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1719342

registered interest
date	20/05/2024
answering body	Department of Health and Social Care
answering dept id	17
answering dept short name	Health and Social Care
answering dept sort name	Health and Social Care
hansard heading	South Asia Bio Bank: Finance
house id	1
legislature	25259 pref label House of Commons
question text	To ask the Secretary of State for Health and Social Care, if she will have discussions with (a) the National Institute for Health Research and (b) other NHS funding streams on the potential merits of increasing the level of funding made available to the South Asian Biobank to help monitor (i) disease diagnoses and (ii) health outcomes from that project among people from South Asian backgrounds.
tabling member constituency	Walsall South
tabling member printed	Valerie Vaz
uin	27023
answer	answer is ministerial correction date of answer 23/05/2024 answer text <p>The South Asian Biobank, originally funded by the Wellcome Trust, is an international research study designed to prevent the high risk of cardiovascular disease, diabetes, and cancer among South Asian people. The National Institute for Health and Care Research (NIHR) funds research via a range of programmes, with eligibility criteria to support applicants to decide where to apply. Applications are subject to peer review and judged in open competition, with awards made on the basis of the importance of the topic to patients and health and care services, value for money, and scientific quality. The NIHR has provided funding for research projects associated with the South Asian Biobank through open competition, and welcomes any future applications. In addition, the NIHR provides funding to NIHR research infrastructure through open competition. The NIHR Imperial Biomedical Research Centre and the Clinical Research Network have provided support for the South Asian Biobank.</p> answering member constituency Pendle answering member printed Andrew Stephenson grouped question UIN 27025 question first answered 23/05/2024 07:42:45 answering member 4044 label Biography information for Andrew Stephenson
tabling member	4076 label Biography information for Valerie Vaz

1719345

registered interest
date	20/05/2024
answering body	Department of Health and Social Care
answering dept id	17
answering dept short name	Health and Social Care
answering dept sort name	Health and Social Care
hansard heading	South Asia Bio Bank: Finance
house id	1
legislature	25259 pref label House of Commons
question text	To ask the Secretary of State for Health and Social Care, if she will make an assessment of the potential merits of increasing the level of funding allocated to the South Asian Biobank.
tabling member constituency	Walsall South
tabling member printed	Valerie Vaz
uin	27025
answer	answer is ministerial correction date of answer 23/05/2024 answer text <p>The South Asian Biobank, originally funded by the Wellcome Trust, is an international research study designed to prevent the high risk of cardiovascular disease, diabetes, and cancer among South Asian people. The National Institute for Health and Care Research (NIHR) funds research via a range of programmes, with eligibility criteria to support applicants to decide where to apply. Applications are subject to peer review and judged in open competition, with awards made on the basis of the importance of the topic to patients and health and care services, value for money, and scientific quality. The NIHR has provided funding for research projects associated with the South Asian Biobank through open competition, and welcomes any future applications. In addition, the NIHR provides funding to NIHR research infrastructure through open competition. The NIHR Imperial Biomedical Research Centre and the Clinical Research Network have provided support for the South Asian Biobank.</p> answering member constituency Pendle answering member printed Andrew Stephenson grouped question UIN 27023 question first answered 23/05/2024 07:42:45 answering member 4044 label Biography information for Andrew Stephenson
tabling member	4076 label Biography information for Valerie Vaz

1719042

registered interest
date	17/05/2024
answering body	Department of Health and Social Care
answering dept id	17
answering dept short name	Health and Social Care
answering dept sort name	Health and Social Care
hansard heading	Haemochromatosis: Diagnosis
house id	1
legislature	25259 pref label House of Commons
question text	To ask the Secretary of State for Health and Social Care, what assessment she has made of the adequacy of diagnosis rates for genetic haemochromatosis.
tabling member constituency	East Londonderry
tabling member printed	Mr Gregory Campbell
uin	26852
answer	answer is ministerial correction date of answer 22/05/2024 answer text <p>While data is not held centrally on diagnosis rates for genetic haemochromatosis, genomic testing for haemochromatosis is available through the NHS Genomic Medicines Service (GMS) for patients in England who show an unexplained iron overload, suggestive of genetic haemochromatosis. Any clinician who suspects haemochromatosis can order this testing via local genomic laboratory hubs.</p><p>Seven NHS GMS Alliances play an important role in supporting the strategic systematic embedding of genomic medicine in end-to-end clinical pathways and clinical specialities. They help to achieve equitable access to standardised end-to-end pathways of care, inclusive of genomic testing, clinical genetics, and genomic counselling services. The alliances also raise awareness among clinicians and the public of the genomic testing available through the National Health Service and drive this embedding across all providers within their geography, from primary and community care to secondary and tertiary care.</p> answering member constituency Pendle answering member printed Andrew Stephenson question first answered 22/05/2024 19:44:14 answering member 4044 label Biography information for Andrew Stephenson previous answer version 35987 answering member constituency Pendle answering member printed Andrew Stephenson answering member 4044 label Biography information for Andrew Stephenson
tabling member	1409 label Biography information for Mr Gregory Campbell

