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<p>In July 2016, the Government set out its commitment to everyone at the end of life
in the Government response to the independent Review of Choice in End of Life Care.
Our Commitment to you for end of life care set out what everyone should expect from
their care at the end of life and the actions we are taking to make high quality and
personalisation a reality for all, both adults and children, and to end variation
in end of life care across the health system by 2020. On 21 September 2017 we published
One year on: the government response to the review of choice in end of life care,
an assessment of the progress made in delivering this over the first year. Copies
of the Choice Commitment and the progress report can be found at the following links:</p><p>
</p><p><a href="http://www.gov.uk/government/publications/choice-in-end-of-life-care-government-response"
target="_blank">www.gov.uk/government/publications/choice-in-end-of-life-care-government-response</a></p><p>
</p><p><a href="http://www.gov.uk/government/publications/choice-in-end-of-life-care-government-progress"
target="_blank">www.gov.uk/government/publications/choice-in-end-of-life-care-government-progress</a></p><p>
</p><p>Through the Mandate, we have asked NHS England to deliver the Choice Commitment,
and working through NHS England’s National Programme Board for End of life Care with
all key system partners and stakeholders, including the children’s end of life care
charity Together for Short Lives. In the 2017-18 Mandate we asked for the identification
of metrics to assess quality and choice in end of life care. As a result, we have
in place a new indicator to measure the proportion of people with three or more emergency
admissions in their final 90 days of life, which will help us assess how well patients
with end of life care needs are being supported by local health and care services
out of hospital and in the community.</p><p> </p><p>For 2018-19, the Government’s
Mandate asks NHS England to increase the percentage of people identified as likely
to be in their last year of life, so that their end of lifecare can be improved by
personalising it according to their needs and preferences at an earlier stage. NHS
England will use the Quality Outcomes Framework to demonstrate such an increase by
looking at the percentage of people who are on the general practitioner register for
supportive and palliative care, and consider expected levels based on local populations.
Further work will also be undertaken to develop indicators that will enable NHS England
to assess the effectiveness of local health economies in delivering choice and quality
in end of life care in line with the Government’s commitment.</p><p> </p><p>NHS England
knows that it can be difficult for some commissioners to develop suitable commissioning
models for children with palliative and end of care needs, given the relatively small
number of children concerned and their geographical spread. NHS England has established
a Task and Finish Group to bring together knowledge and expertise in children’s end
of life care to consider the development of commissioning models suitable for this
vulnerable group of patients. The group met for the first time on 31 May 2018.</p>
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