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906407

registered interest
date	17/05/2018
answering body	Department of Health and Social Care
answering dept id	17
answering dept short name	Health and Social Care
answering dept sort name	Health and Social Care
hansard heading	Rare Diseases
house id	1
legislature	25259 pref label House of Commons
question text	To ask the Secretary of State for Health and Social Care, what steps he is taking to increase investment in research into rare conditions.
tabling member constituency	North Swindon
tabling member printed	Justin Tomlinson
uin	145326
answer	answer is ministerial correction date of answer 24/05/2018 answer text <p>The Government supports research into common and rare diseases through the National Institute for Health Research (NIHR). In 2016 my Rt. hon. Friend the Secretary of State for Health and Social Care announced a £816 million investment in the NIHR Biomedical Research Centres, over five years from 1 April 2017, which has been awarded to 20 leading National Health Service and university partnerships across England. Each of the 20 NIHR Biomedical Research Centres hosts the development of new, ground-breaking treatments, diagnostics, prevention and care for patients in a wide range of diseases and has considerable expertise, capacity and activity in research for rare diseases.</p><p> </p><p>The NIHR Clinical Research Network is available to support the set-up and timely delivery of commercial and non-commercial studies and trials in England which would include studies on rare diseases.</p><p> </p><p>Rare diseases patients also benefit from the pioneering research as part of the 100,000 Genomes Project. As of late 2017, over 2,000 researchers in 342 United Kingdom and international institutions were part of Genomics England’s Clinical Interpretation Partnership, which have been set up improve understanding of genomic medicine and its application to healthcare; improve understanding of diseases; and lead the way to developing new diagnostics and treatments.</p> answering member constituency Gosport answering member printed Caroline Dinenage question first answered 24/05/2018 11:11:09 answering member 4008 label Biography information for Dame Caroline Dinenage
tabling member	4105 label Biography information for Justin Tomlinson

906409

registered interest
date	17/05/2018
answering body	Department of Health and Social Care
answering dept id	17
answering dept short name	Health and Social Care
answering dept sort name	Health and Social Care
hansard heading	Trigeminal Neuralgia
house id	1
legislature	25259 pref label House of Commons
question text	To ask the Secretary of State for Health and Social Care, what steps he is taking to increase investment in research into trigeminal neuralgia.
tabling member constituency	North Swindon
tabling member printed	Justin Tomlinson
uin	145327
answer	answer is ministerial correction date of answer 23/05/2018 answer text <p>The Department funds research mainly through the National Institute for Health Research (NIHR). The usual practice of the NIHR and other research funders is not to ring-fence funds for expenditure on particular topics. The NIHR welcomes funding applications for research into any aspect of human health, including on trigeminal neuralgia.</p><p> </p><p>Applications are subject to peer review and judged in open competition, with awards being made on the basis of the importance of the topic to patients and health and care services, value for money and scientific quality. The amount of NIHR funding in a disease area therefore depends on the quality and volume of scientific activity.</p><p> </p><p>The NIHR Clinical Research Network is available to support the set-up and timely delivery of commercial and non-commercial studies and trials in England which would include studies on trigeminal neuralgia. The NIHR has previously funded research projects on chronic facial pain as part of the range of NIHR training schemes that support future research leaders and would welcome further applications for training awards based on research on trigeminal neuralgia.</p> answering member constituency Gosport answering member printed Caroline Dinenage grouped question UIN 145329 question first answered 23/05/2018 11:06:01 answering member 4008 label Biography information for Dame Caroline Dinenage
tabling member	4105 label Biography information for Justin Tomlinson

906411

registered interest
date	17/05/2018
answering body	Department of Health and Social Care
answering dept id	17
answering dept short name	Health and Social Care
answering dept sort name	Health and Social Care
hansard heading	Trigeminal Neuralgia
house id	1
legislature	25259 pref label House of Commons
question text	To ask the Secretary of State for Health and Social Care, what his Department's policy is on commissioning research into trigeminal neuralgia.
tabling member constituency	North Swindon
tabling member printed	Justin Tomlinson
uin	145329
answer	answer is ministerial correction date of answer 23/05/2018 answer text <p>The Department funds research mainly through the National Institute for Health Research (NIHR). The usual practice of the NIHR and other research funders is not to ring-fence funds for expenditure on particular topics. The NIHR welcomes funding applications for research into any aspect of human health, including on trigeminal neuralgia.</p><p> </p><p>Applications are subject to peer review and judged in open competition, with awards being made on the basis of the importance of the topic to patients and health and care services, value for money and scientific quality. The amount of NIHR funding in a disease area therefore depends on the quality and volume of scientific activity.</p><p> </p><p>The NIHR Clinical Research Network is available to support the set-up and timely delivery of commercial and non-commercial studies and trials in England which would include studies on trigeminal neuralgia. The NIHR has previously funded research projects on chronic facial pain as part of the range of NIHR training schemes that support future research leaders and would welcome further applications for training awards based on research on trigeminal neuralgia.</p> answering member constituency Gosport answering member printed Caroline Dinenage grouped question UIN 145327 question first answered 23/05/2018 11:06:01 answering member 4008 label Biography information for Dame Caroline Dinenage
tabling member	4105 label Biography information for Justin Tomlinson