1719049

registered interest
date	17/05/2024
answering body	Department of Health and Social Care
answering dept id	17
answering dept short name	Health and Social Care
answering dept sort name	Health and Social Care
hansard heading	Neurofibromatosis: Breast Cancer
house id	1
legislature	25259 pref label House of Commons
question text	To ask the Secretary of State for Health and Social Care, if she will make an assessment of the potential merits of automatically notifying women with neurofibromatosis type 1 before their 40th birthday that they are eligible to attend breast cancer screening from the age of 40 years.
tabling member constituency	Blaydon
tabling member printed	Liz Twist
uin	26906
answer	answer is ministerial correction date of answer 23/05/2024 answer text <p>Currently women with neurofibromatosis type 1 (NF1) who are considered at moderate or high risk of breast cancer, can be referred through clinical professionals such as specialists in genetics or oncology for annual breast screening which is managed at a local level.</p><p>An assessment has not made of the potential merits of automatically notifying women with NF1 before they are 40 years old that they are eligible to attend breast cancer screening from the age of 40 years.</p> answering member constituency Pendle answering member printed Andrew Stephenson question first answered 23/05/2024 08:07:57 answering member 4044 label Biography information for Andrew Stephenson
tabling member	4618 label Biography information for Liz Twist

1719051

registered interest
date	17/05/2024
answering body	Department of Health and Social Care
answering dept id	17
answering dept short name	Health and Social Care
answering dept sort name	Health and Social Care
hansard heading	Neurofibromatosis: Breast Cancer
house id	1
legislature	25259 pref label House of Commons
question text	To ask the Secretary of State for Health and Social Care, what steps she has taken with NHS England to help raise awareness by (a) patients and (b) GPs of the increased risk of breast cancer in people with neurofibromatosis type 1.
tabling member constituency	Blaydon
tabling member printed	Liz Twist
uin	26907
answer	answer is ministerial correction date of answer 23/05/2024 answer text <p>The Department works with NHS England to raise awareness of cancers, including for people with increased risk of cancer. In January 2024, NHS England relaunched the Help Us Help You cancer awareness campaign, designed to increase earlier diagnosis by encouraging people to come forward with suspected signs of cancers.</p><p>For individuals with neurofibromatosis type 1 (NF1), who are at increased risk of breast cancer, the National Health Service in England recommends breast screening from the age of 40 years old. It is important that awareness of this is widespread among patients and general practices (GPs). Treatment for NF1 involves regular monitoring, and if a patient develops complex problems, their GP can usually refer them to one of two specialist NHS centres, so that a treatment plan can be drawn up. These centres are at Guy’s and St Thomas’ in London, and at Manchester University Hospital.</p><p>We expect clinicians to keep themselves appraised of developments within conditions, and to refer to the National Institute for Clinical Excellence guidance as part of their clinical decision-making process.</p> answering member constituency Pendle answering member printed Andrew Stephenson question first answered 23/05/2024 08:05:03 answering member 4044 label Biography information for Andrew Stephenson
tabling member	4618 label Biography information for Liz Twist

1719056

registered interest
date	17/05/2024
answering body	Department of Health and Social Care
answering dept id	17
answering dept short name	Health and Social Care
answering dept sort name	Health and Social Care
hansard heading	Dentistry: Mental Health Services
house id	1
legislature	25259 pref label House of Commons
question text	To ask the Secretary of State for Health and Social Care, pursuant to the Answer of 25 April 2024 to Question 23057 on Dentistry: Mental Health Services, what her Department's expected timetable is for publishing the findings of its review into its mental health and wellbeing offer.
tabling member constituency	Stockport
tabling member printed	Navendu Mishra
uin	26923
answer	answer is ministerial correction date of answer 23/05/2024 answer text <p>NHS England is in the process of reviewing its mental health and wellbeing offer for National Health Service staff, and has committed to completing this review in 2024/25.</p> answering member constituency Pendle answering member printed Andrew Stephenson question first answered 23/05/2024 08:01:42 answering member 4044 label Biography information for Andrew Stephenson
tabling member	4811 label Biography information for Navendu Mishra

