICE guideline is for women who have already decided to have a termination of pregnancy or have undergone a life-saving termination of pregnancy.</p><p> </p><p>NICE is looking at the evidence for common harms such as, haemorrhage and infection where there may be evidence of a difference in long-term outcomes. NICE will also be considering what information women who have requested a termination of pregnancy be given before they have the procedure if the legal grounds are met.</p> answering member constituency Thurrock answering member printed Jackie Doyle-Price grouped question UIN 217543 question first answered 14/02/2019 12:06:28 answering member 4065 label Biography information for Dame Jackie Doyle-Price
tabling member	3958 label Biography information for Fiona Bruce

1055869

registered interest
date	06/02/2019
answering body	Department of Health and Social Care
answering dept id	17
answering dept short name	Health and Social Care
answering dept sort name	Health and Social Care
hansard heading	Abortion
house id	1
legislature	25259 pref label House of Commons
question text	To ask the Secretary of State for Health and Social Care, for what reason NICE has omitted from its new guidance on termination of pregnancy an assessment of the the long-term effect of abortion on the (a) mortality, (b) future premature births, (c) infertility, (d) mental illness and (e) other health issues of women (i) under 25 and (ii) of other ages.
tabling member constituency	Congleton
tabling member printed	Fiona Bruce
uin	217543
answer	answer is ministerial correction date of answer 14/02/2019 answer text <p>The Department referred the topic of termination of pregnancy to the National Institute for Health and Care Excellence (NICE) for the development of a guideline on service delivery of termination of pregnancy. NICE, as part of the planning for this guideline explored the views of stakeholders on what would be most useful to focus on through a workshop, meetings and through a scope consultation. The final scope of the termination of pregnancy guideline was based on the input that NICE received from the stakeholders that engaged with NICE.</p><p> </p><p>The scope of the termination of pregnancy guideline clearly sets out that the NICE guideline is for women who have already decided to have a termination of pregnancy or have undergone a life-saving termination of pregnancy.</p><p> </p><p>NICE is looking at the evidence for common harms such as, haemorrhage and infection where there may be evidence of a difference in long-term outcomes. NICE will also be considering what information women who have requested a termination of pregnancy be given before they have the procedure if the legal grounds are met.</p> answering member constituency Thurrock answering member printed Jackie Doyle-Price grouped question UIN 217542 question first answered 14/02/2019 12:06:28 answering member 4065 label Biography information for Dame Jackie Doyle-Price
tabling member	3958 label Biography information for Fiona Bruce

1055870

registered interest
date	06/02/2019
answering body	Department of Health and Social Care
answering dept id	17
answering dept short name	Health and Social Care
answering dept sort name	Health and Social Care
hansard heading	Spina Bifida: Surgery
house id	1
legislature	25259 pref label House of Commons
question text	To ask the Secretary of State for Health and Social Care, whether painkiller will be administered to unborn babies with spina bifida who undergo spinal surgery; and at what age those unborn babies will undergo that surgery.
tabling member constituency	Congleton
tabling member printed	Fiona Bruce
uin	217544
answer	answer is ministerial correction date of answer 14/02/2019 answer text <p>Spinal surgery for spina bifida for babies in the womb is among new, innovative treatments that will be routinely available on the National Health Service for the first time.</p><p> </p><p>The procedure for unborn children with spina bifida, whose spine and spinal cord do not develop properly, allows pregnant women to be treated closer to home and their families.</p><p> </p><p>Pain relief for the unborn baby will be delivered intra-operatively. This is administered before the fetal surgery, after the uterus is opened. The fetus will be monitored during the procedure by ultrasound to check the fetal heart rate. The surgery takes place between 20 and 26 weeks of gestation.</p><p> </p><p>This proposed new treatment was independently assessed for its clinical benefit and cost by the Clinical Priorities Advisory Group comprising doctors, health experts and patient representatives.</p> answering member constituency Thurrock answering member printed Jackie Doyle-Price question first answered 14/02/2019 12:08:12 answering member 4065 label Biography information for Dame Jackie Doyle-Price
tabling member	3958 label Biography information for Fiona Bruce

1055872

registered interest
date	06/02/2019
answering body	Department of Health and Social Care
answering dept id	17
answering dept short name	Health and Social Care
answering dept sort name	Health and Social Care
hansard heading	Abortion
house id	1
legislature	25259 pref label House of Commons
question text	To ask the Secretary of State for Health and Social Care, what research his Department has commissioned in the last five years into the long-term effect of abortion on (a) future miscarriages, (b) premature births, (c) suicide and (d) other health issues among women (i) under 25 and (ii) of other ages.
tabling member constituency	Congleton
tabling member printed	Fiona Bruce
uin	217545
answer	answer is ministerial correction date of answer 14/02/2019 answer text <p>The Department funds research on health and social care through the National Institute for Health Research. The Department has not commissioned any such studies directly concerned with the long-term effects of abortion. However, a study currently underway, aims to provide the research and practical evidence base to deliver quality improvement in preconception care, to prevent unplanned pregnancies and abortion, and to mitigate the adverse impacts of unplanned pregnancies. This study is due to report in December 2021.</p> answering member constituency Thurrock answering member printed Jackie Doyle-Price question first answered 14/02/2019 12:07:16 answering member 4065 label Biography information for Dame Jackie Doyle-Price
tabling member	3958 label Biography information for Fiona Bruce