906419

registered interest
date	17/05/2018
answering body	Department of Health and Social Care
answering dept id	17
answering dept short name	Health and Social Care
answering dept sort name	Health and Social Care
hansard heading	Social Services: Minimum Wage
house id	1
legislature	25259 pref label House of Commons
question text	To ask the Secretary of State for Health and Social Care, pursuant to the Answer of 11 May 2018 to Question 141873, what progress has been made on evaluating the potential impact to the sector of sleep-in back-pay liabilities; and which care sector representatives have been consulted with respect to that evaluation.
tabling member constituency	Totnes
tabling member printed	Dr Sarah Wollaston
uin	145323
answer	answer is ministerial correction date of answer 23/05/2018 answer text <p>The Government commissioned market analysis in order to understand the scale of the national minimum wage back-pay liabilities across the social care sector, which was open to all providers across the social care sector. This work is currently subject to further analysis and refinement.</p><p> </p><p>Due to the sensitive nature of this work, no data that could be used to identify providers or local authorities has been shared with any Government department.</p><p> </p><p>Officials meet regularly with various sector representatives including members of Learning Disability Voices, Voluntary Organisations Disability Group, Care England, the Local Government Association, the Association of Directors of Adult Social Services, and others – to better understand the impact this issue is having on the sector.</p> answering member constituency Gosport answering member printed Caroline Dinenage question first answered 23/05/2018 11:07:24 answering member 4008 label Biography information for Dame Caroline Dinenage
tabling member	4073 label Biography information for Dr Sarah Wollaston

906420

registered interest
date	17/05/2018
answering body	Department of Health and Social Care
answering dept id	17
answering dept short name	Health and Social Care
answering dept sort name	Health and Social Care
hansard heading	Social Services: Minimum Wage
house id	1
legislature	25259 pref label House of Commons
question text	To ask the Secretary of State for Health and Social Care, pursuant to the Answer of 26 March 2018 to Question 133443, on Social Services: Minimum Wage, what timescale he has for discussions with the European Commission.
tabling member constituency	Totnes
tabling member printed	Dr Sarah Wollaston
uin	145324
answer	answer is ministerial correction date of answer 23/05/2018 answer text <p>Officials opened discussions with representatives from the European Commission on 6 December 2017. These discussions are ongoing.</p><p> </p><p>The Government will continue to engage with the European Commission to determine how any support that may be offered would comply with State aid rules.</p> answering member constituency Gosport answering member printed Caroline Dinenage question first answered 23/05/2018 11:02:42 answering member 4008 label Biography information for Dame Caroline Dinenage
tabling member	4073 label Biography information for Dr Sarah Wollaston

906434

registered interest
date	17/05/2018
answering body	Department of Health and Social Care
answering dept id	17
answering dept short name	Health and Social Care
answering dept sort name	Health and Social Care
hansard heading	Disability
house id	1
legislature	25259 pref label House of Commons
question text	To ask the Secretary of State for Health and Social Care, how many people there are with registered disabilities in each clinical commissioning group area in Kent.
tabling member constituency	Gillingham and Rainham
tabling member printed	Rehman Chishti
uin	145311
answer	answer is ministerial correction date of answer 23/05/2018 answer text <p>Information on the number of people with registered disabilities in each clinical commissioning group area in Kent is not collected centrally.</p> answering member constituency Gosport answering member printed Caroline Dinenage question first answered 23/05/2018 11:04:24 answering member 4008 label Biography information for Dame Caroline Dinenage
tabling member	3987 label Biography information for Rehman Chishti

