answer text |
<p>Information concerning the number of people diagnosed with epilepsy in each of
the last 10 years is not collected.</p><p><br> NHS England is responsible for securing
high quality outcomes for people with long term conditions, including epilepsy. Prompt
diagnosis, treatment and seizure control is key to improving outcomes for people with
epilepsy. Once diagnosed and receiving the right anti-epileptic drugs the majority
of people with epilepsy can achieve good seizure control. In its guideline, <em>Epilepsies:
diagnosis and management</em>, published in 2012, the National Institute for Health
and Care Excellence recommends the people having a first seizure should be seen as
soon as possible by a specialist with training and expertise in epilepsy.</p><p><br>
For those whose epilepsy cannot be satisfactorily controlled or whose condition cannot
be appropriately diagnosed NHS England commissions specialised neurological services
nationally:</p><p> </p><p><a href="http://www.england.nhs.uk/wp-content/uploads/2013/06/d04-neurosci-spec-neuro.pdf"
target="_blank">www.england.nhs.uk/wp-content/uploads/2013/06/d04-neurosci-spec-neuro.pdf</a></p><p>
</p><p>NHS England has published adult and paediatric specifications setting out what
providers must have in place to offer specialised care for patients with neurological
problems, including epilepsy:</p><p> </p><p><a href="http://www.england.nhs.uk/wp-content/uploads/2013/06/e09-paedi-neurology.pdf"
target="_blank">www.england.nhs.uk/wp-content/uploads/2013/06/e09-paedi-neurology.pdf</a></p><p>
</p><p>In addition, NHS England also commissions a national Children’s Epilepsy Surgery
Service, designed to improve the uptake and access to surgery in those children for
whom surgical control or amelioration for their epilepsy is a possibility:</p><p>
</p><p><a href="http://www.england.nhs.uk/wp-content/uploads/2013/06/e09-child-epilepsy-surg.pdf"
target="_blank">www.england.nhs.uk/wp-content/uploads/2013/06/e09-child-epilepsy-surg.pdf</a></p><p>
</p><p>Regarding clinical audit, the Healthcare Quality Improvement Partnership commissions,
develops and manages the National Clinical Audit and Patient Outcomes Programme (NCAPOP),
on behalf of NHS England, Wales and other devolved administrations. Whilst there is
no specific morbidity audit planned that covers all cases of epilepsy, the following
NCAPOP audits and reviews are of relevance: <br></p><p>- The audit for paediatric
epilepsy, which is being re-commissioned this year, looks at the quality of healthcare
services for children and young people with epilepsy in the United Kingdom. The audit
is managed by the Royal College of Paediatrics and Child Health and the first audit
report can be found at the following link:</p><p> </p><p><a href="http://www.rcpch.ac.uk/news/variation-care-children-epilepsy-revealed-first-uk-wide-audit"
target="_blank">www.rcpch.ac.uk/news/variation-care-children-epilepsy-revealed-first-uk-wide-audit</a></p><p>
</p><p>- The 2013 review report into cases of mortality and prolonged seizures in
children and young people with epilepsies that was managed by the RCPCH. The report
is available at the following link:</p><p> </p><p><a href="http://www.rcpch.ac.uk/child-health-reviews-uk/programme-findings/programme-findings-chr-uk"
target="_blank">www.rcpch.ac.uk/child-health-reviews-uk/programme-findings/programme-findings-chr-uk</a></p><p>
</p><p>- The recently commissioned National Mortality Case Record Review; Programme
for England and Scotland which aims to improve understanding and learning about problems
in care that may have contributed to a patient’s death:</p><p> </p><p><a href="http://www.rcplondon.ac.uk/news/rcp-hosts-pioneering-national-mortality-case-record-review-programme"
target="_blank">www.rcplondon.ac.uk/news/rcp-hosts-pioneering-national-mortality-case-record-review-programme</a></p><p>
</p><p>- The Maternal, Newborn and Infant Clinical Outcome Review Programme will be
undertaking a review of cases of mortality and morbidity for pregnant women with severe
epilepsy that will report in December 2017. This will be carried out by MBRRACE-UK
at The University of Oxford. Further information can be found at the following:</p><p>
</p><p><a href="http://www.npeu.ox.ac.uk/mbrrace-uk/topic-proposals" target="_blank">www.npeu.ox.ac.uk/mbrrace-uk/topic-proposals</a></p>
|
|