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<p>‘My Full Reality’, the cross-government Interim Delivery Plan on myalgic encephalomyelitis/chronic
fatigue syndrome (ME/CFS) was published on 9 August 2023. The Plan aims to improve
experiences and outcomes for people with ME/CFS by setting out agreed actions to drive
an expansion of research, better education of professionals, improvements in attitudes
towards the condition, and improvements to service provision. Alongside the Plan we
have published an eight-week consultation to build a picture of how well the Plan
meets the needs of the ME/CFS community, and to highlight any significant gaps where
further action may be necessary. The Plan and consultation are available at the following
link:</p><p><a href="https://www.gov.uk/government/consultations/improving-the-experiences-of-people-with-mecfs-interim-delivery-plan/my-full-reality-the-interim-delivery-plan-on-mecfs"
target="_blank">https://www.gov.uk/government/consultations/improving-the-experiences-of-people-with-mecfs-interim-delivery-plan/my-full-reality-the-interim-delivery-plan-on-mecfs</a></p><p>We
have made no assessment of the implications of the report published by Action for
ME, ‘Implementation of the NICE Guideline [NG206] on Myalgic Encephalomyelitis/Chronic
Fatigue Syndrome in England’, the adequacy of implementation of the National Institute
for Health and Care Excellence (NICE) guideline on ME/CFS, or on the provision of
specialist services for people with ME/CFS.</p><p>Integrated care boards (ICBs) are
responsible for commissioning services for people with ME/CFS to meet local needs.
In making commissioning decisions, we would expect ICBs to consider guidelines published
by NICE.</p>
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