905555

registered interest
date	16/05/2018
answering body	Department of Health and Social Care
answering dept id	17
answering dept short name	Health and Social Care
answering dept sort name	Health and Social Care
hansard heading	Babies: Death
house id	1
legislature	25259 pref label House of Commons
question text	To ask the Secretary of State for Health and Social Care, when the Health Service Investigation Branch plans to being its investigation into avoidable baby deaths.
tabling member constituency	Weaver Vale
tabling member printed	Mike Amesbury
uin	144994
answer	answer is ministerial correction date of answer 21/05/2018 answer text <p>In November 2017, my Rt. hon. Friend the Secretary of State announced that, from April 2018, the Health Service Investigation Branch (HSIB) would investigate each case of early neonatal death, term intrapartum stillbirth and severe brain injury in babies, as well as each case of maternal death in England. This remit and the definition of qualifying maternity cases was set out in the Secretary of State’s directions, NHS Trust Development Authority (HSIB Maternity Investigations) Directions 2018, published on 26 April 2018.</p><p> </p><p>The new investigative approach began in a single region in April 2018 and will roll out to all areas of England during 2018/19. Rollout will be complete by the end of March 2019. It is estimated that there are approximately 1,000 cases of birth-related deaths or serious brain injuries in babies in England every year. The expectation is that the learning from investigations will spur system improvements leading to fewer deaths and injuries in the future.</p><p> </p><p>The HSIB has been allocated £8 million of additional funding to implement the new maternity investigation programme in 2018/19.</p><p> </p><p>The HSIB will produce an investigation report for each maternity investigation it undertakes and will make recommendations to the relevant National Health Service trust or foundation trust.</p><p> </p><p>It will be for individual trusts to put into place actions to address the recommendations of individual reports and ensure that the learning from HSIB investigations is put into practice so that avoidable harms are reduced. The Care Quality Commission, which monitors, inspects and regulates NHS providers does, in carrying out its functions, take into account a variety of data and intelligence sources. The HSIB maternity investigation recommendations and the actions NHS trusts and foundation trusts have taken in response could form part of these data sources and be taken into account where relevant.</p> answering member constituency Gosport answering member printed Caroline Dinenage grouped question UIN 144995 144996 question first answered 21/05/2018 14:01:43 answering member 4008 label Biography information for Dame Caroline Dinenage
tabling member	4667 label Biography information for Mike Amesbury

905556

registered interest
date	16/05/2018
answering body	Department of Health and Social Care
answering dept id	17
answering dept short name	Health and Social Care
answering dept sort name	Health and Social Care
hansard heading	Babies: Death
house id	1
legislature	25259 pref label House of Commons
question text	To ask the Secretary of State for Health and Social Care, what additional (a) funding and (b) resources have been allocated to the Health Service Investigation Branch for its investigation into avoidable baby deaths; and what the timeframe is for that funding.
tabling member constituency	Weaver Vale
tabling member printed	Mike Amesbury
uin	144995
answer	answer is ministerial correction date of answer 21/05/2018 answer text <p>In November 2017, my Rt. hon. Friend the Secretary of State announced that, from April 2018, the Health Service Investigation Branch (HSIB) would investigate each case of early neonatal death, term intrapartum stillbirth and severe brain injury in babies, as well as each case of maternal death in England. This remit and the definition of qualifying maternity cases was set out in the Secretary of State’s directions, NHS Trust Development Authority (HSIB Maternity Investigations) Directions 2018, published on 26 April 2018.</p><p> </p><p>The new investigative approach began in a single region in April 2018 and will roll out to all areas of England during 2018/19. Rollout will be complete by the end of March 2019. It is estimated that there are approximately 1,000 cases of birth-related deaths or serious brain injuries in babies in England every year. The expectation is that the learning from investigations will spur system improvements leading to fewer deaths and injuries in the future.</p><p> </p><p>The HSIB has been allocated £8 million of additional funding to implement the new maternity investigation programme in 2018/19.</p><p> </p><p>The HSIB will produce an investigation report for each maternity investigation it undertakes and will make recommendations to the relevant National Health Service trust or foundation trust.</p><p> </p><p>It will be for individual trusts to put into place actions to address the recommendations of individual reports and ensure that the learning from HSIB investigations is put into practice so that avoidable harms are reduced. The Care Quality Commission, which monitors, inspects and regulates NHS providers does, in carrying out its functions, take into account a variety of data and intelligence sources. The HSIB maternity investigation recommendations and the actions NHS trusts and foundation trusts have taken in response could form part of these data sources and be taken into account where relevant.</p> answering member constituency Gosport answering member printed Caroline Dinenage grouped question UIN 144994 144996 question first answered 21/05/2018 14:01:43 answering member 4008 label Biography information for Dame Caroline Dinenage
tabling member	4667 label Biography information for Mike Amesbury