1718758

registered interest
date	16/05/2024
answering body	Department of Health and Social Care
answering dept id	17
answering dept short name	Health and Social Care
answering dept sort name	Health and Social Care
hansard heading	Pancreatic Cancer: Research
house id	1
legislature	25259 pref label House of Commons
question text	To ask the Secretary of State for Health and Social Care, what steps her Department is taking to help improve (a) research into treatments for and (b) (i) emotional and (ii) financial support for people living with pancreatic cancer.
tabling member constituency	Putney
tabling member printed	Fleur Anderson
uin	26771
answer	answer is ministerial correction date of answer 23/05/2024 answer text <p>Research is crucial in tackling cancer, which is why the Department invests £1.3 billion per year in health research, through the National Institute for Health and Care Research (NIHR). NIHR research expenditure for all cancers was £121.8 million in 2022/23, and the NIHR spends more on cancer than any other disease group. <br> <br> The NIHR funded nine research projects on pancreatic cancer since 2018/19, with a committed funding value of £4.3 million. The NIHR continues to welcome funding applications for research into any aspect of human health, including pancreatic cancer. Applications are subject to peer review and judged in open competition. <br> <br> The NIHR also supports delivery of research into pancreatic cancer in the health and care system, funded by research funding partners in the charity and public sectors. Since 2018/19 the NIHR supported 73 clinical research studies through the Clinical Research Network. <br> <br> Additionally, NIHR Biomedical Research Centres (BRC) and NIHR Clinical Research Facilities spent a further £6.5 million between 2018/19 and 2022/23, supporting an annual portfolio of approximately 85 early clinical studies into pancreatic cancer. NIHR BRCs are collaborations between world-leading universities and National Health Service organisations, that bring together academics and clinicians to translate discoveries from basic or discovery science into clinical research. <br> <br> For emotional and financial support, patient feedback is monitored through the National Cancer Patient Experience Survey, with the latest results showing an overall experience of 8.88 out of 10. In areas such as support for health and wellbeing, and information on financial help, results were positive but showed room for improvement. NHS England continues to support trusts to take action to improve cancer patient support.</p> answering member constituency Pendle answering member printed Andrew Stephenson question first answered 23/05/2024 08:21:01 answering member 4044 label Biography information for Andrew Stephenson
tabling member	4788 label Biography information for Fleur Anderson

1718766

registered interest
date	16/05/2024
answering body	Department of Health and Social Care
answering dept id	17
answering dept short name	Health and Social Care
answering dept sort name	Health and Social Care
hansard heading	Breast Cancer: Screening
house id	1
legislature	25259 pref label House of Commons
question text	To ask the Secretary of State for Health and Social Care, if she will make an assessment of the potential merits of offering breast cancer screening to women going through early menopause.
tabling member constituency	Putney
tabling member printed	Fleur Anderson
uin	26776
answer	answer is ministerial correction date of answer 21/05/2024 answer text <p>The UK National Screening Committee (UK NSC) currently recommends that all women aged 50 to 71 years old are invited for a breast screening every three years. The AgeX trial is looking at the impact of increasing or decreasing the screening age for breast screening, and the UK NSC will review its findings when they are available.</p><p>The UK NSC can be alerted to any new published peer reviewed evidence which may suggest the case for a new screening programme, or changes to an existing one. Proposals can be submitted via the UK NSC’s annual call in July 2024, which is available at the following link:</p><p><a href="https://www.gov.uk/government/publications/uk-nsc-annual-call-submitting-a-screening-proposal/uk-nsc-annual-call-how-to-submit-a-proposal#:~:text=To%20submit%20a%20proposal%20for,your%20name" target="_blank">https://www.gov.uk/government/publications/uk-nsc-annual-call-submitting-a-screening-proposal/uk-nsc-annual-call-how-to-submit-a-proposal#:~:text=To%20submit%20a%20proposal%20for,your%20name</a></p> answering member constituency Pendle answering member printed Andrew Stephenson question first answered 21/05/2024 16:51:28 answering member 4044 label Biography information for Andrew Stephenson
tabling member	4788 label Biography information for Fleur Anderson