1045575

registered interest
date	21/01/2019
answering body	Department of Health and Social Care
answering dept id	17
answering dept short name	Health and Social Care
answering dept sort name	Health and Social Care
hansard heading	Abortion
house id	1
legislature	25259 pref label House of Commons
question text	To ask the Secretary of State for Health and Social Care, what studies his Department has commissioned into the long-term effect of abortion on (a) women’s health and (b) younger women's health including risk of future miscarriage, premature birth and suicide in the last five years.
tabling member constituency	Congleton
tabling member printed	Fiona Bruce
uin	210515
answer	answer is ministerial correction date of answer 24/01/2019 answer text <p>The Department has not commissioned any such studies. However, the National Institute for Health and Care Excellence (NICE) is developing a new guideline on termination of pregnancy. This process involves consideration of the latest available evidence around complications during and after termination. The guideline is expected to be published in September 2019.</p> answering member constituency Thurrock answering member printed Jackie Doyle-Price question first answered 24/01/2019 13:41:51 answering member 4065 label Biography information for Dame Jackie Doyle-Price
tabling member	3958 label Biography information for Fiona Bruce

1045576

registered interest
date	21/01/2019
answering body	Department of Health and Social Care
answering dept id	17
answering dept short name	Health and Social Care
answering dept sort name	Health and Social Care
hansard heading	British Pregnancy Advisory Service: Merseyside
house id	1
legislature	25259 pref label House of Commons
question text	To ask the Secretary of State for Health and Social Care, what steps his Department has taken to address concerns raised in the CQC Report on BPAS Merseyside published in January 2017.
tabling member constituency	Congleton
tabling member printed	Fiona Bruce
uin	210516
answer	answer is ministerial correction date of answer 24/01/2019 answer text <p>The concerns raised in the Care Quality Commission’s (CQC) 2017 inspection report of British Pregnancy Advisory Service (BPAS) Merseyside are being addressed locally. The CQC has been reassured that BPAS has addressed a range of concerns identified in the report, including implementation of agreed standards with commissioners and providers who are monitoring service delivery. The CQC is due to re-inspect BPAS Merseyside later in 2019.</p> answering member constituency Thurrock answering member printed Jackie Doyle-Price question first answered 24/01/2019 13:42:53 answering member 4065 label Biography information for Dame Jackie Doyle-Price
tabling member	3958 label Biography information for Fiona Bruce

1035323

registered interest
date	04/01/2019
answering body	Department of Health and Social Care
answering dept id	17
answering dept short name	Health and Social Care
answering dept sort name	Health and Social Care
hansard heading	IVF
house id	1
legislature	25259 pref label House of Commons
question text	To ask the Secretary of State for Health and Social Care, how many eggs have been used to enable (a) pro-nuclear transfer and (b) maternal spindle transfer in each year since 2015.
tabling member constituency	Congleton
tabling member printed	Fiona Bruce
uin	205252
answer	answer is ministerial correction date of answer 14/01/2019 answer text <p>The information requested is shown in the following table:</p><p> </p><table><tbody><tr><td><p>Year</p></td><td><p>For research (total number of embryos entering the research pathway)</p></td><td><p>For treatment (includes patient and donor eggs used, excludes any eggs frozen following fresh egg collection where these did not form part of the pro-nuclear transfer treatment)<sup>1</sup></p></td></tr><tr><td><p>2015</p></td><td><p>550</p></td><td><p>0</p></td></tr><tr><td><p>2016</p></td><td><p>243</p></td><td><p>0</p></td></tr><tr><td><p>2017</p></td><td><p>153</p></td><td><p>18</p></td></tr><tr><td><p>2018</p></td><td><p>n/a<sup>2</sup></p></td><td><p>38</p></td></tr></tbody></table><p>Source: The Human Fertilisation and Embryology Authority (HFEA)</p><p>Note:</p><p><sup>1</sup>The data is as shown on the HFEA’s register database on 8 January 2019. This is a live database so these figures reflect the data on this day and are likely to change over time.</p><p><sup>2</sup>2018 data is not yet available.</p> answering member constituency Thurrock answering member printed Jackie Doyle-Price question first answered 14/01/2019 14:47:12 answering member 4065 label Biography information for Dame Jackie Doyle-Price
tabling member	3958 label Biography information for Fiona Bruce