905557

registered interest
date	16/05/2018
answering body	Department of Health and Social Care
answering dept id	17
answering dept short name	Health and Social Care
answering dept sort name	Health and Social Care
hansard heading	Babies: Death
house id	1
legislature	25259 pref label House of Commons
question text	To ask the Secretary of State for Health and Social Care, whether hospitals are compelled to accept and act on Health Service Investigation Branch recommendations that result from the investigation of avoidable baby deaths.
tabling member constituency	Weaver Vale
tabling member printed	Mike Amesbury
uin	144996
answer	answer is ministerial correction date of answer 21/05/2018 answer text <p>In November 2017, my Rt. hon. Friend the Secretary of State announced that, from April 2018, the Health Service Investigation Branch (HSIB) would investigate each case of early neonatal death, term intrapartum stillbirth and severe brain injury in babies, as well as each case of maternal death in England. This remit and the definition of qualifying maternity cases was set out in the Secretary of State’s directions, NHS Trust Development Authority (HSIB Maternity Investigations) Directions 2018, published on 26 April 2018.</p><p> </p><p>The new investigative approach began in a single region in April 2018 and will roll out to all areas of England during 2018/19. Rollout will be complete by the end of March 2019. It is estimated that there are approximately 1,000 cases of birth-related deaths or serious brain injuries in babies in England every year. The expectation is that the learning from investigations will spur system improvements leading to fewer deaths and injuries in the future.</p><p> </p><p>The HSIB has been allocated £8 million of additional funding to implement the new maternity investigation programme in 2018/19.</p><p> </p><p>The HSIB will produce an investigation report for each maternity investigation it undertakes and will make recommendations to the relevant National Health Service trust or foundation trust.</p><p> </p><p>It will be for individual trusts to put into place actions to address the recommendations of individual reports and ensure that the learning from HSIB investigations is put into practice so that avoidable harms are reduced. The Care Quality Commission, which monitors, inspects and regulates NHS providers does, in carrying out its functions, take into account a variety of data and intelligence sources. The HSIB maternity investigation recommendations and the actions NHS trusts and foundation trusts have taken in response could form part of these data sources and be taken into account where relevant.</p> answering member constituency Gosport answering member printed Caroline Dinenage grouped question UIN 144994 144995 question first answered 21/05/2018 14:01:43 answering member 4008 label Biography information for Dame Caroline Dinenage
tabling member	4667 label Biography information for Mike Amesbury

905580

registered interest
date	16/05/2018
answering body	Department of Health and Social Care
answering dept id	17
answering dept short name	Health and Social Care
answering dept sort name	Health and Social Care
hansard heading	Continuing Care
house id	1
legislature	25259 pref label House of Commons
question text	To ask the Secretary of State for Health and Social Care, what assessment he has made of the effect on health outcomes of a reduction in the NHS Continuing Healthcare budget.
tabling member constituency	Burnley
tabling member printed	Julie Cooper
uin	144945
answer	answer is ministerial correction date of answer 23/05/2018 answer text <p>NHS England’s NHS Continuing Healthcare Strategic Improvement Programme was launched in April 2017, and aims to provide fair access to NHS Continuing Healthcare in a way which ensures better outcomes, better experience, and better use of resources.</p><p> </p><p>The programme does not aim to reduce spending on NHS Continuing Healthcare, but to reduce the rate of growth of expenditure. The projection is for spending on NHS Continuing Healthcare to increase by over 20% by 2020/21, or an average of approximately 3.9% per year.</p><p> </p><p>NHS England’s NHS Continuing Healthcare Strategic Improvement Programme will not change the threshold for eligibility for NHS Continuing Healthcare, which is based on a multidisciplinary assessment of needs as set out in the National Framework for NHS Continuing Healthcare and NHS-funded Nursing Care, together with secondary legislation to give statutory effect to the eligibility criteria and the decision-making processes.</p> answering member constituency Gosport answering member printed Caroline Dinenage question first answered 23/05/2018 11:00:27 answering member 4008 label Biography information for Dame Caroline Dinenage
tabling member	4405 label Biography information for Julie Cooper