1718804

registered interest
date	16/05/2024
answering body	Department of Health and Social Care
answering dept id	17
answering dept short name	Health and Social Care
answering dept sort name	Health and Social Care
hansard heading	Chronic Fatigue Syndrome: Medical Treatments
house id	1
legislature	25259 pref label House of Commons
question text	To ask the Secretary of State for Health and Social Care, whether her Department (a) has and (b) plans to provide funding for new treatments for ME or chronic fatigue syndrome.
tabling member constituency	Leeds North East
tabling member printed	Fabian Hamilton
uin	26662
answer	answer is ministerial correction date of answer 21/05/2024 answer text <p>The Department, through the National Institute for Health and Care Research (NIHR), provides funding for research projects which aim to understand the underlying causes of myalgic encephalomyelitis, also known as chronic fatigue syndrome (ME/CFS), and find new treatments for the condition. As part of this, the NIHR and the Medical Research Council have funded the world’s largest genome-wide association study of ME/CFS. This £3.2 million study, termed DecodeME, will analyse samples from 25,000 people with ME/CFS to search for genetic differences that may indicate underlying causes, or an increased risk of developing the condition. By helping us to understand ME/CFS better, this research has the potential to lead to new treatments for the condition.</p><p>Integrated care boards (ICBs) are responsible for commissioning specialist ME/CFS services that meet the needs of their population, subject to local prioritisation and funding. The process of commissioning services should take into account best practice guidance, such as the National Institute for Health and Care Excellence’s guidance on ME/CFS diagnosis and management, published in October 2021. In addition, in October 2023, the British Association of Clinicians in ME/CFS published the ME/CFS National Services Survey. This report provides insight into the services being delivered for adults, children, and young people with ME/CFS.</p> answering member constituency Pendle answering member printed Andrew Stephenson grouped question UIN 26663 question first answered 21/05/2024 08:08:03 answering member 4044 label Biography information for Andrew Stephenson
tabling member	415 label Biography information for Fabian Hamilton

1718805

registered interest
date	16/05/2024
answering body	Department of Health and Social Care
answering dept id	17
answering dept short name	Health and Social Care
answering dept sort name	Health and Social Care
hansard heading	Chronic Fatigue Syndrome: Health Services
house id	1
legislature	25259 pref label House of Commons
question text	To ask the Secretary of State for Health and Social Care, if she will make an assessment of the adequacy of NHS provision of specialist ME or chronic fatigue syndrome services; and if she will take steps to increase the number of clinicians who specialise in ME or chronic fatigue syndrome.
tabling member constituency	Leeds North East
tabling member printed	Fabian Hamilton
uin	26663
answer	answer is ministerial correction date of answer 21/05/2024 answer text <p>The Department, through the National Institute for Health and Care Research (NIHR), provides funding for research projects which aim to understand the underlying causes of myalgic encephalomyelitis, also known as chronic fatigue syndrome (ME/CFS), and find new treatments for the condition. As part of this, the NIHR and the Medical Research Council have funded the world’s largest genome-wide association study of ME/CFS. This £3.2 million study, termed DecodeME, will analyse samples from 25,000 people with ME/CFS to search for genetic differences that may indicate underlying causes, or an increased risk of developing the condition. By helping us to understand ME/CFS better, this research has the potential to lead to new treatments for the condition.</p><p>Integrated care boards (ICBs) are responsible for commissioning specialist ME/CFS services that meet the needs of their population, subject to local prioritisation and funding. The process of commissioning services should take into account best practice guidance, such as the National Institute for Health and Care Excellence’s guidance on ME/CFS diagnosis and management, published in October 2021. In addition, in October 2023, the British Association of Clinicians in ME/CFS published the ME/CFS National Services Survey. This report provides insight into the services being delivered for adults, children, and young people with ME/CFS.</p> answering member constituency Pendle answering member printed Andrew Stephenson grouped question UIN 26662 question first answered 21/05/2024 08:08:03 answering member 4044 label Biography information for Andrew Stephenson
tabling member	415 label Biography information for Fabian Hamilton